Generated by All in One SEO v5.0.0.1, this is an llms.txt file, used by LLMs to index the site. # Multiple experienceS a day in the life with multiple sclerosis ## Sitemaps - [XML Sitemap](https://multipleexperiences.org/sitemap.xml): Contains all public & indexable URLs for this website. ## Posts - [Twenty Seven Years with Multiple Sclerosis](https://multipleexperiences.org/2026/06/12/twenty-seven-years-with-multiple-sclerosis/) - Twenty-seven years. That is how long I have lived with multiple sclerosis. When I was first diagnosed, I couldn’t imagine what nearly three decades with this disease would look like. I didn’t know how much it would take from me, how many adjustments I would make, or how many versions of myself I would have - [It’s always about Boomer](https://multipleexperiences.org/2026/05/14/its-always-about-boomer/) - I’m reposting a blog about my dog Boomer. He actually has quite a number of blogs, but I think this explains how much I love him. The reason why is because I bought this box on Amazon that brought them back. It took his picture and made an AI version of him. You can find - [Hello my overseas friends](https://multipleexperiences.org/2026/01/13/hello-my-overseas-friends/) - Hello to my overseas friends. My blog has been doing really well for a couple of months thanks to my oversee friends. I’m not sure that my blog translates but I’m happy that other countries show interest in my subject matter. Multiple sclerosis is seen quite less in areas such as China and/or Singapore but - [Tinnitus with Multiple Sclerosis](https://multipleexperiences.org/2025/11/03/tinnitus-with-multiple-sclerosis/) - Tinnitus and multiple sclerosis - [Don’t Worry Be Happy](https://multipleexperiences.org/2025/04/01/7973/) - I realized in my day to day life, regardless of my monotony, I am pretty happy. My multiple sclerosis has come to a point where my disability has limited my life participation. I spend most of my day watching television from my bed. Currently I have been watching old seasons of Law and Order SVU. - [No MRI changes but MS Worsening, Pool Theory](https://multipleexperiences.org/2025/01/28/no-mri-changes-but-ms-worsening-pool-theory/) - I wrote this blog a long time ago. I am reposting it because I just had my annual MRI. My doctor was happy to report that my MRI had no changes. No changes but my right side disability has not only caught up to my left side. It usually is worse. My right side that - [New Year, New Post](https://multipleexperiences.org/2025/01/06/new-year-new-post/) - I made two simple resolutions this coming year; to join the Marianne Williamson daily workshop on both A Course in Miracles text and workbook and post blog posts again. Two very simple things that are easy to do. Plus two things that ultimately make me happy. So here I am with my first blog post - [Crazy Spasm](https://multipleexperiences.org/2024/08/29/crazy-spasm/) - For anyone that has pain with your multiple sclerosis or pain with any other disorder, I honestly have a lot of sympathy for you. I experienced a spasm that caused so much pain I couldn’t even move. It started as what I call an indigestion bubble. You ever get that gas bubble that travels trough - [Hello](https://multipleexperiences.org/2024/07/29/hello/) - I’m still here. I have kept the blog. I know it’s been a long time since I have written anything but I have to admit I haven’t had much to say. My life is very quiet now. I choose it to be that way. I find it easier. I still workout in the mornings but - [A Jamie update](https://multipleexperiences.org/2023/12/12/a-jamie-update/) - I have so much to catch you up on, I’m not really sure where to start. I seem to have the UTI’s under control. I’ve made it two months without needing antibiotics. I am talking a prophylactic antibiotic nightly as a precaution. Hopefully I am through the cycle I was living inside. I was also - [Do We Continue MS Disease Therapy Drugs?](https://multipleexperiences.org/2023/10/04/do-we-continue-ms-disease-therapy-drugs/) - I’m faced with a major decision coming up soon. Do I continue taking Rituxan? Not only Rituxan but any disease modifying therapies. I’ve been plagued with infections. I do believe that all of these infections have not only been difficult for me mentally but have played a significant part in the worsening of my symptoms. - [Could Diet and Holistic Medication Cure MS?](https://multipleexperiences.org/2023/09/28/could-diet-and-holistic-medication-cure-ms/) - Hello, yes, I’m still here. I’m actually doing ok. Nothing has changed. I’m still dealing with UTIs and GI issues but they’ve been improving. I have season 2 of Alone playing in the background. The episode I am on has 4 people left. One of the participants is a woman with multiple sclerosis. I didn’t - [My beautiful Mary](https://multipleexperiences.org/2023/09/11/my-beautiful-mary/) - I want to dedicate this blog to a friend that recently passed away. My heart is broken that this girl will no longer be around. Mary is the sister of my ex-boyfriend. Over the twelve years of knowing her, she became a sister to me. Mary was always my dog babysitter anytime I went away. - [Stopping Disease Modifying Therapy Drug](https://multipleexperiences.org/2023/08/16/stopping-disease-modifying-therapy-drug/) - I had a conversation this morning with my neurologist. This was my specialist in NYC however I did have the conversation with my other neurologist last month. It is on a topic we have been questioning with every UTI I’ve dealt with since April. Is it worth continuing suppressing my immune system anymore? I have - [Wheelchair Isn’t Only For Transportation](https://multipleexperiences.org/2023/07/28/wheelchair-isnt-only-for-transportation/) - So I have to say I’ve never been so happy to have my chair. Who knew that I would have missed my chair so much. I am not one who usually spreads love to Kit, my main wheelchair. I probably spend more time cursing at some misfunction or slow maneuver. However, I never realized how - [Finally Getting My Wheelchair](https://multipleexperiences.org/2023/07/25/finally-getting-my-wheelchair/) - I’m finally going to pick up my wheelchair today. Only took two and a half months. I have already placed a call to my physical therapist. I now will have a lot of work to do trying to rebuild the strength I lost. I don’t have any physical therapy days left for the year so - [My Other Issues](https://multipleexperiences.org/2023/07/17/my-other-issues/) - Today my wheelchair is supposed to be picked up. They will be taking my chair back to the shop to fix. I find it amazing that they can afford to send a courier to pickup the chair but can’t send a technician out to repair the chair. The company is so short staffed that the - [Broken Wheelchair](https://multipleexperiences.org/2023/07/10/broken-wheelchair/) - I have the same routine every morning. I’m up at 7am to be changed by my aides. I always get out of bed so I could feed my dogs. I like to be the one that feeds them so they know I’m still mom. I workout as soon as I am back in my bed. - [I’m Still Here](https://multipleexperiences.org/2023/07/07/__trashed-3/) - I’m here for at least one more year. My domain name multiple experiences is paid for until the end of June, 2024. If it came due this year, I would not have renewed. I don’t know if that is fate. Maybe I’ll find solace again in blogging. I definitely lost my love for writing since - [I’m writing a blog](https://multipleexperiences.org/2023/05/31/im-writing-a-blog/) - I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since Wordpress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before - [Visit From my Friend](https://multipleexperiences.org/2023/06/08/visit-from-my-friend/) - Living on Long Island I had the dark yellow color skies due to the Canada wildfires. I felt like I was living in an eerie Stephen King novel. As eerie as my sky was, NYC was still way worse. The sky there was so dark you couldn’t see buildings in front of your face. That - [Still have a UTI](https://multipleexperiences.org/2023/05/01/still-have-a-uti/) - Hello to all!!! I am still fighting the good fight here. I just got back my second urine culture which showed positive still for an infection. Yet at the bottom in this one little line is >=3 organisms probable collection contamination. Well how is that possible??? I know we got a clean sample from the - [What I Wish I Did](https://multipleexperiences.org/2023/04/19/what-i-wish-i-did/) - I’ve been watching the Deadliest Catch. I would love to be on one of those Alaskan crab boat’s during those crazy weather storms. I would NEVER be a crabber but would LOVE to be in the wheelhouse. I would probably choose the Saga to hang out with Jake. He is one of the younger captains. - [A little truthful tale](https://multipleexperiences.org/2023/04/17/a-little-truthful-tale/) - Hello again. I’m on a roll now. So it was official, lab confirmed, a UTI. I saw my doctor last week. This could have become a dangerous situation for me. I could have wound up once again in the hospital needing IV antibiotics. I could have even ended up septic if the bacteria got into - [A UTI I Should Have Known](https://multipleexperiences.org/2023/04/14/a-uti-i-should-have-known/) - Good morning everyone. So, looks like my latest stretch of the last few weeks of suffering might be due to a UTI. Even though we are still waiting on the lab results, my doctor prescribed me antibiotics yesterday. However, when the culture does come back, we might have to change antibiotics based on the strain. - [A Lesson in a Course in Miracles](https://multipleexperiences.org/2023/04/03/a-lesson-in-a-course-in-miracles/) - I was practicing my Course in Miracles yesterday, and the days lesson was Miracles are seen in the Light. The idea of the lesson is that you are not your body. It is not your body’s eyes that see, it is your spirit that sees. It is your in your spiritual eyes that miracles are - [My daughter is home again](https://multipleexperiences.org/2023/03/13/my-daughter-is-home-again/) - Morning. Happy Monday!!! It’s freezing in NY. I’m actually wearing a sweatshirt for the third time this entire winter. I am still cold. I might even turn on my bedroom heater for the first time ALL winter. Spring officially begins in like a week. Just goes to show you, you never know with Mother Nature. - [My Bionic Gym Video Workout](https://multipleexperiences.org/2023/03/03/my-bionic-gym-video-workout/) - [Happy 25th Anniversary with Multiple Sclerosis](https://multipleexperiences.org/2023/02/14/happy-25th-anniversary-with-multiple-sclerosis/) - It started 25 years ago today. The beginning of my major attack that brought about my diagnosis. I still remember the story all too clearly. Valentine's Day weekend, 25 years ago, I was moving into the house my ex-husband and I bought. We spent a few months sleeping at my mother’s house while updates were - [Phantom Feelings](https://multipleexperiences.org/2023/02/06/phantom-feelings/) - I always have a feeling that my legs are in a different position. I’m always in bed with my legs straight. I can’t move them on my own. The only way they would be in a different position is if someone put them there. Even then, chances are they wouldn’t stay that way. I mean - [Technology and Medical Advancement](https://multipleexperiences.org/2023/02/02/technology-and-medical-advancement/) - Did you ever watch the cartoon The Jetson’s? You know meet George Jetson 🎶,his boy Elroy, his daughter Judy, Jane his wife 🎶. They were the futuristic family that drove the cars that flew in the sky. It was their phone that I was thinking about lately. They would get a call and it was - [Physical Therapy Begins Again](https://multipleexperiences.org/2023/01/27/physical-therapy-begins-again/) - Hello my fellow bloggers and readers. Happy Friday. I am chilling with Zoey watching a F1 2008 race. I’ve been watching old season since the F1 season ended in 2022. I watched every race in the two seasons that Fernando Alonso won his championship titles. Fernando Alfonso is my favorite driver. I’ve seen many of - [Multiple Sclerosis Sucks](https://multipleexperiences.org/2023/01/23/multiple-sclerosis-sucks/) - Hello to all. How are you feeling? Don’t we always hate that question? Multiple Sclerosis is a shitty disease. Have I said that recently? I remember I used to ask my neurologist every time I had an appointment, are you sure I have MS?” He always replied, “it wouldn’t be an appointment with you without - [Bionic Gym Comparison](https://multipleexperiences.org/2023/01/18/bionic-gym-comparison/) - Hi everyone, happy hump day. I’ve been wanting to do this comparison of workouts for so long. I did my typical workout. https://youtu.be/qbFvZEPTXDk. This is from Adapt to Perform. He has so many great workouts on his channel. Each workout is for wheelchair users being he is also confined to a wheelchair. The one I - [Multiple Sclerosis is not an Easy Disease](https://multipleexperiences.org/2023/01/13/multiple-sclerosis-is-not-an-easy-disease/) - Happy Friday. I feel like this week went super fast. I didn’t do much. I fell again this week. This marks the fourth fall in 3 weeks. I am having trouble with transferring from my bed to my wheelchair or wheelchair to my bed. Most other the falls have happened with aides that were new - [Star Wars Trilogy](https://multipleexperiences.org/2023/01/11/star-wars-trilogy/) - Once a year I need to watch the original Star Wars trilogy. I’m not saying that some of the new movies they’ve made over the years are bad, but nothing beats the original. Mark Hamill, aka Luke Skywalker, was my first boyfriend, although he was unaware of this fact. I must say that I still - [A Monday morning Rant](https://multipleexperiences.org/2023/01/09/a-monday-morning-rant/) - I’m sad, my daughter went back home to Maine today. I had a really nice visit with her this past week. She might have needed to come home for mom time but I definitely needed daughter time. I am just such a proud mom watching her start her life. She is in a new state, - [My daughter growing up beautifully](https://multipleexperiences.org/2023/01/04/my-daughter-growing-up-beautifully/) - I’m happy to report that my vertigo has passed. I did speak to my neurologist who said that migraines can cause vertigo. I have had migraines for well over 15 years and never had that experience but whatever. My aunt also suffers from migraines. She had a spell of vertigo last year for the first - [2022 Going Out with Vertigo](https://multipleexperiences.org/2023/01/02/2022-going-out-with-vertigo/) - Happy New Year everyone. It is officially over. We made it through another holiday season. I started 2022 in the hospital with Covid and ended at home with a new symptom, Vertigo. I never had this before. It came out of nowhere. I was watching TV on December 30th and leaned my head to the - [New Year Intentions](https://multipleexperiences.org/2022/12/22/new-year-intentions/) - Christmas is in two days. Another year has come and gone. I spent last New Years Eve in the hospital. I never could have imagined that 2022 would be such a difficult year for me. It was 22 my number. I thought great things were going to happen. https://multipleexperiences.org/2021/12/27/my-angel-number-22-and-the-new-year/ I wrote that post 3 days - [My angel number 22 and the New Year](https://multipleexperiences.org/2021/12/27/my-angel-number-22-and-the-new-year/) - The countdown to 2022 begins. Will this be my year? It’s my number, 22. What is strange is my number 22 has been popping up everywhere. I usually ask to see it when I need a sign or I ask a question. It’s my spiritual number. However, I’m seeing it everywhere and I really don’t - [Why I Chose Bionic Gym](https://multipleexperiences.org/2022/12/19/why-i-chose-bionic-gym/) - I wanted to share the link to my Facebook event for Bionic Gym. https://www.facebook.com/100050572295847/videos/681628466987768 I just love Bionic Gym. I’ve been talking about it since day one of using the gym. I was planning on showing you my Apple Watch stats for two of my workouts days I talk about in the Facebook video. First - [Steroid Withdrawal](https://multipleexperiences.org/2022/12/16/steroid-withdrawal/) - We decided to do a round of steroids. I discussed this with both my neurologists. Throughout my years with MS, I would average steroid infusion treatments two times every year. That is why I was on so many disease modifying therapy drugs for multiple sclerosis, I always had relapses despite taking these medications. I hated - [Meet me on Facebook Saturday](https://multipleexperiences.org/2022/12/07/meet-me-on-facebook-saturday/) - I’m so excited to be able to share this with everyone. I am doing a live session about Bionic Gym. I am doing this with the founder and creator of Bionic Gym, Dr. Louis Crowe. I have been very lucky to have had the opportunity to personally talk to Dr Crowe on a few occasions. - [Neurologist visits](https://multipleexperiences.org/2022/12/01/neurologist-visits/) - I have to say this cold has kicked the shit out of me. I know taking Rituxan lowers my immune system but I honestly very rarely get sick. Even my issues in 2022 I was on Kesimpta, not Rituxan. The last cold I had was back in 2019 when I went on my last vacation. - [Thanksgiving cold](https://multipleexperiences.org/2022/11/28/7808/) - I went out for Thanksgiving. I went home, my childhood home. I haven’t been there again in years. We certainly didn’t know if I could last in a wheelchair for the duration of dinner. To complicate matters I needed to use my hooveround, not my main wheelchair, because the ramps are fitted according to that - [My age 51 my body is much older](https://multipleexperiences.org/2022/11/21/my-age-51-my-body-is-much-older/) - It’s my birthday tomorrow. 51!!! I’m middle age. I think my body has been middle age since I was 43. That was when multiple sclerosis hit me with the last relapse that started my path of true disability. It’s been 8 years since that last relapse. It was when I was switching from Tysabri to - [I have Acid Reflux Disease](https://multipleexperiences.org/2022/11/18/i-have-acid-reflux-disease/) - My gastroenterologist called me the other day with one of my biopsy results. I didn’t expect the diagnosis but I also wasn’t shocked. Most people think heartburn with acid reflux. I really don’t have that issue, or at least I don’t think I do. I do have the feeling of smoking a carton of cigarettes - [Colonoscopy and Endoscopy](https://multipleexperiences.org/2022/11/14/colonoscopy-and-endoscopy/) - Hello my fellow blog readers. How are you doing? I was absent last week. I had so much going on getting ready for my colonoscopy/endoscopy on Thursday. The prep for the colonoscopy was horrible, HORRIBLE!!!! I even started 4 hours earlier than the instructions indicated. My aide changed me every hour from 12pm-6am. I was - [Rituxan Infusion in the Books](https://multipleexperiences.org/2022/10/31/rituxan-infusion-in-the-books/) - I am half way through my Rituxan infusion. Chilling out watching Ink Master. I was smart this morning. I kept my arms covered despite being slightly warm. I know, all too well, that my cold arms do not help when trying to start an IV. I overheat so easily so there is usually a fan - [Shameful Doctor](https://multipleexperiences.org/2022/10/28/shameful-doctor/) - I’ve been absent again. I have just had a lousy few weeks. I have had a shitty year. If you have read my blog, I have that well documented. I’m tired of dealing with all the issues that keep occurring week in and week out. I just feel like I have not had one month - [My brother Howard’s 13th year for Bike MS](https://multipleexperiences.org/2022/08/17/my-brother-howards-13th-year-for-bike-ms/) - Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing - [MS Bike Fundraiser](https://multipleexperiences.org/2022/10/19/ms-bike-fundraiser/) - Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing - [Pincushion Arms and Infusion on Horizon](https://multipleexperiences.org/2022/10/12/pincushion-arms-and-infusion-on-horizon/) - I’m sneezing. My first cold of the year. I have been taking my oregano oil for a few days. It has probably helped but it hasn’t stopped the cold like it has in the past. I think things are just not affecting me the same since my whole pneumonia debacle. Oregano oil use to knock - [A Day Outside](https://multipleexperiences.org/2022/10/10/a-day-outside/) - How was your weekend? Last week my older sister came out for a visit. It was the first sunny day in a string of many rainy days. My sister is not one for being inside especially on beautiful days. I knew I’d be visiting with her outside somewhere. We took a walk, or in my - [Gastrocolic Reflux](https://multipleexperiences.org/2022/10/03/gastrocolic-reflux/) - I’m waiting out a F1 rain delay so I decided to write. Rain always makes a race so much more interesting. My favorite driver, Fernando Alonso, a veteran and oldest F1 racer loves the rain. He knows how to drive a F1 car in those weather conditions. He isn’t scared taking the corners at a - [Happy Birthday Alyssa](https://multipleexperiences.org/2022/09/30/happy-birthday-alyssa/) - Today is my younger sisters 45th birthday. My beautiful sister has always amazed me and I wanted to take a moment to dedicate a post all to her. She is my half sister. Growing up, I’d see her every Sunday. Thank god for her because our older sisters were either not around or ignoring us. - [Barkbox Customer Service Excellence](https://multipleexperiences.org/2022/09/26/barkbox-customer-service-excellence/) - Some people say that the way to their heart is through their stomach, mine is through my dogs. Shocking, I know. When I got home from the hospital, my cousins all chipped in and got me a subscription to Barkbox for 3 months. Great gift!!! I loved giving the toys to the puppies. They would - [MultipleSclerosis.net Latest on MS Clinical Trial](https://multipleexperiences.org/2022/09/22/multiplesclerosis-net-latest-on-ms-clinical-trial/) - This article was from multiplesclerosis.net. I haven’t posted much on research lately. Probably because I am at a point where most drugs in the horizon won’t help. However, today Facebook has been showing ads for multiple sclerosis drugs that ARE NOT drugs approved for MS or covered by insurance. They are just ads from companies - [My Head on Straight](https://multipleexperiences.org/2022/09/16/my-head-on-straight-2/) - Good morning world. I am loving the cooler weather with the sunshine shining. I might have a small whiff of fall in the air. I’m ready. I took the entire week off from exercise. I am fine but those booster shots definitely knocked me for a loop. I’m glad I did both the Covid and - [My Head on Straight](https://multipleexperiences.org/2022/09/16/my-head-on-straight-3/) - Good morning world. I am loving the cooler weather with the sunshine shining. I might have a small whiff of fall in the air. I’m ready. I took the entire week off from exercise. I am fine but those booster shots definitely knocked me for a loop. I’m glad I did both the Covid and - [Only Wednesday..,](https://multipleexperiences.org/2022/09/14/only-wednesday/) - I got a Covid booster and flu shot on Saturday. I was down for the count for almost 2 days. I’m doing better now. I thankfully made the decision to cancel occupational therapy for the morning. I was feeling better but I think I still needed the day to recoup. I didn’t even exercise, you - [Game Day and Mahjong](https://multipleexperiences.org/2022/09/09/game-day-and-mahjong/) - This week went fast. I don’t say that often since my weeks blend together. I am happily writing this with the sun shining windows open. It is beautifully cool. Looking forward to the fall weather. I’m actually looking forward to my oversized sweatshirts. I am excited to put on those comfy oversized shirts and be - [Waiting on Gastric Diagnosis](https://multipleexperiences.org/2022/09/07/waiting-on-gastric-diagnosis/) - I have a new day time aide. It’s been a little rough with some of the aides I’ve been sent. I hate being that person that complains but some of these people were just useless. I can put up with a lot. If I feel unsafe with someone I usually can’t get through that. Some - [What is multiple sclerosis?](https://multipleexperiences.org/2022/09/05/what-is-multiple-sclerosis/) - I don’t know how many times I’ve talked to people that had the cure for multiple sclerosis. If it was just about diet and taking vitamins, I promise you, I would be doing that. People mean well. Unfortunately, they read one story and think it works the same way for everyone. If there was a - [Another Accomplishment](https://multipleexperiences.org/2022/09/02/another-accomplishment/) - Happy Friday. It’s been another rough week for me but I did have another major victory. I was able to get in the shower for the first time since the end of the December. I have a small shower with no bathtub. However, it isn’t flat to the floor. There is a small step that - [A Spiritual Reminder](https://multipleexperiences.org/2022/08/31/a-spiritual-reminder/) - I just finished watching Midnight Mass on Netflix. Not my favorite series by any means. I found it kind of boring in parts. I didn’t stop watching the episodes so I guess it had something that kept me interested. Throughout the episodes there was religious conversations. I was intrigued with the different religious belief of - [My Full Time Job](https://multipleexperiences.org/2022/08/29/my-full-time-job/) - Another week begins…truthfully they all blend these days so I shouldn’t say a word. It isn’t like I’m starting a work week. The one thing Monday brings is the list of phone calls I need to make. I find it amazing that I always have to take care of something. It is either insurance stuff, - [Nostalgic Candy](https://multipleexperiences.org/2022/08/26/nostalgic-candy/) - Out of nowhere I thought about cookies my dad use to eat when I was younger. I couldn’t for the life of me remember their name. I knew they weren’t made anymore. When I tried looking it up on the internet, I came up with every peanut butter cookie that exists but not the one - [Voluntary Best Friends](https://multipleexperiences.org/2022/08/24/voluntary-best-friends/) - I am still dealing with all the little things, but I’m not as down as I was writing Monday’s blog. I can report that there is still areas I’m making improvements. Tuesday I was actually able to get up from sitting on the toilet seat. It was a “dry run” exercise with my occupational therapist. - [Treading water](https://multipleexperiences.org/2022/08/22/treading-water/) - I’ve been overwhelmed lately. I actually missed a day blogging last week. My other blogs were far from anything difficult or heartfelt. I took a hiatus from blogging, dieting and even working out. I just feel very stressed lately because it never seems to end. Every day is another issue. Considering how this year started, - [Happy 6th Birthday Zoey](https://multipleexperiences.org/2022/08/19/happy-6th-birthday-zoey/) - My girl turns 6 today. Zoey is the sweetest pup. She will lick you everywhere and loves to snuggle close. She is so smart. She will bark if her toy is under the furniture. If you don’t see it and she’s still barking, she’s always the one that’s right. The toy is somewhere under that - [Welcome to my Online Therapy Group](https://multipleexperiences.org/2022/08/12/welcome-to-my-online-therapy-group/) - I have a question for my multiple sclerosis readers, how often do you come across other MSers on the same path as you? I have met many people with similar symptoms. I talk to many who were even diagnosed somewhat similarly. I don’t speak to many who have had the same progression path as me. - [Ugh Multiple Sclerosis](https://multipleexperiences.org/2022/08/10/ugh-multiple-sclerosis/) - I’ve dealt with multiple sclerosis for 24 years yet I can still be surprised by its symptoms. You’d think I wouldn’t be shocked anymore. I had to spend most of my afternoon in my comfy chair. The exterminator was coming back, to treat my room, for the third time. It seems that the guy who - [Stubbornness and Defiance](https://multipleexperiences.org/2022/06/01/stubbornness-and-defiance/) - It has taken me almost 6 months but I finally did it. I GOT UP FROM MY COMFY CHAIR. I got up by myself. I actually started standing up when my therapist was a few feet away from me. I didn’t want anyone to touch me. I knew I could get up. I didn’t want - [Informing Employers of MS Diagnosis](https://multipleexperiences.org/2022/08/08/informing-employers-of-ms-diagnosis/) - I was thinking this weekend about when I worked. I’ve read a few MS blogs where people discussed when, if ever, do they disclose their disease to their employer? If you are new to my blog, I was diagnosed with multiple sclerosis when I was 26. I’m 50 years old now. I became disabled when - [Autobiography in Five Short Chapters](https://multipleexperiences.org/2022/08/05/autobiography-in-five-short-chapters/) - I’ve had this on my blog quite a few times. I was reminded of it yesterday in a discussion with my life coach. One of my favorite things I’ve come across during my spiritual journey actually during my life journey. I remember how hard it was going from chapter 1 to chapter 2. I never - [Autobiography in Five Short Chapters By Portia Nelson](https://multipleexperiences.org/2019/08/08/autobiography-in-five-short-chapters-by-portia-nelson/) - I wanted to post this poem again because I am very proud of myself realizing I'm in chapter 5. Truly in chapter 5. It is a good feeling and it has been a long road but I chose another street. Autobiography in Five Short Chapters By Portia Nelson I I walk down the street. There - [New Bathroom Issues, yes they can be worse](https://multipleexperiences.org/2022/08/01/new-bathroom-issues-yes-they-can-be-worse/) - I always said I was going to be honest when I wrote my blog. I have told many horrifying embarrassing stories over the 6 years I’ve been blogging. I guess now isn’t the time to stop. I’ve had bathroom issues my whole life. By bathroom, I mean bowel. It was very common for me to - [Key to Happiness](https://multipleexperiences.org/2022/07/29/key-to-happiness/) - I remember when I was a kid I used to dream of living in this huge house. I wanted my house to have a lot of land. I didn’t have a clue as a kid about cleaning a house or maintaining a large piece of property. I didn’t have any idea what a mortgage was - [Occupational therapy vs Physical Therapy](https://multipleexperiences.org/2022/07/27/occupational-therapy-vs-physical-therapy/) - Happy hump day. Another day, another week. This week was a little different for me because my daughter is home for a visit. I love having her home. I love her energy in the house. I love how she climbs into my bed when she wakes up and is always in my bed before I - [Vagus Nerve research in Multiple Sclerosis](https://multipleexperiences.org/2022/07/25/vagus-nerve-research-in-multiple-sclerosis/) - Ok a new MS research blog brought to my attention by my dad yesterday. It has to do with the Vagus Nerve (pronounced like Las Vegas). The vagus is a major nerve that runs throughout the body and controls crucial functions, like heart function and blood pressure, digestion, breathing and immune response. It also conveys - [Inside my room of quiet](https://multipleexperiences.org/2022/07/22/inside-my-room-of-quiet/) - I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am - [Missing my companions](https://multipleexperiences.org/2022/07/20/missing-my-companions/) - I had a really good final physical therapy session on Monday. I walked further than I walked all this year. Where I am walking to, I don’t know. I have come a long way since coming home from the hospital. Still not where I was. I think some of the disability changes I can live - [Processing Feelings](https://multipleexperiences.org/2022/07/18/processing-feelings/) - I have to say I feel sad. I didn’t want to do much this weekend. I didn’t really want to talk much this weekend. I kind of wanted to hide away. My uncle’s death, my friend’s son, my friend’s sister, it all happened within two weeks of each other. So much sadness. I was so - [Goodbye to my Uncle](https://multipleexperiences.org/2022/07/15/goodbye-to-my-uncle/) - I am writing this blog with a very heavy heart. My uncle passed away early Wednesday morning. He was hospitalized a few weeks ago with a pneumonia, UTI and kidney infection. Sound familiar? https://multipleexperiences.org/2022/03/04/multiple-sclerosis-vs-pneumonia/ My uncle also had Parkinson’s disease. MS and Parkinson’s seem to always be grouped together. Why??? MS and Parkinson’s both affect your central - [Multiple sclerosis vs pneumonia](https://multipleexperiences.org/2022/03/04/multiple-sclerosis-vs-pneumonia/) - I last took a Kesimpta shot on January 19. It is now the beginning of March. I had this dilemma of being behind my shot date in January. After Covid and a UTI that put me in the hospital the first time, I needed to be well before I took my shot. That ended up - [A brave return to my bed](https://multipleexperiences.org/2022/07/10/a-brave-return-to-my-bed/) - I finally started to feel like I had some sense of sanity return this Sunday. This bedbug situation has certainly been extremely stressful. The house was fumigated on Friday. I spent the morning organizing the last of the packing up of the house. Exhaustion hit me by the time I finished cleaning out the first - [Bedbugs…not Hives](https://multipleexperiences.org/2022/07/07/bedbugsnot-hives/) - I woke up scathing my hives as normal last night. This time I saw a small bug on my humpty’s head. It was about 12:30 am. As I crushed the sucker it made a blood spot. Something didn’t seem right when i saw that bug. I picked up my phone and google bedbugs. Could my - [Getting a new caseworker](https://multipleexperiences.org/2022/07/06/getting-a-new-caseworker/) - I haven’t slept in three nights because of the fireworks. My poor Minx gets so worked up from the noise. I even gave him medication. With every explosion outside came a round of barking from the inside. Therefore when the idiots were still setting things off at 1am, my Minxy was barking like crazy. It - [Fireworks tips when you have dogs](https://multipleexperiences.org/2022/07/04/fireworks-tips-when-you-have-dogs/) - Happy 4th of July to everyone. It’s a beautiful day and everyone is probably thinking about BBQ and fireworks, I’m thinking about my dog, Boomer, who passed away in December. He hated this holiday and I always wanted to stay near him because of his reaction to the noise. My 70lb English Bulldog would jump - [9 steps to keeping a dog calm during fireworks](https://multipleexperiences.org/2017/07/04/9-steps-to-keeping-a-dog-calm-during-fireworks/) - Happy 4th of July to everyone. It's a beautiful day and everyone is probably thinking about BBQ and fireworks, I'm thinking about my dog, Boomer, who passed away in December. He hated this holiday and I always wanted to stay near him because of his reaction to the noise. My 70lb English Bulldog would jump - [The dumb things that frustrate me](https://multipleexperiences.org/2022/06/28/the-dumb-things-that-frustrate-me/) - Why is it simple things, never go simply? I finally got rid of cable TV. My plan went up again to almost $200!! I don’t even watch the cable. I watch everything on the firestick. I pay for extra services to avoid commercials like Peacock and Paramount. I have everything Amazon, Netflix, and Hulu. I - [Nap time](https://multipleexperiences.org/2022/06/27/nap-time/) - I took a nap yesterday. First time I did that in ages. I didn’t sleep well the night before. I knew I needed more sleep. I kept my pajamas on and stayed under my blanket. I spoke to everyone I wanted to talk. I text my daughter and mom to let them know that I - [Multiple Sclerosis Adapt and Accept](https://multipleexperiences.org/2022/06/24/multiple-sclerosis-adapt-and-accept/) - Friday again. It was a week ago I wrote about weather changes once again affecting MS symptoms. https://multipleexperiences.org/2022/06/17/mentally-strong/. I had changed PT from Monday to Wednesday because I was having a rough day Monday. Well I guess I was having a rough day Wednesday too. I couldn’t walk five steps. So much for my goal - [That’s a lot of Empty Space](https://multipleexperiences.org/2022/06/22/thats-a-lot-of-empty-space/) - I had my first big outing yesterday. I went with my stepdad to take Zoey to the vet. I wasn’t driving but I’ve been a passenger many times while he drives. I even went into the vet with Zoey. I saw people other than my family and close friends. That was a big deal. Thankfully - [Cleaning up my happy place](https://multipleexperiences.org/2022/06/20/cleaning-up-my-happy-place/) - I’ve been fixing my bedroom this weekend. It was a beautiful weekend to clean. I was able to open my windows and let the fresh air in. I love that. I even had my wheelchair raised as I worked out in the morning so I could view the water. I even tried to hang out - [Mentally Strong](https://multipleexperiences.org/2022/06/17/mentally-strong/) - I am still running on empty this week. It is very strange, I walked the furthest I walked on Monday. Wednesday and Thursday I’ve had difficulty standing up and transferring. When I say difficulty, I mean it’s been harder than it’s had been over the previous weeks. It is requiring more energy to get myself - [Happy in my Bedroom](https://multipleexperiences.org/2022/06/15/happy-in-my-bedroom/) - I’ve been sleeping so well since the hospital days. That is until the last few nights. I was up every hour one night. The next night I was up for a prolonged period of time for no apparent reason. I am now functioning on day two without sleeping well. I’m freaking tired. I am running - [Hives Everywhere and No Bees](https://multipleexperiences.org/2022/06/13/hives-everywhere-and-no-bees/) - Have I discussed my hives with you yet. OMG, thank you multiple sclerosis for not allowing my skin to feel itching like normal people. I’ve had them for months. The spots come and go all over my arms. They seem to prefer the right arm more than the left. They weren’t this bad until recently. - [More skin issues after Rituxan](https://multipleexperiences.org/2019/11/13/more-skin-issues-after-rituxan/) - Something happened after my Rituxan infusion and whatever it is, it is still happening. https://multipleexperiences.org/2019/09/18/allergic-reaction-to-rituxan/. I've continued to get these blisters under my breast since my infusion. https://multipleexperiences.org/2019/09/17/blisters-on-breast/ Each one has left a scar so you can count how many there have been on each side. I've changed my bras, changed laundry detergent, even try - [Home visit doctor](https://multipleexperiences.org/2022/05/04/home-visit-doctor/) - I had my first in home doctor visit on Monday. I must say I thoroughly enjoyed waiting in my bed than a stuffy doctors office. I was given a two hour window of when they would be here. She was here right in the middle of the expected time. Very nice woman. I was pleasantly - [Poor Zoey](https://multipleexperiences.org/2022/06/09/poor-zoey/) - My sweet Zoey sprained her back somehow. Imagine seeing this cute face in pain. You don’t even know what is going on. She started having these periods where she’d be shaking. I knew something was off but I couldn’t tell what it was. She was eating and drinking l. She was just off. Then she - [Always Fighting](https://multipleexperiences.org/2022/06/08/always-fighting/) - Some days are better than others. I walked the hallway again yesterday and it was so hard. Ok, it was hard the first time I did it but it was so much harder yesterday. My right leg, which is normally the leg that gives less issues, was very difficult to move. It was difficult from - [Happy Birthday Mikayla](https://multipleexperiences.org/2022/06/03/happy-birthday-mikayla-3/) - This is my daughter’s 23rd birthday. It is also the first year she isn’t home for her birthday. My beautiful baby girl, as she will always be, is now living 6 hours away. She has begun her adult life. She is starting to find her way around this crazy world. This is the first year - [Never Give Up](https://multipleexperiences.org/2022/06/06/never-give-up/) - I am still making shocking improvements. I walked my hallway in PT. I haven’t done that since last year. https://multipleexperiences.org/2021/06/18/walking-again/. I at one point had a goal to not use the wheelchair in the condo anymore. As much as I would like to believe this is still an attainable goal, it is far down on - [Walking again](https://multipleexperiences.org/2021/06/18/walking-again/) - I did good this week, despite the heat. I walked the hallway in my first real Physical therapy session on Thursday. I love the upright walker. It has made such a difference for keeping me straight when I walk. I do walk slowly. I am paying very close attention to my hips moving and my - [Breathing issues](https://multipleexperiences.org/2022/04/22/breathing-issues/) - On Monday something strange happened with my hands. I actually shouldn’t say strange because this symptom happened every time my fever spiked over 102 degrees. My hands became claws. I call them claws because they fold in and makes it very difficult to grab and pick things up. The better definition lies in this post. - [Summer is Coming](https://multipleexperiences.org/2022/05/30/summer-is-coming/) - How was your weekend? Despite the scattered showers, it was a nice weekend here. The nautical mile, two blocks from me, starts amping up full speed as of this weekend. With three of the most popular bars being right across from me, it gets very noisy. Unfortunately, the music blends between them so you can’t - [My goals will be reached](https://multipleexperiences.org/2022/05/27/my-goals-will-be-reached/) - I had a good week. I shared my video of me walking in Wednesday. I walked even more during my PT session on Wednesday afternoon. I guess it wasn’t a video fluke of a good MS day. I am actually strong enough to take those few steps. I still can’t get up from my comfy - [Shocking to everyone including me](https://multipleexperiences.org/2022/05/25/7508/) - I was sitting up at the end of the bed when he got there. I popped right up to stand. My PT therapist said try to take a step. I was standing up with one of those silver walkers. Well, I took a step. It was my first step since the end of December. I - [A Swinging Saturday Night](https://multipleexperiences.org/2022/05/23/a-swinging-saturday-night/) - I must say i had an eventful Saturday night. Not exactly like my old days at Jugs and Strokers Drinking, trying to play pool and hanging with my friends until 4am. However, based on my life lately, this was eventful. The building’s fire alarm went off around 8pm. I was in my pjs ready for - [Busy Day](https://multipleexperiences.org/2022/05/20/busy-day/) - I’m actually writing this on Thursday evening. I had a long day. Since the change in my aides shifts, I am up at 7am. This morning I was up at 5. I had one of those MS symptoms that plague me whenever it is a inconvenient time. My feet were in pain. More like my - [My own discouragement rant](https://multipleexperiences.org/2022/05/18/my-own-discouragement-rant/) - I was determined to get into my comfy chair. Ok getting in isn’t the problem, it’s getting out. The chair is not only low but mushy. I don’t have anything very solid to push myself up to a standing position. I tried to angle the wheelchair in front of me, using the chair’s arms. Unfortunately, - [My weekend review](https://multipleexperiences.org/2022/05/16/my-weekend-review/) - Welcome back to Monday. We end up here quickly it seems. I am back to physical therapy today. I enjoyed my week off. I really enjoyed being with my beautiful daughter. She has just become this sweet woman. Her presence just made us realize how much she is missed. I can never forget how grateful - [Still exhausted](https://multipleexperiences.org/2022/05/12/still-exhausted/) - I woke up yesterday and felt really good. I got up, into my wheelchair and I finally was able to stand on the scale. I held my my balance for a split second allowing the scale to actually show an accurate number. I was 138, fully dressed. I never weighed myself dressed. That is 3lbs - [A week off](https://multipleexperiences.org/2022/05/11/a-week-off/) - I’m not grey anymore. My daughter dyed my hair yesterday. A grueling experience. Not because of her, but I had to sit in my wheelchair for an hour. I have been really tired this week. On Monday I wrote I blogged I wasn’t having any reactions to my Rituxan infusion. Today I have to admit - [A real workout from bed](https://multipleexperiences.org/2022/05/09/a-real-workout-from-bed/) - I’m happy to report I haven’t felt any side effects from the infusion the other day. https://multipleexperiences.org/2022/05/06/rituxan-infusion-successful-2/. I might feel slightly more tired but it hasn’t stopped me. On both Saturday and Sunday, I did an actual workout from my bed. I put on one of my favorite cardio exercises programs from YouTube. It is - [Rituxan Infusion Successful](https://multipleexperiences.org/2022/05/06/rituxan-infusion-successful-2/) - Well I finally was able to take my MS meds again. Last time was January 19. That was Kesimpta. I made the decision to go back to Rituxan after using Kesimpta for six months. I had 3 UTI’s, Covid and a pneumonia within that 6 months. I didn’t think it was the drug for me. - [Weekend changes](https://multipleexperiences.org/2022/05/02/weekend-changes/) - The switch with the new aide actually went pretty flawlessly. My current aide actually had a lot to do with that. She really took the time to show the new aide around. She didn’t have to do that. It wasn’t an aide from her agency. It was an aide that was replacing her. I think - [Weekend changes](https://multipleexperiences.org/2022/05/02/weekend-changes-2/) - The switch with the new aide actually went pretty flawlessly. My current aide actually had a lot to do with that. She really took the time to show the new aide around. She didn’t have to do that. It wasn’t an aide from her agency. It was an aide that was replacing her. I think - [Positive Attitude is a Choice](https://multipleexperiences.org/2022/04/28/positive-attitude-is-a-choice/) - Another week, another month. I can’t believe it is May already. I feel like I missed something, like two months. It’s a bizarre feeling, 4 months went by and I did nothing, but they flew. I have been in bed for 4 months!!!! When I wasn’t physically sick, I had some dark days mentally. It - [Too much emphasis on PT](https://multipleexperiences.org/2022/04/27/too-much-emphasis-on-pt/) - I didn’t write it but looking back at my episode with physical therapy last week https://multipleexperiences.org/2022/04/22/breathing-issues/, may have been a panic attack. It seems that this week things aren’t going much better. I was able to stand right up on Sunday. I got into my wheelchair. I ate dinner at the table for the first - [Things need to change](https://multipleexperiences.org/2022/04/25/things-need-to-change/) - I actually got out of bed and ate dinner at the table last night. I am tired of being in this bed. I might not have endurance. I might not be able to take a step. I can usually transfer to my wheelchair with some assistance. Key word is assistance. The aides that I currently - [High heart rate](https://multipleexperiences.org/2022/04/20/high-heart-rate/) - I am very slowly getting some strength. The key word there is slowly. I knew I would need to have a lot of patience. I just thought maybe there would be a little muscle memory. Unfortunately, my problem was because of muscle atrophy, not muscle weakness. It is not so easy to rebuild muscle 24 - [Rocket Ship Yoga](https://multipleexperiences.org/2022/04/18/rocket-ship-yoga/) - My family means the world to me. They have been my support system for my multiple sclerosis since day 1. However, their support over the ordeal with the Covid and the pneumonia was beyond anything I have ever felt. It actually brought some of my relationships closer. Especially with my sister. She became the first - [Avoiding brain mush](https://multipleexperiences.org/2022/04/13/avoiding-brain-mush/) - I have been expanding my mind. I am still watching mindless television but playing games too. I play dordle and wordle online daily. I even downloaded an app to play wordle throughout the day. I also love Sudoku. I’m good at them too. I play the hard or expert levels. It can take me an - [A lump in the bed](https://multipleexperiences.org/2022/04/11/a-lump-in-the-bed/) - My life has changed a lot in the past few months. I went from independent to completely dependent. I can’t do the simplest of things anymore. I can’t just get in my wheelchair and open the refrigerator for my ice coffee. I can’t just grab a sweatshirt from my closet. Hell I can’t even fix - [Exercise, standing and Bionic Gym](https://multipleexperiences.org/2022/04/08/exercise-standing-and-bionic-gym/) - I am very weak. My legs can’t hold me up for long. PT has been working on just getting me up and standing. I never thought something so simple would be so hard. Let me tell you, it is so hard. I try to sway back and forth shifting my weight as I hold onto - [Multiple Sclerosis symptoms worsen](https://multipleexperiences.org/2022/04/06/multiple-sclerosis-symptoms-worsen/) - I’m better. No more fevers. My breathing is back to normal. I’m completely done with antibiotics. I have no more signs of the pneumonia. Great news. Yes it is. Yet the aftermath is as I expected. I was weakened from being in a bed for 1 1/2 months on top of my multiple sclerosis symptoms - [Rituxan postponement](https://multipleexperiences.org/2022/04/01/rituxan-postponement/) - Today I am getting blood work done. My specialist wants to see a few things. First, my B cell counts. With the hundreds of blood tests I’ve had done in the hospital, that wasn’t done. There was no need to break out the specific white blood cells for a pneumonia. The second thing is my - [Finally finished with antibiotics](https://multipleexperiences.org/2022/03/30/finally-finished-with-antibiotics/) - Yesterday was the last day of the antibiotics. I have been taking a prophylactic drug from the time I got home from the hospital on March 5th. I was taking Atovaquone. This is an anti-fungal, anti-parasite liquid. It is supposed to be banana flavored. I personally would never eat a banana if it tasted like - [Rituxan infusion setup, far from a smooth path](https://multipleexperiences.org/2021/03/16/rituxan-infusion-setup-far-from-a-smooth-path/) - My Rituxan infusion has once again been a complete disaster getting the necessary supplies and drugs. I would love to blame it all on CVS specialty pharmacy but my doctor's assistant is partially to blame. What started a month ago has come down to the wire yet again. My third box of supplies has just - [The new me…under construction](https://multipleexperiences.org/2022/03/28/the-new-meunder-construction/) - Let’s see if I can get back to any regularity writing a blog. When I was in the hospital, i was given a Fiberoptic Endoscopic Evaluation of Swallowing (FESS). My pneumonia was considered to be caused by aspiration. Aspiration pneumonia occurs when food, saliva, liquids, or vomit is breathed into the lungs or airways leading - [After the hospital, leaving the new me…](https://multipleexperiences.org/2022/03/25/after-the-hospital-leaving-the-new-me/) - I’ve managed to stay home since my last hospital release on March 5th. Please forgive my silence, it has taken me a while to adjust to the new me. I came home and I was still running low grade fevers up until recently. I’d wake up feeling achy most days. It is hard to try - [I’m back….](https://multipleexperiences.org/2022/03/02/im-back/) - In the hospital that is. I was home a total of 5 days before I ended up once again in these too familiar surroundings. It started the day after I got home. I actually slid off my bed onto my stool. From there I couldn’t stand up. I had to have EMS come and get - [I’m going home this was the scariest ordeal](https://multipleexperiences.org/2022/02/22/im-going-home-this-was-the-scariest-ordeal/) - After 20 days in the hospital I’m happy to say I’m finally going home. I’ve had no fever for the last 5 days. My last chest X-ray showed improvement. I can breathe again. I feel like a new person. I am still getting terrible sweating episodes everyday but no one is worried. They feel it - [Happy Anniversary Multiple Sclerosis](https://multipleexperiences.org/2022/02/14/happy-anniversary-multiple-sclerosis-3/) - Yes, I’m still in the hospital with a pneumonia. Today marks day 12. I can definitely have another blog about what is happening especially since being immune suppressed isn’t helping the situation. Most people look at February 14 as the day of love but it will never be that for me. No, for me it - [Back in the hospital again](https://multipleexperiences.org/2022/02/07/back-in-the-hospital-again/) - Well I actually thought for a moment I was getting better at home. Then I started having to retreat to my bed earlier and earlier from my big living room excursion. Then getting into my wheelchair started getting me breathless. Fever spiked every day. We all knew something was wrong just didn’t know the best - [One day at a time](https://multipleexperiences.org/2022/01/25/one-day-at-a-time-2/) - I am still here, barely. I got home from the rehab last Wednesday. It has been rough!! I fell 4 times within the first 12 hours. My strength was significantly worse than I realized. My legs couldn’t hold me up. I realized they didn’t have the strength to push from a seated position to a - [Not a happy New Year](https://multipleexperiences.org/2022/01/06/not-a-happy-new-year/) - Hello everyone, Happy New Year. I know it seems like I disappeared but unfortunately I had legitimate reasons. I ended up in the hospital last Thursday with Covid and a UTI. It wasn’t really the Covid that put me in the hospital it was the combination of the two infections. I was so weak I - [Remaining hopeful it will help the spasticity](https://multipleexperiences.org/2021/12/29/remaining-hopeful-it-will-help-the-spasticity/) - Inconclusive. My bladder test was inconclusive. They said that the sample contained bacteria in their that couldn’t have come from the urine alone. I was thrilled I got urine in the cup. That was a challenge in itself for someone with multiple sclerosis and bladder issues. I even was able to use the little handy - [A possible reason for this spasticity](https://multipleexperiences.org/2021/12/24/a-possible-reason-for-this-spasticity/) - I might have put it all together. A few months ago I treated myself for a possible bladder infection/UTI. Maybe not the smartest thing, but I did. I suspected I had a bladder infection and I had some antibiotics. They weren’t the normal antibiotics usually prescribed for any type of infection in that area, but - [Who am I without multiple sclerosis?](https://multipleexperiences.org/2021/12/21/who-am-i-without-multiple-sclerosis/) - I was thinking the other day, what if there was a magic pill to cure multiple sclerosis? What if I can take something that not only stops future disability but cures current disability? What if tomorrow I could actually walk again? I have spent half my life with MS. It is part of my identity, - [Spirits, ghosts and the universe](https://multipleexperiences.org/2021/12/20/spirits-ghosts-and-the-universe/) - I haven’t been spiritual in a while on my blog. Just because I don’t write about it doesn’t mean I’ve stopped believing. Sometimes my spiritual side steers me to watching programs, on my Firestick, that some may feel is pretty dark. Last week I was watching programs about life after death. I was watching I - [Taking a new aide](https://multipleexperiences.org/2021/12/17/taking-a-new-aide/) - I have to admit I am wrong this while I am doing my bionic gym. It is very difficult to do this while you are shaking. Forgive me In advance for grammar and spelling errors more than my usual. I know last week I told you about the wonderful aide I had that covered for - [I hate vinyl windows](https://multipleexperiences.org/2021/12/15/i-hate-vinyl-windows/) - Sunshine and butterflies this morning. Ok no butterflies but there is sunshine. In my condo we get the morning sun. I have seen some gorgeous sunrises over the years. The morning sun heats up my condo even when the temperature is 40 degrees out. When I am working out in the AM, as I always - [Monday morning again…](https://multipleexperiences.org/2021/12/13/monday-morning-again/) - We arrived at Monday once again. I feel like I am on a fast track through these days, weeks, months and years. That is saying something considering most of my days are spent in front of the TV. I am far from highly stimulated most days. Yet the days are going fast. I know I’ve - [The replacement aid](https://multipleexperiences.org/2021/12/10/the-replacement-aid/) - I’m doing better with the spasticity. I was never a person who thought Baclofen really did anything. I’ve taken 10mg a day, as preventative, for as long as I can remember. Well increasing it to 20mg twice a day has definitely did something. The constant dull ache I’ve had in my lower back has almost - [Nursing aide hours](https://multipleexperiences.org/2021/10/10/nursing-aide-hours/) - I had my lovely sister over this weekend. We were discussing the possible change in my nursing aide hours. This is all coming from the incident when I fell and couldn’t get up. https://multipleexperiences.org/2021/08/27/i-pressed-the-med-alert-button/. After this unfortunate issue, my mom and step dad decided I needed more hours of care. I actually had an evaluation - [I’m down 20lbs](https://multipleexperiences.org/2021/12/07/im-down-20lbs/) - I haven’t talked too much about my weight over the last few months. I did write this post https://multipleexperiences.org/2021/10/04/moving-the-scale-downwards/ as I was making progress in weight loss. I started in July to finally make changes that has finally seen results. So, what did I do? Well, some time ago I wrote about a book my - [The Obesity Code](https://multipleexperiences.org/2019/04/20/the-obesity-code/) - After my upsetting week last week following weight watchers I choose to see my weight differently. I asked the universe for help. I immediately got to my life coach but then I got an email from my cousin. It was actually her second email regarding a book called . My cousin's first email - [Moving the scale downwards](https://multipleexperiences.org/2021/10/04/moving-the-scale-downwards/) - Well good morning to everyone. Another week is beginning. Oh joy!!! Truthfully, the days all blend for me sometimes. If it wasn’t for my aide showing up Monday mornings, I might never know what day it is. I didn’t do anything this weekend because I was exhausted from this week. It doesn’t take much to - [Another fall to face the truth](https://multipleexperiences.org/2021/12/06/another-fall-to-face-the-truth/) - Well another episode started off an otherwise lovely evening. My mom and stepdad were coming over for dinner and to watch Yellowstone. We missed last week’s episode so we were in for a double feature. It was just about 4:00 when I hung up with my mother. I was getting up to feed my puppies. - [Intake with Suffolk Independent Living Organization](https://multipleexperiences.org/2021/10/18/intake-with-suffolk-independent-living-organization/) - Yesterday started with a bang, and not a good one. Unfortunately, I heard a crash of what only could be a car hitting something. I got up quickly to look, startled. Well you can imagine how that went. I realized quickly that in case of an emergency, don’t ever count on me. In my startled - [My neurologist visit](https://multipleexperiences.org/2021/12/03/my-neurologist-visit/) - Well yesterday was a visit to my neurologist. I want to thank my pseudo uncle for driving my van. I am not so comfortable driving on the parkways anymore. My first words to my neurologist were “did you miss me?” I have been coming to see him for almost 24 years. I just turned 50, - [Zoey has a luxating patella](https://multipleexperiences.org/2021/12/01/zoey-has-a-luxating-patella/) - I love my dogs. Just in case you didn’t know that. I really can’t imagine life without my pets. Losing one is heartbreaking and the pain is very really. However, the joy they bring to my world everyday is immeasurable. I try to give them the happiest life in return. That being said my Zoey - [Situations that cause anxiety or overwhelm](https://multipleexperiences.org/2021/11/29/situations-that-cause-anxiety-or-overwhelm/) - Good morning. Happy Monday. I’m not sure why I care if it’s a Monday, Tuesday or a Saturday. My day doesn’t vary all that much I need to keep track of the days of the week so I appear at the right activity planned. I mean Monday morning at 9am is occupational therapy. I’d prefer - [Black Friday….no deal](https://multipleexperiences.org/2021/11/26/black-friday-no-deal/) - What a week. I am stuffed. I can do naked and afraid for the full 21 days and not have to worry about food. I feel like I just ate for a week straight. My birthday Monday,, our celebration bday dinner Wednesday and Thanksgiving Thursday. So much food. I should never complain. I wish everyone - [How do you feel?](https://multipleexperiences.org/2021/11/24/how-do-you-feel/) - I had a really good birthday day. I woke in a very cheery. I just stayed that way all day. How could I not? Every second I was either on the phone with someone wishing me the best or answering a text. I felt so loved. I was exhausted by the end of the evening - [Happy 50th Birthday](https://multipleexperiences.org/2021/11/22/happy-50th-birthday/) - Well today is my 50th birthday. That is a number you never really think about until you are closer to the realization that you are there. I remember throwing my mother a surprise party for her 50th birthday. The biggest surprise of that day was that my aunt, her sister, actually picked up my grandma - [Spasticity update and sleep improvement](https://multipleexperiences.org/2021/11/19/spasticity-update-and-sleep-improvement/) - First I need to give an update on my Bionic Gym and spasticity experiment. In a quick summary I was paying close attention to how my spasticity was after I used my Gym. My blogs during the week discussed it a little further. https://multipleexperiences.org/2021/11/15/bionic-gym-helping-with-spasticity-my-experiment/ and https://multipleexperiences.org/2021/11/17/time-for-a-hair-color-change/. Please remember this is MY experience with Bionic Gym. - [Time for a hair color change](https://multipleexperiences.org/2021/11/17/time-for-a-hair-color-change/) - I am only a few days into my Bionic Gym and spasticity experiment, since I messed up Sunday https://multipleexperiences.org/2021/11/15/bionic-gym-helping-with-spasticity-my-experiment/. I have to say I am definitely finding it easier to bend my legs after I used my Gym. I am definitely having less spasticity issues. It doesn’t last forever. Every morning I wake up with - [Bionic Gym helping with Spasticity, my experiment](https://multipleexperiences.org/2021/11/15/bionic-gym-helping-with-spasticity-my-experiment/) - I am doing a test this week. I think the Bionic Gym is helping with the spasticity. I have been using it later in the day on Monday and Wednesday because of occupational therapy. I am going to adjust the timing of that. I started with Sunday. I normally don’t do any exercise. It is - [A tired rant](https://multipleexperiences.org/2021/11/12/a-tired-rant/) - My daughter came home. Her health insurance is still in NY and she needed to see the “female” doctor. She decided to come home Wednesday evening because she was able to get an appointment for Thursday. Otherwise she would have had to wait until some time in December. She has to go for a sonogram - [Since my mom’s 50th surprise party](https://multipleexperiences.org/2021/11/10/since-my-moms-50th-surprise-party/) - Tuesday was a beautiful day outside. I was able to once again open windows and let some fresh air flow through the house. A rare thing in the second week of November. This is my favorite time of year. I think I have a blog post every fall saying just that. I love that there - [Put on a happy face](https://multipleexperiences.org/2021/11/08/put-on-a-happy-face/) - Daylights savings was Sunday morning at 2am. I am waiting for this to finally end. I know that there has been legislation within the courts. I also know that each state within each time zone has to approve it to finally do away with it. https://www.google.com/amp/s/amp.usatoday.com/amp/6233980001. This weekend we gained the hour. I was up - [A special birthday wish](https://multipleexperiences.org/2021/11/05/a-special-birthday-wish/) - Happy Birthday to my step dad today. A very special birthday, he turns 70. I’m happy to say I am seeing him for dinner. I have bought a few surprises to make the evening have a party like vibe. We are having dinner at my house so I like it to be a little special. - [Mid week check-in](https://multipleexperiences.org/2021/11/03/mid-week-check-in/) - So far it’s been an interesting week. I finally called my doctor about the spasticity. https://multipleexperiences.org/2021/10/29/spasticity/. However if you check out the blog post’s comments you’ll find a really good suggestion from Tom. Even though I take 10mg of Baclofen daily, I personally never felt like it was a big help for spasticity. I take - [A bank robbery-true story](https://multipleexperiences.org/2021/11/01/a-bank-robbery-true-story/) - I told this story to make aide last week. I may have written a blog about it over the last 5 years. If I did, oh well. It’s a story not many can say they’ve experienced. That makes it worth telling again even if I already wrote the tale. Hey, I’m turning 50 in 22 - [Spasticity](https://multipleexperiences.org/2021/10/29/spasticity/) - Good morning. Hopefully it actually is good. It is finally fall weather outside. A lovely crisp 54 degrees. I still have a window open next to me. I am sure my aide thinks I’m insane. I love the chilly air especially when I workout. Eventually I shut them. I’m surprised with this cooler air my - [Introducing Selma Blair, my thoughts](https://multipleexperiences.org/2021/10/27/introducing-selma-blair-my-thoughts/) - I watched Selma Blair’s documentary the other day. It was a good documentary on her journey through her stem cell treatment. I can’t say my heart didn’t feel her fear and sadness during her MS struggles. I had a completely different path with my MS symptoms and onset. It always amazes me that this disease - [Happy Monday](https://multipleexperiences.org/2021/10/25/happy-monday/) - Good morning, happy Monday to all. Hopefully everyone had a lovely weekend. I had a great visit with my sister, niece and nephew on Saturday. My dogs enjoyed the visit too. It’s nice to see a 9 and 10 year olds energy around two dogs. The dogs exhausted before they did. Sunday was Formula 1 - [My week finding agencies](https://multipleexperiences.org/2021/10/22/my-week-finding-agencies/) - Well after my blog on Wednesday, I figured I better lighten things up a little. I just don’t know if I have anything light to talk about. It’s not that anything is necessarily bad but it isn’t that great either. I had terrible spasticity this week. My legs have been super stiff. It has made - [The things we don’t say](https://multipleexperiences.org/2021/10/20/the-things-we-dont-say/) - Sometimes I stare at this blank page and I really know what I want to say. Other times I really don’t have a clue. There are times I know what I want to say but I am to scared to say it. I fear that I might not write it properly and it would be - [Searching for ways to remain independent and safe](https://multipleexperiences.org/2021/10/15/searching-for-ways-to-remain-independent-and-safe/) - It is Friday!!! I haven’t had a bad week even with my blue Tuesday. For the last few weeks in my game day my, with my friends in the building, we’ve been playing this game called Misery Index. It basically is cards that have certain bad things that can happen to you and you have - [A Blue Tuesday](https://multipleexperiences.org/2021/10/13/a-blue-tuesday/) - I was feeling slightly blue yesterday for no reason in particular. I slept in, not really wanting to get out of bed, but nature called. I did a workout but is was below even my lowest of standards. I just had no energy and I was trying to lift weights. I just had a difficult - [I pressed the med alert button](https://multipleexperiences.org/2021/08/27/i-pressed-the-med-alert-button/) - I got the Covid booster on Wednesday. I felt okay until the early morning hours of Thursday. That’s when I started feeling achy. I attempted to go to the bathroom and I didn’t have the strength to get myself off the toilet. Thankfully I was able to get myself up from my wheelchair. If I - [Bike MS 2021](https://multipleexperiences.org/2021/10/08/bike-ms-2021/) - It has been another fast week. I keep saying that every week. I think time is speeding up and I am really not looking for any speeding tickets. I am, however, ready for my sweatshirts and warm pjs so the 70 degree weather can go. I am ready to be bundled up with hot chocolate - [Apple Watch trade in issues](https://multipleexperiences.org/2021/10/06/apple-watch-trade-in-issues/) - Aggravating morning yesterday. Actually I’ve had an aggravating time with my entire trade in process with my Apple Watch. I decided to get the series 6 after Apple announced the Apple 7 watch. The biggest differences being a thinner screen and longer battery life, I didn’t need to wait. It was time for me to - [Wishing my daughter all the best in the world ❤️](https://multipleexperiences.org/2021/10/01/wishing-my-daughter-all-the-best-in-the-world-❤️/) - It is official, my daughter moved out yesterday. Unfortunately, she didn’t move locally so she won’t be popping over anytime. Her trips home will have to be planned with a plane, train or car. Everyone asked me all week if I was ok, and I really was. This morning saying goodbye tears flowed because of - [Like mother like daughter](https://multipleexperiences.org/2019/05/24/like-mother-like-daughter/) - I've been so happy having my daughter home again. It is so nice to see her beautiful face every morning smiling. The dogs are just as happy. As soon as her door opens they both go running to greet her. She's growing up and there is a new level of maturity she has now. She - [Not one of my finer moments](https://multipleexperiences.org/2017/08/22/not-one-of-my-finer-moments/) - Well I can definitively say that chip on my shoulder I work so hard to get rid of has not disappeared. I was having dinner last night with a friend and her son. My daughter has been friends with him since kindergarten. They have a brother and sister type of relationship and his mom and - [My baby girl](https://multipleexperiences.org/2019/01/23/my-baby-girl/) - My baby girl left today to go back to college. It was so hard. It was harder this time than it was when she left in August. My house feels really quiet. I know she's not going to be walking back through the door tonight and I'm so sad. I'm so glad that she loves - [Love to my daughter](https://multipleexperiences.org/2019/10/16/love-to-my-daughter/) - My baby is bringing her stuff down to her car again. I have both dogs on me staring at the door I might be just as sad as them, not because she's leaving, because she's still having a tough time with the roommates. We are trying to find someone to take over her portion of - [Part 2 My daughter's triumph being deaf with cochlear implants](https://multipleexperiences.org/2017/05/28/part-2-my-daughters-triumph-being-deaf-with-cochlear-implants/) - My daughter's first cochlear implant was done when she was 3 years old. When I made the decision to put in a cochlear implant, I was also making the decision to make her completely deaf. She would have absolutely no hearing in the implanted ear when the cochlear was off. This is a sweet video - [My daughter's triumph being deaf with cochlear implants.](https://multipleexperiences.org/2017/05/27/my-daughters-triumph-being-deaf-with-cochlear-implants/) - I have so much going on in the next month I'm a little overwhelmed. I'm trying not to think about it. The most important thing is my daughter turns 18 in a week. ONE WEEK SHE'S 18!!! How did this happen? What a long road we had. My daughter was born a little over a - [Chair workouts](https://multipleexperiences.org/2021/09/29/chair-workouts/) - I talk about working out so often I thought I should share some of my favorites. I go to Youtube often. There are so many free videos for working out that you have no excuse. I usually do 3 days weights and 3 days cardio. Yes, I do the MS Gym first and that I - [My beautiful girl moving this week](https://multipleexperiences.org/2021/09/27/my-beautiful-girl-moving-this-week/) - This was a beautiful weekend. I love the smell of the air with all the windows open. I had a perfect weekend. It didn’t involve much of anything but it just felt relaxing. No falls, no drama, no frustration and no aggravation. It was just nice. I like the quiet and lately I’ve needed the - [Graduation present cashed in](https://multipleexperiences.org/2021/09/24/graduation-present-cashed-in/) - Mikayla, my beautiful daughter, graduated back in May. Of course I shared that blog with you. https://multipleexperiences.org/2021/05/19/mikaylas-graduation/. It was a really exciting weekend. She got a lot of gifts for her graduation. My gift was to be https://multipleexperiences.org/2021/05/19/mikaylas-graduation/done when she was ready. I gave her the gift of paying for her next tattoo. She has - [Sometimes the dots don’t connect](https://multipleexperiences.org/2021/09/22/sometimes-the-dots-dont-connect/) - Well you can get Covid even after you’ve been fully vaccinated. My poor sister has been feeling awful this past week. She tested positive for covid. Like so many people, me included, we’ve gotten a little lax with the mask. I don’t think the vaccinations are lasting as long as they originally thought they would. - [Bike for MS](https://multipleexperiences.org/2021/09/20/bike-for-ms/) - Once again my brother is training for his 50 mile bike ride for multiple sclerosis. Each year he does this fundraiser in my name. Raising money riding a bike, something I've been unable to do for at least 8 years. Please help us find a cure for all of those who suffer daily but are - [Weekend plans, or not](https://multipleexperiences.org/2021/09/17/weekend-plans-or-not/) - When your day starts off with an accident and a fall, you aren’t feeling so optimistic for a good MS day. Yesterday evening was my second Kesimpta shot. I decided to once again do my thigh region. I did my right leg this time. That might not have been the best place. As soon as - [Bionic Gym highly recommended](https://multipleexperiences.org/2021/09/15/bionic-gym-highly-recommended/) - After all my worries over changing to Kesimpta, I’m now pretty darn happy I did. I felt fine after the shot on Thursday and all through the weekend. To not have to do a six hour infusion followed by 3 plus weeks of feeling lousy, I have to say I’m pretty excited. No more steroids. - [Dreams about the ex](https://multipleexperiences.org/2021/09/13/dreams-about-the-ex/) - I was all set to write about something else today but I had a dream that just pissed me off. It was about my ex boyfriend. He has been my ex boyfriend for almost 6 years. He is actually married and a stepdad living in another state. Ok, big deal I had a dream about - [First Kesimpta dosing shot](https://multipleexperiences.org/2021/09/09/first-kesimpta-dosing-shot/) - I started getting freaked out reading other people’s first shot reactions on the Facebook Kesimpta group. I thank Sherry for commenting on my Kesimpta delivery blog and telling me about the group but it didn’t help my nerves. Thankfully, I had a video conference with my neurologist yesterday. She explained Kesimpta is nothing like the - [My New Year strength list](https://multipleexperiences.org/2021/09/06/my-new-year-strength-list/) - It is Rosh Hashanah today, the Jewish New Year. I am actually participating with my family and going to my brother in-laws family. I have to admit, I haven’t been doing the big Jewish family dinners lately. My brother in-law’s family have been opening their home to us for the past 15 years. They are - [Kesimpta delivery scheduled](https://multipleexperiences.org/2021/09/03/kesimpta-delivery-scheduled/) - I got a call yesterday from the pharmacy about the delivery of my new medication, Kesimpta. I am being mailed 3 doses for my first month. I take a shot weeks 1,2 and 4. From there it will be once a month. The shot is recommended to be in my thigh, stomach or upper arm. - [My very early birthday list](https://multipleexperiences.org/2021/09/01/my-very-early-birthday-list/) - Good morning to all. It’s September 1st and I’m doing my happy dance. I made it through another summer. I want to be the kind of person that has a summer place where it is cooler like in Alaska or Iceland. Someplace I can retreat to during the hit and humid months in New York. - [Stress and Multiple Sclerosis](https://multipleexperiences.org/2021/08/30/stress-and-multiple-sclerosis/) - I’ve been trying to focus on other things going on with my body besides just a number on a scale. I purchased a HEALBE watch. I wear that on one wrist and still wear my Apple Watch on the other. It is a little odd but the HEALBE gives me insight into different things. I - [Out of my routine](https://multipleexperiences.org/2021/08/25/out-of-my-routine/) - I’m anxious today. I’ve had too many days already out of my normal routine and today is no different. I have to get the covid booster at 12 and game day in the building is at 1. I just finished exercising and getting dressed but I feel rushed. It didn’t help that I smacked my - [The week ahead](https://multipleexperiences.org/2021/08/23/the-week-ahead/) - It was a non existent hurricane in my area yesterday. Not just non existent but after the rain in the morning we didn’t even have rain. My mom, who lives 13 minutes from me, had rain on and off all day. My friend in the town next to me also had rain all day on - [Sometimes life is unfair](https://multipleexperiences.org/2021/08/20/sometimes-life-is-unfair/) - Happy Friday. I’m sitting here deciding what I want to write about because I know I have things I want to say, I just don’t know if I want to say it in my blog. My blog,that I’ve written the most embarrassing moments, I suddenly don’t want to put my feelings on display. Unfortunately, my - [Multiple sclerosis is physical and mental](https://multipleexperiences.org/2021/08/18/multiple-sclerosis-is-physical-and-mental/) - I had physical therapy again yesterday which once again ended up disappointing. I walked less than I ever walked in these sessions of PT. I woke up feeling good. I did my normal morning routine. I felt good and then I started getting tired. Therapy was at 12 and by that time I was already - [Rediscovering Dark Side of the Moon](https://multipleexperiences.org/2021/08/16/rediscovering-dark-side-of-the-moon/) - I forgot to take my nighttime pills before bed the other night. I should have realized when I was still awake after 11 o’clock. I was tired but unable to sleep. My leg was twitching, my neck was having little spasms and I don’t want to discuss what my stomach was doing. I can say - [I don’t recommend Physical therapy during the summer](https://multipleexperiences.org/2021/08/13/i-dont-recommend-physical-therapy-during-the-summer/) - Before I start my blog I want to wish my dear friend Hindi a Happy 50th Birthday. I love you. Have the greatest day. I’m melting. I am fully inside with the AC cranking but I feel the heat inside my bones. I was trying to transfer to my comfy chair this morning and it - [MS won this time](https://multipleexperiences.org/2021/08/11/ms-won-this-time/) - I had a very disappointing physical therapy session yesterday. I walked about a hallway and a half. The second full hallway still being my goal but once again escaping my grasp. I got tired and tried to sit for a second or two before I started my trek home. That was probably the beginning of - [Family weekend and a quiet week](https://multipleexperiences.org/2021/08/09/family-weekend-and-a-quiet-week/) - Good morning. Happy Monday. I had a nice weekend myself, lots of family. I started with my stepmom coming in from Florida. She came Friday afternoon with my younger sister. It was a really nice visit. I missed her hugs. I haven’t seen her in probably 2 years because of Covid. My little sister I - [Kesimpta concerns](https://multipleexperiences.org/2021/08/06/kesimpta-concerns/) - I wrote a whole blog on Wednesday but my site had issues and it never posted. To make it worse it didn’t even save anywhere. I spent 45 minutes writing and my words disappeared into a cyber black whole. It was very frustrating and I certainly didn’t want to rewrite another post. To be honest - [Summer cold 😷](https://multipleexperiences.org/2021/08/02/summer-cold-😷/) - June and July down, August to go. I see the end is coming. I might survive another summer. I certainly have been in hibernation thus far, going out only when it is absolutely necessary. Yet even in my isolated state I still managed to get sick. I’m the last 14 days I’ve been to a - [A trip to the gastroenterologist](https://multipleexperiences.org/2021/07/30/a-trip-to-the-gastroenterologist/) - I made it through this week. It was difficult at times but I stand by my decision to not bring in a substitute aide. I did have my regular aide in for the day yesterday because I had a doctor appointment. She was so helpful that she made herself available to be here during her - [Positive quotes for multiple sclerosis](https://multipleexperiences.org/2021/07/28/positive-quotes-for-multiple-sclerosis/) - I had a lousy physical therapy session yesterday. Actually pathetic was more like it. Lousy multiple sclerosis day and I have no idea why. My physical therapist says he wished he had a manic pill to cure MS. I would settle for a pill that gave me the day off or even an hour off. - [A better mood shift](https://multipleexperiences.org/2021/07/26/a-better-mood-shift/) - Mood has improved from last week, I am happy to say. However I might have another tough week coming up. My daughter is away and my aide is on vacation. . I chose not to replace the aide anyway because I really hate having new people in the house. They don’t know where anything is, - [Murphy’s Law](https://multipleexperiences.org/2021/07/23/murphys-law/) - I’m so glad this week is over. This week was tough. Everything that could go wrong went wrong, but dumb shit. Like knocking things over, my Apple Watch not working for a day, my Bionic Gym stopped working, the new coffee pot was delayed in delivery, and forgetting things I had planned. It was just - [Urinary Incontinence showing it’s ugly symptoms](https://multipleexperiences.org/2021/07/21/urinary-incontinence-showing-its-ugly-symptoms/) - You know those days where everything that can go wrong, goes wrong. That was my yesterday. It started with me knocking into my mailbox that consists of all little Knick knacks I need to be able to access quickly plus some mail. All those little things Minx loves to try to grab and run away - [Kesimpta was approved](https://multipleexperiences.org/2021/07/19/kesimpta-was-approved/) - I broke my glass coffee pot this weekend. This seems to happen every two years if not yearly. I do have to say the last time I wasn’t the one who broke it but I shouldn’t brag because I’m pretty sure every other time it was me. I don’t buy expensive coffee pots for this - [Friday is here again](https://multipleexperiences.org/2021/07/16/friday-is-here-again/) - I am playing mahjong today for the first time since the coronavirus. I’m not sure how long I’ll be able to play but I am hoping I can sit for 2 hours at least. Unfortunately my wheelchair cripples me more than I’m already crippled. It’s the muscles in my core (a reader of my blog - [Kesimpta was denied](https://multipleexperiences.org/2021/07/14/kesimpta-was-denied/) - My neurologist and I decided we were going to switch to Kesimpta by my next infusion date. https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/. My doctor wanted to start the process in July although my next infusion date isn’t until September. We entered the prescription into the pharmacy to start the process. It was less than 24 hours later that I - [Possibly switching to Kesimpta](https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/) - Happy Monday to everyone. I’m hoping the weekend was lovely for all. I was hit with some kind of stomach bug that disrupted my Saturday. That was the first time in a long time I felt those crippling stomach pains. Good to know I could still feel things in my belly. I must admit, sometimes - [Beyond Weight Loss](https://multipleexperiences.org/2021/07/12/beyond-weight-loss/) - Good morning. I am slightly behind schedule this morning because I didn’t really feel like getting out of my bed. I slept great too. However this time it was Minx who kept moving in and out from under the covers. I finally gave up and got up. I actually ate breakfast this morning for the - [Determined to walk](https://multipleexperiences.org/2021/07/09/determined-to-walk/) - These weeks are going by super fast. It’s Friday again already. Obviously, guess I didn’t really need to point that out. I just feel like things have been on hyper drive lately. It’s bizarre. I mean we are already through half of the year 2021. Didn’t we just celebrate the New Year? Does time speed - [New addition to my workout](https://multipleexperiences.org/2021/07/07/new-addition-to-my-workout/) - Is the summer over yet? I’ve already had enough of the heat and more importantly the humidity. I am thankful for my hair straightening giving me one less thing to worry about. I was never a fan of the summer even before my diagnosis. I was never one to cherish the sun. I have very - [What you doing this holiday weekend?](https://multipleexperiences.org/2021/07/02/what-you-doing-this-holiday-weekend/) - Friday again. Got big plans for the 4th of July weekend? I have been staying close to home on this holiday since I brought Boomer into my life 15+ years ago. When a 70lb bowling ball jumps into your lap cowering in fear, you tend to start adjusting your plans. My Marshmallow and Zoey were - [Distended stomach, possibly the MS Hug](https://multipleexperiences.org/2021/06/30/distended-stomach-possibly-the-ms-hug/) - My Firestick is set up with a photo album called puppies. It is the random pictures that are used on the screen like a screensaver. I have over 300 photos in that album and yet the same pictures would appear every single time. It has been this way for 6+ months. All of a sudden - [Firework Anxiety in Minx](https://multipleexperiences.org/2021/06/28/firework-anxiety-in-minx/) - Fireworks have already started being shot off by me. Not even big ones. The ones that you buy on the side of the road for cheap. They make more noise than light up the sky. My Minx has been going crazy. By far he has the worst reaction to fireworks than any other dog I’ve - [9 ways to hopefully help your dog stay calm during fireworks](https://multipleexperiences.org/2019/07/04/9-ways-to-hopefully-help-your-dog-stay-calm-during-fireworks/) - Happy 4th of July to everyone. This is a repeat post on dogs and fireworks. In memory of my dog, Boomer, who passed away a few years ago. He hated this holiday and I always wanted to stay near him because of his reaction to the noise. My 70lb English Bulldog would jump in my - [Today, yesterday and the week](https://multipleexperiences.org/2021/06/25/today-yesterday-and-the-week/) - I woke up this morning with a headache. Not the way I wanted to start my day. It is going to rain. Thankfully it isn’t a migraine. I actually haven’t had one of those in a while. Hopefully I don’t jinx myself. I have a happy day today. Lots of people coming over. My sister - [To Ollie, my Aunt and Uncle](https://multipleexperiences.org/2020/10/05/to-ollie-my-aunt-and-uncle/) - [Upright walker](https://multipleexperiences.org/2021/05/28/7096/) - Yes it was definitely more expensive than other walkers but keeping you in the upright position is HUGE. I was exhausted by the time I got it together yesterday and even with my heavy, difficult steps, I knew this was the right purchase. It is such a difference because you are standing straight. In the - [Weight loss frustration](https://multipleexperiences.org/2021/06/23/weight-loss-frustration/) - I’m frustrated today. I’ve joined an online program for weight loss. I’ve at my 3 month mark and I’ve gained 5lbs. Yes GAINED. I am the most health-conscious fat person I know. I’ve stopped eating vegan some time ago when I switch my home meal delivery service. I use cook unity now https://www.cookunity.com/landing-referral?referral_code=jams440863. I get - [Purging out the dresser](https://multipleexperiences.org/2021/06/21/purging-out-the-dresser/) - I slept in today, didn’t get out of bed until 9am. It’s 11:15 and I just finished an hour of exercise. I’m drinking my first sip of coffee. I had a good weekend. I watched the entire season 4 of the Handmaids Tale. I am still processing my thoughts on that one. I also took - [Neurologist retirement](https://multipleexperiences.org/2021/06/16/neurologist-retirement/) - My neurologist has joined one of the big group hospital networks as most of the doctors on Long Island are forced to do. I’ve been with him for 23 years. Everyone in his office knew me. It was originally his first wife, who unfortunately passed away, and another secretary. They added an additional bookkeeper when - [The energy graph](https://multipleexperiences.org/2021/06/14/the-energy-graph/) - I was taking it easy this morning with exercise because physical therapy starts today. Yet I’m huffing and puffing as I sit down to write this. I wanted to be in somewhat a stronger state because unfortunately he is coming late today, at least late to my MS body. He won’t be here until 3-3:30. - [My view on exercise](https://multipleexperiences.org/2021/06/11/my-view-on-exercise/) - I was watching a show about the Amish in Pennsylvania. I think what shocked me the most was some of the county’s names. I knew of Intercourse, PA but was amazed there is a place called Blue Ball, PA. It starts to make something innocent like Mount Joy, PA to maybe be not so innocent. - [When life gives you lemons](https://multipleexperiences.org/2021/06/07/when-life-gives-you-lemons/) - Not one of my better weekends. The humidity picked up significantly here and my body instantly felt the difference. I had a headache all day yesterday coupled with general weakness. Just made for a very tough day. I didn’t sleep well and of course that never helps. They’ve already started setting off fireworks around me. - [When life gives you lemons](https://multipleexperiences.org/2021/06/07/when-life-gives-you-lemons-2/) - Not one of my better weekends. The humidity picked up significantly here and my body instantly felt the difference. I had a headache all day yesterday coupled with general weakness. Just made for a very tough day. I didn’t sleep well and of course that never helps. They’ve already started setting off fireworks around me. - [Happy Birthday Mikayla](https://multipleexperiences.org/2021/06/03/happy-birthday-mikayla-2/) - Another year has gone by and my daughter is a year older. 22 years old, do you remember being 22? Part of me feels like it was yesterday and the other part feels that it was so long ago. It was 27 years ago to be exact. She is 22 which is the age I - [Spring cleaning](https://multipleexperiences.org/2021/06/01/spring-cleaning/) - Good morning world. I’ve been a busy beaver. Now that I’m feeling better I went back to cleaning. Yesterday I took on my nightstand. This is partly due to the fact that some of the items I would normally put in these draws have been thrown up on my computer desk. A not so steady - [Better but exhausted](https://multipleexperiences.org/2021/05/26/better-but-exhausted/) - Better today but still so tired. I went into bed at 8 last night and got out of bed after 8 this morning. Today is the first day I’m drinking coffee. Hopefully that helps. However I can feel already my body is exhausted. I did a very simple 30 minute workout because I have a - [Rough day](https://multipleexperiences.org/2021/05/25/rough-day/) - Rough day yesterday. I didn’t feel well when I woke up in the morning. I didn’t pay attention. I did my normal routine and was working out when Minx started eating something he shouldn’t. I reached down to pick up my grabber, which I myself knocked over, and literally fell out of the wheelchair. I - [I have multiple sclerosis](https://multipleexperiences.org/2021/05/21/i-have-multiple-sclerosis/) - I have multiple sclerosis. Sometimes this disease makes it so difficult. I pray for a day that everything wasn’t so hard. Yet one day I’ll look back at days the way I am now wishing I could have these back. That’s the thing, I know in time, it will be worse. That’s a truly sobering - [Mikayla’s graduation](https://multipleexperiences.org/2021/05/19/mikaylas-graduation/) - My beautiful girl graduated. I cried because I was just so proud of her. It was a beautiful day. We had such a wonderful time. I really think we all helped her feel so special as she deserved to feel. - [Choking on liquids](https://multipleexperiences.org/2021/05/17/choking-on-liquids/) - I had 2 choking episodes yesterday. Maybe choking isn’t the exact word because I really just swallowed wrong. The first one was mangos. Cut up in small pieces but slightly hard and very tart, just the way I like them. I swallowed wrong but it wasn’t the actual mango that was causing the problem. The - [Weight and weight of the scale](https://multipleexperiences.org/2021/05/14/7073/) - I spent 6 hours at the hair salon the other day. I had my hair straightened. A long process but worth the time it takes. I will not have to worry about doing my hair all summer. Shower, let dry naturally and it comes out perfect. That takes a tremendous amount of pressure off me - [My daughter graduating college](https://multipleexperiences.org/2021/05/12/my-daughter-graduating-college/) - My daughter is graduating from college on Tuesday. I am so proud of her. She has not had an easy road especially when it came to school. She was born with a progressive hearing loss called EVAS, enlarged vestibular aqueduct syndrome. In basic terms, her ear was formed with deformities. This enlarged tube allowed fluid - [Dedicated to Marshmallow](https://multipleexperiences.org/2021/05/10/dedicated-to-marshmallow/) - My dogs like to leave this world on holidays. My Boomer died on Christmas Day and Marshmallow was put down on Mother’s Day. Technically the date last year was different than this year snd it was officially a year ago today I said goodbye. However, it was the evening of Mother’s Day and that’s what - [Still have a view](https://multipleexperiences.org/2021/05/07/still-have-a-view/) - I finally found the plans for the hotel that will be taking up the empty lots in my direct view. The plans weren’t actually finalized until January of 2021. Originally the plans were for a three story hotel, a two story conference/wedding center and a two story covered garage was being built at the end - [Unexpected Friendship](https://multipleexperiences.org/2021/05/05/unexpected-friendship/) - I went out on a date with this guy 12 years ago and we’ve remained friends all this time. He took me to a Paul McCartney concert at CitiField, not a shabby first date. He was a pharmaceutical rep for another neurological disease. It was easy to make him fully aware I had multiple sclerosis. - [Jumping from a plane](https://multipleexperiences.org/2021/05/03/jumping-from-a-plane/) - Good morning. Another week starts again. It is grey looking outside. However the weekend was gorgeous. Open windows and fresh air, I love days like that. Having multiple sclerosis, I like when weather warms up but not when it gets hot. Unfortunately summer is right around the corner and that’s when the bad days will - [AM vs PM](https://multipleexperiences.org/2021/04/30/am-vs-pm/) - My phone rings at a little after 6am this morning. I pick it up thinking that it was possibly my contractor. It was my front gate. I had a delivery from Amazon. I set up a food delivery for today and took the only available window of time 5-7. I didn’t even realize that it - [Medical marijuana for MS, infections, migraines, stress, depression, arthritis…](https://multipleexperiences.org/2021/04/28/medical-marijuana-for-ms-infections-migraines-stress-depression-arthritis/) - This was sent to me from my dad. An interesting read on the use of marijuana with many neurological diseases and the red tape it still faces with our government. While arguing in court that marijuana has no medical value and is a dangerous drug on the one hand, the federal government is patenting marijuana - [Important information for Ocrevus and Rituxan patients and the COVID-19 vaccine](https://multipleexperiences.org/2021/04/23/important-information-for-ocrevus-and-rituxan-patients-and-the-covid-19-vaccine/) - I had a phone conference with my MS specialist yesterday in New York City. We discussed many things but the most important thing she discussed was the Covid vaccination. She knows that I had already had received both vaccines and of course that I take Rituxan. Rituxan is the older sister drug to Ocrevus. It - [Pain with Multiple Sclerosis](https://multipleexperiences.org/2021/04/22/pain-with-multiple-sclerosis/) - I get these pains, sometimes on my back or my side, out of nowhere. Usually along my bra line. Since I wear sports bras, this is a thicker band area. It always feels like there is something wrong on my skin in a certain area. Like a cut, rash or irritation except nothing is there - [Happy 1st Birthday Minx](https://multipleexperiences.org/2021/04/21/happy-1st-birthday-minx/) - My little boy is already a year old. We got this little bundle when he was eight weeks old. He was almost potty trained by then. He was the easiest pup I ever had. He was sleeping in my bed by the time he was six months old. He has been a handful at times, - [Happy 1st Birthday Minx](https://multipleexperiences.org/2021/04/21/happy-1st-birthday-minx-2/) - My little boy is already a year old. We got this little bundle when he was eight weeks old. He was almost potty trained by then. He was the easiest pup I ever had. He was sleeping in my bed by the time he was six months old. He has been a handful at times, - [How fatigue affects life](https://multipleexperiences.org/2021/04/19/how-fatigue-affects-life/) - I’ve been so tired lately. I never really took in to account how my body would react to work being done in my place. I knew I would be shifted around slightly but didn’t think it was a big deal. I was clearly wrong. By the time the afternoon comes around I’m struggling to get - [My four walls of multiple sclerosis](https://multipleexperiences.org/2020/10/07/my-four-walls-of-multiple-sclerosis/) - I wrote this blog post on November 7, 2016. Almost 4 years ago to the day. I was originally going to just link it in this post when I realized I would probably be repeating the same general things. Obviously Covid has made my MS daily activities null and void but I'm not complaining. Truthfully - [The Routine](https://multipleexperiences.org/2021/04/15/the-routine/) - I’m sure I’ve blogged about this at some point because I don’t do well with disruptions. The days of spontaneous activities have long been gone. I could never just meet someone for dinner at short notice. My life, or I should say my activities, are planned both mentally and physically. Everything I do requires a - [My magic button is broken](https://multipleexperiences.org/2021/04/13/my-magic-button-is-broken/) - I’ve been chilling in my room as work has begun in my kitchen/living room area. Making things more handicap accessible. Hopefully I will hit less walls with the additional space but I make no promises. Let’s be honest here, my wheelchair driving hasn’t improved. I’m actually waiting once again on a wheelchair repair. This is - [Bladder Hesitancy](https://multipleexperiences.org/2021/04/09/bladder-hesitancy/) - I’ve written so many blogs about my numerous “accidents” but I never discuss the other way. I actually experience both of them which is why Botox wasn’t an option for me. I dealt with hesitancy long before I dealt with the urgency and the accidents. What is urinary hesitancy mean? If you have trouble starting - [Bluetooth sleep mask](https://multipleexperiences.org/2021/04/07/bluetooth-sleep-mask/) - I posted my first video blog yesterday. A beautiful day in the neighborhood. I think that may become my new way to blog. Hopefully I'll become less nervous and stupid in front of the camera. I'm not one who likes photos or videos of myself so it was a little bit of an awkward position - [Multiple Experiences is on vacation](https://multipleexperiences.org/2021/03/31/multiple-experiences-is-on-vacation/) - I have to be honest, I'm not sure I still want to blog anymore. I have had this feeling once before over a year ago. https://multipleexperiences.org/2020/01/18/do-i-continue-to-blog/. At that time I realized I still loved writing about my life daily. I have poured my heart out in so many of these posts. I've shared every bad - [A beautiful day in the neighborhood](https://multipleexperiences.org/2021/04/06/a-beautiful-day-in-the-neighborhood-2/) - [I’m feeling ok, another infusion in the past](https://multipleexperiences.org/2021/03/30/im-feeling-ok-another-infusion-in-the-past/) - It is beautiful out although slightly chilly. That doesn't stop me from opening windows to let some fresh air through. I don't mind the chill, it feels nice because the sun is hitting this side of the building. Once the sun starts to move I will start to freeze. The temperature is only 46 degrees - [Contagious Laughing](https://multipleexperiences.org/2021/03/29/contagious-laughing/) - One day I have windows open in the house next day I’m turning on the heat. Crazy weather in NY. It was Passover this weekend. My mom and stepdad came over and we had a very revised Seder. However they had these new Passover books if I didn’t know the story of Passover I wasn’t - [Multiple sclerosis isn’t just my diagnosis](https://multipleexperiences.org/2021/03/26/multiple-sclerosis-isnt-just-my-diagnosis/) - I'm thankfully doing better today because I slept. Never under estimate the power of a good nights sleep. I was able to exercise a little this morning. I purposely decided to keep it simple and just do my MS gym exercises. There was an entire revamping of the MS gym and I actually started the - [Infusion or no sleep is kicking my ass](https://multipleexperiences.org/2021/03/25/infusion-or-no-sleep-is-kicking-my-ass/) - I haven’t slept well for two nights now. I spent the first night with those belly issues and last night with bladder issues. I was using the bathroom every hour. I honestly think this was somehow related to the infusion. I have had nights where I’ve used the bathroom frequently but every hour is something - [Hoping for a better tomorrow](https://multipleexperiences.org/2021/03/24/hoping-for-a-better-tomorrow/) - Yesterday was not my greatest morning. Belly issues but I was able to avoid the mess of things by getting in the shower fast enough. I made it in the middle of the night and the morning. I was so proud of myself. Such a stupid thing to be proud of, yet I was. I - [Multiple sclerosis medication and Liver](https://multipleexperiences.org/2021/03/23/multiple-sclerosis-medication-and-liver/) - Weather is changing in NY. The days are longer and I’m seeing boats going out on the ocean. I once again find myself staring out my balcony window thrilled that there has still been no construction on the hotel that will block my view from my chair. I one day will have to sit on - [Rituxan infusion pre-meds sickness](https://multipleexperiences.org/2021/03/22/rituxan-infusion-pre-meds-sickness/) - Hopefully I am through the worst of it now. Yesterday was pretty bad. I believe my exact words to my mom were, “I am four breaths shy of death”. There wasn’t a spot on my body that didn’t hurt. It’s a good thing these infusions happen every six months because you have plenty of time - [Feeling fine still but attitude needs an adjustment](https://multipleexperiences.org/2021/03/19/feeling-fine-still-but-attitude-needs-an-adjustment/) - So far I feel fine since my Rituxan infusion, although I am all too aware it won't stay this way. After being on Rituxan or Ocrevus for the last 4 years you kind of get a feel for these things. I do have to say I don't feel bloated from the infusion. I think it - [A IV port](https://multipleexperiences.org/2021/03/18/a-iv-port/) - It took 4 needle sticks to get my vein for the IV yesterday. Not only stressful but painful. I may have dulled sensation on my skin but it certainly still feels needles. This was my nurses 5 infusion with me. Each time it is getting harder and harder to start the IV. Yesterday this process - [Rituxan infusion day March 2021](https://multipleexperiences.org/2021/03/17/rituxan-infusion-day-march-2021/) - It's the day. It's finally here. I've been doing these infusions for so many years now. I was on Tysabri for a few years prior. You"d think I'd be totally accustomed to these things by now, but I'm not. I get really anxious before the infusion starts. Partially because finding my veins for an infusion - [Blisters and Rituxan](https://multipleexperiences.org/2019/10/29/blisters-and-rituxan/) - I am at my doctor's office for an appointment that has been canceled twice. Checking on those blisters that are still appearing under my breast. Blisters on breast. Allergic reaction to Rituxan. Originally deemed an allergic reaction to Rituxan because they appeared within hours of doing the infusion, they are still appearing. My neurologist was - [It’s the little things that make you proud](https://multipleexperiences.org/2021/03/15/its-the-little-things-that-make-you-proud/) - I’ve written many blogs showing things that I’ve accomplished over the years with multiple sclerosis. That is partially what this blog is about. There have been some in reference to my daughter https://multipleexperiences.org/2017/05/27/my-daughters-triumph-being-deaf-with-cochlear-implants/. Many about my workouts https://multipleexperiences.org/2021/01/27/im-kicking-ass/Lots about attitude and positivity https://multipleexperiences.org/wp-admin/post.php?post=2350&action=edit. However yesterday I think I had one of my biggest achievements so - [The hard day is done](https://multipleexperiences.org/2021/03/12/the-hard-day-is-done/) - I made it through the day yesterday but barely. I was absolutely shot by the time I got home. I got everything I wanted accomplished. I officially have handicap plates on my van. They almost didn’t let me get them. I had a copy of the original DMV doctor form. I didn’t think and grabbed - [A very busy day](https://multipleexperiences.org/2021/03/11/a-very-busy-day/) - Today is a jam packed day. It’s one of those days that really pushes my multiple sclerosis body to the edge. I still start off with my morning workout because workouts aren’t optional. Then I have to be at the department of motor vehicles by 11:30. I have an appointment so hopefully I won’t be - [Just a Wednesday](https://multipleexperiences.org/2021/03/10/just-a-wednesday/) - Is it really Wednesday already? This week seems to be flying by. I received my Covid test results this morning and I was negative as I expected. My county passed down new protocols for someone that was vaccinated. If they come into contact with a person who tested positive for Covid they don’t need to - [New programs at The MS Gym](https://multipleexperiences.org/2021/03/09/new-programs-at-the-ms-gym/) - The MS gym rolled out a brand new site and program yesterday. Based on the new program and functional maps, I was supposed to go back to the beginning again. I just completed the standing strong program. Even though I completed the program, I would have repeated the phases because I was far from mastering - [New food delivery service](https://multipleexperiences.org/2021/03/08/new-food-delivery-service/) - Good morning and happy Monday. I am happy to say my daughter is doing ok with her Covid symptoms. My daughter is positive for Covid She did go over to the hospital on Saturday because she had some heaviness in her chest but her lungs were clear. They prescribed an inhaler for her. She is - [Too much stress, not enough sleep](https://multipleexperiences.org/2021/03/05/too-much-stress-not-enough-sleep/) - I woke up with a killer headache. I use the word woke up very loosely because I haven’t been sleeping well and last night was no different. On a good note, I should reach my 12th hour of standing goal by 2pm. I’ve been going to sleep to a meditation track every night since last - [When did it change???](https://multipleexperiences.org/2021/03/04/when-did-it-change/) - I woke up this morning asking myself this very question. My disability has changed so subtly but so profoundly over the 3 years I've been just living in my condo. I specifically remember if I'd fall I'd have to crawl to a piece of furniture to help get myself up. This chair was a major - [My daughter is positive for Covid](https://multipleexperiences.org/2021/03/03/my-daughter-is-positive-for-covid/) - My daughter came home late Sunday night. She was going to stay home for a few days because she had a small break from work. Her classes for the beginning of the week are online. She hasn’t been home since the middle of January and we missed her. I’ve been vaccinated and I gave her - [Time flies by](https://multipleexperiences.org/2021/03/02/time-flies-by/) - March is a busy month for me starting right out of the gate. I have plans to see people this morning, this evening, tomorrow and Friday. I love having a social life but it always seems to fall into the same week. I have my long hair appointment this week, Cut and color. I never - [Video blogging and podcasts](https://multipleexperiences.org/2021/03/01/video-blogging-and-podcasts/) - I wanted to share this morning was a link to the MS gym podcast. https://themsgym.podbean.com/ or for Apple https://podcasts.apple.com/us/podcast/the-ms-gym-podcast/id1368971662. The topic was They have various topics all relating to many obstacles and challenges we face. I highly recommend you check this out. I sometimes wonder if my blog should be a video on YouTube as - [Ocrevus vs Rituxan](https://multipleexperiences.org/2021/02/26/ocrevus-vs-rituxan/) - My infusion scheduled for March 17. I've been on many of the disease modifying MS drugs over my 23 year span with the disease. Betaseron still holds the record of 12 years but that also has to do with the drugs that were available when I first got diagnosed. I have been on either Rituxan - [A good news blog](https://multipleexperiences.org/2021/02/25/a-good-news-blog/) - I just got off the phone with my vet. Minx had two different liver panels of bloodwork yesterday. One of them he was back in normal range. The other one is dropping significantly in the right direction. I don't remember what she called the test but a normal range high is about 120. When he - [Anxiety doesn’t sneak up on you, it pounces](https://multipleexperiences.org/2021/02/24/anxiety-doesnt-sneak-up-on-you-it-pounces/) - Happy Wednesday. It was happy when I wrote those two words which were over an hour ago. My phone has been ringing since. Nothing bad but diverting my attention away from the blog. Then things happened at once. Minx was about to go with my aide to the vet and he got sick. He hasn’t - [Skin infection, antibiotics and the one who couldn’t deal](https://multipleexperiences.org/2021/02/23/skin-infection-antibiotics-and-the-one-who-couldnt-deal/) - I was at my primary care physician yesterday because I have a cut on my shin that is infected. I had antibiotics in the house and I started to self medicate and it wasn’t really working so I got an appointment. She prescribed a stronger antibiotic and a cream but thankfully it wasn’t cellulitis or - [A horrible tail with a very happy ending](https://multipleexperiences.org/2021/02/22/a-horrible-tail-with-a-very-happy-ending/) - I can tell you many things about the last few days but I’ll start with this one. If you happen to see my blog on Friday, I had a little blip about Minx not feeling well. I even posted a picture I thought he was sick from eating pizza the night before. A ridiculous thought - [A horrible tail with a very happy ending](https://multipleexperiences.org/2021/02/22/a-horrible-tail-with-a-very-happy-ending-2/) - I can tell you many things about the last few days but I’ll start with this one. If you happen to see my blog on Friday, I had a little blip about Minx not feeling well. I even posted a picture I thought he was sick from eating pizza the night before. A ridiculous thought - [The day after the worst of the Covid vaccination](https://multipleexperiences.org/2021/02/19/the-day-after-the-worst-of-the-covid-vaccination/) - I'm doing better today. I slept all day yesterday. I even ordered a pizza because I was too sick to microwave or mix up one of my salads. I was so sick that when I was getting a slice one fell on the floor and I couldn't even bend to pick it up. I let - [Covid vaccination reaction](https://multipleexperiences.org/2021/02/18/covid-vaccination-reaction/) - All I can tell you is that sucked. I had a rough night. My whole body ached. I couldn’t even sleep through it. I found that ibuprofen did not help and when I finally took Tylenol that took the aches away. I was able to finally get a little sleep between the hours of seven - [Covid vaccination dose 2](https://multipleexperiences.org/2021/02/17/covid-vaccination-dose-2/) - Here I am in the back of my own van. My stepdad and mom are in the front seat. We are on the way to the Bronx for my 2nd Covid vaccination. My appointment was supposed to be on Thursday but snow is expected for that day. So we are on our way. This time - [I did it!!!](https://multipleexperiences.org/2021/02/16/i-did-it/) - Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. - [Valentine’s Day marks 23 years with multiple sclerosis](https://multipleexperiences.org/2021/02/15/valentines-day-marks-23-years-with-multiple-sclerosis/) - At the age of 49 I’ve lived almost half my life with the disease. It was the weekend of Valentine’s Day when I was moving into my new home that my left foot started to go numb. Within 4 days it was all the way up the entire side of my body. Within 6 days - [My comfy chair is fixed](https://multipleexperiences.org/2021/02/12/my-comfy-chair-is-fixed/) - My week ended on a much brighter note that it began. My comfy chair, which has still been out of order, has now been fixed thanks to my amazing abilities and a $13 Amazon part. I’ve spent countless hours on the phone with Bob’s furniture realizing they had no idea what part I was actually - [Once again on the floor](https://multipleexperiences.org/2021/02/11/once-again-on-the-floor/) - Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and - [That didn’t go to plan](https://multipleexperiences.org/2021/02/10/that-didnt-go-to-plan/) - Today’s exercise didn’t go quite as planned. This is the first time I couldn’t get up off the floor and overdid it trying. I finally realized I needed to stop for a little and try again so I decided to write my blog. I’m not really tired but I’m hot so a little cool down - [Does getting out of bed count?](https://multipleexperiences.org/2021/02/09/does-getting-out-of-bed-count/) - Good morning world. I’m in my chair after my workout drinking a cup of ice coffee. My first cup since Sunday. I spent the day in bed yesterday after being up all night with stomach issues. I emerged from my bed after 4pm to feed the dogs and was back asleep again by 8pm. I - [Better out than in](https://multipleexperiences.org/2021/02/05/better-out-than-in/) - I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has - [Time for handicap plates on my van](https://multipleexperiences.org/2021/02/04/time-for-handicap-plates-on-my-van/) - I’ve been wanting to get handicap plates on my van since I purchased the vehicle. There was a whole thing with the plates because I purchased the van in New Jersey and I live in New York. At that time I would’ve had to surrender the plates and re-register after I just paid the NYS - [Why I believe in the MS Gym](https://multipleexperiences.org/2021/02/03/why-i-believe-in-the-ms-gym/) - Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked - [Snowstorm results and flooding expectation](https://multipleexperiences.org/2021/02/02/snowstorm-results-and-flooding-expectation/) - Good morning world. How are you this fine Tuesday morning? The big snowstorm didn't leave as much as anticipated, from what I can see from my window. It rained last night and that definitely changed things. Cars are easily going down the road However that little snow and ice doesn't work well for me. Power - [Snow day 2021](https://multipleexperiences.org/2021/02/01/snow-day-2021/) - Look, I'm getting my snowstorm. Unfortunately, it's not a blanket of white because plows already came through but it's still snowing hard. The expectation is a total snow accumulation of 8-12 inches. I thought it would be more because it actually started around 8 last night. The wind was howling too. I should know I've - [A vegan/healthy snack find on Amazon](https://multipleexperiences.org/2021/01/29/a-vegan-healthy-snack-find-on-amazon/) - Good morning and Happy Friday. I think I should be saying TGIF. I didn't do much this week but I still feel a little drained. I am currently looking at the water which is glistening in the sun. Looks beautiful but I know it's cold outside. It is still so wonderful to look at especially - [Workout, nails and good friend](https://multipleexperiences.org/2021/01/28/workout-nails-and-good-friend/) - I just finished my workout. I’m happy to report I did the whole thing from beginning to end without a long break in between already on day 4. I’m kicking ass. I have a pretty good system to get me off the floor using my wheelchair. I might be able to use my own strength - [I’m kicking ass](https://multipleexperiences.org/2021/01/27/im-kicking-ass/) - I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really - [Minx ate my big comfy chair](https://multipleexperiences.org/2021/01/26/minx-ate-my-big-comfy-chair/) - I have had to make a switcharoo I my house. My big comfy chair has been moved to the balcony and my chair on the balcony has been moved inside. It wasn’t a decision I wanted to make but I had no choice. It was Minx’s fault. My innocent little puppy wasn’t such a good - [Possible delayed Covid vaccine reaction or just Multiple Sclerosis](https://multipleexperiences.org/2021/01/25/possible-delayed-covid-vaccine-reaction-or-just-multiple-sclerosis/) - I want to start this blog by saying that normally I’m a hot box. I’m wearing T-shirt’s in winter, my sweatshirt is my idea of a jacket and I normally like the air a little chilly. This hasn’t been the case this year. I’ve been cold, especially at night. I’ve been waking up having slight - [After the 1st Covid vaccination](https://multipleexperiences.org/2021/01/22/after-the-1st-covid-vaccination/) - I really got my first dose of the Covid vaccine yesterday. I can tell you that by the group of 10 people that received the shot with me, it definitely was who you know or who you were related too. There was a family of 4 with me. 2 elderly people and what I assume - [Getting my 1st Covid vaccine dose](https://multipleexperiences.org/2021/01/21/getting-my-1st-covid-vaccine-dose/) - If you would believe I’m strapped in to the back seat of my van on my way to get a Covid vaccination. My stepdad is driving, mom in the front and I’m bouncing around in the back. My van doesn’t have the greatest suspension so it isn’t the smoothest ride inb I can’t tell you - [Covid vaccination information for MS patients](https://multipleexperiences.org/2021/01/04/covid-vaccination-information-for-ms-patients-2/) - Happy New Year, Welcome 2021. Now what? Holidays are over and after I always feel an unsettling, like what do we look forward to now. I think it happens for me because I love the fall season. My birthday is in November so I like that whole line of October toward. I love when the - [Covid vaccination for people with MS](https://multipleexperiences.org/2021/01/14/covid-vaccination-for-people-with-ms/) - I wrote a blog giving you information that my specialist in NYC has given to all their patients. Covid vaccination information for MS patients. The National MS Society has also released information https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance. There is a great article on vaccines in general with various MS drugs that I definitely encourage everyone to look at https://www.mslivingwell.org/2020/11/28/vaccines/. - [46th President to be sworn in](https://multipleexperiences.org/2021/01/20/46th-president-to-be-sworn-in/) - The inauguration is today. I’m hoping there is peace around the country. I have never watched an inauguration in my 49 years on this earth. I hated politics. It is the one area I purposely remained ignorant about. Over the past 6 years or so, prior to the last presidential election, I started paying more - [Taking a few days off from workouts](https://multipleexperiences.org/2021/01/19/taking-a-few-days-off-from-workouts/) - This is an amazing thing, I’m taking a few days off from exercising. If you follow my blog, you know this is a big, big, thing for me. If you don’t follow my blog, take my word for it, this is a major thing for me. I don’t skip workouts. They aren’t an optional thing - [True Love](https://multipleexperiences.org/2021/01/18/true-love/) - I watched my beautiful cousin get married yesterday via internet live feed. I was able to access their wedding website and links through my Firestick internet. We were able to watch everything through my TV sitting comfortably in my living room as opposed to hunched over an iPad. My mom and stepdad came over so - [Neat Stuff](https://multipleexperiences.org/2021/01/15/neat-stuff/) - More fun knowledge stuff sent to me from my dad. I thought it was a perfect way to end the week. Enjoy and have a great weekend. Glass takes one million years to decompose, which means it never wears out and can be recycled an infinite amount of times! Your tongue is the only muscle in - [Hot flashes](https://multipleexperiences.org/2021/01/13/hot-flashes/) - I am not sure but I might be having hot flashes. I honestly can't tell because I get the same issue with my MS. How are you supposed to tell the difference? I can overheat,from doing nothing, and start sweating anytime. I've blogged numerous times about the issues with MS and regulating body temperature. https://multipleexperiences.org/2018/07/16/regulating-body-temperature-with-ms/ - [Loving me for me not the scale](https://multipleexperiences.org/2021/01/12/loving-me-for-me-not-the-scale/) - I stop talking about my weight for a while now. I still weigh in every week and Trackett, I just don't talk about the number. I am still between 10 and 13 pounds higher than my average where I was at before I really became disabled. I still work out six days a week. I - [I’d love a day off from my symptoms](https://multipleexperiences.org/2021/01/11/id-love-a-day-off-from-my-symptoms/) - Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I've had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up....  I must say, so far, - [I’m in a mood today](https://multipleexperiences.org/2021/01/08/im-in-a-mood-today/) - I wasn't feeling well all day yesterday. I actually napped most of the day. Well I had the TV on and my eyes closed. For me that's pretty much napping. I just didn't feel well. No fever, no aches but my muscles felt sore. That was the best way for me to describe it. I - [It’s time to heal](https://multipleexperiences.org/2021/01/07/its-time-to-heal/) - I don't know what I want to blog this morning because I am still in complete disbelief over the events of yesterday in Washington. I don't believe my political beliefs have any place on a blog about multiple sclerosis. Yet I believe that my spiritual beliefs have merit because that is what drives how I - [You can’t make this up....](https://multipleexperiences.org/2021/01/06/you-cant-make-this-up/) - My daughter and I have had been eligible for our phones to be upgraded for over a year. It has been so long that I actually paid off both phones within our Verizon plan. My daughter always wants a new phone but somehow I got her to keep her phone for 3 years now. She's - [Covid vaccination](https://multipleexperiences.org/2021/01/05/covid-vaccination/) - First UK varied strain of Covid was detected in New York yesterday. They say this strain is more contagious than the original Covid that is still spreading everywhere. Thankfully this new strain doesn't seem to make the conditions of the virus any worse than it already is. And happy new year to you too..... NY - [Covid vaccination information for MS patients](https://multipleexperiences.org/2021/01/04/covid-vaccination-information-for-ms-patients/) - Happy New Year, Welcome 2021. Now what? Holidays are over and after I always feel an unsettling, like what do we look forward to now. I think it happens for me because I love the fall season. My birthday is in November so I like that whole line of October toward. I love when the - [New Year’s Day by U2](https://multipleexperiences.org/2021/01/01/new-years-day-by-u2-2/) - As always my first blog of the year goes to U2. The band that had the majority of my life's soundtrack. This song is off one of my truly favorite U2 album,War, that was signed by Adam Clayton and Bono. The same album was held tightly in my hands as my head leaned against Bono - [Funny Farewell to 2020](https://multipleexperiences.org/2020/12/31/saying-farewell-to-2020/) - Here are 12 things to consider as we get closer to closing the door on one of the most trying years of our lifetime. The dumbest thing I ever bought was a 2020 planner. I was so bored I called Jake from State Farm just to talk to someone. He asked me what I was - [How I’m saying goodbye to 2020](https://multipleexperiences.org/2020/12/30/how-im-saying-goodbye-to-2020/) - This is one of the last blogs of 2020. Normally I do a reflective blog on the year and a revelation on the up coming year but I don't want to do either. I don't question what I have done nor do I doubt what I will do. A few big things happen in 2021 - [From the desk of Jamie Starr](https://multipleexperiences.org/2020/12/29/from-the-desk-of-jamie-starr/) - My whole life every time my dad sent me something it was enclosed with a small note on his stationary From the desk of Michael...I'm not sure when I started keeping the notes but at some point I did regardless what they said. I'd put them in a draw and leave them there. I must - [An epiphany moment](https://multipleexperiences.org/2020/12/27/an-epiphany-moment/) - Have you every had an epiphany? I was listening to a video message from Trevor Wicken, the owner/trainer of the MS gym, and I had one yesterday. I joined the gym about 5 months ago and have followed a workout program constantly since the day I started. I've written numerous blogs about the gym, I - [Merry Christmas](https://multipleexperiences.org/2020/12/25/merry-christmas/) - Wishing everyone a very Merry Christmas and Happy Holiday. Enjoy your weekend and stay healthy and safe. - [Dedicated to Boomer](https://multipleexperiences.org/2020/12/24/dedicated-to-boomer/) - I am dedicating today's blog to the first dog I had the privilege of bringing into my home. Tomorrow on Christmas Day marks four years since he has passed. My Boomer was my everything and I was heartbroken when he passed. A piece of my heart is still missing. I love actually adore all my - [Amazon’s Sound of Metal](https://multipleexperiences.org/2020/12/23/amazons-sound-of-metal/) - Have you ever watched a movie that depicted someone that had the same illness or problem as you and it was depicted almost incorrectly? Yesterday I watched the movie from Amazon called Sound of Metal. It's about a drummer who loses his hearing and ends up in the deaf community and ultimately decides to get - [Amazon’s Sound of Metal](https://multipleexperiences.org/2020/12/23/amazons-sound-of-metal-2/) - Have you ever watched a movie that depicted someone that had the same illness or problem as you and it was depicted almost incorrectly? Yesterday I watched the movie from Amazon called Sound of Metal. It's about a drummer who loses his hearing and ends up in the deaf community and ultimately decides to get - [Amazon’s Sound of Metal](https://multipleexperiences.org/2020/12/23/amazons-sound-of-metal-3/) - Have you ever watched a movie that depicted someone that had the same illness or problem as you and it was depicted almost incorrectly? Yesterday I watched the movie from Amazon called Sound of Metal. It's about a drummer who loses his hearing and ends up in the deaf community and ultimately decides to get - [Spreading holiday joy](https://multipleexperiences.org/2020/12/22/spreading-holiday-joy/) - I went around my building yesterday spreading Holiday Joy. Every year I buy Mrs Prindable apples to give as gifts for the holiday season. This year I decided to give them to my friends in my building and some other people that are around me. I had my gifts for the people that work in - [My aide is back and helpful tips from my Aunt](https://multipleexperiences.org/2020/12/21/my-aide-is-back-and-helpful-tips-from-my-aunt/) - Hello again, it is once again Monday. I'm very happy to say my aide will be here today. Unfortunately, it will take me some time to recover from the last week doing it mostly alone. Even having food prepared and only doing what I absolutely had to do, it was a rough week. There is - [My review of the massage gun](https://multipleexperiences.org/2020/12/18/my-review-of-the-massage-gun/) - I have to talk about my purchase of the massage gun. A massage gun for spasticity. I wanted one for some time but kept putting it off. They weren't cheap. I kept thinking is they'd be like those massagers you got at drugstore that you used for a week and never used it again. These - [Not exactly a snowstorm](https://multipleexperiences.org/2020/12/17/not-exactly-a-snowstorm/) - An uneventful snowfall, as they said it would be, for my area. Not the blanket I was hoping to wake up to but pretty I guess. I was watching this car for a bit as it's tires kept spinning. He was unable to find traction to get out of the lot. o I learned the - [Mid week review](https://multipleexperiences.org/2020/12/16/mid-week-review/) - Well the major snowstorm that is going to pound the northeast is going to leave significantly less on part of Long Island. I'm located in that part. We should only see 3-5 inches by the end. We will get the sleet mixed with rain making for a more snowy mess than a beautiful snowy blanket. - [Let’s talk medication side effects](https://multipleexperiences.org/2020/12/15/lets-talk-medication-side-effects/) - Good morning. It's a beautiful sunny morning here, the calm before the storm. The snow is coming tomorrow afternoon through Thursday morning. I have no where to be so I'm all good. Looking forward to watching the first snow fall of the year even though the majority will fall overnight. I have been wanting to - [Happy Monday Morning](https://multipleexperiences.org/2020/12/14/happy-monday-morning/) - Happy Monday morning. Slightly dreary here with light rain and cloudy skies but that's ok, I'm not outside. I heard we may be having our first snowstorm this week. I'm not sure what the current predictions are but I do love the snow. Granted I become even more trapped in my home when snow falls - [Happy Monday Morning](https://multipleexperiences.org/2020/12/14/happy-monday-morning-2/) - Happy Monday morning. Slightly dreary here with light rain and cloudy skies but that's ok, I'm not outside. I heard we may be having our first snowstorm this week. I'm not sure what the current predictions are but I do love the snow. Granted I become even more trapped in my home when snow falls - [It is always something](https://multipleexperiences.org/2020/12/11/it-is-always-something/) - Happy Friday. The sun is out and even though it is cold outside, my condo feels nice and comfortable from the way the sun hits the windows. I just set up my pills for the next two weeks. A daunting task but I'm always happy when I don't have to arrange them for a while. - [What would you change?](https://multipleexperiences.org/2020/12/10/what-would-you-change/) - My physical therapist is a huge Beatles fan. I'm talking huge, on the level of Beatle fan trivia champion. I'm not sure if that is such a thing but if it was, he could give a run for the title. I can appreciate that level of fan fanatic since I was one for U2 back - [What would you change?](https://multipleexperiences.org/2020/12/10/what-would-you-change-2/) - My physical therapist is a huge Beatles fan. I'm talking huge, on the level of Beatle fan trivia champion. I'm not sure if that is such a thing but if it was, he could give a run for the title. I can appreciate that level of fan fanatic since I was one for U2 back - [80’s item to solve current day MS issue](https://multipleexperiences.org/2020/12/09/80s-item-to-solve-current-day-ms-issue/) - Another night of interrupted sleep. You know it was a bad night when you already have 6 boxes of stand credit on your Apple Watch that just reset at 12am. I was up every other hour to use the bathroom. The only time I actually slept longer than two hours was from 6:30-9. I wish - [Multiple sclerosis issues at non opportune times](https://multipleexperiences.org/2020/12/08/multiple-sclerosis-issues-at-non-opportune-times/) -  today is going much better than yesterday. I even stayed in bed a little longer today which was nice. Then I got a whole Lotta Lovin from my puppies. I got up, fed everybody, brushed my teeth and worked out. I did my flexibility stuff and then finished yesterday's workout. That always makes me - [New Apple Watch fitness suggestions](https://multipleexperiences.org/2020/12/07/new-apple-watch-fitness-suggestions/) - I have a bond to pick with my Apple Watch. In the fitness settings there should be a track for disabled. That track should be worth double of that of a person who is well because each move for me is 10 times harder. My heart rate tracker I'll never understand, I'm huffing and puffing - [Happiness is two dogs and a comfy chair](https://multipleexperiences.org/2020/12/04/happiness-is-two-dogs-and-a-comfy-chair/) - I'm exhausted. I just can't start this blog any other way. I've been tired all week, shocking, I know. I think a major part of my fatigue has been the broken arms of my wheelchair. It was so difficult to get myself in position with that broken arm. I had my appointment yesterday. They were - [A massage gun for spasticity](https://multipleexperiences.org/2020/12/03/a-massage-gun-for-spasticity/) - Yesterday I purchased one of those massage guns. I've been looking at them for a while because sometimes I'm in such pain from spasticity. Last night was one of those nights where out of nowhere my whole back a neck tightened. I always describe this like someone took a fork and twisted it like they - [No other alternative](https://multipleexperiences.org/2020/12/02/no-other-alternative/) - My Zoey was diagnosed once again with giardia that pesky parasite. Unfortunately it was Minx who brought it in when he came to us. Very unusual I thought for a breeder. Anyway a round of treatment and Minx was cured. We even treated Zoey as a precaution because my Zoey has a disgusting habit of - [Today is a new day](https://multipleexperiences.org/2020/12/01/today-is-a-new-day/) - Yesterday was not such a great day. I wasn't even able to get through my workout. I was interrupted by a trip to the bathroom that unfortunately showed my fatigue. I must give myself credit here because we all know I usually push instead of stopping. Persistent isn’t always a good thing. I had physical - [Sakara food delivery so much thanks for a great gift](https://multipleexperiences.org/2020/11/30/sakara-food-delivery-so-much-thanks-for-a-great-gift/) - My birthday present started this week. I enrolled in a weekly plan with Sakara. I originally found this food delivery company through my cousin and I got a scholarship for a full week of their food. https://multipleexperiences.org/2020/10/06/my-sakara-journey-begins/. It was so good, so fresh and perfect for me except the price. I knew I didn't need - [Sakara food delivery so much thanks for a great gift](https://multipleexperiences.org/2020/11/30/sakara-food-delivery-so-much-thanks-for-a-great-gift-2/) - My birthday present started this week. I enrolled in a weekly plan with Sakara. I originally found this food delivery company through my cousin and I got a scholarship for a full week of their food. https://multipleexperiences.org/2020/10/06/my-sakara-journey-begins/. It was so good, so fresh and perfect for me except the price. I knew I didn't need - [Thankful for the connections made through blogging](https://multipleexperiences.org/2020/11/27/thankful-for-the-connections-made-through-blogging/) - Over the years blogging, I've connected with many people that have multiple sclerosis or some other chronic disease. I've even connected with people who just love dogs like I do. I have even developed a cherished online friendship with a few of these people. I've crossed paths with so many that have been an inspiration - [A thanksgiving tale](https://multipleexperiences.org/2020/11/26/a-thanksgiving-tale/) - Happy Thanksgiving!!! I had this wonderful idea of what I was going to post today, but activities of my early morning took over my headlines. It was roughly 4:00am, we, Zoey,Minx and myself, were all sleeping soundly when all of a sudden.... Minx immediately starts barking. I wake up rattled. Zoey is up running on - [Knowledge is power](https://multipleexperiences.org/2020/11/25/knowledge-is-power/) - We are doing a little better here. Thankfully the Allen key set my daughter purchased was indeed the correct set. With the help of my friend (who also did my nails), we fixed the one side. Certainly makes driving a whole lot easier. I have an appointment for the repair people to come next Thursday. - [Ugh frustrated](https://multipleexperiences.org/2020/11/24/ugh-frustrated/) - I'm in a crabby mood today. I'm frustrated. They finally called me about my wheelchair at 5:30 last night. I didn't recognize the number so I didn't pick it up and they told me to call back. Of course they close at five so calling back did nothing. I've been dealing with this chair that - [Goal accomplished](https://multipleexperiences.org/2020/11/20/goal-accomplished/) - I accomplished the really hard workout that took me down last week. Persistent isn’t always a good thing. Not only did I accomplish it, I doubled up exercises that weren't squats. I kicked butt. This doesn't even include the warmup that I forgot to start my Apple Watch. I would have had an additional 15 - [A day at the hair salon](https://multipleexperiences.org/2020/11/19/a-day-at-the-hair-salon/) - I'm in the hair salon. I'll be here for hours. When I say hours I mean like a total of 6 hours. I'm getting my hair straightened. It's a long process. My hairdresser takes even longer because she's meticulous. I had to put on one of the disposable paper masks so it's a matter of - [A day at the hair salon](https://multipleexperiences.org/2020/11/19/a-day-at-the-hair-salon-2/) - I'm in the hair salon. I'll be here for hours. When I say hours I mean like a total of 6 hours. I'm getting my hair straightened. It's a long process. My hairdresser takes even longer because she's meticulous. I had to put on one of the disposable paper masks so it's a matter of - [My happy place](https://multipleexperiences.org/2020/11/18/my-happy-place/) - The sun is shining off the water in the way I love. It's the kind of day I could get lost in my view outside. I love it here. I love my condo. I love the space and how it works so well for me with my disability but mostly I love my view. I - [A bad day can be just that, a day](https://multipleexperiences.org/2020/11/17/a-bad-day-can-be-just-that-a-day/) - For the many bad days of multiple sclerosis, there are better ones as well. Yesterday was one of those days. I started off with a workout as usual. My energy level was definitely high and I was able to double up on all the arm exercises. I had one of those workouts where I was - [Sometimes I wish it wasn’t so damn hard](https://multipleexperiences.org/2020/11/16/sometimes-i-wish-it-wasnt-so-damn-hard/) - Friday was a tough day. I wrote how it started Persistent isn’t always a good thing but it never got better. I was exhausted most of the afternoon. My older sister came for a quick visit with her family but she too was having a tough week. I opened a bottle of wine for her. - [Persistent isn’t always a good thing](https://multipleexperiences.org/2020/11/13/persistent-isnt-always-a-good-thing/) - Rough morning and it was completely my fault. I decided to wear jeans today for the first time in 8 months. I figured now that I'm wearing this nightgown to bed, let's not dress like a slob. I got my pants on with a little effort. I don't unbutton or unzip my jeans since it - [Kidney sonogram completed](https://multipleexperiences.org/2020/11/12/kidney-sonogram-completed/) - So I finally got did the kidney sonogram yesterday. I decided not to start drinking the water until I left the house for the appointment. The appointment was at 2:30 I left my house about 2 o'clock. I have an extremely large water jug I drink every day so I started sucking down my water. - [Simple things to make life a little easier](https://multipleexperiences.org/2020/11/11/simple-things-to-make-life-a-little-easier/) - First let me say happy Veterans Day. A very grateful thank you for all that have served in our military forces. That is truly a brave and courageous act that should never be unrecognized by any citizen of the United States. I was supposed to have my yearly physical yesterday. It took me two months - [Fighting MS starts in your attitude](https://multipleexperiences.org/2020/11/10/fighting-ms-starts-in-your-attitude/) - Yesterday during physical therapy the first thing we did was put me on the floor to get up. I just knew I had the strength to do it at this time and the first time I got myself up fairly quickly. So we did it for a second time. This time was harder, but I - [MS gym program exercise in a chair](https://multipleexperiences.org/2020/11/09/ms-gym-program-exercise-in-a-chair/) - Can someone please explain this weather to me? One day I'm bundled in my sweatshirt putting on the heat. The next day I'm opening windows overheating at night under my blankets. No joke!!! I overheated last night in my bedroom. It made for a very long night. I had a super difficult time getting back - [Celebrating with love](https://multipleexperiences.org/2020/11/06/celebrating-with-love/) - Yesterday started the November/December celebrations Although now that my sister is in the process of adopting twin girls, we may need to push this start date to October 27th for their birthday. I always felt slightly bad for my older sister in these two months because she really gets slammed. I at least have some - [Awake way to early](https://multipleexperiences.org/2020/11/05/awake-way-to-early/) - It's 9am and I've already showered, worked out for 54 minutes, took care of my dogs and spoke with my mom. I've been up since roughly 6 when my right foot started twitching. Even though this video was taken when I was awake and in my chair, it is exactly what happens anytime and anyplace - [I voted](https://multipleexperiences.org/2020/11/04/i-voted/) - Can we talk about anything but the election? No matter who you voted for, this is a very close race. I don't like politics, I never did. I actually remained ignorant on the topic for a very long time. I voted only for a presidential candidate based on one issue that I still 100% stand - [Physical therapy 1st appointment](https://multipleexperiences.org/2020/11/03/physical-therapy-1st-appointment/) - I can't say enough good things about this guy. He is just a person size package of warmth and healing. It is nice to be the only one the therapist is focused on during an hour session as well. Even though my occupational therapist was from the same company, he was no where near the - [Turning 49 in November](https://multipleexperiences.org/2020/11/02/turning-49-in-november/) - Happy Monday once again. These weeks come so fast. Can't believe it's November already. I turned 49 in a couple of weeks. Oh joy. I'm looking at pictures that are flashing on my fire stick and my mother was my age. My daughter, who is now 21, is only four years off from when I - [New purchases to help and aid](https://multipleexperiences.org/2020/10/30/6686/) - I figured something out once again out of dumb luck. Yesterday morning when I was getting out of bed, I actually had a slide onto the floor. When I wake up sometimes I have major spasms and my legs just don't bend the right way. Yesterday was one of those days. Sometimes I'm able to - [New physical therapist](https://multipleexperiences.org/2020/10/29/new-physical-therapist/) - I had my physical therapy evaluation yesterday at 3 o'clock. I thought the time alone would be a complete disaster. I worked out yesterday from 9 to 10 AM. I had my beautiful sister here from about 11 to 1:30. I I thought I was exhausted but oddly enough I really had a second wind. - [Refocusing my thinking](https://multipleexperiences.org/2020/10/28/refocusing-my-thinking/) - I realize some thing yesterday, my post was pretty negative. I mean just filled with complaints about needing appreciation for doing something for somebody else. A complete opposite from my spiritual practice and what that teaches. It is certainly not about a thank you or someone else's debt they owe you. You offer help because - [I needed that](https://multipleexperiences.org/2020/10/27/i-needed-that/) - I didn't wake up in such a cheery mood today. Very unlike me too. Even when the first thing I see when my eyes open would be the faces of my babies, I still wasn't really happy. I had a long day yesterday and I canceled my kidney sonogram. I just couldn't deal with drinking - [Safety first doesn’t mean I’m safe](https://multipleexperiences.org/2020/10/26/safety-first-doesnt-mean-im-safe/) - I try to do the safe things, I really do. Even when I'm trying to be at my safest I still have issues. Let's take last night as an example. My dad called as I was about to go to the ladies room, so I told him I'd call him back in a minute. On - [My little boy Minx](https://multipleexperiences.org/2020/10/23/my-little-boy-minx/) - I'm the worst mom. Yesterday I posted this lovely blog for Minx Happy 6 month Birthday Minx on his six month birthday, the only problem was it wasn't yesterday, it was the day before. DUH!!!! I'm the 22nd, he's the 21st. I really don't know how I got so confused. Minx is actually born on - [Happy 6 month Birthday Minx](https://multipleexperiences.org/2020/10/22/happy-6-month-birthday-minx/) -  I can't believe he's only been with us for four months because we didn't get him until he was eight weeks old. He's honestly been the best puppy that I ever had. He has been out of the crate for so long, I don't know why I still haven't put it away. I certainly - [Hair through the years](https://multipleexperiences.org/2020/10/21/hair-through-the-years/) - My screensaver for my fire cube is pictures. It mixes up pictures that are on both mine and my daughter's phone. The pictures are random on some type of rotation but after a few months, you've seen them all. It doesn't show every picture we have but once in a while a rare one will - [Bedtime companions](https://multipleexperiences.org/2020/10/20/bedtime-companions/) - I dozed off in my comfy chair last night and was far too tired and comfortable to move into my bed. As long as my dogs and my humpty are with me, I'm good. Yes, i still sleep with a doll at 48 years old. My human have been with me since I was a - [Cold outside and I’m sweating....](https://multipleexperiences.org/2020/10/19/cold-outside-and-im-sweating/) - It's 48 degrees out and I'm in a complete sweat. I haven't even worked out yet because I have therapy this morning. I am sitting around waiting for my therapist. I have opened my windows but the breeze wasn't enough, I just turned on my fan. I'm dressed in a thin pant and a t-shirt. - [Happy Friday](https://multipleexperiences.org/2020/10/16/happy-friday-2/) - Good morning and happy Friday to everyone. I have to be honest I kicked my own ass this morning working out and I'm still huffing and puffing. Felt good to push myself this morning. I was feeling rested and knew there wasn't much on my plate for today. It is another gloomy day in NY. - [Tests. Doctors, tests, doctors and more appointments](https://multipleexperiences.org/2020/10/15/tests-doctors-tests-doctors-and-more-appointments/) - I already received a call from my doctor this morning, MRI showed no new activity and my normal MS abnormalities. Exactly as expected. Like I said yesterday in my blog I haven't shown anything on my MRI in years. I continue to get worse because I'm secondary progressive MS. Read the post on Dr. Krieger's - [MRI Today](https://multipleexperiences.org/2020/10/14/mri-today-2/) - Today I have a very long MRI. It is of the brain, cervical and thoracic spine with and without contrast. I would say this is probably at least my 22nd MRI since being diagnosed with multiple sclerosis over 22 years ago. I am no stranger to these tests. I have actually had numerous life epiphanies - [Little miss busy](https://multipleexperiences.org/2020/10/13/little-miss-busy-2/) - Busy busy busy. I feel like I'm on full steam ahead since I woke up this morning. It is partially my own fault, I slept late. I was so tired and it was still a rainy gloomy morning. Even my puppies we cuddled under the blanket fast asleep. If it wasn't for the fact my - [Reason to love the cold rainy day](https://multipleexperiences.org/2020/10/12/reason-to-love-the-cold-rainy-day/) - It is a rainy, cold and miserable day here in New York. The kind of day you want to sit on the couch wrapped up in a blanket and watch Netflix from morning to night.  The kind of day you pray you have nothing to do, nowhere to be, and no other obligations. The - [Support my Brother in Bike MS](https://multipleexperiences.org/2020/10/09/support-my-brother-in-bike-ms/) - My brother does this every year and every year with me in mind. Please consider donating to a cause that is near and dear to me and my family plus too many other suffers. https://mssociety.donordrive.com/index.cfm?fuseaction=donorDrive.participant&participantID=16843&cmr=5282CE675756&language=en Dear friends, Each year for the last 12, I've raised funds for BikeMS, to directly help those affected by this - [My next big project/accommodation](https://multipleexperiences.org/2020/10/09/my-next-big-project-accommodation/) - My handicap van, one of the most life changing things I was able purchase. This took months of research to find grants. Then after finding grants I had to first apply to each and every one of them. Coordinate the grants with each other. I had a fundraiser going in the middle of all of - [Exercising is not optional](https://multipleexperiences.org/2020/10/08/exercising-is-not-optional/) - I truly want to write happy, uplifting blogs but I haven't been able to do that lately. For every good day I've been having a few rough days following. It seems like I've been having more rough days than good days. Each time I think I'm through the worst of it, like my infusion, something - [My Sakara Journey begins](https://multipleexperiences.org/2020/10/06/my-sakara-journey-begins/) - I was sent an email by my beautiful cousin about this company I never heard of Sakara. She told me I needed to check them out. Anything my cousin recommends is usually worth looking into, so I checked it out. https://www.sakara.com/. It was everything I've been looking for in my vegan lifestyle. I wanted a - [My Sakara Journey begins](https://multipleexperiences.org/2020/10/06/my-sakara-journey-begins-2/) - I was sent an email by my beautiful cousin about this company I never heard of Sakara. She told me I needed to check them out. Anything my cousin recommends is usually worth looking into, so I checked it out. https://www.sakara.com/. It was everything I've been looking for in my vegan lifestyle. I wanted a - [Time goes by quickly and slowly](https://multipleexperiences.org/2020/10/02/time-goes-by-quickly-and-slowly/) - Another Friday is here. I don't know if it's because I'm getting older or because I don't do much but these weeks go so fast. I'm not bored Most days I'm amazed at how fast the day went. I use to say the days go slow but the years go fast. Now it seems everything - [Great sleep feeling good](https://multipleexperiences.org/2020/10/01/great-sleep-feeling-good/) - The most amazing thing happened yesterday, I slept through the night. I'm not talking about until 5 AM, I'm talking about not getting up until 8:30 AM to first use the bathroom. I don't think that has happened to me once in the last 15 years. I couldn't believe it. I wasn't even about to - [New links on page...Happy Birthday Lizzy](https://multipleexperiences.org/2020/09/30/new-links-on-page-happy-birthday-lizzy/) - Still humid in NY. It rained but that didn't help. However, i did see after tomorrow temperatures start to drop. Cross your fingers. I added another permanent link to an article that talks about different kinds of pain and how it effects sleep. That includes our wonderful multiple sclerosis symptom of restless leg which many - [My family my support](https://multipleexperiences.org/2020/09/29/my-family-my-support/) - Good Morning to everyone. I think I'm officially through all my infusion side effects now. I'm happy to say I'm doing ok. Now I'm waiting for the New York weather to start resembling normal weather for the end of September. I'm ready to turn of the AC and bring out my comfy sweatshirts I love - [U2 and Linkin Park my life’s soundtracks](https://multipleexperiences.org/2020/09/28/u2-and-linkin-park-my-lifes-soundtracks/) - I grew up a HUGE fan of U2. I had them plastered all over my walls, purchased everything I could get my hands on, saw many concerts. I was one of those crazy fans who even stood outside entrance doors hoping to catch a glimpse of them. If there was an event Bono was at - [Migraines and Auras](https://multipleexperiences.org/2020/09/25/migraines-and-auras/) - First let me say it is difficult to write my blog in my current position. Minx likes to snuggle in my neck. I am not complaining because they are so cute. Plus I'm not having a good day and I need a lot of love. I woke up tired and with a migraine. Not a - [Weather, Infusion or just fatigue](https://multipleexperiences.org/2020/09/24/weather-infusion-or-just-fatigue/) - Yesterday was so rough. Like complete physical exhaustion rough. Wishing I didn't have to use the bathroom rough. Each time I had to get up was so much effort. Is this still from the infusion? Or is this from the weather change? We've had some crazy weather changes over the last week in New York. - [Jinx](https://multipleexperiences.org/2020/09/23/jinx/) - I'm chatting with my stepmom yesterday and the conversation about my aide comes up. First like everyone else is the question of an aide for the weekend. I am still not there as I've told every other family member who wants me to have the coverage. Then she asks me what about at night? To - [One of those mornings](https://multipleexperiences.org/2020/09/22/one-of-those-mornings-2/) - I'm having one of those mornings. I started sneezing yesterday and woke up not feeling great. I decided to sleep in which was until about 8:45 when Zoey decided it was time for kisses. My friend and fellow blogger just lost one of her dogs yesterday and it was weighing heavy on my heart. RIP - [Starting to feel more like myself](https://multipleexperiences.org/2020/09/21/starting-to-feel-more-like-myself/) - I think I'm through the worst of the infusion side effects now, more or less. I didn't have the greatest weekend. By the end of the days my legs felt very weak. I did sleep on my chair both nights. Thankfully I did because Saturday night, without my water pill, I was still up every - [Covid exposure](https://multipleexperiences.org/2020/09/18/covid-exposure/) - I've been basically tucked away for the last 6 months. Limiting my outings, visits and exposure to people. I've lived in hibernation even when restrictions were lifted to a degree in New York. I still was exposed to the virus from the biggest germ-a-phob I know. This person was crazy about germs way before Covid - [Live from the living room floor](https://multipleexperiences.org/2020/09/17/live-from-the-living-room-floor/) - This blog is coming to you live from my living room floor. I did not make my transfer well after my exercises and slid off of my comfy chair. I was in perfect position to get myself up but knew I had one shot at it. My legs failed and back down I went. After - [How do you feel after an infusion?](https://multipleexperiences.org/2020/09/15/how-do-you-feel-after-an-infusion/) - It's funny because all my complaining last week about NOT getting my infusion leads to this: I feel awful. Please, please give me my medicine. Pump me up with all this shit so I can feel lousy.  kind of makes you wonder what the hell I was I fighting for. All anxiety for four - [How do you feel after an infusion?](https://multipleexperiences.org/2020/09/15/how-do-you-feel-after-an-infusion-2/) - It's funny because all my complaining last week about NOT getting my infusion leads to this: I feel awful. Please, please give me my medicine. Pump me up with all this shit so I can feel lousy.  kind of makes you wonder what the hell I was I fighting for. All anxiety for four - [Rituxan Infusion Finally Done but still wasn’t smooth](https://multipleexperiences.org/2020/09/14/rituxan-infusion-finally-done-but-still-wasnt-smooth/) - I finally got my infusion done on Saturday but it was still with a few headaches. I got a delivery on Friday of a box from the pharmacy that seemed to be another box of supplies. I still didn't have the steroids, Benadryl, Saline Bag or the pump. It took me 50 minutes on hold - [Never Forget 9/11](https://multipleexperiences.org/2020/09/11/never-forget-9-11/) - Today this blog is dedicated to the thousands of people that lost their life on 9/11. The hundreds of firefighters and police that died trying to save people from the deadliest terrorist attack in US history. Please take a moment of silence today to remember those that lost their lives and another moment to hug - [The infusion never happened](https://multipleexperiences.org/2020/09/10/the-infusion-never-happened/) - It was truly an unbelievable day yesterday. A day that did not end with her infusion. Not only did it not end with an infusion, it didn't end with an answer as to when the infusion is going to be. I don't even know how or where to begin. It turns out that CVS pharmacy - [Once again a problem with my infusion](https://multipleexperiences.org/2020/09/09/once-again-a-problem-with-my-infusion/) - You honestly can't make this shit up. I'm sorry for cursing in line one of my blog but I am so aggravated right now I don't even know where to start. At 8:45 my phone rings and it's CVS pharmacy asking me when my infusion is. ARE YOU KIDDING ME??????? I'm like you have got - [Once again a problem with my infusion](https://multipleexperiences.org/2020/09/09/once-again-a-problem-with-my-infusion-2/) - You honestly can't make this shit up. I'm sorry for cursing in line one of my blog but I am so aggravated right now I don't even know where to start. At 8:45 my phone rings and it's CVS pharmacy asking me when my infusion is. ARE YOU KIDDING ME??????? I'm like you have got - [Once again a problem with my infusion](https://multipleexperiences.org/2020/09/09/once-again-a-problem-with-my-infusion-2-2/) - You honestly can't make this shit up. I'm sorry for cursing in line one of my blog but I am so aggravated right now I don't even know where to start. At 8:45 my phone rings and it's CVS pharmacy asking me when my infusion is. ARE YOU KIDDING ME??????? I'm like you have got - [Rituxan Infusion Tomorrow](https://multipleexperiences.org/2020/09/08/rituxan-infusion-tomorrow/) - I called the pharmacy first thing this morning and they reassured me that my Rituxan will be delivered first thing tomorrow morning. I am not going to call my infusion nurse and I'm going to hope for the best. Normally my infusions don't go smoothly. There always seems to be a problem somewhere through the - [Ocrevus Commercial](https://multipleexperiences.org/2020/09/07/ocrevus-commercial/) - I never watch TV through my TV carrier. I always watch through my Firecube. No matter what it is, unless it's something that I record, I'm never on my TV. That being said, it's also very rare I see commercials. However I was catching up on old Bravo shows that I neither recorded or watched - [You need a license to drive this wheelchair](https://multipleexperiences.org/2020/09/04/you-need-a-license-to-drive-this-wheelchair/) - I think I'm going to stop blogging on Saturdays. I'm not sure if it's because of the summer or Covid but my stats on Saturday have been so ridiculously low for a while now. It actually has been dictating my Saturday posts making many just pointless ramblings. So multiple experiences will now come to you - [I’ve been thinking...](https://multipleexperiences.org/2020/09/03/ive-been-thinking/) - Well I've been thinking about a lot of things. Probably a lot of pointless things, but i have a lot of time on my hands. I watch a lot of documentaries which can definitely put the mind into crazy conspiracy theories. I am so attracted to those types of documentaries that leave you questioning right - [Thank you for Minx](https://multipleexperiences.org/2020/09/02/thank-you-for-minx/) - I want to thank all my family and friends who helped me get Minx. It is always devastating losing a dog and the passing of my Marshmallow was exactly that. Marshmallow was my shadow for 11 years and losing him left a very big whole in my heart. Looking for puppies actually was the one - [Rituxan infusion scheduled in a week](https://multipleexperiences.org/2020/09/01/rituxan-infusion-scheduled-in-a-week/) - I can't believe it's been six months already. Well I guess it has because all my reminders went off. Actually about a week after my last infusion I started receiving phone calls to set up my appointment. It was crazy. Actually I thought CVS specialty pharmacy was crazy. I never used them for my Rituxan - [Urologist visit](https://multipleexperiences.org/2020/08/31/urologist-visit/) - I went to the urologist on Friday to discuss Botox in the bladder.The last of the week trip to urologist Botox for the bladder. What a genuinely honest and patient doctor this was. He came in and knew that I needed questions answered and was prepared to sit and talk. Not only was that nice - [Link for The MS Gym](https://multipleexperiences.org/2020/08/29/link-for-the-ms-gym/) - I put up a permanent link to the MS gym on my homepage. I really encourage anyone with any disability to check this out. I have no affiliation with the gym. I'm not making any money. I really have put up this link because I honestly feel this is an amazing website. I've been doing - [The last of the week trip to urologist Botox for the bladder](https://multipleexperiences.org/2020/08/28/the-last-of-the-week-trip-to-urologist-botox-for-the-bladder/) - It's Friday, this was such a long week I am very happy to be here. I couldn't imagine having to work. I'm dreading driving and I only have to go down the block today. This week has definitely been an abnormal week for me. Starting with my traumatizing weekend The horrible weekend tale. Multiple Sclerosis - [My new aide](https://multipleexperiences.org/2020/08/27/my-new-aide/) - I'm very happy to report that my new aide is extremely nice, has been helpful but most importantly likes my dogs. If the person couldn't get along with my dogs then they couldn't get along with me. It's only been three days now compared to my last aide of 3 years so of course there - [Occupational therapy in my home](https://multipleexperiences.org/2020/08/26/occupational-therapy-in-my-home/) - There's been a lot going on this week and I'm not sure where to begin. After being traumatized this weekend, it was hard for me to even focus on everything that was happening, and a lot was happening. My new aide started on Monday, I got an OT evaluation to start that twice a week - [The horrible weekend tale. Multiple Sclerosis at it’s worst](https://multipleexperiences.org/2020/08/25/the-horrible-weekend-tale-multiple-sclerosis-at-its-worst/) - What I don't understand is how are you supposed to prevent things from happening? If there was something I could've done, I would've done it. What is a person with a disability supposed to do when they are alone? I just can't understand how this situation not only could've been prevented but could've been done - [Misheard song lyrics](https://multipleexperiences.org/2020/08/24/misheard-song-lyrics/) - I could write about my horrific Saturday night and Sunday morning I will write about it, eventually. I honestly am completely traumatized by the events that took placed. Yet I will tell the tale because i promised when I started this blog complete honesty. However I am just not ready to retake the tale yet. - [A wheelchair function helped me off the floor](https://multipleexperiences.org/2020/08/22/a-wheelchair-function-helped-me-off-the-floor/) - My daughter is packing because she's leaving today not tomorrow. My aide of three years had her last day with me yesterday. My new aide starts Monday and is working 11-7. Not exactly the hours I wanted to change them too but it is still is better than my original hours. I can now do - [What’s happening in Multiple Experiences world](https://multipleexperiences.org/2020/08/21/whats-happening-in-multiple-experiences-world/) - I'm doing a lot better with my new wheelchair now. I don't love everything about the chair but I am consistently using it now. It turns horribly, I hate that. It is also difficult if you maneuver wrong and hit a wall. You can't just do a simple correction. You have to move forward or - [My second comfy chair](https://multipleexperiences.org/2020/08/20/my-second-comfy-chair/) - My brother-in-law recently lost his mother. She was very young, too young, as young as my own mom. A truly wonderful woman. I was very fortunate to know her and she brought up the most amazing young man who is my brother-in-law. He is one of a kind, so generous and understanding. Yet what I - [Happy Birthday Zoey](https://multipleexperiences.org/2020/08/19/happy-birthday-zoey-2/) - It is Zoey's fourth birthday. She received all new Nylabones for her birthday and she was pretty happy. Zoey is my first and only girl dog. She has the sweetest temperament and is adored by everyone. Plus she is adorable. I realized today that she is the only dog who has been with every one - [Botox for Bladder Incontinence](https://multipleexperiences.org/2020/08/18/botox-for-bladder-incontinence/) - I had a comment yesterday by Mary suggesting Botox for my many trips and accidents with the bathroom the other night. Waking up to use the bathroom all night long. I've heard of this treatment option but I've never looked into it for the one thing she mentioned, you have to self catheterize. Patty concurred - [Waking up to use the bathroom all night long](https://multipleexperiences.org/2020/08/17/waking-up-to-use-the-bathroom-all-night-long/) - You know you didn't sleep well when it's 8:30 in the morning and your Apple Watch already has 6 hours of standing. I wasn't feeling good this weekend, maybe the start of a cold. I'm not sneezing but I feel congested especially in my chest. I've once again resorted to my oregano oil and breath - [Singing the song It Wasn’t Me by Shaggy](https://multipleexperiences.org/2020/08/15/singing-the-song-it-wasnt-me-by-shaggy/) - Not one of my better nights sleeping. I think I was up most of the night. Everything hurts. I hate that feeling. My headache isn't helping either. I woke up sneezing so I immediately guzzled down some oregano oil. I just feel blah. I worked out and even that didn't help. Usually bringing on a - [I’m taking a poll on napping](https://multipleexperiences.org/2020/08/14/im-taking-a-poll-on-napping/) - Amazon's been promoting shark week on discovery channel for a while now. However, now the promo is Tyson versus jaws, rumble on the reef. Is this really what we've lowered ourselves to? I actually like shark week. They've actually had some really interesting programs. I think my stepdad's told me it is the longest running - [Sleeping, cooking and birthday wishes](https://multipleexperiences.org/2020/08/13/sleeping-cooking-and-birthday-wishes/) - I slept yesterday for 8 hours straight. No bathroom breaks. I can't even remember the last time that happened. Eight hours of straight, uninterrupted sleep. I didn't believe it was possible anymore. I wonder if my new heating/ac unit had anything to do with it. Probably not since I don't think that has any effect - [New](https://multipleexperiences.org/2020/08/12/new/) - This has been a very full morning already. I slept late. I got up at 8:30 which for me lately has been late. I knew my AC guy was coming first thing in the morning so I kind of put myself into high gear, at least the highest gear someone with MS can go. My - [End of summer marks next Rituxan infusion](https://multipleexperiences.org/2020/08/11/end-of-summer-marks-next-rituxan-infusion/) - Is summer over yet? I'm ready to put on my oversized sweatshirt. It doesn't matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I'm in countdown mode - [Ocrelizumab (Ocrevus) versus Rituximab (Rituxan)](https://multipleexperiences.org/2017/06/28/ocrelizumab-ocrevus-versus-rituximab-rituxan/) - This was the second most popular blog of the year on http://Www.multipleexperiences.org. I was on Rituxan for over a year and would have preferred to continued however for insurance reasons, I'm changing to Ocrevus. My first infusion is scheduled for August 7th. This blog is just a good inside look at the pharmaceutical world of chronic disease. - [Rituxan instead of Ocrevus](https://multipleexperiences.org/2018/11/15/rituxan-instead-of-ocrevus/) - Going to see my neurologist, on my mind was questions of whether to stay on Ocrevus. I felt if I was still declining so much why be on a drug that can come with some serious side effects. Was the pros still out weighing the cons. I had two other drugs in mind Siponimod and - [Moments of my weekend](https://multipleexperiences.org/2020/08/09/moments-of-my-weekend/) - This was a weekend of great ideas and completely mindless moments. I thought I'd share them all for you: I pulled a muscle in my butt. In my stronger leg. I was stretching in a simple position. As soon as I pulled the leg up, I felt it. No big deal except, this is normally - [Something good about insurance](https://multipleexperiences.org/2020/08/08/something-good-about-insurance/) - I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she'd call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then - [My big comfy chair](https://multipleexperiences.org/2020/08/07/my-big-comfy-chair/) - The aftermath of the tropical storm that hit the other day continues. My mom and stepdad have slept over at my house the last two nights. I've given them my bedroom and I slept on my comfy chair. I slept quite well both nights I should add. Zoey and Minx slept with me and they - [Really good multiple sclerosis research news](https://multipleexperiences.org/2020/08/06/really-good-multiple-sclerosis-research-news/) - This is the best news article I've come along in a long time. It was titled: ‘Holy Grail’ MS discovery could prevent disability using diabetes drug For the first time in ages this talks about stopping the disability not reducing relapses. https://www.sciencefocus.com/news/holy-grail-ms-discovery-could-prevent-disability-using-diabetes-drug/ In MS, the protective coating surrounding nerves known as myelin is damaged causing - [I’ll huff and puff and I’ll blow your trees down](https://multipleexperiences.org/2020/08/05/ill-huff-and-puff-and-ill-blow-your-trees-down/) - Don't ever listen to me if I'm giving any opinions on weather again. https://multipleexperiences.org/. My mother and stepdad's house is surrounded by trees. For 40 years and many, many hurricanes and storms we've been worried about one of those trees falling anywhere. These trees survived them all, including superstorm Sandy. Then we get this tropical - [Just a bunch of my opinions](https://multipleexperiences.org/2020/08/04/just-a-bunch-of-my-options/) - I'm doing much better with my wheelchair now. I have definitely taken the advice of my therapist and utilized my wheelchair to move me into position. My wheelchair tips from the evaluatorsIt looks something like this: It forces your butt to slide back into position. It took a little for me to get use to - [Another beautiful view](https://multipleexperiences.org/2020/08/03/another-beautiful-view/) - I just finished working out. I'm back on my chair gazing out my windows looking at the sparkling water. I sometimes envy those people on the boats. Especially the ones I see coming fast in the open water before they have to slow down for the channel. I remember vividly how that breeze feels as - [Nobody likes change](https://multipleexperiences.org/2020/08/01/nobody-likes-change/) - After three years, my aid is moving on. She's changing her hours to work 12 hour shifts each day during the weekend. This way she can make relatively the same hours in less days and be home with her son. With all the uncertainty of the schools new operating hours, who could blame her.  - [Doterra oils to the rescue](https://multipleexperiences.org/2020/07/31/doterra-oils-to-the-rescue/) - I've written so many blogs on these oils. I was a consultant trying to make a few extra dollars, that wasn't for me but it didn't stop me believing in the products. I have oils all over my house. There are certain ones that I use everyday, like serenity. https://multipleexperiences.org/2018/02/07/serenity-oil-and-my-dogs/ This is still the only - [OnGuard and Oregano Oils](https://multipleexperiences.org/2018/01/29/onguard-and-oregano-oils/) - The first thing I need to explain about the DoTerra oils, is they are therapeutic grade. The only essential oils you can just ingest are therapeutic grade. Meaning if you buy an oil from any store that is synthetically made, chances are you can't swallow them.Let me explain OnGuard first. Everybody should have OnGuard. OnGuard - [Serenity oil and my dogs](https://multipleexperiences.org/2018/02/07/serenity-oil-and-my-dogs/) - This is a true story. Every night I diffuse oil. For Christmas my sister got me a second diffuser as well as the scent called Serenity. She used to tell me all the time that it was the most amazing thing she slept so good and it was the most calming oil. From Christmas on, - [I’m a good tired](https://multipleexperiences.org/2020/07/30/im-a-good-tired/) - I'm tired. I start a lot of blogs like that, don't I? I have put myself through an entire month of working out every single day. Was it worth it? Hell yeah!!! I love challenging myself through workouts. I always did.  Of course everything is completely modified because of my MS, but it's still - [My wheelchair tips from the evaluators](https://multipleexperiences.org/2020/07/29/my-wheelchair-tips-from-the-evaluators/) - Well my appointment with my OT wheelchair evaluators was good and bad. I was having some issues transferring into my new chair. Having issues with my new wheelchair. The bad was the chair doesn't get an lower. My therapist explained that I need to work on the ways to make transfers work and keep them - [Race against the clock](https://multipleexperiences.org/2020/07/28/race-against-the-clock/) - I woke up this morning at 6:30 to use the bathroom and ended up waking both dogs. I tried to go back in bed for a bit but my Zoey opened my bedroom door. She likes to use the wee wee pads on the balcony instead of the bedroom. She got back into bed but - [Not your normal broken refrigerator story](https://multipleexperiences.org/2020/07/27/not-your-normal-broken-refrigerator-story/) - Saturday night, I was going to heat up something for dinner. I opened the refrigerator door from my wheelchair. The door swung open as it normally does. Then it FELL OFF!!! CRASHED, more like it, into the counter next to me. Thankfully I was an inch or two behind the door and thankfully my kitchen - [Starstruck moments](https://multipleexperiences.org/2020/07/25/starstruck-moments/) - Minx has been chewing on one of my large U2 books. Originally slightly gnawed on by Zoey, it was far from a collectible item. I'm sure I could even find the book on eBay or something if I wanted to replace it, but I don't. This morning he did successfully rip off the paper cover, - [Just a Friday morning blog post](https://multipleexperiences.org/2020/07/24/just-a-friday-morning-blog-post/) - Do puppies have a terrible two? If they're seven years to our one year, does that mean around three months that's where these terrible two's would start? Minxs was a pain in the ass yesterday. My daughter had a friend over, the dogs were super excited. As we were making our way to bedtime, they - [Fatigue, workouts, the MS gym and stuff](https://multipleexperiences.org/2020/07/23/fatigue-workouts-the-ms-gym-and-stuff/) - Good morning to all. I just sat down from my morning exercise. My body certainly feels it but my heart rate didn't reflex the same results. I have not taken one day off since I started the MS gym program. I just changed my workouts and incorporated the gym too. The last time I didn't - [Having issues with my new wheelchair](https://multipleexperiences.org/2020/07/22/having-issues-with-my-new-wheelchair/) - There are so many good things about this wheelchair but unfortunately there are a few bad things. I have been consistently in the new wheelchair now for a couple of weeks. I waited to use it for a couple of weeks after I got it. Between breaking the mirror and Minx being so tiny, I - [Beware-Throwing a pity party](https://multipleexperiences.org/2020/07/21/beware-throwing-a-pity-party/) - I work so hard!!! I workout everyday. I try to incorporate weights to build my muscles and my strength. I try to eat right. I take a shitload of pills to offset all my MS symptoms. I spend more money than I can afford on good vitamins that I take daily. For what??? It gets - [Heat and humidity causing such fatigue](https://multipleexperiences.org/2020/07/20/heat-and-humidity-causing-such-fatigue/) - It was hot, humid and hazy yesterday in NY. I stayed in the AC the entire day. It didn't matter, the heat and humidity still found its way into my bones. I had a very tough day. I normally do a 45 minute workout on Sundays but only finished 30. I had to use the - [My Saturday morning ritual](https://multipleexperiences.org/2020/07/18/my-saturday-morning-ritual/) - It seems like I'm gonna have a new ritual on Saturdays: work out then put on F1 practice runs while blogging. I am so happy I got my money back from the F1 TV pro upgrade because this dope over here gets all the races on ESPN either live or on demand anyway. I could - [A picture wall for Marshy](https://multipleexperiences.org/2020/07/17/a-picture-wall-for-marshy/) - Last night Minx got in my closet and walked out with one of my shoes. The shoe probably weighed half as much as he did. It made me think of my Marshmallow who used to greet me at the door and would always grab one of my shoes. In my apartment I had steps. we - [Titan Games](https://multipleexperiences.org/2020/07/16/titan-games/) - I got the new streaming app, Peacock, yesterday and in my browsing I ended up watching Titan Games. Hosted by Dwayne Johnson, these people that are absolute beasts compete in these crazy physical games. Each time I thought I'd watch one more game and find something else. The next thing I know I'm watching one - [Heart Rate during a Workout](https://multipleexperiences.org/2020/07/15/heart-rate-during-a-workout/) - I usually boost about how I know everything regarding diet and exercise, well I was just proven wrong by myself. I always thought an aerobic workout your heart rate you needs to be above 150. That is considered a high intensity calorie burn. I remember reading somewhere in weight watchers that if you could have - [Feeling Sentimental](https://multipleexperiences.org/2020/07/14/feeling-sentimental/) - Here's something you might not of known about me, I am sentimental about certain things. Especially if I have something of a relative of his passed on. Everyday I've worn the same ring on my hand for the last 15 years. It belong to grandmother. It isn't a fancy ring but I remember it being - [Finding true happiness](https://multipleexperiences.org/2020/07/13/finding-true-happiness/) - I was talking to my little sister yesterday and we were discussing basically that life is hard. She's definitely been thrown a couple curve balls lately and she's emotionally exhausted. Like so many of us she's looking at pictures of other people on Facebook and thinking how much easier they seem to have it.  - [Loving the MS Gym](https://multipleexperiences.org/2020/07/11/loving-the-ms-gym/) - Good morning. It is a Grey Saturday morning here. Actually it's a white Saturday morning.  If you look closely you can see the water. It's 8:00 am and I've already worked out. I can't say enough good things about the MS gym. http://www.themsgym.com/. I just completed week 2 and I already have seen a - [New area of complete numbness](https://multipleexperiences.org/2020/07/10/new-area-of-complete-numbness/) - I was sitting with both of my dogs yesterday, all cuddling on my chair. My Zoey decided to do her typical puppy love and kiss my face. I don't know if things changed or I just haven't realized, but where she was kissing, licking, I felt nothing. I felt the pressure of her tongue but - [New and old](https://multipleexperiences.org/2020/07/09/new-and-old/) - I had my sister and brother-in-law over yesterday. Love them ❤️. I was showing off my new wheelchair that I have not been using. Between learning how to maneuver the wheelchair unsuccessfully and Minx being so tiny, I thought it was best to stay with my more familiar hooveround for a while longer. So I - [Plant based eating with multiple sclerosis](https://multipleexperiences.org/2020/07/08/plant-based-eating-with-multiple-sclerosis/) - A few weeks ago I made the decision to go back to plant based eating. Going back to Plant based eating. I wanted to get away from processed foods that once again started to fill me refrigerator and cabinets. I follow closely with Forks over Knives. https://www.forksoverknives.com/. I have their app and use a majority - [Working out a new way](https://multipleexperiences.org/2020/07/07/working-out-a-new-way/) - So Minx, my adorable puppy, has definitely affected my sleep. Yet my body has been more run down from the changes I made to my workouts. I have been doing various workouts for a minimum of 5 days a week for a long time. As my disability worsened, my workouts were modified but never stopped. - [Sunday down day](https://multipleexperiences.org/2020/07/06/sunday-down-day/) - Well I was very wrong about the fireworks. I thought everything was canceled but obviously that wasn't the case. Where the fireworks in my town were canceled, other towns weren't. I saw all the fireworks going off all across the horizon. It was extremely cool. Of course there were still fireworks set off close to - [Happy 4th of July](https://multipleexperiences.org/2020/07/04/happy-4th-of-july/) - Usually in this blog post I'm writing about how to keep dogs calm during fireworks. My Boomer was the worst. 70 pounds of pure chicken. He used to run onto my lap quivering. I made the grave mistake one year to take him out with us. He got so scared he broke his retractable leash. - [Gradual disease progression](https://multipleexperiences.org/2020/07/03/gradual-disease-progression/) - How are you feeling? Seems that this is always the question asked by everyone that knows me. Today, I asked myself. I have written many blogs about lack of sleep Sleep deprived, many about accidents A horrible and humbling outing, and even some on actual feeling How are you feeling? The truth about Parethesia, but - [Blast from the past](https://multipleexperiences.org/2020/07/02/blast-from-the-past/) - Last night I started chatting with a friend from college. He was introduced to me by my roommate on the first day of college. My roommate and I lived together for the four years we went to Plattsburgh. We even stayed up there the summer after we graduated. We had other roommates with us as - [A stomach bug and multiple sclerosis](https://multipleexperiences.org/2020/07/01/a-stomach-bug-and-multiple-sclerosis/) - I had a rough day yesterday. I had some kind of stomach bug. Let's just say if I had to do a colonoscopy this morning I would be well prepared. I felt awful. I couldn't really eat a thing. Anything I ate wouldn't stay for long. I was dehydrated so the only thing I really - [Joining the MS Gym membership](https://multipleexperiences.org/2020/06/30/joining-the-ms-gym-membership/) - I'm changing things up. I canceled my Les Mills on demand. I have not yet decided if i will cancel Beachbody. There are many programs i use that I have modified to fit my needs. However, I started the MS gym one month BGB boot camp trial https://themsgym.mykajabi.com/30daytrial. I am planning on joining as a - [A lovely weekend](https://multipleexperiences.org/2020/06/29/a-lovely-weekend/) - Another Monday, they seem to come fast. I had a really nice weekend. My stepdad was here on Saturday for our weekly visit. Love that he comes every week to spend time with me. We pick a show to watch together and each week we watch a few episodes. We just finished How to Fix - [A lovely weekend](https://multipleexperiences.org/2020/06/29/a-lovely-weekend-2/) - Another Monday, they seem to come fast. I had a really nice weekend. My stepdad was here on Saturday for our weekly visit. Love that he comes every week to spend time with me. We pick a show to watch together and each week we watch a few episodes. We just finished How to Fix - [Forks over Knives Roasted Cauliflower and Quinoa Casserole](https://multipleexperiences.org/2020/06/27/forks-over-knives-roasted-cauliflower-and-quinoa-casserole/) - I haven't given a recipe in a long time. I made this plus 3 others this week. All Vegan and Plant Based. I loved this one. Thought I'd share with you Roasted Cauliflower and Quinoa Casserole Ingredients • 2 cups dry quinoa • 3½ cups vegetable broth • ½ medium onion • 6 cloves garlic - [Invest in your best friend](https://multipleexperiences.org/2020/06/26/invest-in-your-best-friend/) - My dad sent me an article about "best friend investments". It wasn't talking about human relationships. The article was literally about investing in pet related stocks. They gave a numerical figure, "in the US pet products are a $95.7 billion dollars industry." I didn't find that shocking. All I have to do is look around - [In the present moment](https://multipleexperiences.org/2020/06/25/in-the-present-moment/) - The clock is reading 6:34am. I have already cleared both puppy areas, cleaned pooper scooper, fed both dogs (twice because I knocked over Minx's bowl to which Zoey consumed more than a fair share) and started a load of laundry. This morning it was Zoey who was awake before Minx. When she woke Minx she - [Post Covid MS life](https://multipleexperiences.org/2020/06/24/post-covid-ms-life/) - So little Minx is doing great. He has, however, received a new nickname of demon because of his teething on anything flesh. Those little teeth hurt especially when he gets you under the arm. I've been doing a yelp, line he does,hoping he gets the idea of ouch. With a million teething toys on the - [My trip to see my sister in London](https://multipleexperiences.org/2020/06/23/my-trip-to-see-my-sister-in-london/) - Many, many years ago I went to London on my spring break vacation during college. I'm sorry for all those who did the Florida mayhem, my trip was so much better. I was 18 years old, my sister was probably 21. She was studying abroad and spent months seeing much of Europe during that year. - [My trip to see my sister in London](https://multipleexperiences.org/2020/06/23/my-trip-to-see-my-sister-in-london-2/) - Many, many years ago I went to London on my spring break vacation during college. I'm sorry for all those who did the Florida mayhem, my trip was so much better. I was 18 years old, my sister was probably 21. She was studying abroad and spent months seeing much of Europe during that year. - [Going back to Plant based eating](https://multipleexperiences.org/2020/06/22/going-back-to-plant-based-eating/) - I made a decision last week to go back to eating more plant based/vegan. It has nothing to do with diet in a losing weight idea. I think I've given up on that concept because nothing works for me anymore. I need to accept my body for where it is today. I canceled my weight - [Saturday thoughts on Friday](https://multipleexperiences.org/2020/06/20/saturday-thoughts-on-friday/) - So this wonderful amazing little puppy Minx, Minx is super puppy kept me up all night last night. He was crying all night long. He was even crying as he slept. I did a bad thing, at 4:30 I just couldn't take it anymore and I let him sleep in the bed with Zoey and - [Minx is super puppy](https://multipleexperiences.org/2020/06/19/minx-is-super-puppy/) - This puppy is definitely the best puppy ever. He knows the wee wee pad and uses it by himself even when he's playing. I wrote to my breeder, obviously amazed, she explained that they don't "demand" the use but they try to introduce it with all their puppies. This little thing got the instructions and - [Minx was brought home](https://multipleexperiences.org/2020/06/18/minx-was-brought-home/) - This was so excited. This little nugget. He was giving kisses the second we took him in our arms. He is just this tiny mush ball. He hadn't gone to the bathroom since he boarded the plane over 3 hours before. Thought for sure he'd pee on my daughter. He didn't. We made a stop - [New wheelchair OMG!!!](https://multipleexperiences.org/2020/06/17/new-wheelchair-omg/) - I had no idea. No wonder I couldn't sit in my wheelchair for any length of time, it had no functions other than to move forward and back. This new chair is high tech. I could literally adjust it so I am completely laying down. In a wheelchair!!!! There is just no comparison. I went - [This is going to be a good week](https://multipleexperiences.org/2020/06/16/this-is-going-to-be-a-good-week/) - I have so many good things happening this week I am so excited for each day. Let's start with today. I'm getting my new wheelchair today at 3:30. What makes this one totally different is that this is a true chair for a disabled person NOT just a motorized wheelchair. This chair will have the - [Celebrating Flag Day](https://multipleexperiences.org/2020/06/15/celebrating-flag-day/) - So I goofed and I thought Father's Day was yesterday. I never looked at a calendar. Mother's Day is the second Sunday in May, just assumed Father's Day followed the same protocol for June. I sent my dad an e-card (he received his present already). My stepdad celebrated by my sister upstate and then was - [Week ahead](https://multipleexperiences.org/2020/06/13/week-ahead/) - My new puppy, Minx, will not be here now until Wednesday. Only a day later,not a big deal, but we are excited. I did get new videos. He's getting big... Zoey normally has the best reaction. She tilts her head while looking at me. Every time I try to video her reaction she doesn't do - [Maybe a little leg improvement](https://multipleexperiences.org/2020/06/12/maybe-a-little-leg-improvement/) - I did an update on my phone this morning and my Wordpress app has been running very slow. Plus I've been experiencing some glitches. I've now turned off my phone twice and rebooted the app for the second time. All to write a blog that I had nothing to say. I was off to a - [Which do you pick?](https://multipleexperiences.org/2020/06/11/which-do-you-pick/) - My new puppy addition will be here in 5 days. We are very excited. Zoey is too. Every time you say her friend is coming she tilts her head and stops what she's doing. It's very funny. I'm trying to get a trainer lined up. Let's be real, when Zoey was a puppy, I was - [Increasing aid hours or not....](https://multipleexperiences.org/2020/06/10/increasing-aid-hours-or-not/) - I've said many times that I start to write my blog with one idea and it goes a completely different way. Sometimes the blog writes itself. This is what happened yesterday Summer heat hibernation and my own multiple sclerosis realization. I certainly wasn't planning on addressing the idea of more aid hours. I've pushed back - [Summer heat hibernation and my own multiple sclerosis realization](https://multipleexperiences.org/2020/06/09/summer-heat-hibernation-and-my-own-multiple-sclerosis-realization/) - The quarantine is starting to lift yet this is the weather I start my hibernation. It's starting to warm up and that means trouble for me and multiple sclerosis. Not just me, many of us. Between 60% and 80% of people with MS find that heat can cause their symptoms to worsen. This might involve a build up of - [It is not easy having multiple sclerosis](https://multipleexperiences.org/2020/06/07/it-is-not-easy-having-multiple-sclerosis/) - I had another rough night. This time I was alone. My daughter has been home for two months and the one night she's out I really needed her. Unfortunately in my exhausted state, I fell. Not only did I fall but I was in a very bad spot. I was now exhausted and helpless. Not - [LegXercise](https://multipleexperiences.org/2020/06/06/legxercise/) - This is my recent purchase. It is designed for elderly and people with little mobility. It works by moving you feet in a walking like motion. You can see how it looks from the top of my legs in this video. My legs are definitely moving. They are not going super fast but they are - [How are you feeling? The truth about Parethesia](https://multipleexperiences.org/2020/06/05/how-are-you-feeling-the-truth-about-parethesia/) - When you live with a chronic illness I think you start to hate that question. People ask it all the time but they really don't want the actual answer. Trust me, we very rarely actually respond with the truth. My go to answer is I'm doing ok. I can't say good anymore because that is - [Birthday celebration](https://multipleexperiences.org/2020/06/04/birthday-celebration/) - She only turns 21 once. All I know is my fridge is stocked with alcohol. The main thing she wanted was a bottle of champagne to open on her 21st birthday. Then we took some cute I'm 21 pictures. She wanted a few with me although I was far from dressed for the occasion. This - [Happy 21st birthday to my daughter](https://multipleexperiences.org/2020/06/03/happy-21st-birthday-to-my-daughter/) - Omg 21!!!! Where have the years gone? Wishing my girl the happiest of birthdays. There is nothing in the world that has brought me more happiness, joy and prouder moments then watching you grow up. I love you so much. My daughter, best friend and my complete heart. Happy Birthday. - [Attitude Gratitude reminder from my sister](https://multipleexperiences.org/2020/06/02/attitude-gratitude-reminder-from-my-sister/) - My mood has been dark lately. I miss my dog. I feel alone. It's been a tough couple of weeks. I received an email yesterday, which was actually my sister's newsletter. It was entitled Attitude and Gratitude. At the top of the email it actually said thanks Jamie. Truthfully when I first saw it I - [A horrible and humbling outing](https://multipleexperiences.org/2020/06/01/a-horrible-and-humbling-outing/) - My first social outing since March I was having dinner at my mom and stepdad's house. It was the first time I was seeing my mom since a quick drive by in the beginning of April. It was the first time I was seeing my sister and brother-in-law since February. We were all getting together - [Meet Minx](https://multipleexperiences.org/2020/05/31/meet-minx/) - I'm not sure if my blog has been successfully moved yet. I am still waiting for confirmation but I had good news to share. This is our new puppy: - [Moving day](https://multipleexperiences.org/2020/05/29/moving-day/) - My blog is moving today. All the files are being transferred. So even though it may be working nothing is saving. I’m going to skip today’s post and hopefully see you tomorrow. - [Changing hosting companies](https://multipleexperiences.org/2020/05/28/changing-hosting-companies/) - I have said so many times that I really didn't know what I was doing when I started my blog. Guess what, I still don't. Other than the basic stuff on Wordpress, I'm pretty much clueless. I just like to write. My English teacher's would be shocked. I like to share. I like to tell - [My cats](https://multipleexperiences.org/2020/05/27/my-cats/) - Not everybody knows this about me, but I had cats before I had a dog. My very first apartment with my soon to be husband, then ex-husband LOL, didn’t allow dogs. I was dying for a pet. One of my employees had a cat that had a litter of kittens and I got my first - [Feeling Lonely](https://multipleexperiences.org/2020/05/26/feeling-lonely/) - I have something to admit it. You might see it as slightly pathetic. I see it as a loss. I feel very lonely since Marshmallow died. I didn't even realize what I was feeling until my daughter left for the night and came back. It wasn't because she was gone, as silly as it sounds, - [How I became a fan of Star Trek](https://multipleexperiences.org/2020/05/25/how-i-became-a-fan-of-star-trek/) - Many, many, many years ago I use to babysit for cousins of the family. They use to come home really late like 2am. What was even worse was the only tv they used was this giant screen they had in the basement. It would have been fine but he was a big movie buff. He - [Marshmallow came home](https://multipleexperiences.org/2020/05/23/marshmallow-came-home/) - His ashes came separate from his urn. A meltdown. I knew that this error would make the process of getting his ashes emotionally more difficult. I was correct. Years ago, when I lost Boomer, I never saw his ashes. https://multipleexperiences.org/2017/01/04/boomer-came-home/. The urn was closed and I still have no idea how to even open the - [The heartbreak of loosing a pet](https://multipleexperiences.org/2018/02/24/the-heartbreak-of-loosing-a-pet/) - I've been blogging for a little shy of two years. I've come across many other blogs in that time. However I have one that is truly my favorite, Conversations with Stella. Conversations with Stella is about an English bulldog having conversations with her lady human and sometimes the rest of the pack. It's always well - [The strange MS symptoms back again](https://multipleexperiences.org/2020/05/22/the-strange-ms-symptoms-back-again/) - I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn't quite on point. So transferring into - [The multiple sclerosis hug symptom seeing my neurologist](https://multipleexperiences.org/2017/02/28/the-multiple-sclerosis-hug-symptom-seeing-my-neurologist/) - Over the years, a repeated cycle has always occurred when I went to an appointment with my neurologist. I would see him and a week later I would have some sort of MS problem. I would up either back at his office, on steroids or at an MRI usually all 3. Over the past week - [It’s good to have friends in high places](https://multipleexperiences.org/2020/05/21/its-good-to-have-friends-in-high-places/) - Love once again to my friend, who transformed my balcony to a hair salon. I got my hair straightened. I’m so happy, it needed some serious help. Plus the view was gorgeous. Always a fun day with an awesome person. ❤️❤️❤️ - [Totally Rocked This](https://multipleexperiences.org/2020/05/20/totally-rocked-this/) - Sometimes I even shock myself. Lagging all day. The only thing I ate was plain matzo with some grape jelly. I close my eyes quite a few times but never slept. yet everybody leaves my house, it’s all quiet, and I put on my workout gloves and work out. Not only did I work out - [Sleep deprived](https://multipleexperiences.org/2020/05/19/sleep-deprived/) - I had a rough night. I had a very upset stomach. It's 10:00 in the morning and I already completed 8/12 standing. Every part of my body aches but my stomach feels better. I haven't slept and wasn't able to fall back asleep. I was consoled the whole time by my little Zoey. Cuddled up - [How did I miss this?](https://multipleexperiences.org/2020/05/18/how-did-i-miss-this/) - Ok I know I've been grieving for the last week but you'd think I'd notice bulldozers flattening land outside my window. The whole lot where the hotel is supposedly being built has been leveled. Last I heard the deal fell through although for a property that sold for 3.9 million dollars I wasn't holding my - [A meltdown](https://multipleexperiences.org/2020/05/16/a-meltdown/) - I got a package yesterday from the pet memorial place. I was certain it was the urn for my Marshy with his ashes and paw prints. I actually went downstairs to the guard booth to pick it up myself. I didn't want it sitting there. I was already anxious and upset. These were what was - [In loving memory of Marshmallow](https://multipleexperiences.org/2020/05/15/in-loving-memory-of-marshmallow/) - I don't really know what to write. My heart is so heavy from the loss of my Marshmallow. I've stopped crying spontaneously but my heart hurts so much. Going to bed is the hardest part. Marshy was my one dog that ALWAYS slept touching me. Normally he slept under the blankets by my feet. As - [Words of support from other dog lovers](https://multipleexperiences.org/2020/05/14/words-of-support-from-other-dog-lovers/) - I belong to three Facebook groups for dogs. One of them is English bulldogs and two are for French bulldogs. Anytime I see something posted about someone losing a dog, I always try to write. I completely understand and remember the pain of losing Boomer, my English Bulldog, over 3 years ago. When I lost - [The right decision to say goodbye](https://multipleexperiences.org/2020/05/13/the-right-decision-to-say-goodbye/) - Still struggling with making the right call on my Marshy's death. I questioned why nothing showed up in his bloodwork, urine or stool taken 6 weeks ago. I biopsies a lump on his side and I questioned a strange growing skin tag. How is he gone six weeks after his annual that he was fine - [A dogs letter over the rainbow bridge](https://multipleexperiences.org/2020/05/12/a-dogs-letter-over-the-rainbow-bridge/) - This was posted to me in one of my Facebook French Bulldog groups. A beautiful letter when you are grieving for your dog. I cried from the hi mom on. I love you so much Mellybean❤️❤️ Hi, Mom, Remember that night when I wasn’t feeling very well and we were all crying? I don’t remember - [Goodbye to my sweet Marshmallow](https://multipleexperiences.org/2020/05/11/goodbye-to-my-sweet-marshmallow/) - I'm writing this after a horrible evening at the emergency vet. Marshmallow breathing was becoming so labored as the weekend went on. By this morning he wouldn't eat anything but a few pieces of chicken. I was going to wait until Monday to bring him to our vet but I actually was scared he wouldn't - [My marshmallow](https://multipleexperiences.org/2020/05/09/5976/) - I'm very concerned about my Marshmallow. He is over 11 years old now and lately he's not eating well. I've tried mixing many different things into his food, including his favorite, peanut butter. He might eat a few bites but then walks away. I can get him to eat a little more by feeding him - [Keep on moving](https://multipleexperiences.org/2020/05/08/keep-on-moving/) - I'm recovering from my Sh'bam workout. Have a nice sweat built up and I'm still breathing fast although I'm not out of breath. I'm always looking for new workout programs that I can do to continue to burn some calories while being mostly wheelchair bound. With this workout, from Les Mills, Zumba, and my favorites - [Who hosts your blog?](https://multipleexperiences.org/2020/05/07/who-hosts-your-blog/) - I had no idea what I was doing when I started my blog and truth is, I still don't. I went with ipage and have stayed with them all this time. They've been perfectly fine for the few times I needed help, I really have had no complaints but it is very pricey. This isn't - [Does having MS cause an overactive immune system](https://multipleexperiences.org/2020/05/06/does-having-ms-cause-an-overactive-immune-system/) - I saw this somewhere in the midst of the virus outbreak and have wondered about it ever since. If I have an overactive immune system why am I in such a quarantine from this virus? According to my neurologist, it is because of Rituxan. I take a medication that wipes out a strain of my - [Bladder issues](https://multipleexperiences.org/2020/05/05/bladder-issues/) - I'm not sure what exactly is going on with my bladder these days. I know I have issues, had them for years, but they've seemed somewhat worse over the last few weeks. I am not sure if I don't have some kind of bladder infection. The problem is that is varies day to day, something - [No fatigue lately](https://multipleexperiences.org/2020/05/04/no-fatigue-lately/) - I haven't been sleeping great. I'm up all night either using the bathroom or unable to get the right temperature. However I still wake up in the morning pretty bright eyed abs chipper. Starting each morning with some puppy love helps that situation. I've put in some great workouts in the AM. Yesterday I did - [Water view](https://multipleexperiences.org/2020/05/02/5958/) - I got my windows open. The sun is shining. It's supposed to be almost 70° in New York today. The water is still so there's no wind. I hear couple of birds chirping. I hear the seagulls which lets me know I'm by water. I know I'll see boats today. I am just loving it. - [Letting the pictures tell the story](https://multipleexperiences.org/2020/05/01/letting-the-pictures-tell-the-story/) - [Sometimes you have to laugh](https://multipleexperiences.org/2020/04/30/sometimes-you-have-to-laugh/) - Well sometimes my MS issues lead to funny outcomes. I got my mom to bake Mandel Bread. These are cookies very similar to biscottis. It is one of those recipes passed down through the family for a long time. It use to be so hard to get the dough mixed so we never made them - [My obsession with Formula 1 and a whole history lesson](https://multipleexperiences.org/2020/04/29/my-obsession-with-formula-1-and-a-whole-history-lesson/) - Still loving my Formula 1 racing. I think I've watched every documentary I could get on Netflix, Amazon and Hulu. I haven't even started on the docs on F1tv because I wanted to learn about F1 history before I started on each individual legend. Wow these men driving in the 50's, 60's and 70's were - [Learning by being the teacher](https://multipleexperiences.org/2020/04/28/learning-by-being-the-teacher/) - With so many parents being the teachers now, I think many parents are forced to learn again. Learning math, English, science and social studies but most of all learning how hard it is to be a teacher. Many parents will have a new found appreciation for the people that teach their children when schools reopen, - [I really need to get a license to drive my wheelchair](https://multipleexperiences.org/2020/04/27/i-really-need-to-get-a-license-to-drive-my-wheelchair/) - It really isn't ALL my fault. You see these are the tires of my wheelchair Those big ones up front give the wheelchair the power but the tiny ones in the back give the direction. I can't see them and if they are pointed one way and I hit the directional another way, that doesn't - [Secondary Progressive Multiple Sclerosis](https://multipleexperiences.org/2020/04/25/secondary-progressive-multiple-sclerosis/) - For my wheelchair evaluation, I’m going out...my wheelchair evaluation my neurologist needed to submit a letter of need. Due to the coronavirus, we did this via teleconference the second week of April. He's been my neurologist for 22 years. He has files upon files upon files on May. We laugh, actually, at how many times - [Buzzing noise in my ears](https://multipleexperiences.org/2020/04/24/buzzing-noise-in-my-ears/) - I've realized something over the last few months, I never have quiet. My ears always have what I can only describe as a buzzing sound in them. I know, sounds like tinnitus, but it's not ringing. Not only is it it not ringing, I hear fine, it doesn't bother me or throw me off balance - [Hot, sweaty, cold and warm](https://multipleexperiences.org/2020/04/23/hot-sweaty-cold-and-warm/) - I've had so many blogs about this topic. Regulating my body temperature is not going well these days. It can be very frustrating. The sweating happens a lot after i eat. It is because my food is hot. The hot food causes my body temperature to rise and then I start sweating. Really makes no - [Migraines, prescriptions , migraines and more prescriptions](https://multipleexperiences.org/2020/04/22/migraines-perceptions-migraines-and-more-perceptions/) - I have been fighting migraines since Saturday. During my teleconference with my neurologist he informed me that my insurance company was no longer going to cover my Relpax prescription. These are the pills I take when a migraine gets really bad. My prescription fills at 6 pills per month under the generic version Eletriptan. They - [I’m not disabled, I’m mom](https://multipleexperiences.org/2020/04/21/im-not-disabled-im-mom/) - I did well yesterday My words are my actions. I managed to use the walker until after 2pm. I completed 3 sets of 10 squats but I can admit I pulled myself up on the last few. I was done!!! I'm happy to say that I recovered and had strength to get myself up into - [My words are my actions](https://multipleexperiences.org/2020/04/20/my-words-are-my-actions/) - One thing I can say about myself is I'm not a slacker. If I say I'm going to do something, I'm going to do it. I wrote about my weakness in my legs the other day My muscles are getting weaker. In the blog I realized I had to do something. So I first thought - [My muscles are getting weaker](https://multipleexperiences.org/2020/04/18/my-muscles-are-getting-weaker/) - I have to be honest, my legs are super tired by the end of the night. I’ve been having some real issues getting myself into bed. Luckily my daughter has been around to assist and readjust my legs. My original thoughts were why? I’m resting most of the day after I exercise. Then it occurred - [Cooking Light French Style-Beef Stew](https://multipleexperiences.org/2020/04/17/cooking-light-french-style-beef-stew/) - I've been loving this soup I found on Cooking Light. https://www.cookinglight.com/recipes/french-style-beef-stew. I do make changes that o will note next too either ingredient or steps. Ingredients • 1 tablespoon canola oil 2 1/2 pounds boneless chuck roast, trimmed and cut into 1 1/2-inch pieces *I actually use ground beef and or turkey just easier for - [My hair is grey and my nails are breaking](https://multipleexperiences.org/2020/04/16/my-hair-is-grey-and-my-nails-are-breaking/) - Seems everyone is saying the same thing, at least everyone in my age bracket. I don't care so much about my nails and truthfully I could do my own hair. I just know I'd never match my color so I'll leave it to the professionals. I'm getting my magic sleek done as soon as this - [Working out with MS disability and weakness](https://multipleexperiences.org/2020/04/15/working-out-with-ms-disability-and-weakness/) - Good morning. I just finished my LesMills workout. I've been doing Sh'bam on there which is cardio dancing stuff. It's fun but I wish I could be doing some of their other workouts like Grit or Pump but my body's weakness doesn't allow for that anymore. I have to revise all workouts I do to - [When will this be over](https://multipleexperiences.org/2020/04/14/when-will-this-be-over/) - A sobering thought to the crisis going on in our world. Listening to the governor of New York State yesterday he said it very well, we don't know. We won't be waking up to newspapers announcement that the coromavirus has ended. We won't see people coming out of their homes and hugging each other on - [What a multiple sclerosis spasm looks like](https://multipleexperiences.org/2020/04/13/what-a-multiple-sclerosis-spasm-looks-like/) - Last week I wrote a post about all my different spasms. My multiple sclerosis spasms. I was sitting around yesterday as my right leg was doing the one type of spasm that you could actually see. So I got it on video .img_2066-9 This is why I take so many medicines at night. If I - [A peaceful weekend](https://multipleexperiences.org/2020/04/11/a-peaceful-weekend/) - There are a few boats out on the water this morning. It is a still a little chilly but the sun is out. It looks beautiful. I opened windows to let the fresh air in. I just love this!!!! The pictures never do it justice. They never capture the sparkling effect the sun has on - [Teleconference neurologist appointment](https://multipleexperiences.org/2020/04/10/teleconference-neurologist-appointment/) - I have my neurologist appointment this morning. My second neurologist appointment admits the coronavirus isolation. Once again this will be a teleconference appointment as was my other one. I'm thankful that both my doctors know me so well. What would this be like if I was a new patient or something? I can't imagine. This - [The best Passover Seder](https://multipleexperiences.org/2020/04/09/the-best-passover-seder/) - Passover last night was one I won't soon forget. A big thank you to my cousin Stacy and her fiancé Robby for putting it together. There were roughly 27 families connected through Zoom reading the Seder. The new normal of our everyday lives these days. I must give a hysterical shout out to the addition - [How are you doing?](https://multipleexperiences.org/2020/04/08/how-are-you-doing/) - The numbers of the coronavirus are staggering. I seem to be in the County in New York that has now reported the most cases of the virus and the number is still rising. ALERT: Coronavirus In Nassau: 'A Staggering Number Of Deaths' (Tue 1:34:02 PM) ALERT: Nassau Coronavirus Cases By Town: April 8 (Wed 9:27:20 - [Hot Water helped with Choking](https://multipleexperiences.org/2020/04/07/hot-water-helped-with-choking/) - So I took an extra triple magnesium capsule on my way to the bathroom yesterday. I can normally swallow pills without water. Comes from years of taking pills. I wasn't able to actually swallow the capsule for some reason but I needed to use the bathroom. I left it in my mouth for the second - [My multiple sclerosis spasms](https://multipleexperiences.org/2020/04/06/my-multiple-sclerosis-spasms/) - My spasms have been extremely annoying lately. I have a few different types and it depends what it hitting when. My back has probably been the most frequent. It starts with this warm feeling that spreads across my back and reaches from left to right. It continues to my right hand where it paralyzed it - [Good morning](https://multipleexperiences.org/2020/04/04/good-morning/) - I woke up early today. I feel good, rested and ready to start the day. I wake up every morning happy. How can I not? The first thing I see are smiles My Plakie Humpty Dumpty dolls I've collected all my life. They always make me feel happy. Then I have my Zoey who is - [Pick up the phone](https://multipleexperiences.org/2020/04/03/pick-up-the-phone/) - I must admit I'm not a phone person. I'm great at text but I hate holding a phone. I drop it often and I can never get a comfortable placement so I don't have to hold it in my hands. You know how you balance it between your ear and your shoulder? I sometimes can't - [FDA approves Zeposia (Ozanimod) for Multiple Sclerosis](https://multipleexperiences.org/2020/04/02/fda-approves-zeposia-ozanimod-for-multiple-sclerosis/) - Amidst all that is happening in the world, things are still happening in the world of MS. Another oral medication for the treatment of MS. Read the article here: https://multiplesclerosisnewstoday.com/news-posts/2020/03/26/fda-approves-zeposia-ozanimod-oral-rrms-active-spms-cis-therapy/ - [Happy 11th Birthday Marshmallow](https://multipleexperiences.org/2020/04/01/happy-11th-birthday-marshmallow/) - My baby boy is 11 today. My April Fool's Day puppy. Purchased for my daughter on her 10th birthday and he's been attached to me since the day we brought him home. After doing tons of research before choosing my English Bulldog, we did none for the French. We thought he'd be a smaller version - [It’s a king size bed](https://multipleexperiences.org/2020/03/31/its-a-king-size-bed/) - I have only one thing to say this morning Move over!!! I this is my bed I sleep next to the bar on my back. I don't toss and turn. I only move my head from one side to the other. My biggest no movement is tossing the blankets aside to get out of bed - [A New World](https://multipleexperiences.org/2020/03/30/a-new-world/) - It is hard to have things to talk about these days other than being in isolation against the coronavirus. I live on Long Island which is in New York State. In my county, which is about half of the Island, there are over 6,000 cases. In my town 112 cases. https://www.nassaucountyny.gov/DocumentCenter/View/28946/POSITIVES-BY-PLACE-3-28-PM. This sh@t is real - [Formula 1, my new obsession](https://multipleexperiences.org/2020/03/28/formula-1-my-new-obsession/) - I stumbled upon the documentary Drive to Survive on Netflix. I think I watched the first season in a day. I was completely enthralled. I loved every second of it. Where has this been all my life? I didn't even want to start the second season because I knew it would end. I immediately googled - [When transitioning to a wheelchair be sure to see an OT for evaluation](https://multipleexperiences.org/2020/03/27/when-transitioning-to-a-wheelchair-be-sure-to-see-an-ot-for-evaluation/) - I completely understand why I have the been in the wrong wheelchair all this time. I had a very different experience this morning in preparation for a new wheelchair. I was asked questions to start with. Questions about my home. What accommodations I have done in my home thus far? What is my bathroom shower - [I’m going out...my wheelchair evaluation](https://multipleexperiences.org/2020/03/26/im-going-out-my-wheelchair-evaluation/) - I’m going out into the zombie apocalypse tomorrow. Wish me luck. It will be my first time out in almost two weeks. I’ve been very good at hiding myself away to keep safe but now I must make an appearance. I finally got an appointment for a wheelchair evaluation at my physical therapy office. I’ve - [What are you watching?](https://multipleexperiences.org/2020/03/25/what-are-you-watching/) - Since so many of us are indoors and looking for things to watch, I thought I'd once again give you my list of some of my favorites shows outside the ones everyone talks about. This is in no way any kind of order other than shows I just really enjoyed. Justified I believe you can - [A visit to the vet](https://multipleexperiences.org/2020/03/24/a-visit-to-the-vet/) - My poor Zoey. She's very upset. Crying at the door. Running back and forth between me and that shut door looking for her brother Marshmallow. He was just taken to the vet by my daughter. They are doing a drive thru vet visit. When she arrives she calls the vet, they come out and pick - [A week after Rituxan](https://multipleexperiences.org/2020/03/23/a-week-after-rituxan/) - I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, - [And the daughter reluctantly returns](https://multipleexperiences.org/2020/03/21/and-the-daughter-reluctantly-returns/) - My daughter is home. She came home yesterday evening. The puppies were so excited to see her. She hasn’t been been home in a few months. This was the longest stretch of time she hasn’t come home. This is what happens when there is no longer a boyfriend at home she is with. For all - [A blister formed after Rituxan infusion again](https://multipleexperiences.org/2020/03/20/a-blister-formed-after-rituxan-infusion-again/) - On Wednesday I was feeling something itching me under me right breast. I looked many times but didn’t see anything. I was on high alert looking for blister under my breasts. I was very concerned over a repeat episode of the side effects that happened last September. https://multipleexperiences.org/2019/09/17/blisters-on-breast/?preview=true&frame-nonce=b3345af611. When my aid looked on Thursday she - [Welcome to my world](https://multipleexperiences.org/2020/03/19/welcome-to-my-world/) - Another day at home except this time I’m like many others in the world. Welcome to my life. This is definitely the time to binge TV, read a book or 8 and maybe start a jigsaw puzzle. I’m hanging with my puppies, in my chair, gazing at the water and listening to the construction still - [Coronavirus and MS video](https://multipleexperiences.org/2020/03/18/coronavirus-and-ms-video/) - I watched this video yesterday and wanted to share it with everyone. It discuss relevant information about this virus and MS. It discusses the drugs we take and the possible risk factors involved. I actually learned something about my own drug and how it effects my immune system. Hope you find it helpful Coronavirus and - [Grocery delivery thankfully coming](https://multipleexperiences.org/2020/03/17/grocery-delivery-thankfully-coming/) - I don’t have much to say. I am home and things are uneventful here. I slept better last night which I think my dogs appreciated. I’m tired from the infusion but that is normal. I have ZERO blisters and that is the main thing. My regular aid has been out the last few days with - [Rituxan infusion successful](https://multipleexperiences.org/2020/03/16/rituxan-infusion-successful/) - I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That - [Knots Landing on the television](https://multipleexperiences.org/2020/03/14/knots-landing-on-the-television/) - Needing a break from the coronavirus and my upcoming infusion worries, I am always thankful for my Firestick. I have every program imaginable that I can watch just about anything. Lately I started watching Knots Landing. This series ran from 1979-1993. It was an evening soap and a spin off of the soap Dallas. I - [Rituxan infusion on Sunday](https://multipleexperiences.org/2020/03/13/rituxan-infusion-on-sunday/) - I’m a bundle of nerves which is so unlike me. Between my daughter’s school having a positive case of the virus and choosing to let her stay in Albany My daughter school has a positive case of the coronavirus I feel worried. I'm the mom, I'm supposed to protect my kid but instead I'm keeping - [My daughter school has a positive case of the coronavirus](https://multipleexperiences.org/2020/03/12/my-daughter-school-has-a-positive-case-of-the-coronavirus/) - Well our governor tweeted: Starting March 19, @CUNY and @SUNY will move to a distance-learning model for the rest of the semester.This will help us reduce density and reduce the spread of this virus. #COVID19 My daughter goes to a SUNY school in Albany and starts her spring break on Monday March 16. She won’t - [Price Gouging](https://multipleexperiences.org/2020/03/11/price-gouging/) - It is terrible what the market is doing. Since people are scared and buying supplies as if the world is about to end, there are those looking to make a fast buck. I’m sure everyone has seen the price of hand sanitizer, masks or gloves at ridiculous prices on Amazon or eBay. The products are - [Multiple Sclerosis News Today FAQs on Coronavirus](https://multipleexperiences.org/2020/03/10/multiple-sclerosis-news-today-faqs-on-coronavirus/) - I came across this article and wanted to share it with you. I copied some of the FAQs I thought were probably the ones we'd ask the most but I of course gave you the link to the full article. https://multiplesclerosisnewstoday.com/columns/2020/03/06/coronavirus-covid-19-diet-vitamin-d-ozanimod FAQs About Coronavirus and MS: The recent outbreak of a novel coronavirus (nCoV) strain - [Decisions to isolate](https://multipleexperiences.org/2020/03/09/decisions-to-isolate/) - Well I canceled my therapy until further notice. After my blogs last week Not liking physical therapy PT like it or not..., you'd think I'd be happy making this decision but I really wasn't. I'm not trying to be overly dramatic about the Coronavirus but I am trying to be smart. In therapy I can - [Forks over Knives Baked Apple Chips](https://multipleexperiences.org/2020/03/07/forks-over-knives-baked-apple-chips/) - I was cleaning out the refrigerator yesterday and realized I had tons of apples. Why not make Apple Chips. So easy to do and works for every diet. Baked Apple Chips Ingredients 2 large unpeeled apples ¼ cup date sugar ½ tsp ground cinnamon ¼ tsp ground nutmeg Method Preheat oven to 200°F. Line two large baking sheets - [Coronavirus and those with a weakened immune system like MS](https://multipleexperiences.org/2020/03/06/coronavirus-and-those-with-a-weakened-immune-system-like-ms/) - So my mom called yesterday and discussed the coronavirus with me and my weakened immune system. I can’t lie I was expecting this conversation with her and was pretty amazed she’s lasted this long. I also have to admit it’s been in my head. To make things worse, my infusion is coming up. I decided - [I love the view](https://multipleexperiences.org/2020/03/05/i-love-the-view/) - I’m distracted today. I’m watching the sun shine and twinkle off the water. There is even a boat. It is my favorite thing to look at. I know I’ve said this so many times but I just can never get enough of the sight. I can get lost in my view. I love everything about - [Rituxan infusion coming up](https://multipleexperiences.org/2020/03/04/rituxan-infusion-coming-up/) - Good morning and happy hump day to all. Got through the day of exhaustion from therapy yesterday. At least I had a justifiable reason for being fatigued. I even made it to my hair appointment and no more grey hairs, at least for the next 5-6 weeks. My wonderful hair dresser, who is also a - [PT like it or not...](https://multipleexperiences.org/2020/03/03/pt-like-it-or-not/) - This might be brief. I just got home from my double therapy sessions. I am wiped out as expected. OT was challenging and PT was hard as expected. I can’t say I dislike my new PT therapist she knows what she is doing but makes me work. She is more focused on my exercises, all - [Not liking physical therapy](https://multipleexperiences.org/2020/03/02/not-liking-physical-therapy/) - So after a second day of consuming a regiment of oregano oil and using Doterra Breathe, I got into bed sneezed once and never sneezed again. Achoo-ing through the night. Woke up fine. So strange!!!! I'm doing much better with the Provigil. I'm so happy to report. I am no longer waking up exhausted as - [Achoo-ing through the night](https://multipleexperiences.org/2020/02/29/achoo-ing-through-the-night/) - The other bight I was kept awake sneezing my head off. I’ve used a million tissues. I woke up and immediately start my regiment of consuming pure oregano oil in water and by mid morning the sneezing stopped. I had a sneeze here or there but nothing like the evening. Then I went to bed - [Funny service dog in training fail video](https://multipleexperiences.org/2020/02/27/funny-service-dog-in-training-fail-video/) - I saw this video yesterday and I just cracked up. Sometimes we need to laugh at our disability and this will certainly help achieve that. This would be my dogs if I ever tried to make them a service dog. ❤️❤️. Click on the link and enjoy. https://youtu.be/ND63UPelkIw https://youtu.be/QqHjILpVII8 - [What happened to winter](https://multipleexperiences.org/2020/02/27/what-happened-to-winter/) - This has been a very mild winter. I think there has only been one day that it actually snowed and the snow was about an inch. Not that I’m hoping for big snow storms because they’d keep me housebound, but come on, it’s winter. I need at least one good storm. I love looking out - [Another nursing evaluation](https://multipleexperiences.org/2020/02/26/another-nursing-evaluation/) - I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a - [MS and body temperature](https://multipleexperiences.org/2020/02/25/ms-and-body-temperature/) - Everything worked out with the agency. They found an aid to cover the days that my normal aid is out. She is very nice and the dogs are fine. Thankfully it’s all good. I just didn’t sleep well last night. I woke up at 3am and really never fell back asleep. I was sweating all - [My dogs and finding a back up aid](https://multipleexperiences.org/2020/02/24/my-dogs-and-finding-a-back-up-aid/) - Good morning, happy Monday. I’m definitely on the recovery side of things and I’m so grateful for that. I’m hoping to play mahjong for a little today with the ladies in my building. I might not be able to play all day but I’ll be thrilled if I can get through a few hours. I - [It is never an easy transition](https://multipleexperiences.org/2020/02/22/it-is-never-an-easy-transition/) - I’m back with an agency and as of 5pm Friday they had no one for me on Monday. We are off to a great start. They told me it’s because of my dogs. They have difficulty placing aids in households with animals. Well I’m not giving up my dogs so if I have to change - [Light at the end of the tunnel](https://multipleexperiences.org/2020/02/21/light-at-the-end-of-the-tunnel/) - Day two of waking up and not feeling tired. I can’t even put into words how great that is. I am starting to feel more like myself. I still was in bed by 8 yesterday and sleeping before 9. I also had no strength in my legs and had to transfer directly from my wheelchair - [I am back with a home health agency](https://multipleexperiences.org/2020/02/20/i-am-back-with-a-home-health-agency/) - Today is the first day I woke up not feeling tired. It was such a wonderful feeling. I haven’t had that in so long. I can’t say how the rest of my day will go but for all my bitching lately it was nice to start off my blog with some good news. I still - [I showered, I’m exhausted](https://multipleexperiences.org/2020/02/19/i-showered-im-exhausted/) - What can I say. I’ve been like a lump on a couch. I showered today, go me!! I’m exhausted 😴. I was exhausted when I woke up. My eyes feel swollen after I slept for almost 12 hours. How much more can one person say about fatigue? I’ve done nothing so I have nothing to - [One day at a time](https://multipleexperiences.org/2020/02/18/one-day-at-a-time/) - Still unfortunately feeling shitty. Once again canceling activities. The good news is I’m sleeping better, that really helps. Of course I’m a few weeks away from my infusion of Rituxan which had issues last time.Whether the issues were actually caused by the infusion or not, we still don’t know, but my concern is there to - [My Medicine Cabinet of Old Pills](https://multipleexperiences.org/2020/02/17/my-medicine-cabinet-of-old-pills/) - This is week two that I am am starting cancel my activities. The extreme fatigue has not left nor given relief. My prescription has been changed from Adderall to Provigil but the pharmacy had to order the drug. It should be ready today. I found a bottle of slightly out of date pills in my - [Free as the wind, I did that!!!](https://multipleexperiences.org/2020/02/15/free-as-the-wind-i-did-that/) - I use to love being on the boat with my dad. I loved the water being free like that with the wind blowing in your hair. If you love the water you know that feeling I’m talking about. I missed that feeling for a long time until I got on the back of a motorcycle. - [Happy 22nd anniversary multiple sclerosis](https://multipleexperiences.org/2020/02/14/happy-22nd-anniversary-multiple-sclerosis/) - 22 years ago started my second multiple sclerosis relapse that lead to my diagnosis five days later. My first was optic neuritis but by itself had no name. It was 6 months later on Valentine’s Day weekend when I moved into my new house and my left side started to go numb. What started in - [GoodRx for prescriptions](https://multipleexperiences.org/2020/02/13/goodrx-for-prescriptions/) - Since I’ve been suffering through another extreme bout of MS fatigue I tried to figure out what I could do for myself. I know I was out of my prescription Adderall for a couple days, but could that really bring on fatigue so extreme? I don’t believe it was working that well plus this fatigue - [Smiling through exhaustion](https://multipleexperiences.org/2020/02/12/smiling-through-exhaustion/) - Back to feeling rundown again. Spent yesterday morning in bed with a migraine. Migraine is gone but I’m still exhausted. I went into bed before 9pm yesterday and slept straight through until 4:30am. That is a record. I went back to sleep and woke up at 8:44. I had to take my car in first - [Dr. Pimple Popper](https://multipleexperiences.org/2020/02/11/dr-pimple-popper/) - Everyone has been talking about Dr. Pimple Popper so I finally tried it out. Everything everyone said was right, it is so gross but you can’t look away. I watch and my stomach is quesy yet I put on another episode. Makes me not so worried about my fungus that doesn’t hurt and keeps well - [Dinner and a movie](https://multipleexperiences.org/2020/02/10/dinner-and-a-movie/) - This couch potato found a fellow couch potato friend right in my building. Through the activities I do in my condo I made friends. Lovely people that I can call and socialize with weekly. This was another aspect of living in a condo that I was hoping for that actually came to be. I met - [Defensive driving course for wheelchairs](https://multipleexperiences.org/2020/02/08/defensive-driving-course-for-wheelchairs/) - My daughter always says I can’t drive. She doesn’t mean my car, she is talking about my wheelchair. I have had a few mishaps and rolled over a few feet and possibly a paw or two. In my defense they weren’t paying attention to my lack of direction and could have moved out of the - [I am a Multiple Sclerosis Warrior](https://multipleexperiences.org/2020/02/07/i-am-a-multiple-sclerosis-warrior/) - I have to say things in my family have been sad. Bad news received about a loved ones health has hit everyone hard. It puts having multiple sclerosis in its respected place. A place that has always helped me deal with my disease on a more positive level. I’m here!!! I didn’t receive a death - [Intermittent Fasting 18 months later](https://multipleexperiences.org/2020/02/06/intermittent-fasting-18-months-later/) - Sometimes I’m amazed when I look at my stats to see which blogs are still popular getting consistent hits. Like this one on Intermittent Fasting two months later https://multipleexperiences.org/2018/08/31/intermittent-fasting-2-months-later/. This blog was written in August of 2018. However it wasn’t the popularity of the blog that struck me it was the date I wrote the - [Physical therapy, physically exhausting](https://multipleexperiences.org/2020/02/05/physical-therapy-physically-exhausting/) - I had my first physical therapy appointment of the year yesterday after my occupational therapy. I knew I’d be exhausted after but I completely underestimated how exhausted I’d actually be. It took me hours to be able to move out of my chair when I got home. Hours!!!! I’m working with a new therapist. She - [Les Millis Bodyjam Workout](https://multipleexperiences.org/2020/02/04/les-millis-bodyjam-workout/) - I’m setting up my blog the night before because tomorrow I start my double therapy sessions. First day back in physical therapy so I’m a little scared. Scared because I know it will be hard. On another note, I am always looking for fun new workouts that I can revise to work for me in - [Room in bed for everyone](https://multipleexperiences.org/2020/02/03/room-in-bed-for-everyone/) - I don’t move when I sleep. I’ve slept on my back as long as I can remember. The only thing that moves throughout the night is my head. I may turn to the left or right on the pillow thus leaving the back of my hair slightly knotty yet the front perfect. If it wasn’t - [Forks over Knives Creamy Carrot Soup](https://multipleexperiences.org/2020/02/01/forks-over-knives-creamy-carrot-soup/) - I love my soups. I eat them almost everyday. I have not been 100% plant based lately but Forks Over Knives is still my favorite app for soups and stews. I highly recommend getting the app to anyone. Creamy Carrot SoupIngredients • ¼ cup cashews • 1 medium onion • 1½ lbs. carrots • 1 - [My beautiful spiritual sister](https://multipleexperiences.org/2020/01/31/my-beautiful-spiritual-sister/) - I have a few things going on in my thoughts this morning making my heart feel heavy. The thoughts are revolving around a few people in my life that I care deeply about. Unfortunately I can't do much to help physically, only mentally and spiritually. This brings me back to my sister. My beautiful sister. - [Spirit Junkie Masterclass](https://multipleexperiences.org/2017/06/23/spirit-junkie-masterclass/) - I’m so excited to hear how many of you loved my girl Gabby’s free video training series! Now it’s time for the big reveal... In this final video, Gabby shares a BIG invitation. Her invite is for people who want to share their spiritual principles in work and life. People who want to gain the - [When MS forces you to take a break](https://multipleexperiences.org/2020/01/30/when-ms-forces-you-to-take-a-break/) - I ended up giving myself an easier week. I needed that. I was too run down trying to do everything. I think I'm feeling somewhat more together again. I love being part of all my activities but in truth they can also take a toll on me. This week I had to pay closer attention - [Giving names to my assistive devices](https://multipleexperiences.org/2020/01/29/giving-names-to-my-assistive-devices/) - I'm happy to report I have had no strange incidents with my wheelchair, Houdini, this week. My wheelchair might be trying to kill me. However it is only Wednesday and I'm hoping I haven't spoken too soon. I name all my things: cars, assistive devices, even the TV (although that name was lifted from an - [Service Dogs](https://multipleexperiences.org/2020/01/28/service-dogs/) - Meet Hubert He is the Service dog of a woman, Andrea, who participates in therapy every week. She is a lovely woman but her dog, he is amazing. Nothing makes me happier than seeing him. Unlike most Service dogs, Andrea lets him get pet while wearing his hair vest. He gets a lot of love - [My wheelchair might be trying to kill me](https://multipleexperiences.org/2020/01/27/my-wheelchair-might-be-trying-to-kill-me/) - I'm starting to think my wheelchair might be trying to kill me. I feel like the movie Christine by Stephen King except it's me that is the target. On Saturday once again I got ran over by my wheelchair. I ran myself over with my wheelchair. This time my shirt got caught on the controls - [Pajama Day for me](https://multipleexperiences.org/2020/01/25/pajama-day-for-me/) - It is a gray day here. Windy and rainy. I am in my pajamas and planning on staying this way for the remainder of the day. It has been a rough week for me. I ran myself over with my wheelchair No joke, I’ve fallen again Besides my falls, I have literally scratched up every - [No joke, I’ve fallen again](https://multipleexperiences.org/2020/01/24/no-joke-ive-fallen-again/) - Omg it happened again yesterday where I fell to the floor but this time it wasn't so comical. I was beyond exhausted coming home from mahjong. It even took me a couple of minutes to get from my wheelchair to the drivers seat. Driving isn't an issue for me because the muscles required for that - [I ran myself over with my wheelchair](https://multipleexperiences.org/2020/01/23/i-ran-myself-over-with-my-wheelchair/) - It happened again, I ended up on the floor and couldn't get up. However how it happened was slightly comical. I ran myself over with the wheelchair. My sweatshirt got caught on the control as I was making my transfer to my chair. I got knocked over with my arm still attached to the chair. - [Maybe it isn’t MS](https://multipleexperiences.org/2020/01/22/maybe-it-isnt-ms/) - I'm putting on my MD hat today and I'm diagnosing myself. I think my bizarre toe MS symptom isn't MS at all. Annoying MS symptoms strike again I think it may be gout. I've had this weird symptom for a couple of years now and it never dawned on me until yesterday that it was - [Annoying MS symptoms strike again](https://multipleexperiences.org/2020/01/21/annoying-ms-symptoms-strike-again/) - Ugh my toe hurts. That strange MS symptom that comes once in a while for no reason. It just started hurting in the middle of the night. Same thing always right foot, big toe. Didn't hurt when I put a shoe on but it is now a dull throbbing with my shoe off and feet - [Another strange MS symptom](https://multipleexperiences.org/2018/04/20/another-strange-ms-symptom/) - I've had L'hermitte's sign. It is defined by Wikipedia as: is an electrical sensation that runs down the back and into the limbs. The sensation can feel like it goes up or down the spine. It is uncomfortable. If you never experienced it, for me, I'd get these electric sensations down my leg. I'd get - [Safe transfer from my wheelchair](https://multipleexperiences.org/2020/01/20/safe-transfer-from-my-wheelchair/) - Yesterday was the first time I actually went from my wheelchair directly into my bed. My daughter left to go back to school and I am once again alone in the house. I must say the realization of that fact became very clear when I realized how fatigued my legs were. I did a long - [Do I continue to blog?](https://multipleexperiences.org/2020/01/18/do-i-continue-to-blog/) - I woke up this morning and for the first time I questioned my blog. My stats have fallen off lately and I have just questioned is it worth it still? This July my domain name, multiple experiences, will be up for another two year renewal and let me tell you, it's not cheap. Then add - [Next level wheelchair](https://multipleexperiences.org/2020/01/17/next-level-wheelchair/) - Friday is here, another quick week. I have plans this evening which will mean I will be in recovery mode all weekend. It doesn't take much for me to tire out although this wasn't a terrible week considering all I did. I was out everyday doing activities. That is really big for me. This included - [Marriage & Divorce](https://multipleexperiences.org/2020/01/16/marriage-divorce/) - It is a pretty looking day here but I always think that when the sun shines on the water. It isn't even shining but the sky is adding this pretty yellow hue to the still water. Hard to do it justice from my chair. I'm excited to share happy news that my beautiful cousin got - [Mental exhaustion with MS](https://multipleexperiences.org/2020/01/15/mental-exhaustion-with-ms/) - Question, do you snap at people when you've hit your limit? When all my energy is gone and I'm completely exhausted, I'm known to loose my patience. My fuse is short and I can snap easily. My daughter knows this all to well. It is just like my brain can't handle anything else in that - [Dog tired occupational therapy hazard](https://multipleexperiences.org/2020/01/14/dog-tired-occupational-therapy-hazard/) - Occupational therapy kicked my ass today. I knew my first day back would be rough but wow, that was super duper tough. He started with these tiny little beads I had to put onto a shape. He let me do this with my hands. How nice of him. I had a star shape. This consumed - [A choice to exercise](https://multipleexperiences.org/2020/01/13/a-choice-to-exercise/) - Happy Monday. My aid just told me I look tired. I'm always tired. I can sleep for 24 hours and I'd still wake up tired. I just did my little cardio workout but i was tired. It doesn't ever matter, I've just learned to push through the feeling as I have always done. I bought - [How time flies](https://multipleexperiences.org/2020/01/11/how-time-flies/) - I have an eye exam scheduled for Tuesday. My eyes have not been good. Things I'm reading are not clear and I find myself blinking a bunch of times to focus. Even with my eye glasses that are bifocals, I find they aren't helping enough anymore. Last year my eyes had a slight change this - [Life expectancy with Multiple Sclerosis](https://multipleexperiences.org/2020/01/10/life-expectancy-with-multiple-sclerosis/) - I was reading an article yesterday about the life expectancy of people with autoimmune diseases. https://health.usnews.com/health-care/patient-advice/slideshows/autoimmune-diseases-that-can-be-fatal. Of course there was a section dedicated to multiple sclerosis. This said on average life expectancy of someone with MS is 7 years less than the average person without the disease. I've heard this number before but it doesn't - [My manifestation challenge](https://multipleexperiences.org/2020/01/09/my-manifestation-challenge/) - My manifestation challenge is one week complete. I've done every exercise each day aligning myself with the universe. Yesterday was about asking for a sign that you are on the right track. My sign is always my 22 in strange places, meaning I can't be looking at some clock in my house waiting for the - [My daughter’s spiritual journey](https://multipleexperiences.org/2020/01/08/my-daughters-spiritual-journey/) - My daughter is starting on her own spiritual journey. It is amazing to watch. Months ago she started talking to my life coach and things have started to click for her recently. This last semester was a semester of growth. She had many obstacles she needed to deal with on a personal level and she - [Occupational therapy evaluation](https://multipleexperiences.org/2020/01/07/occupational-therapy-evaluation/) - So I went yesterday for an occupational therapy evaluation at the same place that I've been going to therapy for the past four years. However I only participated in OT last year. I never realized I could do both. When my insurance ran out last year I actually took a break for the first time. - [I’m too tired for Monday](https://multipleexperiences.org/2020/01/06/im-too-tired-for-monday/) - I'm not sleeping well which is unusual for me. Sleeping has never been my problem. I can sleep all day and night normally other than getting up for bathroom breaks. Once in a while I deal with spasticity issues that plague my sleep. That can last for a night to a week to a month - [WW Peanut Stew with Spinach and Sweet Potatoes](https://multipleexperiences.org/2020/01/04/ww-peanut-stew-with-spinach-and-sweet-potatoes/) - Made this soup from WW, formally weight watchers, the other day. It was really good. A nice hearty filling soup perfect for the winter weather. I substituted regular potatoes for sweet potatoes because I'm not a fan as well as natural almond butter for the peanut butter. This might be a new favorite. Ingredients: Cooking - [Getting to know a new bathroom floor](https://multipleexperiences.org/2020/01/03/getting-to-know-a-new-bathroom-floor/) - I knew I shouldn't write that about falling. I was playing mahjong yesterday and we were actually playing here in my building. It was one of those days where I was just not holding up very well in the game and I was having difficulties keeping up right. OK, it happens. I wasn't going to - [Still blogging in 2020](https://multipleexperiences.org/2020/01/02/still-blogging-in-2020/) - Year 2020, that's crazy!! How was your first day of the New Year? I'm still here writing a blog to the internet. I love my blog, it is therapy for me, a way for family and friends to understand my daily life and a way to meet other bloggers and people. I should say this - [New Years Day by U2](https://multipleexperiences.org/2020/01/01/new-years-day-by-u2/) - As is my tradition each year, my first blog is New Years Day by U2. This song is off of the War album and was the album that began a very long obsession with the band but lead me to this picture and my signed War album. I use the USA remix because it is - [Happy New Year to Everyone](https://multipleexperiences.org/2019/12/31/happy-new-year-to-everyone/) - So did you make your New Year's Resolutions? I don't make resolutions based on a day in the year but I do have things I'm focusing on in 2020. I'm excited for those tell you about those things. I'm doing Gabby Bernstein's 21 day manifesting challenge https://gabbybernstein.com/manifestingchallenge/. I've never done anything like this and Gabby - [A day off from MS, my one wish](https://multipleexperiences.org/2019/12/30/a-day-off-from-ms-my-one-wish/) - So far so good. I probably shouldn't say that, I'll jinx myself. I've been fall free for a few weeks letting all my bruises finally heal. Although I must admit to a bad MS day yesterday that put me in a bad mood. I once again took off a handle on my kitchen cabinet with - [The case of the disappearing oils](https://multipleexperiences.org/2019/12/28/the-case-of-the-disappearing-oils/) - I have two oils that I've been putting on my toes for the last 8 months daily, melaleuca and oregano. This is used for the fungus that no cream was working to eliminate. It is supposed to be put on 4 times daily but there is no way I could do that so I shoot - [No place like home](https://multipleexperiences.org/2019/12/27/no-place-like-home/) - I had a great week with my family and now I'm home. I am back in my normal environment. I'm back where everything is set up specially for me and my disability. I must say there is a certain relief I feel being home. I feel more secure in my own space. I know it - [Home bound](https://multipleexperiences.org/2019/12/26/home-bound/) - My vacation comes to an end today. We are leaving for home in the early afternoon. I had a wonderful time with my family, as I always do, but my other family is at home. I miss my dogs. I know I sound like a crazy person to some people but I do. I'm with - [May all your Christmases be bright](https://multipleexperiences.org/2019/12/25/may-all-your-christmases-be-bright/) - In loving memory of Boomer 2/10/06-12/25/16 - [Thankfully past thanksgiving](https://multipleexperiences.org/2019/12/23/thankfully-past-thanksgiving/) - I'm sitting in my sister's living room contemplating what I wanted to say this morning. I wanted to show a picture of her beautiful backyard and maybe say some of the difficulties and things that worked being in my wheelchair for the first time at her place. I rolled over to take this beautiful backyard - [Making my disability work in new environments](https://multipleexperiences.org/2019/12/24/making-my-disability-work-in-new-environments/) - Not a bad place to be to write a blog post. It is a rare morning because it is actually only my sister and myself awake at this moment. She is in one chair reading her book with a cup of tea, I'm in the other with writing with a cup of coffee. It is - [Once again joined WW, formally known as weight watchers](https://multipleexperiences.org/2019/12/21/once-again-joined-ww-formally-known-as-weight-watchers/) - Wow I can't believe in 10 days another year begins. 2020!! I guess it has to be easier than writing 2019. I do better with even numbers and even better when my 22 is in a number I'm writing. New Years resolutions, I don't do them because I don't need a specific day of the - [No more driving in traffic](https://multipleexperiences.org/2019/12/20/no-more-driving-in-traffic/) - It's 8:10 in the morning and I have already cleaned up after the puppies, fed the those furry munchkins, completed my work out and cleared off all my email. Why do you ask have I done so much so early in the morning? My baby, who came home late Wednesday night, had to leave for - [MS humor from the internet](https://multipleexperiences.org/2019/12/19/ms-humor-from-the-internet/) - Keeping things light and fun and posting some funny things I found on the internet on MS, none of which is owned by my site. Hoping to make someone smile today. - [Changing your life starts with you, a spiritual journey](https://multipleexperiences.org/2019/12/18/changing-your-life-starts-with-you-a-spiritual-journey/) - I have spent a few years now learning to look inward for my own happiness and my own mistakes. It has taken me time and tears to learn and forgive others, whom I falsely blamed, until I learned to accept and forgive myself. My spiritual journey wasn't an easy journey but it was the most - [With everything that changes, somethings don’t change](https://multipleexperiences.org/2019/12/17/with-everything-that-changes-somethings-dont-change/) - I was watching Footloose last night. Nothing like a good 80's flick. However I still love a lot of the songs on this soundtrack. Like during the tractor scene where they play chicken. The song Holding Out for a Hero https://youtu.be/3GPZDX9_2oE. Love that!!! When Kevin Bacon is doing his big gymnastics/dance routine in the warehousehttps://youtu.be/AqNUiqxDXxg. - [Meet the Cambridge Scientist on Verge of Curing Multiple Sclerosis](https://multipleexperiences.org/2019/12/16/meet-the-cambridge-scientist-on-verge-of-curing-multiple-sclerosis/) - Interesting new breakthrough in multiple sclerosis treatment. This one was new for me so I had to post it for my readers. It isn't stem cells or B-cell blockers, it is about the cell that turns on in MS that attacks the body. It is about regeneration of damaged tissue. This is the kind of - [A person meant to be in your life](https://multipleexperiences.org/2019/12/14/a-person-meant-to-be-in-your-life/) - It is a rainy, foggy and dismal day in New York. I am staying in my pajamas today and watching movies on my Firestick and couldn't be happier. My stepdad will be over in a little while and we're going to watch a couple episodes of Jack Ryan season two. Until he gets here and - [It’s almost Christmas time at my sisters](https://multipleexperiences.org/2019/12/13/its-almost-christmas-time-at-my-sisters/) - Isn't it crazy how fast November and December go? It always amazes me. It was just my birthday at the end of November and now I'm planning my trip to go to my sister which is always for Christmas. We're leaving in a week from Sunday. This has become our families thing to do every - [My back can’t always hold me up anymore](https://multipleexperiences.org/2019/12/12/5531/) - I slept so good last night. I went to before 10:00 and slept through until 4am. Then went back to sleep until almost 9. That's some quality sleep right there. I was woken up by my dogs running to greet my aid coming through the door. Otherwise I might have slept even longer. Guess I - [Numbness in the hands](https://multipleexperiences.org/2019/12/11/numbness-in-the-hands/) - I'm hanging with the puppies again Look I even included a makeup free version of myself. I just had my hair done yesterday so I must say the color looks fabulous though my hair needs a little straightening help. However my sweet ZoZo looks very cute on my shoulder and I had to show the - [Another uneventful day](https://multipleexperiences.org/2019/12/10/another-uneventful-day/) - Another grey day in NY. Not that it actually bothers me but it did help me sleep until 8:45 today. I woke up when my dogs barked and ran off when my aid came in the apartment. I don't know if that necessarily constitutes watch dogs since they would have probably ran off and been - [Swimming difficulties with multiple sclerosis](https://multipleexperiences.org/2019/12/09/swimming-difficulties-with-multiple-sclerosis/) - Good morning world. Happy Monday. It's a dreary one here in NY, raining. That's ok I was home today anyway. I am about to doing of my exercise programs and I'm still deciding which one to do. I might let my aid pick since I force her to exercise with me when I exercise in - [Unpredictable multiple sclerosis](https://multipleexperiences.org/2019/12/07/unpredictable-multiple-sclerosis/) - My neurology visit was uneventful yesterday for the most part. He did a quick exam and during the exam he said I always forget how myelopathic your MS has always been. He always says that to me. First I had a remember what myelopathic meant and then I remembered what he meant. Myelopathic is referring - [My neurologist and me 22 years later](https://multipleexperiences.org/2019/12/06/my-neurologist-and-me-22-years-later/) - It's Friday and I'm exhausted. A shocking statement from me, right? Why do I feel like this week was so long? It just feels like I did a lot this week when I really didn't. I am not even done. I'm off to my neurologist this morning. This is my normal MS neurologist, not the - [A tough decision when safety comes first](https://multipleexperiences.org/2019/12/05/a-tough-decision-when-safety-comes-first/) - I had another fall the other day. I wouldn't say it was a bad one but I did hit my head on the toilet bowl. It didn't even register as a fall in my Apple Watch. I kind of fell in slow motion and nothing hit hard but my head. I'm left with yet another - [Weighted down](https://multipleexperiences.org/2019/12/04/weighted-down/) - I almost signed up for Nutrisystem yesterday. Luckily my mom called and I asked her what she thought before I push the button to purchase. She talked me out of it and she made extremely good sense as to why it was pointless. Purchasing pre-portioned, vacuum sealed, preservative induced foods against what I eat normally - [Please Support FBRN on Giving Tuesday 2019](https://multipleexperiences.org/2019/12/03/please-support-fbrn-on-giving-tuesday-2019/) - https://gallery.mailchimp.com/6b6959cf2d7b8b364d6447d38/images/b4af84f1-60d3-48e6-bf04-c58c982f6442.jpg It is Giving Tuesday and today we ask to open your wallet for something other than presents for loved ones. Today we ask for you to donate to the French Bulldog Rescue Network. A group dedicated to helping surrendered, sick, older and abandoned French bulldogs. These are someone's future loved ones that need your - [A selfless act](https://multipleexperiences.org/2019/12/02/a-selfless-act/) - My daughter went back to school yesterday. She took the train back. A normally uneventful trip that became an extremely horrendous night because she was traveling back into a snowstorm. Her school is only about 3-3 1/2 hours away from where we live yet the weather can be drastically different. She doesn't go to school - [Black Friday to cyber Monday](https://multipleexperiences.org/2019/11/30/black-friday-to-cyber-monday/) - Black Friday for those that don't live in the states, is the biggest shopping day of the year. It is always the day after Thanksgiving which is ALWAYS a Thursday so this day is ALWAYS a Friday. There are a million sales in every store, crazy deals on merchandise and insane shoppers. Stores open at - [The day of the stuffing](https://multipleexperiences.org/2019/11/29/the-day-of-the-stuffing/) - I hope everyone had a yummy feast yesterday. I had a very nice dinner with my mom, stepdad, sister, brother in law and my daughter. We were a small group but still shared many laughs and lots of love. There were a few things I found humerus because you have to laugh when you have - [A list of thankful Thanksgivings](https://multipleexperiences.org/2019/11/28/a-list-of-thankful-thanksgivings/) - Thanksgiving is here again. It's time for family traditions of certain dishes made once a year with an extremely large turkey that is never eaten and always consumed for at least three days after today. My family all contribute a dish. I always make my carrot soufflé which I've learned to make for every single - [Carrot Soufflé vegan or non-vegan](https://multipleexperiences.org/2018/03/16/carrot-souffle-vegan-or-non-vegan/) - I make this recipe every Thanksgiving. It's a very simple recipe and very easy to make me again. Yesterday I made the non-vegan way but there's certain things in the recipe I do change. I'm going to put the actual recipe up and then write what I change. I've been making this recipe easily for - [Skin deep and in deep](https://multipleexperiences.org/2019/11/27/skin-deep-and-in-deep/) - Do you self diagnose yourself through the internet? I have to admit I do and sometimes I'm right. You can look up signs and symptoms and tell what something is like my abscess. I was able to figure that out on my own, with the help of my aid, and google. I probably wouldn't be - [Fall detection on the Apple Watch Series 5](https://multipleexperiences.org/2019/11/26/fall-detection-on-the-apple-watch-series-5/) - I am very happy I bought my Apple Watch for my birthday especially with my recent falls. Apple Watch here I come. The fall detection was one of the main features that made me decide to purchase the watch, although I love it for many other reasons. So I've had a few falls now and - [Oops I did it again](https://multipleexperiences.org/2019/11/25/oops-i-did-it-again-2/) - Another nasty fall on Saturday morning. I took off the towel rack in my daughter's bathroom for the second time. My contractor asked if I wanted to install a more secure bar like I have in my own bathroom and like an idiot I declined. Now I asked for the more secure bar to installed - [A very happy birthday](https://multipleexperiences.org/2019/11/23/a-very-happy-birthday/) - My birthday was really nice. My friend Angie actually surprise me with vegan muffins and a candle at my nail salon. That was a very embarrassing display but a very sweet one. I think she was more surprised when I explained to her that I haven't been even eating vegan. I change diet so often - [Happy Birthday to me](https://multipleexperiences.org/2019/11/22/happy-birthday-to-me/) - https://youtu.be/emapZzstxzU Another year has gone by and another number added to my years alive. I certainly am not complaining. I am actually grateful. Things were really good this year. My life was completely changed by many people, friends, family and others that barely know me contributing to my fundraiser for my van. This was at - [But it isn’t even 11am...](https://multipleexperiences.org/2019/11/21/but-it-isnt-even-11am/) - I was so happy to have nothing to do today. This week has been long already. However within the first hour of waking I realized things weren't going to be as smooth as I would have liked. It started with a notification from Quest Labs. That is just one of the labs out here I - [Neurologist was as expected](https://multipleexperiences.org/2019/11/20/neurologist-was-as-expected/) - My doctor appointment went as expected. I will be continuing on Rituxan for the foreseeable future. There really is nothing on the market for me to change to at this point. The question about me getting worse, isn't really a question, it's more of a fact. That is what secondary progressive MS is, it's steady - [The psychology behind the neurologist check up](https://multipleexperiences.org/2019/11/19/the-psychology-behind-the-neurologist-check-up/) - Today is my mom's birthday, 3 days before mine. Happy birthday mom!!! My birthday is here again. Came fast. My lucky day and number 22. I have no plans because we celebrate my birthday on Thanksgiving. That has always been the tradition. Actually we celebrate both our birthdays on thanksgiving because we are together. This - [Home again with ramps](https://multipleexperiences.org/2019/11/18/home-again-with-ramps/) - I'm sitting in my van outside my mom and stepdad's house. The home I grew up in but haven't entered in close to a year. I became unable to navigate the deck steps to get inside. Between those steps and the leaves I can't even imagine how slippery it is besides difficult. Today I'm here - [A sad realization about Multiple Sclerosis](https://multipleexperiences.org/2019/11/16/a-sad-realization-about-multiple-sclerosis/) - #just wanted to add this note because this was such a dismal post. A few hours after I wrote this post I realize something very important, with secondary progressive MS you are not functional one day to Stuck on the floor another. I don't have relapses anymore. I now realize I was sick with this - [Rituxan is NOT the cause of the blisters](https://multipleexperiences.org/2019/11/15/rituxan-is-not-the-cause-of-the-blisters/) - According to my dermatologist yesterday she strongly feels that these blisters and now abscess are NOT because of an allergic reaction to Rituxan. Blisters and Rituxan More skin issues after Rituxan. She believes I picked up something and taking the Rituxan just helped the infection spread faster. Rituxan did it's job by wiping out my - [I’ve fallen and I can’t get up](https://multipleexperiences.org/2019/11/14/ive-fallen-and-i-cant-get-up/) - Last night was a very bad night. All my family and friends who haven't heard the story I'm sorry you'll be hearing it through my blog. I am fine. If I wasn't I wouldn't be writing this today. I played mahjong yesterday for the afternoon and got home around 3. I was completely exhausted more - [Triple Magnesium Complex for bowel issues](https://multipleexperiences.org/2019/11/12/triple-magnesium-complex-for-bowel-issues/) - Let me tell you, I've been dealing with bowel issues for a very long time having multiple sclerosis. https://multipleexperiences.org/2019/04/13/when-the-back-door-garbage-chute-isnt-working/. https://multipleexperiences.org/2019/06/07/backdoor-chute-muscles-missing-signals/. I've tried many different things that have worked for a short while only to stop working again. https://multipleexperiences.org/2019/04/19/backdoor-chute-suggestion-worked/. I finally went to see a gastroenterologist for help. https://multipleexperiences.org/2019/07/15/gastroenterologist-visit/ We started me on Linzess and tweaked - [Gastroenterologist visit](https://multipleexperiences.org/2019/07/15/gastroenterologist-visit/) - I have to say this was a really nice office. The whole staff was super nice but the doctor was extremely nice. He spent a lot of time with me discussing the issues with constipation and multiple sclerosis. What a nice man he was. After a lengthy conversation together, the diagnosis was chronic constipation. Nothing - [Backdoor chute suggestion worked](https://multipleexperiences.org/2019/04/19/backdoor-chute-suggestion-worked/) - There are some days when I blog and I really have nothing to say and then there are some days, like last week, where I put up an embarrassing blog about my constipation issues with MS When the back door garbage chute isn’t working that I get a comment with a suggestion. Gary uses Nature's - [Defining a day in a life with MS](https://multipleexperiences.org/2019/11/11/defining-a-day-in-a-life-with-ms/) - I realize something last night, for all my complaining about fatigue, I've been staying up most nights till 10 o'clock. If you look back to before I saw my doctor, I was in bed by eight and asleep by 8:30. https://multipleexperiences.org/2019/09/03/trip-to-the-neurologist/ This is before he gave me the Adderall. Yes, my body isn't recovering from - [Curing fatigue naturally](https://multipleexperiences.org/2019/11/09/curing-fatigue-naturally/) - I wanted to share information received through my blog post on fatigue. This is why I write so we can share other ideas and thoughts from other patients and their doctors. This is from Sherry and I can't say how much I appreciate the information. I've been struggling from fatigue for a while now and - [A ramp for the balcony and a new closet floor](https://multipleexperiences.org/2019/11/08/a-ramp-for-the-balcony-and-a-new-closet-floor/) - I'm happy to report all the work in my condo is now complete. I had some other little projects done as well as fixing the closet. We re-touched my hallway from the scratches I've made with the scooter. I've hit into the walls many times and the walls were starting to annoy me. I had - [Why doesn’t fatigue ever go away?](https://multipleexperiences.org/2019/11/07/why-doesnt-fatigue-ever-go-away/) - It's another one of those weeks. I overdid it on Tuesday. Overdoing it consisted of sitting at a table helping family with papers and making some phone calls. Why I was so crippled from that I can never understand but I was....completely. Then the migraine started. That was just the beginning because I woke up - [21 day meditation experience with Deepak Chopra](https://multipleexperiences.org/2019/11/06/21-day-meditation-experience-with-deepak-chopra/) - I'm late in posting this and I sincerely apologize. Truth is I forgot myself and didn't start day 1 until today so you still have time to start yourself on your own journey. This is another 21 day FREE meditation experience with Deepak Chopra. These are so inspiring and I really hope you take advantage - [My Apple Watch](https://multipleexperiences.org/2019/11/05/my-apple-watch/) - I thought it was going to be so easy, after all I've had my iPhone, iPad and my iPod forever. It is not the same thing. I've learned that really fast. Thankfully I signed up for the online session with Apple to teach me how to use my watch today at 11.  Every morning - [Daylight Savings protest](https://multipleexperiences.org/2019/11/04/daylight-savings-protest/) - Why do we still do this? It messes me up for days. My sleep is all out of sorts. It even messes my dogs up. For the last two days my Zoey has been up at 7am which would technically be 8am if we left the clocks alone I didn't gain an hour of sleep - [Week in review](https://multipleexperiences.org/2019/11/02/week-in-review/) - I got my Apple Watch yesterday...isn't it pretty? I have a session with Apple on Tuesday morning to learn how to use it optimally. I've been a Fitbit user for 10 years so I need a little help learning how to use this activity app correctly. I set up the SOS Apple Watch here I - [Cut the anchor of your past](https://multipleexperiences.org/2019/11/01/cut-the-anchor-of-your-past/) - I was watching old episodes of Sex in the city last night as I went to bed and heard such a great analogy about the past. The past is an anchor pulling you down and until you release that anchor you can't float up to the person you're supposed to be. I may have paraphrased - [Happy Halloween](https://multipleexperiences.org/2019/10/31/5417/) - It's Halloween today and unfortunately it is a rainy day here in NY. Not ideal trick or treating weather for kids. I live in a building so any kids that live here can come and ring the door bell for some candy staying dry and filling up their goody bag but no outsiders can come. - [Wednesday update](https://multipleexperiences.org/2019/10/30/wednesday-update/) - First an update from the blisters and Rituxan Blisters and Rituxan. Doctor wants me to start washing all my clothes in free and clear detergents. I really could have called that one. She wants to rule out allergic reaction to any detergent regardless how long I've been using it. I get that understandable but the - [Apple Watch here I come](https://multipleexperiences.org/2019/10/28/apple-watch-here-i-come/) - Down I went. I was in the wheelchair all day. I walked with the walker for all of 5 steps before I missed stepped. I ended up smacking my head into three surfaces on the way down to land with the walker on top of me and my ass in the dogs water bowl. There - [Water heater cleanup](https://multipleexperiences.org/2019/10/26/water-heater-cleanup/) - Well yesterday was an extremely busy day. Starting at about 9 o'clock, the insurances cleanup crew came. I never expected them to be here until after 6 o'clock. However I must say they did an extremely good job. They were working side-by-side with the man who took out the old water heater and put in - [Water heater flooded downstairs unit](https://multipleexperiences.org/2019/10/25/water-heater-flooded-downstairs-unit/) - I'm playing mahjong yesterday when my cellphone rings. I didn't recognize the number but they left a message. The message was from my condo that water was pouring into the apartment beneath me from my apartment call ASAP!!! So I called and something was happening and water was coming down in gallons. I go out - [Thursday dealings](https://multipleexperiences.org/2019/10/24/thursday-dealings/) - We played trivia pursuit in the condo club yesterday and I'm happy to report I actually knew some answers. For once I helped my team. We didn't win because we didn't finish the game but we were in second place. I was proud. That is not an easy game especially the original edition. They are - [Zoey has a life long knee problem](https://multipleexperiences.org/2019/10/23/zoey-has-a-life-long-knee-problem/) - My poor Zoey. I took her to the vet yesterday because she's been limping on her back paw every now and then. Other times she is fine jumping and running like normal. I thought it was a strange quirk. It's not. Her left back knee is popping out and her hopping is her actually trying - [Thank you everyone for my handicap van](https://multipleexperiences.org/2019/10/22/thank-you-everyone-for-my-handicap-van/) - Bubba is back. Bubba is the name I gave to my handicap van. He's a big boy so Bubba seemed fitting. Turned out it only needed a battery. Good to know that even as the battery dies the ramp still works. Well $200 later he is fixed, sort of. The back sensors that were installed - [Scary MS symptom strikes again](https://multipleexperiences.org/2019/10/21/scary-ms-symptom-strikes-again/) - I wrote a text to my mom at 5:38 that said I almost choked to death, I'm still shaking. I was certainly grateful to be able to write the text and happy to be able to write this blog. I was eating a sugar free Swedish fish and a small piece went down my throat - [A different kind of spiritual experience](https://multipleexperiences.org/2019/10/19/a-different-kind-of-spiritual-experience/) - I'm staring off at the water watching the sun glint and sparkle. There is one boat making tiny ripples. It seems warm today a very light breeze and I happily opened my windows again. This is just my favorite time of day, especially a weekend day. No one is around it's just me and the - [Handicap Van going to shop...](https://multipleexperiences.org/2019/10/18/handicap-van-going-to-shop/) - I got in my car yesterday turned the key and nothing happened. The radio worked, my lift comes out, the lights on the dashboard come on but the car doesn't start. Thinking the battery we gave it a jump and tried and tried and finally the car turned over. Phew. I really didn't want to - [When MS limitations are a problem](https://multipleexperiences.org/2019/10/17/when-ms-limitations-are-a-problem/) - I was in a bad mood yesterday. I don't normally have bad moods that last anymore but yesterday I did. I just didn't snap out of it and truthfully I am not sure I wanted to. I was upset for my daughter Love to my daughter which certainly set the stage for my day but - [What is good on TV](https://multipleexperiences.org/2019/10/15/what-is-good-on-tv/) - I have to say if you are looking for a great show, Succession on HBO is so good. I'm sorry the second season is already over. This morning, first thing, I spoke with my stepsister who I love to analyze shows with. Ok I should rephrase that, I love to hear her analysis of a - [God created dogs](https://multipleexperiences.org/2019/10/14/god-created-dogs/) - My dad sent this to me yesterday Any person who is an animal lover especially a dog can truly understand this video. Brings tears to my eyes actually. I blog about my dogs often because they are members of my family. They are my kids who give unconditional love at all times. They ask for - [Flooding in the streets...for real](https://multipleexperiences.org/2019/10/12/flooding-in-the-streets-for-real/) - It is so surreal seeing the flooding that goes on down by me. I've seen the streets flood a few times now but watching it is still such a crazy experience. I still can't figure out where the water actually comes from. The canal is two blocks from me but that road didn't flood. I - [English Bulldog as a service dog](https://multipleexperiences.org/2019/10/11/english-bulldog-as-a-service-dog/) - My daughter comes home for the weekend. Very happy about that. Haven't seen her since the week after school started in August. I've missed that cute face. She got this great job at school working for a dog daycare called Camp Bow Wow. She loves it not only because of the dogs but the people. - [Metro article: We believe we can stop MS, and this is how](https://multipleexperiences.org/2019/10/10/metro-article-we-believe-we-can-stop-ms-and-this-is-how/) - Came across this exciting article about repairing myelin yesterday and I wanted to share. https://metro.co.uk/2019/10/09/can-stop-multiple-sclerosis-10875070/?ito=article.amp.share.top.email Twenty-five years ago there were no treatments for multiple sclerosis (MS) – a neurological condition that affects more than 100,000 people living in the UK. Today the picture is very different. There have been major advances in treatment and, following - [A really bad night](https://multipleexperiences.org/2019/10/09/a-really-bad-night/) - It was one of those MS nights you'd like to forget about if you could. I didn't even get warnings this time like a stomach cramp or something. I just felt like I might need the bathroom so I got up. I walked about three steps before the accident happened. As my mom says better - [Fatigue versus tired](https://multipleexperiences.org/2019/10/08/fatigue-versus-tired/) - I went into bed early as I've been doing every night recently. Last night I didn't wake up until 3am. I slept straight from 9-3. That is huge for me!!! Then I slept until 8. I wish I could sleep every night like that but my bladder disagrees. My bladder doesn't usually hold for more - [On the flip side](https://multipleexperiences.org/2019/10/07/on-the-flip-side/) - I took the dogs for a walk on the nautical mile today to purchase some fish. I was able to take pictures of my life from the reverse perspective. My dogs were loving the smell of the fish store but they weren't invited in. This is the nautical mile All lined on a canal leading - [No chirping birds at 4am](https://multipleexperiences.org/2019/10/05/no-chirping-birds-at-4am/) - I woke up this morning and realized I don't have birds chirping anymore. It isn't just because of the changing weather it is because I have no trees. I have an occasional bird chirp, but not the conversations of those birds I use to hear when I lived in my old place which was surrounded - [Realistic view of multiple sclerosis disability](https://multipleexperiences.org/2019/10/04/realistic-view-of-multiple-sclerosis-disability/) - It didn't flood in the streets yesterday so no daytime pictures to show you. Although that bulldozer is still there I'm excited today because we are playing mahjong here in my building. I'm excited to play but exhausted so I'm grateful to be playing here. I feed the dogs and showered that's it, I'm wiped - [Flooding in my streets](https://multipleexperiences.org/2019/10/03/flooding-in-my-streets/) - Just got a call from the town of Freeport that flooding is expected at high tide flooding in the streets. It's been a while since our streets flooded but I did my errands first thing this morning just in case. I took pictures of a night of flooding I never saw anything like that except - [Rough night](https://multipleexperiences.org/2019/10/02/rough-night/) - My fatigue set in very early yesterday making my evening extremely difficult. You know that things are bad when you don't have the energy to get to the bathroom so when the urge comes it is instant dread. I have one of those hospital bed potty chair right next to me and I wear pads - [Wheelchair walks up the mile](https://multipleexperiences.org/2019/10/01/wheelchair-walks-up-the-mile/) - I had a lovely day yesterday. My sister and brother in law visited with their foster girls who are so precious. I was so excited for them to meet my dogs and see my wide collection of humpties that I love dearly. My dogs were a hit, my humpties showed I was young at heart - [Beautiful despite weight](https://multipleexperiences.org/2019/09/30/beautiful-despite-weight/) - I am out of the house early today. Sitting at my primary doctor's office for my annual physical. Nothing exciting but I did bring up my ever nagging issue of weight. As expected I was up weight from the previous year. No matter what I do, I am always up weight. It has been extremely - [Yet another strange MS symptom](https://multipleexperiences.org/2019/09/28/yet-another-strange-ms-symptom/) - Ok another strange and embarrassing symptom of my MS occurs for no rhyme or reason and has to do with my breasts. Specially my nipples on those breast. I go through periods where they get and stay hard for days. Sometimes it could be to the point of painful. Erect nipples is not a comfortable - [I need the alone time physically and mentally](https://multipleexperiences.org/2019/09/27/i-need-the-alone-time-physically-and-mentally/) - It's beautiful out a cool 63 degrees and I still have to have my AC on. The only downside to my condo is it's angle. If the wind is blowing the wrong way this condo gets no air and can become hot with the morning sun. Today is that kind of day. There is no - [Game day at the condo](https://multipleexperiences.org/2019/09/26/game-day-at-the-condo/) - Yesterday I had my first game day with the other retired people in my condo. For some reason it ended up only being 5 of us. We played a card game called Mille Bornes. It was fun you try to travel a 1000 miles but people can give you stop cards or accidents and other - [Do you want to change your thoughts?](https://multipleexperiences.org/2019/09/25/do-you-want-to-change-your-thoughts/) - I got sleep last night, very much needed. I wish I could stop feeling so tired. I had a really nice day yesterday because my little sister was in from California and spent the afternoon with me. She's so beautiful inside and out and spending time with her just makes me so happy. I love - [How you perceive your world](https://multipleexperiences.org/2019/09/24/how-you-perceive-your-world/) - The phone rang at 2:00 am this morning. My phone announces the caller and when it said it said Mikayla, my daughter, my heart stopped. I couldn't reach my house phone from my bed but I had my cell near and quickly called her. A girl hysterically crying answered the phone, my daughter was not - [A week after Rituxan infusion](https://multipleexperiences.org/2019/09/23/a-week-after-rituxan-infusion/) - Good morning happy Monday. I thought I'd give you the rundown of how I feel a week later after my Rituxan infusion. I'm happy to say the allergic reaction is healing and I've had no more blisters or open sores. Very bizarre. I'm still on the antibiotic and I have two more days left. I'm - [Bike MS please support my brother](https://multipleexperiences.org/2019/09/21/bike-ms-please-support-my-brother/) - Please donate to a great cause. This is my step brother Howard who bikes for me. He bikes and I can't. I can barely walk. We need people like him out there raising awareness and funds to fight MS and find a cure. Please help him as he once again bikes for MS. 🧡🧡🧡🧡 Hi - [Thankful for Marshmallow and Zoey](https://multipleexperiences.org/2019/09/20/thankful-for-marshmallow-and-zoey/) - It is weeks like this I am so happy I have dogs. This was not my greatest week, coming off of my infusion Rituxan infusion complete, having the allergic reaction Allergic reaction to Rituxan and truthfully feeling slightly depressed and they just continued to bring a smile to my face daily. I love their unconditional - [A community in my condo](https://multipleexperiences.org/2019/09/19/a-community-in-my-condo/) - There was a sign on the elevator in my building Knowing I was going to be home all week I definitely planned to stop by. I really had no idea what it was about but I'm always up to meeting people in my condo. When I walked in I was the youngest person by about - [Allergic reaction to Rituxan](https://multipleexperiences.org/2019/09/18/allergic-reaction-to-rituxan/) - So I went to my doctor yesterday for the open sores on my breast. They are actually blisters that have popped and have pus in them. The fourth spot was still in the blister form. The doctor said it was a reaction to Rituxan. As we were sitting there talking, I realized this was the - [Blisters on breast](https://multipleexperiences.org/2019/09/17/blisters-on-breast/) - So I'm sitting at my doctor's office because those open sores on my breasts went from 3 to 4 as of this morning. Couldn't picture the 4th spot Ouch. I didn't even want to get out of bed today let alone sit at my doctor's office but I have to check it out. I did - [Rituxan infusion complete](https://multipleexperiences.org/2019/09/16/rituxan-infusion-complete-2/) - The nurse got there at 5:30pm so it was a long night. I knew she was coming late but once I had the day to do it in my head I couldn't change course. She offered I refused. Anyway other than having to be stuck twice for the IV, it was uneventful. However it was - [I swam a mile without proof](https://multipleexperiences.org/2019/09/14/i-swam-a-mile-without-proof/) - I finally did it. I counted and hit my goal of 35 laps which would equal 70 lengths and exactly 1 mile swam in my pool. HUGE difference than Tuesday when I barely made it 30 minutes swimming before my arms gave out. That day I couldn't even get out of the pool. Go figure. - [Scared for my Rituxan Infusion](https://multipleexperiences.org/2019/09/13/scared-for-my-rituxan-infusion/) - My big box from the pharmacy was delivered yesterday. In it was 250mg Solumedrol, 600mg of Rituxan, and a whole bunch of syringes and needles. I've done these infusion for years now. I've done Solumedrol infusion for even longer. This time opening the box made my stomach drop. I'm dreading this infusion. I've done it - [Day off for blog maintenance](https://multipleexperiences.org/2019/09/12/day-off-for-blog-maintenance/) - Today I put aside for blog back of the house maintenance. I haven't been paying much attention to this stuff since I usually do everything now through my Wordpress app. I certainly need to focus on this more often. Whoops, my bad. So I'm going to skip talking about my symptoms and fatigue today and - [Never forget 9/11/01](https://multipleexperiences.org/2019/09/11/never-forget-9-11-01/) - I just arrived at work. Shut my car off. As I did every morning I listened to Howard Stern on my drive to work. Nothing unusual as I got out of the car. I was early. Work started at 9 but I got in around 8:45. It was minutes after I walked in when my - [Dealing with MS with a smile](https://multipleexperiences.org/2019/09/10/dealing-with-ms-with-a-smile/) - I just got off the phone with my neurologist, we are going to stick with the Adderall for now. I mentally feel great physically I feel ehhh. The good thing about it is I'm chipper again because I'm not falling asleep feeling like I'm in a cloud. That's the good news. I don't feel tired - [Tough morning](https://multipleexperiences.org/2019/09/09/tough-morning/) - I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day - [Beautiful Saturday](https://multipleexperiences.org/2019/09/07/beautiful-saturday/) - Hello Saturday and a beautiful one at that. I have all my windows open to a quiet street. The bars by me are done for the summer season and it gets so peaceful here. Look at that beautiful water so calm. Understand I took this picture from inside my house on my comfy chair. If - [A Friday potluck](https://multipleexperiences.org/2019/09/06/a-friday-potluck/) - Ok where to start... I took my first dose of Adderall yesterday and I must say by the late afternoon I was feeling pretty upbeat. Today is day two and I honestly have no idea if I even took it. Right now I don't feel as awake as I did yesterday. I'm feeling wiped out - [Swimming in not quite laps](https://multipleexperiences.org/2019/09/05/swimming-in-not-quite-laps/) - I have to laugh at myself. I went in my pool yesterday but it was murky. They had put chemicals in it to clear it up. I waited 30 minutes outside the pool for all the levels to be alright but it was still murky. I went swimming anyway because I was tired and wanted - [Still out of spoons](https://multipleexperiences.org/2019/09/04/still-out-of-spoons/) - My dogs like candy corn. What a strange thing for them to eat!!! Both of them gobbled every piece I put in front of them. I ate candy corn for lunch and dinner, good diet. I had a very long day and didn't eat until after 5 o'clock. By then I just grabbed food. I - [Trip to the neurologist](https://multipleexperiences.org/2019/09/03/trip-to-the-neurologist/) - I am going to my neurologist today. I needed a form filled out by him that has to be within 30 days of my last appointment. Of course my last appointment was in the beginning of July so I had to come in again. Yet this probably isn't a bad thing because I can once - [Me and my wheelchair](https://multipleexperiences.org/2019/09/02/me-and-my-wheelchair/) - I made it!!! Another summer survived. I'm ready for my jeans and sweatshirts. Im ready to turn off the AC. I'm ready to open my balcony windows and let the crisp air in through the condo. I'm ready to snuggle under warm blankets. I did ok this summer mainly because of my van and wheelchair. - [Forks Over Knives Mango Ice Cream](https://multipleexperiences.org/2019/08/31/forks-over-knives-mango-ice-cream/) - I love mango and this is so simple it shouldn't even be considered a recipe. Such a good summer time dessert. Mango Ice Cream Ingredients • 4 medium mangos • 1 banana • ground cardamom Method • Line a baking sheet with a silicone mat. Spread mango and banana chunks onto mat. Cover and freeze - [Yesterday, today and tomorrow](https://multipleexperiences.org/2019/08/30/yesterday-today-and-tomorrow/) - I went out yesterday for the first time this week. I went to mahjong. I almost canceled and I'm so glad I didn't because as always it was so fun. I did have a tough day and at times I thought I was going to completely collapse over the table. I just couldn't hold myself - [Bike MS](https://multipleexperiences.org/2019/08/29/bike-ms/) - This is my step brother's 11 year biking for MS. He bikes in my name and for so many others that suffer from the disease. I received his email this morning and as always he fills my heart with love because of his fundraising efforts and the fact he does this in my name every - [Bed day 2](https://multipleexperiences.org/2019/08/28/bed-day-2/) - Since yesterday didn't quite work out as I wanted I'm trying again today. Got my fur babies close. I haven't worked out since Monday. Giving my body the break it needs. Hopefully I'll be able to sleep more and the phone won't ring all day like it did yesterday. This is all part of having - [Staying in bed](https://multipleexperiences.org/2019/08/27/staying-in-bed/) - Writing this from the comfort of my bed. I am hoping a day in bed recharged my batteries. I know it might not help but I am going to stay in bed anyway. Unfortunately I was woken up at 8am from my security booth with another aid appearing at my house. Made no sense and - [Not feeling good](https://multipleexperiences.org/2019/08/26/not-feeling-good/) - I'm just having a tough couple of days. I am just so tired and my body isn't recovering yet. I hate this feeling but I can't even complain. I haven't felt like this in a long, long time when my energy is drained for so many days in a row. It is a horrible feeling - [The energy tank is empty](https://multipleexperiences.org/2019/08/24/the-energy-tank-is-empty/) - I have nothing left this week. I'm just drained of all my energy. No spoons left, no reserve and no choice. We are picking up my daughter's new car this morning so I'm up, dressed and ready to go again. I am sure it will be at least an hour signing all the paperwork and - [My daughter’s dying car](https://multipleexperiences.org/2019/08/23/my-daughters-dying-car/) - My daughter is leaving to go back to school on Sunday. Her boyfriend is a mechanic and took her car for an oil change, tire rotation and to look at the transmission which has been giving her problems for a bit. Never really telling anyone else that the problem existed, after she got the car - [I love my condo](https://multipleexperiences.org/2019/08/22/i-love-my-condo/) - I love where I live. I'm sure I've said this 1000 times but I just have to repeat it again. I love everything about my condo. I love waking up with the sun shining into my room and standing up seeing the sun glistening off the water in the channel. I love seeing the boats. - [Swimming to music](https://multipleexperiences.org/2019/08/21/swimming-to-music/) - I was told about an underwater MP3 player I could wear while swimming by my friend Dix over at https://www.wheniswimfoundation.com/. Originally he told me about the Finis Duo which I bought but never used. I returned it for the sole reason it was a little pricey and I saw something that cost a lot less. - [Rituxan infusion in September](https://multipleexperiences.org/2019/08/20/rituxan-infusion-in-september/) - My next infusion is supposed to be in a few weeks for the full dosage of Rituxan. I called the infusion place that does the schedule for my medicine yesterday hoping to get a jump on things and avoid any issues. This time, for the first time, there shouldn't be any problems. I haven't had - [Happy Birthday Zoey](https://multipleexperiences.org/2019/08/19/happy-birthday-zoey/) - Also known as Zoeball, Zoe Zoe, Chunk Chunk, Tater Tot, Bug, Nugget, Snuggle Bug, Princess, Sweet Girl, Baby and that's just the first 3 years of nicknames. She has added so much love and joy to my home. Everyone loves Zoey because she has the sweetest disposition and the cutest face. You can't help but - [I’ve been committed to my meditation practice](https://multipleexperiences.org/2019/08/17/ive-been-committed-to-my-meditation-practice/) - I bought one of Oprah and Deepak’s 21 day meditation for myself a few weeks back. It was the shedding the weight one which focuses on shedding the burden of the emotional weight we carry emotionally, physically and spiritually. I loved it and have been meditating every morning. Today I completed day 20. Knowing I - [Are migraines contagious?](https://multipleexperiences.org/2019/08/16/are-migraines-contagious/) - My poor daughter is also plagued with migraines and she had a terrible one yesterday. She was supposed to cover someone at work but couldn't make it in. Her migraines are made worse by her cochlear implants. If she catches them in time and takes aspirin sometimes they could be avoided. She couldn't yesterday. When - [Fatigue is in all parts of the body](https://multipleexperiences.org/2019/08/15/fatigue-is-in-all-parts-of-the-body/) - Today is mahjong. I'm very excited I didn't play last week. I've been very focused in the gym working my core to help me with the forward and backward movements in the game. I can normally make it through 3 1/2 hours of play but I still have issues and fatigue by the end. It - [Gastroenterologist visit again](https://multipleexperiences.org/2019/08/14/gastroenterologist-visit-again/) - Back to the gastroenterologist this morning. Unfortunately the medicine Linzess in the current dosage is not doing the job. I'm on the middle dose of 145mg. He wanted to start me at the highest dose and I got nervous. My bad!!!! It seemed to work at first, I was having a bowel movement daily but - [Grateful for a good day](https://multipleexperiences.org/2019/08/13/grateful-for-a-good-day/) - Had a great morning, slept late. That is always a good thing. I've been tired. I'm always tired, that isn't anything new. I just needed to sleep. I went into bed at 9 was asleep by 9:30 and slept until after 9AM. That is a good night. I went swimming right after I got up - [A busy weekend to start the week](https://multipleexperiences.org/2019/08/12/a-busy-weekend-to-start-the-week/) - Busy, busy, busy. A fun but busy weekend indeed which is slightly unusual for me. Friday, I was able to babysit, more like keep company, with a little girl who is as sweet as they come and like a niece to me. We had a great day and did so much. We went in the - [Theme to Mahogany by Diana Ross](https://multipleexperiences.org/2019/08/10/theme-to-mahogany-by-diana-ross/) - I was watching an episode of Divorce on HBO when Sarah Jessica Parker's character started singing the Theme to Mahogany. This song reminds me of my dad. Sitting by the piano listening to him play on a Sunday afternoon. This song and Windmills of Your Mind were my two favorite songs to hear. I danced - [Thank you for my Van](https://multipleexperiences.org/2019/08/09/thank-you-for-my-van/) - I can't imagine my life without this van. It was time to be in a wheelchair and I didn't have the means to accomplish this. It took a long time and help from so many people. I still can't thank them enough. I have a life again and I can go places without everyone worrying; - [Twitching the night away](https://multipleexperiences.org/2019/08/07/5188/) - Old Mc Jamie had a twitch eieio with a twitch twitch here and a twitch twitch there here a twitch there a twitch everywhere a twitch twitch Old Mc Jamie has a twitch eieio. It made for a rough night of sleep. It was one of those nights where my medicine just didn't help through - [So many needles](https://multipleexperiences.org/2019/08/06/so-many-needles/) - I have to do bloodwork this morning. You think I'd be a lot less needle phobic with the amount of shots I've received over the years but I'm really not. I've from the earliest medicine for MS. I've been on Avonex, Betaseron, Rebif and even Copaxone. These are all medicines that required weekly or even - [Exercising](https://multipleexperiences.org/2019/08/05/exercising/) - And we're back, it's Monday again, doesn't it seem to happen so fast? I just find the weekends go so quick and I don't even work anymore. I'm not really complaining because each day is similar for me but on the weekends I'm kind of my own which I generally come to appreciate. I won't - [MS Focus Magazine](https://multipleexperiences.org/2019/08/03/ms-focus-magazine/) - My five minutes of fame. 😊. My little write up about how I've benefited from the MS Foundation https://msfocus.org/ came out this month. My writing was split on two pages so it was difficult to picture for you to read but I did my best. Pretty neat. First time my words and certainly my picture - [Forks Over Knives Mexican Chocolate Brownies](https://multipleexperiences.org/2019/08/02/forks-over-knives-mexican-chocolate-brownies/) - Haven't given a recipe in a while thought I'd share something yummy. Mexican Chocolate Brownies Ingredients • ¾ cup no-salt-added black beans • ¾ cup unsweetened applesauce • 3 oz unsweetened chocolate • ½ cup pure cane sugar • ¼ cup unsweetened cocoa powder • 2 tsp pure vanilla extract • ½ cup white whole - [MRI no change but I’m worse. The pool theory.](https://multipleexperiences.org/2019/08/01/mri-no-change-but-im-worse-the-pool-theory/) - You might think that's great you had no active lesions on your MRI, no new lesions either. Yes, it is but that is a Relapsing Remitting MS signifier that my main MS drug, Rituxan, is suppose to prevent. It is working which is definitely great. The reason I'm not celebrating is because this MRI result - [The end of July](https://multipleexperiences.org/2019/07/31/the-end-of-july/) - July is ending today. I made it through the month. Only one more long month of summer to go and I should be good. It's just these two months that are difficult for me the other 10 I can get through. However I'm still jealous of my little sister in San Francisco with that perfect - [Today is a good day](https://multipleexperiences.org/2019/07/30/today-is-a-good-day/) - I did something new. I bought one of Oprah and Deepak older 21 day meditations. I bought shedding the weight; mind, body and spirit. They say when you are holding onto weight you are usually holding on to something else. I'm trying to balance things again. I did break my own pact and stepped on - [Late start](https://multipleexperiences.org/2019/07/29/late-start/) - Was in bed until 11am today. Woke up with a nasty migraine. I took my migraine medicine first thing this morning and got right back under the covers. My aid was so helpful first giving me a massage and then taking care of the dogs for me. Although after they ate they came back to - [MRI today](https://multipleexperiences.org/2019/07/27/mri-today/) - A great way to spend the day. I have an MRI of the head and cervical spine with and without contrast. This is a long test and I have to be there 45 minutes BEFORE my appointment on top of the long test. That is for them to put in a line making it easier - [FOMO](https://multipleexperiences.org/2019/07/26/fomo/) - Fear of Missing Out (FOMO) this was a good topic of conversation last night at dinner with my good friend Sharon. Ten years ago we'd push ourselves to go out ever night we could for that fear of missing out. Nothing was worse than hearing the next day about an amazing night that you weren't - [A fun day](https://multipleexperiences.org/2019/07/25/a-fun-day/) - Yesterday was a fun day. My mahjong friends came by me and we played mahjong all afternoon. My mom came later to teach us how to form a hand faster. It was just a nice day. We played in my condo meeting room. It is this huge room with a kitchen, one large bookshelf filled - [Things that go twitch in the night](https://multipleexperiences.org/2019/07/24/things-that-go-twitch-in-the-night/) - I woke this morning with my twitches. It started up by my pelvic/hip area on the left side getting this feeling of an electric pulse. That pulse then traveled down my leg causing instant paralysis and flexing all the way to my toe. Then it stopped and released until the next pulse hit. They came - [Weird MS symptoms are my normal](https://multipleexperiences.org/2019/07/23/weird-ms-symptoms-are-my-normal/) - Do you get those weird symptoms from MS? I've blogged about them before but sometimes they come out of nowhere and they are so annoying. Today it is like my bra is too tight and it's cutting into the left side under my breast. Wouldn't be so wacky if it didn't start while I was - [Goodbye Scale](https://multipleexperiences.org/2019/07/22/goodbye-scale-2/) - Today is the first day I'm going out in a week. Between my stomach issues and the excessive heat I've been home bound. I can't even complain about it because I felt terrible for a good portion of those days. I was happy to have my family support and the unconditional love of my dogs. - [Mavenclad for multiple sclerosis](https://multipleexperiences.org/2019/07/20/mavenclad-for-multiple-sclerosis/) - I had a visual appointment with my MS specialist yesterday. She is the one who prescribes and advises on my main MS drug therapy. Currently I am on Rituxan. The question of my disability getting worse really isn't a question, it is a fact. We've discussed other drugs but unfortunately the one she was waiting - [Finally relief](https://multipleexperiences.org/2019/07/19/finally-relief/) - So after my gastroenterologist visit I was given stuff to do to "clean me out" Gastroenterologist visit. This is the same kind of prep for a colonoscopy. I had to take magnesium citrate and I was so nervous about having an accident. I took it and waited, and waited, and waited. This is supposed to - [I love my mom](https://multipleexperiences.org/2019/07/18/i-love-my-mom/) - I just hung the phone up with my mom. It's 9:39 in the morning. She was on her way to a clients house to teach a bridge lesson with my stepdad. Whenever my mom is in her car alone going just about anywhere beyond a five minute distance she calls me to keep her company. - [My handicap accessible bathroom](https://multipleexperiences.org/2019/07/17/my-handicap-accessible-bathroom/) - I had to get work done in my condo. I needed to make my bathroom handicap accessible. It is inside. I have a grab bar and a stall shower but the doorway was so small I couldn't get my walker in let alone my wheelchair. It was on the list of things to do to - [21 day meditation experience with Oprah and Deepak-miraculous relationships](https://multipleexperiences.org/2019/07/16/5142/) - Sorry should have sent this yesterday but there is another free 21 day meditation experience with Oprah and Deepak. This is the first day email and link. Today marks the first day of Miraculous Relationships! Remember that each meditation remains available online for a total of five days – so if you miss a day, - [Provigil denied](https://multipleexperiences.org/2019/07/13/provigil-denied/) - Provigil or it's generic Modafinil reduces extreme sleepiness due to narcolepsy and other sleep disorders, such as periods of stopped breathing during sleep (obstructive sleep apnea). It is also used to help you stay awake during work hours if you have a work schedule that keeps you from having a normal sleeproutine (shift work sleep disorder) https://www.webmd.com/drugs/2/drug-16964/provigil-oral/details I've taken this drug for over - [Family comes in all forms](https://multipleexperiences.org/2019/07/12/family-comes-in-all-forms/) - Sometimes some of the closest people to you might not be related to you. Many people have friends in this position or people they met when they were very young but never lost contact with. I'm fortunate to have that with a few people myself. I have that with my ex boyfriend's family and with - [The weight of MSi](https://multipleexperiences.org/2019/07/11/the-weight-of-msi/) - I feel a little down since my neurologist appointment the other day. I haven't shaken it off. I'm not down about having MS, I'm down about MS causing me to gain weight. Between the medicine, my age and lack of physical ability I can't control my weight and I am very sad. I spent my - [Hidden profile on plenty of fish what I learned](https://multipleexperiences.org/2019/07/10/hidden-profile-on-plenty-of-fish-what-i-learned/) - I made the decision to hide my profile for the few summer months. I get too overheated being out and about in the summer heat. It just isn't the right time for me. I realized a few things in the short time I was active both about myself and others. There are people out there - [Neurologist appointment complete](https://multipleexperiences.org/2019/07/09/neurologist-appointment-complete/) - I didn't cry. I didn't leave happy but I didn't cry. I don't leave with good news anymore so it is hard to be upbeat. I had three things on my list to discuss: Bathroom issue Fatigue Weight All discussed in my blog yesterday Neurologist check in tomorrow. This was the outcome. Bathroom. I was - [Neurologist check in tomorrow](https://multipleexperiences.org/2019/07/08/neurologist-check-in-tomorrow/) - I have one of my neurologist appointments tomorrow. I have two neurologists. One is the specialist in NYC at one of the big hospitals. She prescribes my main MS drug, currently Rituxan, plus recommends anything in clinical trials like biotin or statins. She's a great neurologist but I don't consider her my main neurologist. That - [Wrong season to try to date](https://multipleexperiences.org/2019/07/06/wrong-season-to-try-to-date/) - Summer is a great season. It's many people's favorite. Being outside at the beach, on a boat, or at a pool basking under the sun's warmth. However when you have multiple sclerosis, or any neurological disease, chances are it is not. As that temperature rises outside all of the MS symptoms act up making it - [Fireworks 2019](https://multipleexperiences.org/2019/07/05/5126/) - So how were the fireworks? How did your dogs do? I gave my dogs treats with cbd oil in them from my vet. Not sure if it helped but they liked the cookie itself. My Zoey was fine it was Marshy, he was howling. I sat with both of them on my balcony while I - [Multiple Experiences was selected as one of Feedspot Top 50 Multiple Sclerosis Blogs](https://multipleexperiences.org/2019/07/03/multiple-experiences-was-selected-as-one-of-the-top-50-multiple-sclerosis-blogs/) - I have to share my exciting news: I would like to personally congratulate you as your blog Multiple Experiences has been selected by our panelist as one of the Top 50 Multiple Sclerosis Blogs on the web. https://blog.feedspot.com/multiple_sclerosis_blogs/ This was a big thing for me since so many of the blogs that I read and follow or on this - [Hot Flash Symptoms and Multiple Sclerosis](https://multipleexperiences.org/2019/07/02/hot-flash-symptoms-and-multiple-sclerosis/) - I had physical therapy in the morning. I didn't do everyone of my exercises but I did all of my hard ones. My therapist and I cut it short because I actually started overheating. My cheeks turn red is my first sign. I start becoming warm even though I may or may not be doing - [What I’m looking for on Plenty of Fish](https://multipleexperiences.org/2019/07/01/what-im-looking-for-on-plenty-of-fish/) - So far nothing else is happening on plenty of fish. I must say that I was completely turned off by my first encounter First POF date that I certainly haven't put much effort into the site. I've exchanged some emails with a few men but nothing to write about in a blog post. One guy - [Chicken and Grapes for Shabbat dinner](https://multipleexperiences.org/2019/06/29/chicken-and-grapes-for-shabbat-dinner/) - In honor of my daughter's trip to Israel, I made my first Shabbat dinner last night. My guest list was my mom, stepdad, daughter and her boyfriend. In all honesty it is a tradition I'd like to start to have my daughter and her boyfriend for a night. This way we can all sit down - [Falling again all week](https://multipleexperiences.org/2019/06/28/falling-again-all-week/) - I've been really good lately. Especially since I switched to my wheelchair outside my condo. I went from falling almost daily to a couple of times in a month. That's a big difference. It goes to show you how much the walking was really causing me to just exhausted myself. Yes I needed the van - [Fatigue is never easy](https://multipleexperiences.org/2019/06/27/fatigue-is-never-easy/) - The heat, the heat is here and it is not making life an easier. I played mahjong and I could barely hold myself upright by the end of the game and I was in AC. The heat finds it way into your bones and still manages to fatigue you regardless of where you are. I - [I’m a MS Warrior](https://multipleexperiences.org/2019/06/26/im-a-ms-warrior/) - It took me a long time to recover yesterday after swimming Back in the pool. I knew it would but my recovery time keeps getting longer and longer. I'm not looking forward to the day I don't recover because I'm not planning on ever stopping exercising. I might have had to revise it drastically but - [Back in the pool](https://multipleexperiences.org/2019/06/25/back-in-the-pool/) - I went swimming this morning for the first time in months. It isn't that I don't love swimming, because I do. It is difficult to shower and change and do my hair etc. It takes a lot of energy to do all those things and I deplete most of my energy in the pool. Today - [First POF date](https://multipleexperiences.org/2019/06/24/first-pof-date/) - Ok date one complete. There was one thing that this guy did to set up the correct mind space for me which was let's meet as friends and go from there. I can always use more friends. It was a very last minute thing to meet up. He lives in my town a few blocks - [MS Foundation Transportation Assistance Grant](https://multipleexperiences.org/2019/06/22/ms-foundation-transportation-assistance-grant/) - I saw this and had to share it with my readers. The is the MS Foundation https://msfocus.org/ which is located in Florida. I've used them for many things from information to grants. They are a wonderful resource to people with MS. Transportation Assistance Grant https://msfocus.org/Get-Help/MSF-Programs-Grants/Transportation-Assistance-Grant The Transportation Assistance Grant program was established to help members - [A family weekend](https://multipleexperiences.org/2019/06/21/a-family-weekend/) - I had the best nights sleep I had in a long time. I woke up once at 1am to use the bathroom and then slept right on through until 7:22 when the bathroom called again. That is a long stretch of time for me. I needed that!!! I could still sleep more truthfully but it - [I joined plenty of fish](https://multipleexperiences.org/2019/06/20/i-joined-plenty-of-fish/) - I signed up again. I honestly have no idea how this will work. Do I bring my aid on a coffee date? I mean really. I am not sure what made me join again. Once again it didn't let me at first but then I was able to under one of my other email accounts. - [Videos from Israel](https://multipleexperiences.org/2019/06/19/videos-from-israel/) - My daughter watched the sunrise this morning, then rode a camel and went in the Dead Sea. There isn't one thing on that list that I don't find amazing. I was put on a horse once and cried until they took me off from sheer terror and she rode a camel. That's freaking awesome!!!! - [Spasticity and headaches](https://multipleexperiences.org/2019/06/18/spasticity-and-headaches/) - My headache has finally broke. I had it for three days this time. I thank modern medicine for keeping it quiet and letting me function. This time without a doubt it was caused by my spasticity. I felt the all too familiar feeling hit me on Saturday. I woke up and my entire back was - [A good way to start a week](https://multipleexperiences.org/2019/06/17/a-good-way-to-start-a-week/) - Today is a good day. My dad and stepmom drove up from Florida this weekend. This is the first time my dad has been in NY in years. This will be the first time they are both seeing my condo but more importantly it is the first time I've seen my dad in a year - [Sign up to get Spirit Junkie Masterclass Digital with Gabby Bernstein](https://multipleexperiences.org/2019/06/15/sign-up-to-get-spirit-junkie-masterclass-digital-with-gabby-bernstein/) - I’m so excited to hear how many of you loved my girl Gabby Bernstein’s free video training series! Now it’s time for the big reveal... In this final video, Gabby shares a BIG invitation. Her invite is for people who want to inspire others by doing what inspires them. People who want to gain the - [Intermittent fasting 5:2](https://multipleexperiences.org/2019/06/14/intermittent-fasting-52-2/) - I didn't want to write this yet but it is a success story that I need to share. I've been doing intermittent fasting for over a year. I was doing a 16:8 fast. This is where you fast for 16 hours and eat during a window of 8 hours. For me that window of eating - [Gabby Bernstein’s last free training video of the series](https://multipleexperiences.org/2019/06/13/gabby-bernsteins-last-free-training-video-of-the-series/) - The last free training video of the series Right out of college Gabby Bernstein started her own PR business. When she transitioned her career to become a spiritual teacher, her marketing chops really came in handy! She got the attention of magazine editors, TV producers and big-time bloggers. She built an email list and a - [My daughter is going to Israel](https://multipleexperiences.org/2019/06/12/my-daughter-is-going-to-israel/) - It was just before 8am on my clock and I couldn't understand why my daughter didn't come in to say goodbye yet. Her friend was picking her up by 8 to go to the airport. She and her two friends are going to Israel with Birthright https://www.birthrightisrael.com/about_us. They are supposed to be at the airport - [The Boston Market down the block](https://multipleexperiences.org/2019/06/11/the-boston-market-down-the-block/) - Right down the road from where I live now is a Boston Market. This restaurant has significant markers to the history of my multiple sclerosis. It was this restaurant that I was promoted to general manager. It was here when I was on the phone with my mother when she asked me how my eyes - [Another Awesome Free Video from Gabby Bernstein](https://multipleexperiences.org/2019/06/10/another-awesome-free-video-from-gabby-bernstein/) - Over the years I’ve witnessed so many people gain the confidence to get out there, be heard and help others. People from all walks of life hear the call to take action. Teachers, lawyers, writers and many more people who want to bring spiritual principles into their lives and work. But as soon as we - [A day with sisters](https://multipleexperiences.org/2019/06/08/a-day-with-sisters/) - My little sister is in from California today. Yippee. She has both my niece and nephew with her and I'm really excited to see them. It is hard having a sibling that is literally across the country. I don't get to see her as often as I'd like. This is the one who is the - [Backdoor chute muscles missing signals](https://multipleexperiences.org/2019/06/07/backdoor-chute-muscles-missing-signals/) - I haven't blogged about it but I've had serious back door chute issues this week. It seems the door is open and people come through unexpected or it stays closed and I can't get them out. I went weeks with it open and now I went the complete opposite. My stomach was so bloated causing - [Bubba my van had a flat](https://multipleexperiences.org/2019/06/06/bubba-my-van-had-a-flat/) - I want to thank my neighbors in my condo. I had a flat on my back rear passenger side tire. Someone noticed it and called the security booth for them to contact me. Since it was already dark I didn't go downstairs to look at it but I asked my daughter to check it out - [Got my hair straightened](https://multipleexperiences.org/2019/06/05/got-my-hair-straightened/) - Yesterday was a long day but a needed day for my hair to get through the summer easily. I get a product called Magic Sleek which is a permanent treatment that doesn't necessarily keep my hair stick straight but keeps the frizzy out. Plus it makes it super easy to dry and style. I got - [Gabby Bernstein free videos](https://multipleexperiences.org/2019/06/04/5065/) - If you follow my blog you know I follow a spiritual path. A path that started when I picked up a book from Gabby Bernstein. I've been so fortunate that not only have I read everything by Gabby, I've been able to be a part of her Spirit Junkie Masterclass both 1 and 2. I've - [Happy 20th Birthday to my beautiful daughter](https://multipleexperiences.org/2019/06/03/happy-20th-birthday-to-my-beautiful-daughter/) - Today is the easiest blog I can write because I get to wish my daughter a happy 20th birthday. Anytime I'm writing about my daughter it is easy because she is an amazing young woman. She is beautiful and sweet, funny and goofy, smart and ditzy, kind and caring, loyal and loving but most of - [Working out with MS](https://multipleexperiences.org/2019/06/01/working-out-with-ms/) - Overheated and under slept. Not a good combo to wake up with. I shut my AC off last night because I was cold. Of course it was ridiculously humid when I got out of bed. I had hours to turn it back on. I was up between the hours of 4-6AM and the time I - [My beautiful condo](https://multipleexperiences.org/2019/05/31/my-beautiful-condo/) - I was sitting here with my blog opened trying to decide what to write when both of my dogs jumped on my lap. This is where they usually are but sometimes my Marshmallow gazes out the window in the AM. I spent twenty minutes giving my fur babies puppy love and gazing myself out of - [Fatigue and multiple sclerosis](https://multipleexperiences.org/2019/05/30/fatigue-and-multiple-sclerosis/) - I've been staying home a little more lately because I haven't been feeling great and the weather. I'm sleeping a lot more and even when I get out of bed I'm forcing myself up more so then wanting to get up. It is a horrible feeling to be so tired after you've slept for 10 - [Bowel and bladder problems and MS](https://multipleexperiences.org/2019/05/29/5046/) - I'm always preaching about adapting and I had to make another adaptation for myself. I bought a commode to leave by me to avoid the "accidents". Too many times I'm just steps sea and it happens. I've had the order for the commode since I was in the hospital last year with cellulitis. I kept - [](https://multipleexperiences.org/2019/05/28/5044/) - A quick short note today. Had occupational therapy this morning kicked my ass. Such a difference from last week of what I was able to do. I can't be too upset because I know this routine. Some days are better than others and today wasn't a great day. It is getting hot outside and the - [Monday Memorial Day](https://multipleexperiences.org/2019/05/27/monday-memorial-day/) - I might feel a little more charged and ready to tackle another week of activities. I think I was just operating without enough data off that maybe my batteries weren't getting recharged. I was able to get my workouts done each morning and then relax all afternoon. I just love watching the boats and jet - [Sometimes you need to just rest](https://multipleexperiences.org/2019/05/25/sometimes-you-need-to-just-rest/) - I've been run down lately. The words "I'm tired" have once again been part of my everyday response to "how are you". I'm not sure when I became so tired again but I know I've started canceling plans because of how I feel. A beautiful weekend and I'm inside with all my windows open and - [Four Steps](https://multipleexperiences.org/2019/05/23/four-steps/) - It is four steps from my bed to my bathroom. I always had this goal to be able to make it to my bathroom unaided. To get up and safely walk to the bathroom. A few years ago I could, why couldn't I do it again? I have a progressive disease, that's why. I could - [Not feeling well today](https://multipleexperiences.org/2019/05/22/not-feeling-well-today/) - I sneezed all day yesterday. I sneezed so much I asked people to stop saying "bless you". I couldn't take hearing it anymore. I think I used a half a box of family size tissues. I felt awful by the end of the night. I finally took my pure Oregano oil and On Guard oils - [How to make sour pickles](https://multipleexperiences.org/2019/05/21/how-to-make-sour-pickles/) - One of my favorite things is sour pickles. Love them!!! I can eat a jar within two days time. Except these things are getting so expensive. It can change cost $5.59 for a jar of pickles. That's a lot of money when cucumbers aren't very expensive. So I googled how to make sour pickles. https://youtu.be/fgiopZXIoLY. - [I’m getting hot](https://multipleexperiences.org/2019/05/20/im-getting-hot/) - It's getting hot outside. The summer is coming and my hibernation will begin. Most people can't wait for the nice weather and the glorious heat of the summer, I'm not that person. I have multiple sclerosis and I am heat intolerant. Heat or high humidity can make many people with multiple sclerosis (MS) experience a temporary worsening - [An unexpected package](https://multipleexperiences.org/2019/05/18/an-unexpected-package/) - I get a lot of packages because I order everything online. Yet, I'm pretty aware of what is coming and when. My security booth gets all packages for the building and sends out an email when a package is delivered. Usually the guard will give any packages to my aid when she comes in otherwise - [I’m not mad at my multiple sclerosis anymore](https://multipleexperiences.org/2019/05/17/im-not-mad-at-my-multiple-sclerosis-anymore/) - I spent many years in denial. I would pretend it was all good until I had a relapse, well at least that's how I appeared to the outside world. Those closest to me knew me better. They were witnesses to the tears from the shots or those horrible flu-like symptoms I suffered for the first - [MS article for MS Focus Magazine](https://multipleexperiences.org/2019/05/16/ms-article-for-ms-focus-magazine/) - I was asked if I'd write a paragraph or two about contacting the MS Foundation for help with purchasing my handicap van. I jumped at the chance because they have helped me a few times over the years. They are another amazing resource to those of us with MS https://msfocus.org/. This is my rough draft - [My baby girl is home](https://multipleexperiences.org/2019/05/15/my-baby-girl-is-home/) - I'm so happy my girl is home. Second year of college complete and first year away from home. Academically not the greatest year but Albany University is a hard school and she tries. Socially a great year and I see such a difference in this girl. I'm so proud of her. She is turning 20 - [Forks Over Knives Potato Pancakes](https://multipleexperiences.org/2019/05/14/forks-over-knives-potato-pancakes/) - Another vegetable recipe: yummy Potato Pancakes Ingredients 2 russet potatoes 1 large zucchini ½ yellow onion ½ cup oat flour 1 tsp baking powder ½ tsp black pepper Method Preheat oven to 425 degrees. Cover two sheet pans with parchment paper. Spread half of the grated vegetables on a clean kitchen towel, then roll and - [My handicap van, not just for me](https://multipleexperiences.org/2019/05/13/my-handicap-van-not-just-for-me/) - I hope everyone had a lovely weekend. I wasn't able to share Mother's Day with my daughter but I was able to share the day with my mom and stepdad. The food was fair but the company was great. We were seated at this huge table for three people and we all moved our chairs - [Boats on the water](https://multipleexperiences.org/2019/05/11/boats-on-the-water/) - It isn't even that nice out but they are starting to come out. By June this whole area is filled with boats. I love it. I watch them all day. I have my windows open and there is a cool breeze coming in. I just finished doing my Zumba workout and all is just good. - [Happy Mother’s Day to my mom](https://multipleexperiences.org/2019/05/10/happy-mothers-day-to-my-mom/) - I'm happy to put this week to an end. It was a rough one for me This is not my week. My stomach is still off but I'm happy to report no accidents for one day. A small miracle. It is like an early Mother's Day present for me. My daughter won't be home from - [This is not my week](https://multipleexperiences.org/2019/05/09/this-is-not-my-week/) - I had another accident yesterday as I was sleeping. I was sleeping, how horrible is that? I was in the shower cleaning myself at 12pm. WTF????? This has been a brutal MS week for me. Between being stuck on the floor A honest look at an MS bad day and accidents this has been an - [For my safety with multiple sclerosis](https://multipleexperiences.org/2019/05/08/for-my-safety-with-multiple-sclerosis/) - I have many things in place that keep me safe from falls on a daily basis and I thought today I'd list each one: Hooveround MPV5 this is my everyday motorized wheelchair that I use all the time outside my condo and sometimes in my condo. Plus it is used always with my handicap vehicle. - [Why I talk about the embarrassing MS symptoms](https://multipleexperiences.org/2019/05/07/why-i-talk-about-the-embarrassing-ms-symptoms/) - This is in regards to a number of my blog posts like A honest look at an MS bad day orBackdoor chute suggestion worked. I talk about the embarrassing symptoms that I have that it hopefully helps someone else to feel less embarrassed. It is another part of my disease as out of my control - [A honest look at an MS bad day](https://multipleexperiences.org/2019/05/06/a-honest-look-at-an-ms-bad-day/) - I was fatigued yesterday doing my normal routine in the morning which involves cleaning up after my dogs, feeding them and morning grooming for me. I had a goal to workout. I knew I should have waited a bit since i was already fatigued but I wanted to get it over with. On top of - [Thankful to my Aid](https://multipleexperiences.org/2019/05/04/thankful-to-my-aid/) - It's Saturday which means I don't have my aid. I love my aid, I truly do. I'm so grateful for everything she does but I look forward to my weekends and my alone time. Is that bad? It is nice to get out of bed whenever I want and get dressed whenever I want. Sometimes - [Keeping my Multiple Sclerosis body strong](https://multipleexperiences.org/2019/05/03/keeping-my-multiple-sclerosis-body-strong/) - I went into the gym in my building this week. It isn't a large gym but they have more than enough to get a good workout. I have been trying to do some weight lifting exercises in my condo over the weekend. The problem is I'm exhausting myself and my arms and I'm alone. It - [Stomach issues cancelled my day](https://multipleexperiences.org/2019/05/02/stomach-issues-cancelled-my-day/) - My plans for today got ruined thanks to stomach issues. Since I can't always control the backend chute I couldn't risk having an accident outside my home. I was supposed to have mahjong today and I'm so bummed I had to cancel. I love playing and look forward to it each week. This would have - [Multiple sclerosis relapses and disease modified therapies](https://multipleexperiences.org/2019/05/01/multiple-sclerosis-relapses-and-disease-modified-therapies/) - I was talking this morning to my step sister about MS attacks or relapses if you choose. We were talking about someone undiagnosed for years therefore not on any MS disease modification medicine. I told her how lucky I was that I was quickly diagnosed but more so that way back then there was ANY - [Multiple Sclerosis no rhyme or reason](https://multipleexperiences.org/2019/04/30/multiple-sclerosis-no-rhyme-or-reason/) - I say this all the time, you can't plan for things because you just don't know. What doesn't cause problems one day may be a gigantic obstacle the next day. One day you feel fine the next you can't get out of bed. People around me always say it's the weather or may say maybe - [The chiropractor who tried to diagnose me](https://multipleexperiences.org/2019/04/29/the-chiropractor-who-tried-to-diagnose-me/) - I forget this story because I had a major attack and was diagnosed in a weeks time that the very first people I saw were like quick blips. I was reminded of this story when someone recommended me to see a chiropractor. Understand, this is MY experience and I am not knocking the whole world - [Trying to stop gabapentin, lesson learned](https://multipleexperiences.org/2019/04/27/trying-to-stop-gabapentin-lesson-learned/) - Gabapentin is an anti-epileptic used to control some types of seizures in epilepsy. It is used in multiple sclerosis to control dysesthesias (pain caused by MS lesions) and the pain caused by spasticity. (As per the National Multiple Sclerosis Society)I've been taking this drug for years. I've had it in a wide range of dosages - [Lemon & Garlic Wild Rice Soup from Simplyquinoa.com](https://multipleexperiences.org/2019/04/26/lemon-garlic-wild-rice-soup-from-simplyquinoa-com/) - This is another great vegan soup recipe I found at https://www.simplyquinoa.com/lemon-garlic-wild-rice-soup/. Simply Quinoa is an amazing website created to empower others into a healthy lifestyle. I could spend hours there looking at recipes and articles. Check it out. https://www.simplyquinoa.com/ I changed the grain in this soup to a more healthy grain. I used wheat berry. - [My 2 favorite foods from Trader Joe’s](https://multipleexperiences.org/2019/04/25/my-2-favorite-foods-from-trader-joes/) - #1 Trader Joe's Horseradish Hummus This is only 1 point on weight watchers per serving. No sugar added. I love this with baby carrots. It is a really great low calorie snack The horseradish gives it a little kick without being spicy. #2 Trader Joe's Chunky Spicy Guacamole Autentieo Another 1 point per serving weight - [My ugly toenail fungus](https://multipleexperiences.org/2019/04/24/my-ugly-toenail-fungus/) - A few years ago I got a pedicure, as the warmer weather always dictates we should. Except this year I caught a nail fungus on my foot. It started out on one toe, on one nail but didn't stay that way for long. I saw my regular doctor about it and he gave me some - [The morning stillness](https://multipleexperiences.org/2019/04/23/the-morning-stillness/) - There isn't a wind blowing outside which makes the water completely still. This is one of my favorite views. I could easily capture this in a photo because the water isn't moving in a picture. Now imagine that in person, just complete stillness. There isn't a boat, a ripple or a current disturbing the top - [Intermittent fasting 5:2](https://multipleexperiences.org/2019/04/22/intermittent-fasting-52/) - I've been doing intermittent fasting at a 16:8 schedule for over a year now. What does that mean? It means I eat between in an 8 hour time frame and fast for a 16 hour time frame. For me I ate between the hours of 11-7. The rest of the time I ate nothing and - [Zoey and Marshy’s day](https://multipleexperiences.org/2019/04/18/zoey-and-marshys-day/) - Today is an exciting day for my dogs, Zoey will explain because Marshmallow is getting too old for these shenanigans: Marshy and I woke up in our normal fashion with puppy love from mommy. This includes a whole lot of petting and belly rubbing before even getting out of bed. The only reason to get - [Nonsense expressions we say](https://multipleexperiences.org/2019/04/17/nonsense-expressions-we-say/) - I was watching Sweet Home Alabama the other day. It is one of my favorite romantic comedies. It came to the part where he says "you've got to be shitting me" to which she replies "I've never understood that expression but no I'm not shitting you". I never understood that expression either. It got me - [I choose to see my weight differently](https://multipleexperiences.org/2019/04/16/i-choose-to-see-my-weight-differently/) - I had another week where I gained weight on weight watchers for no reason. I was very upset and angry and so I cheated. A lovely cycle. Feeling even worse now I started on a dark path of negative thoughts. I started to google the various surgeries that are out there for overweight people. I - [Forks Over Knives Perfect Vegan Carrot Cake](https://multipleexperiences.org/2019/04/15/forks-over-knives-perfect-vegan-carrot-cake/) - Morning everyone I am sitting in bed watching gold rush on the discovery channel with my dogs. I'm haven't given you a recipe in a while so I figured today would be a good day. Have a great week. Perfect Vegan Carrot Cake Ingredients 1½ cups plant-based milk 4½ oz whole dates ¾ cup raisins - [When the back door garbage chute isn’t working](https://multipleexperiences.org/2019/04/13/when-the-back-door-garbage-chute-isnt-working/) - I've been having such problems again going to the bathroom. This is an issue I've struggled with for years but continues to to get worse. Every time I think I found something that works it eventually stops working. My main problem is twofold. I can't push and I can't hold. Meaning I can't get it - [My first van oops](https://multipleexperiences.org/2019/04/12/my-first-van-oops/) - So I was at my hairdresser yesterday, an appointment I never miss. I was alone with my van and wasn't the least bit concerned. I knew I needed my walker not my scooter to go in so my aid and I had that in my car before I went. I was even prepared and got - [Exhaustion and fatigue setting in](https://multipleexperiences.org/2019/04/11/exhaustion-and-fatigue-setting-in/) - I could have spent the day in bed. That's the one thing two dogs and a nursing aid that comes early in the morning prevents. Not that my aid would mind or wouldn't help me but my dogs would drive me crazy running between her and me. I can't shake the exhaustion in the morning - [Random fun](https://multipleexperiences.org/2019/04/10/random-fun/) - Yesterday I was looking at a past order on my amazon account. I stepped away for a second. When I came back my dog jumped on the chair and I see thank you for your order. She one clicked more pet pee pads for herself for my room. 😂. Glad I was looking at that - [Weather change changes MS symptom](https://multipleexperiences.org/2019/04/09/weather-change-changes-ms-symptom/) - As the weather starts to get warmer I start to get more sluggish. It's beautiful outside and I'm ready for a nap. Yesterday the temperature hit over 60 degrees for the first time, a gorgeous weather day but after physical therapy I was thrilled to be home. I was exhausted. Physical therapy was difficult. My - [A beautiful day in the neighborhood](https://multipleexperiences.org/2019/04/08/a-beautiful-day-in-the-neighborhood/) - The nice weather is starting on the water by my home. I heard a few motorcycles coming down the street this weekend always the first sign of the good weather. Now a few boats are spotted coming down the channel into the ocean. Soon the block next to mine will be hopping with music coming - [Smoking](https://multipleexperiences.org/2019/04/06/smoking/) - Do you smoke? I did for a long time and quit a few times. I was a funny smoker. I could smoke a pack a day and then go the next day not smoking one and be fine. Other than my first apartment I didn't allow smoking in my house even though I was a - [Accepting multiple sclerosis](https://multipleexperiences.org/2019/04/05/accepting-multiple-sclerosis/) - It used to take me a long time to accept each stage of MS. Each relapse and each steroid treatment it would take time for my head to get on straight to get better. People use to tell me I was so brave but the truth is, I wasn't, I was in denial. I tried - [I’m getting a new wheelchair](https://multipleexperiences.org/2019/04/04/im-getting-a-new-wheelchair/) - Another good day with good news for me. My insurance is covering for a new Hooveround MPV5. I bought my original one used a few years ago and I loved it but it always had issues. First of all it doesn't drive straight. The chair's steering was always messed up and to get it to - [Go me...a good MS day!!!!](https://multipleexperiences.org/2019/04/03/go-me-a-good-ms-day/) - I went in my pool yesterday for the first time in almost 4 months. It's the first time I even swam since the middle of January when I was away. My elevator was broken for so long and it is my elevator that is attached to the building with the pool. For me in my - [Weight watchers week 1](https://multipleexperiences.org/2019/04/02/weight-watchers-week-1/) - I was perfect this week. I tracked my food each day. I was within my point range. I didn't consume my weekly points. I worked out to the best of my ability 5 days this week. I stayed off the scale so I didn't let it dictate how I ate. I was excited to weight - [I can’t take these migraines](https://multipleexperiences.org/2019/04/01/i-cant-take-these-migraines/) - I've been plagued with these migraines for years and years. I remember when they first started. I was driving home from a meeting and was in heavy traffic. I started to notice my right eye blocking out part of the license plate in front of me. Thankfully I was in traffic because I started freaking - [Forks Over Knives Peanut butter granola bars](https://multipleexperiences.org/2019/03/30/forks-over-knives-peanut-butter-granola-bars/) - Made something new this week with my Forks Over Knives recipe app. Thought I'd share it. I love granola bars. This was a great breakfast. I used almond butter instead of peanut butter. Peanut Butter Granola Bars Ingredients ½ cup smooth peanut butter ¼ cup pure maple syrup ¼ cup brown rice syrup 1 tsp - [Life after working](https://multipleexperiences.org/2019/03/29/life-after-working/) - This morning I was watching people get in their cars and head out for work. There was a part of me that was jealous. Jealous that their life was easy in a way mine wasn't. I stopped working three years ago. Since then I had to get an aid to assist me 5 days a - [The appreciation of can verse can’t](https://multipleexperiences.org/2019/03/28/the-appreciation-of-can-verse-cant/) - You'd think a simple game like mahjong would be easy for someone with a chronic illness. Any game card or tiles. After all you are just sitting at a table all day how hard is that? Well now add in a weakened core muscles and for some a hint of cognitive difficulty and the simple - [21 day meditation experience with Oprah and Deepak](https://multipleexperiences.org/2019/03/27/21-day-meditation-experience-with-oprah-and-deepak/) - Deepak Chopra and Oprah once again teamed up and brought a free 21 day meditation experience on Manifesting Grace through Gratitude. Today is technically day 3. I apologize for sending this late but you still have plenty of time access the other days. https://account.chopra.com/auth?client_key=UZI7gdSRyQ&redirect_url=https%3A%2F%2Fchopracentermeditation.com%2F. I highly recommend this if you have any interest in meditation. - [Back to my daily routine](https://multipleexperiences.org/2019/03/26/back-to-my-daily-routine/) - Another beautiful day in NY. I love watching the sun glistening off the waterI'm sorry my picture doesn't do this any justice. I had a long day yesterday getting back to my normal life post infusion. It started with a double therapy. That was physical therapy followed by occupational therapy. I thought putting them together - [Back to weight watchers](https://multipleexperiences.org/2019/03/25/back-to-weight-watchers/) - I've done a lot of yo-yo dieting for the last few years. I for the first time started gaining weight in years on my weight watchers Maintainence plan. When I tried to actually do the weight watchers diet I wasn't losing weight. I went off strict vegan and added fish. I went off vegan completely - [Spiritual session Saturday-when You aren’t forgiven](https://multipleexperiences.org/2019/03/23/spiritual-session-saturday-when-you-arent-forgiven/) - We all have a past and no matter how enlightened we may be today, I'm sure at some point in time we've hurt someone else. Now we are spiritual and we've forgiven all the people that have wronged us, but what about the people we've wronged? We could apologize and recognize that part we played - [Happy 49th plus shipping and handling to my sister](https://multipleexperiences.org/2019/03/22/happy-49th-plus-shipping-and-handling-to-my-sister/) - I finally woke up feeling better today. I feel like me. I got up and exercised first thing this morning and it felt really good to sweat. The headache is gone. It has been a full week but I think I'm through the side effects. It is my beautiful sister's birthday today. She is 50 - [Terrible headaches since Rituxan infusion](https://multipleexperiences.org/2019/03/21/terrible-headaches-since-rituxan-infusion/) - I have had terrible headaches for three days. Since I have migraines already, I don't know if the Rituxan made them worse or if it was caused by the infusion but they were bad. I have migraine medicine and I did have to take it. Thankfully I have it because I was in bad shape. - [Forks Over Knives Herbed Vegan Matzo Ball Soup](https://multipleexperiences.org/2019/03/20/forks-over-knives-herbed-vegan-matzo-ball-soup/) - Matzo is one of my favorite things next to the matzo ball. Nothing is better than matzo ball soup on the Jewish holidays and certainly if you aren't feeling well. Herbed Vegan Matzo Ball Soup Ingredients 5 matzo crackers 1 cup cooked quinoa 1½ tsp ground flaxseeds 1½ tsp lemon juice ½ tsp garlic powder - [Short Rituxan post infusion](https://multipleexperiences.org/2019/03/19/short-rituxan-post-infusion/) - I had my infusion Friday and today is Tuesday. I woke up not feeling well. I have a bad headache. My body just feels heavy. I am so thankful I had nothing on my schedule because the thought of going out is overwhelming. I'm even taking today as one of my exercise off days because - [How do I feel after Rituxan?](https://multipleexperiences.org/2019/03/18/how-do-i-feel-after-rituxan/) - I had my full dose of Rituxan Friday evening. The weekend was fair. Yesterday, which was Sunday, I didn't feel well but I think that was more steroid related. Today I woke up and I felt better. I find I fizzle faster. I have gone into bed before 9 both nights and slept well. Even - [Rituxan infusion complete](https://multipleexperiences.org/2019/03/16/rituxan-infusion-complete/) - I had my full dose infusion of Rituxan yesterday in my home. Definitely the way to have an infusion. Got my dogs with me for some puppy love, relaxing in my chair and catching up on DVR. The infusion was started very late which was a downside. My nurse had an issue with a prior - [An end to a stressful week](https://multipleexperiences.org/2019/03/15/an-end-to-a-stressful-week/) - Today my van is getting delivered back to me. It seems that the circuit breakers under the floor were water logged. I can't explain how but the switches needed to be replaced. They kept the car for an extra day testing everything out and hopefully this won't be a problem again. I am doing my - [Hallelujah Rituxan was approved](https://multipleexperiences.org/2019/03/14/hallelujah-rituxan-was-approved/) - It was actually approved for my Rituxan infusion. I will be taking it like the Ocrevus and in a full dosage. I know that my doctor has lowered the amount of steroids I need to take prior to the infusion and I will be taking 250mg. Still a high dosage considering prednisone, the oral steroid - [Patient don’t get a say in treatment course with insurance](https://multipleexperiences.org/2019/03/13/patient-dont-get-a-say-in-treatment-course-with-insurance/) - After I spent hours on the phone getting my van taken care of, they finally came to tow it to a place on Long Island instead of New Jersey. I was mentally exhausted. As I am coming back into my condo the phone is ringing. It was my infusion place. The authorization for Rituxan isn't - [My handicap van ramp isn’t working](https://multipleexperiences.org/2019/03/12/my-handicap-van-ramp-isnt-working/) - I can't make this sh@t up. I go to my car yesterday and press the button and the door opens and ramp comes down as normal. I go into my van and press the button to close and my ramp goes in but the door doesn't shut. So I try to press the button again - [Infusion coming up the switch from Ocrevus to Rituxan](https://multipleexperiences.org/2019/03/11/infusion-coming-up-the-switch-from-ocrevus-to-rituxan/) - So my infusion is coming up and I'm waiting on authorization. I'm switching back to Rituxan hopefully because I personally feel slightly safer on the drug. However I can only imagine what this will do with the authorization of the drug. Ironically my last infusion my pharmacy had Rituxan on the approved list but not - [Spiritual session Saturday-I am not a body I am free](https://multipleexperiences.org/2019/03/09/spiritual-session-saturday-i-am-not-a-body-i-am-free/) - This is a favorite one of mine in A Course of Miracles. To me if you can truly reach this stage, you are truly enlightened and free. The Course says: https://acim.org/workbook/lesson-199/ Freedom must be impossible as long as you perceive a body as yourself. The body is a limit. Who would seek for freedom in a body - [Friday morning venture](https://multipleexperiences.org/2019/03/08/friday-morning-venture/) - I went to my neurologist this morning for a wheelchair assessment appointment. I have an electric wheelchair plus my travel scooter already. My electric wheelchair isn't in the greatest shape. I bought it online and it is so much better than the scooter but it doesn't go exactly straight. It goes to the left. I've - [My first outing alone](https://multipleexperiences.org/2019/03/07/my-first-outing-alone/) - I received a call early in the morning that my aid's son was sick she wouldn't be making it to me for the day. However, yesterday was mahjong and I wanted to go. This is why I got a handicap van for my independence, right? So I decided I was going to go. I was - [Being proactive with MS symptoms](https://multipleexperiences.org/2019/03/06/being-proactive-with-ms-symptoms/) - Yesterday I wrote about the seriousness of weakened chest muscles and multiple sclerosis I’m scared of this MS symptom. I haven't seen my doctor yet but I received some advice from people that I thought I'd share that would also help. Purchase an Incentive Spirometer . There are many types of spirometers but this one - [I’m scared of this MS symptom](https://multipleexperiences.org/2019/03/05/im-scared-of-this-ms-symptom/) - I've written about this before but it happened again yesterday and it really scared me. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ I woke up not feeling well. I had this heavy feeling in my chest. Not like the MS hug symptom which is the tightening feeling through your chest like congestion, simple congestion in my chest. I just couldn't produce - [Where’s the snow?](https://multipleexperiences.org/2019/03/04/wheres-the-snow/) - A storm was coming expecting snowfalls of 4-8 inches. I was excited to have at least one snow storm this winter even though it housebounds me. It is very hard to navigate outside with mounds of snow and ice. It is hard to walk if you actually have balance, which I do not. No walker - [Spiritual session Saturday-signs from the universe](https://multipleexperiences.org/2019/03/02/spiritual-session-saturday-signs-from-the-universe/) - Signs are there all the time but most people aren't in tune to either their own intuition or to the universe around them. The signs are always there when your ready to see them although they can be very subtle. Signs can be anything like seeing number sequences over and over like 1111, 2222 for - [A beautiful feeling](https://multipleexperiences.org/2019/03/01/a-beautiful-feeling/) - I just woke up feeling good today. Not so much MS good but mentally good. I should have said happy because that's what it was just happy feelings. I always wake up and pet the dogs before getting out of bed. It is my morning ritual and both dogs know it. Marshy, who sleeps under - [Out and about in my handicap van](https://multipleexperiences.org/2019/02/28/out-and-about-in-my-handicap-van/) - Well the 8 month journey to purchase my van was really worth the experience I had yesterday. To be able to press a button that opens a door, sends down a ramp that I can just wheel myself into is more liberating than I even expected. What makes this even better is I am finally - [Hair today gone tomorrow](https://multipleexperiences.org/2019/02/27/hair-today-gone-tomorrow/) - It's time for a change and I'm cutting my hair. I was either going to change color or cut but I changed color back in the summer and changed it back. I like my red color better. I've been inspired by an old cut I had that keeps coming up on my Firestick screensaver. I - [Love is blind campaign for brachycephalic dog breeds](https://multipleexperiences.org/2019/02/26/love-is-blind-campaign-for-brachycephalic-dog-breeds/) - I saw this on a blog I follow https://doggymom.com/author/doggymomblog and had to share it with my own readers. It is about the brachycephalic breeds which include English bulldogs and French bulldogs. If you have ever seen my blog or if you haven't my beloved first dog was an English Bulldog named Boomer that passed two - [Goodbye Bob hello Bubba](https://multipleexperiences.org/2019/02/25/goodbye-bob-hello-bubba/) - It was official on Friday that Bob my Honda Civic was turned back in to the dealership. I name all my cars and my last one was simply Bob. My first black car since the one I got and totaled the day after I got my drivers license. My dad had a thing with black - [Spiritual session Saturday-when you fall out of your spiritual practice](https://multipleexperiences.org/2019/02/23/spiritual-session-saturday-when-you-fall-out-of-your-spiritual-practice/) - It happens to everybody. There are days I wake up and I don't feel like reading A Course in Miracles. I don't feel like meditating. I don't feel in touch with my intuition. I've been doing this for years now. Sometimes I feel unenlightened, even bored. Yet I always come back. This is my daily - [It started with one sneeze](https://multipleexperiences.org/2019/02/22/it-started-with-one-sneeze/) - I was feeling so good and then I sneezed and that was the beginning. Yesterday I wrote how I was feeling good and today I feel lousy because I'm getting sick. However in my defense I was talking about my MS yesterday. Ugh I should have known. I had a slight nasal drip. I should - [Not much to say](https://multipleexperiences.org/2019/02/21/not-much-to-say/) - Not much to say because I haven't done much. However because I haven't done much I could say that I feel pretty good. I've worked out every morning doing my little Cize videos from Beachbody https://www.beachbody.com/product/about_us/executive_team.do. After that I do A course miracles followed by a meditation and then I write my blog. My afternoons - [My diet confession](https://multipleexperiences.org/2019/02/20/my-diet-confession/) - I never admitted this to anyone until the other day when I told my Noom coach and my life coach. I am sure people suspected and some saw evidence. I am and have always been a closet binge eater. I do it at periodic times. I go through phases. I've even learned how to maintain - [My handicap van is coming](https://multipleexperiences.org/2019/02/19/my-handicap-van-is-coming/) - I got a call from the finance manager yesterday going over a couple of details and she said they were delivering the van this Wednesday, like the day after today. WHAT??? They haven't received any payments from my grants and we aren't planning on laying that money out. "They leave it on their accounts receivable - [Ouch a painful fall and a possible concussion](https://multipleexperiences.org/2019/02/18/ouch-a-painful-fall-and-a-possible-concussion/) - I fell on Friday and slammed my head into one of my hangings on my lower cabinets. I was stunned for a few seconds when it happened. Everyone said "where was your aid?" She was right in front of me but it is difficult to catch someone when they are falling and she wasn't close - [Spiritual session Saturday-how to change your negative thoughts](https://multipleexperiences.org/2019/02/16/spiritual-session-saturday-how-to-change-your-negative-thoughts/) - My daughter had a tough week. She is definitely her mother's daughter picking up some of my own good habits but also some my bad, including negativity. The difference is I work very hard on changing my negative thoughts every day. Sometimes she can't get out of her own head long enough to see a - [So excited](https://multipleexperiences.org/2019/02/15/so-excited/) - I received word this morning: I am pleased to inform you that your application has been selected by the committee for funding. Please see the attached letter for details and instructions for fulfillment of this grant. I was approved for the last grant for my handicap van. This was truly the difference between the van - [Happy Anniversary Multiple Sclerosis](https://multipleexperiences.org/2019/02/14/happy-anniversary-multiple-sclerosis-2/) - It's Valentine's Day here which always marked 3 things for me: The lover's or lack of one Holiday The weekend I moved into my first house with ex-husband The start of a major MS attack that lead to my diagnosis less than a week later Today marks 21 years ago that I was diagnosed with - [Weakness in my hands](https://multipleexperiences.org/2019/02/13/weakness-in-my-hands/) - Wasn't my finest dexterity day. My fine motor skills weren't so fine today. I haven't been to occupational therapy in a few weeks and I think it showed. It was rough today. I wanted to take the peg and tweezers and throw them across the room. It looks so harmless in the picture but we - [A nurse assessment today](https://multipleexperiences.org/2019/02/12/a-nurse-assessment-today/) - Today my insurance company is sending in a nurse to do a six month review. This review dictates my aids hours and you just never know what is going to happen. I was changed to this plan back in July of 2018 when I became Medicare eligible. They continued with the same level I was - [My handicap Van](https://multipleexperiences.org/2019/02/11/my-handicap-van/) - Yesterday was an exciting day. My step dad took me to New Jersey to meet with a gentleman from Mobility Works. This was another handicap van dealership. What I liked about them is they had a much bigger selection of used vans. I now realized I had to get a used van so it was - [Spiritual session Saturday-meditation](https://multipleexperiences.org/2019/02/09/spiritual-session-saturday-meditation/) - Let's start with the basic, what is meditation? Meditation is a practice where an individual uses a technique – such as mindfulness, or focusing their mind on a particular object, thought or activity – to train attention and awareness, and achieve a mentally clear and emotionally calm state.Wikipedia There are so many apps and YouTube - [Am I getting old?](https://multipleexperiences.org/2019/02/08/am-i-getting-old/) - I played mahjong all day yesterday and I had a great time. Is this the sign? I had a great time. American mahjong is played with four players using tiles stamped with Chinese symbols. The goal of the game is to be the first, by picking and discarding, to match one's tiles to a specific hand from - [Starting the process for my next infusion-changing from Ocrevus to Rituxan](https://multipleexperiences.org/2019/02/07/starting-the-process-for-my-next-infusion-changing-from-ocrevus-to-rituxan/) - I am due in March for my full dose infusion of Ocrevus. A process that has never run smoothly and has caused a lot of aggravation. https://multipleexperiences.org/2018/09/13/no-ocrevus-infusion-today/ https://multipleexperiences.org/2018/09/21/no-ocrevus-infusion-yet/ Those blogs were only my issues with the last time I had the infusion. I had issues every time my infusion was scheduled. Now I'm going back - [Forks Over Knives-Black Bean, Corn & Roasted Red Pepper Lettuce Cups](https://multipleexperiences.org/2019/02/06/forks-over-knives-black-bean-corn-roasted-red-pepper-lettuce-cups/) - This is one of my favorite salads to eat. I very often skip the avocado and lettuce leaf and eat it as my meal over some bulgar. I like it with the heat. It is like a salsa. Black Bean, Corn & Roasted Red Pepper Lettuce CupsIngredients • 2 cups frozen roasted corn • 1 - [Stomach bugs with MS bladder/bowel issues](https://multipleexperiences.org/2019/02/05/stomach-bugs-with-ms-bladder-bowel-issues/) - Ok warning I'm going graphic here because I need to be honest and there is no other way. I have bladder and bowel control issues. For my bladder I take Toviaz which helps me not have accidents but when I have to go I have a very short window of time to make it to - [Was it something I ate?](https://multipleexperiences.org/2019/02/04/was-it-something-i-ate/) - I was so sick last night, still am. I was up from 2am-5am sick in the bathroom and I'm going to spare you the details. I must laugh at my poor little Zoey, she was so out of sorts with me not in the bed. She kept getting up to see where I was. I - [Spiritual Session Saturday-Being Happy](https://multipleexperiences.org/2019/02/02/spiritual-session-saturday-being-happy/) - This week is about being happy in the place you are in today. I wrote a blog this week entitled my life today. https://multipleexperiences.org/2019/01/29/my-life-today/. When I'm writing a blog sometimes I don't know exactly where my blog is going, the words just flow themselves. This was one of those blogs. I had a comment on - [A sleepless night](https://multipleexperiences.org/2019/02/01/a-sleepless-night/) - I've been up since roughly 4 AM. I couldn't even tell you why. I think I've watched an entire season of friends before I finally gave up and got out of bed. I suffer from headaches all week this week I've been home for three days because my aid's son was sick. I've watched a - [Tony Horton P90X, here I come](https://multipleexperiences.org/2019/01/31/tony-horton-p90x-here-i-come/) - It's been a while but I'm coming back to my P90X workouts from Tony Horton at Beachbody. https://www.beachbody.com. I have been a fan of Beachbody and their trainers for a long time but my favorite was always the P90X routine. I had these great bowflex adjustable weights These weights were great you could dial them - [My handicap van update](https://multipleexperiences.org/2019/01/30/my-handicap-van-update/) - I thought I'd write a blog on the update on my van. Unfortunately, I did not get as much in grants as I was hoping for which was somewhat disheartening. It was my own fault because I just got a number in my head that was delusional. I was able to secure $5,300 in grants - [My life today](https://multipleexperiences.org/2019/01/29/my-life-today/) - I never thought at the age of 47 this would be my life yet I remember being scared when I was diagnosed of being in a wheelchair. I knew what multiple sclerosis could bring about and I feared that when I hit the 10 year mark everything would go downhill rapidly. That wasn't the case - [Monday madness](https://multipleexperiences.org/2019/01/28/monday-madness/) - First time back in physical therapy today. I should get double activity points on my Fitbit from this and it registers as nothing. I was there for almost 90 minutes and it's all exercise that it so difficult to do. I mean I'm struggling doing leg lifts with a 2lb weight on my ankle. My - [Spiritual session Saturday-my thoughts create the world I see](https://multipleexperiences.org/2019/01/26/spiritual-session-saturday-my-thoughts-create-the-world-i-see/) - I am currently on lesson 167 of 365 in A Course of Miracles as well as on lesson number 26. How? Well when I finish my year I started over but my life coach also started teaching the lessons on her instagram feed. https://instagram.com/alyssalucyy?utm_source=ig_profile_share&igshid=ly9gykpejic4 She is unbelievable at simplifying each lesson and she teaches me - [Multiple sclerosis set to mild for the week](https://multipleexperiences.org/2019/01/25/multiple-sclerosis-set-to-mild-for-the-week/) - I've had a week to rest since my vacation and I have to say I needed it. I did do my Beachbody Cize workouts every morning. I did get food delivered and cooked. I did reorganize myself,but other than that, I rested. Today I'm going to occupational therapy. This is the easier of the therapies - [Forks over Knives- Creamy Wild Rice Soup](https://multipleexperiences.org/2019/01/24/forks-over-knives-creamy-wild-rice-soup/) - I had to share this recipe because it was so good. Might be my new favorite soup from Forks over Knives. Creamy Wild Rice Soup Ingredients 4 cups vegetable stock 1 8oz. pack button mushrooms *I used canned button mushrooms one time and fresh sliced mushrooms another ¾ cup uncooked wild rice 1 leek 4 cloves - [Ocrevus, Rituxan not new drugs](https://multipleexperiences.org/2019/01/22/ocrevus-rituxan-not-new-drugs/) - I received an email yesterday about a new drug for progressive MS called Ocrevus. https://www.cbsnews.com/video/new-drug-provides-hope-for-those-suffering-with-ms/I don't get it, I've been on Ocrevus for almost 2 years already. Is it really still new news? I wish I could rave about this drug that it has done wonders for me, but it hasn't. I haven't had any - [What I learned on my trip](https://multipleexperiences.org/2019/01/21/what-i-learned-on-my-trip/) - There was no bad weather in NY that my vacation was cut short. However, today it is 5 degrees with a real feel temperature of negative 15. Yet I'm comfortable and was freezing in Mexico, what was that about? My trip was great but there was things that would have made things easier for me - [Spiritual session Saturday-Don’t sweat the small stuff](https://multipleexperiences.org/2019/01/19/spiritual-session-saturday-dont-sweat-the-small-stuff/) - I was on vacation. It was my first vacation, other than Florida with family, in years. You can read about it in any of my past weeks blogs. I had to come back early due to the chance of inclement weather in NY. Inclement weather that as of this morning now looks like rain and - [Cutting vacation short](https://multipleexperiences.org/2019/01/18/cutting-vacation-short/) - Unbelievable but I'm leaving today instead of a Sunday. There is inclement weather in NY for the entire weekend. JetBlue even put on their website that if you were traveling into or from one of the airports they expect will be problems you could change your flight for free. Leaving from Cancun on JetBlue has - [Cold? It’s 78 degrees](https://multipleexperiences.org/2019/01/17/cold-its-78-degrees/) - I fell asleep in the sun yesterday for a short time. I was awoken by my brother in law blocking the sun from me. He was sent by my mom who was scared I was going to fry. Well in typical Jamie fashion my face and chest burned. Today my face has already lost its - [You can’t walk but you can swim](https://multipleexperiences.org/2019/01/16/you-cant-walk-but-you-can-swim/) - Those were the words this morning from my mom as she watched me swim in the pool. The pool which was so cold I might add. I was determined to do some laps this morning despite the near frigid temperature. I still swam for roughly a half hour. My mom, the sport she is, got - [I’m on vacation my MS is not](https://multipleexperiences.org/2019/01/15/im-on-vacation-my-ms-is-not/) - It's been less than 48 hours that I've been on vacation and my multiple sclerosis has not been easy. Half of my clothing I've worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn't keep that shit together for a few days? I've had countless - [It’s pouring](https://multipleexperiences.org/2019/01/14/its-pouring/) - First day on vacation and it is completely pouring outside. Like monsoon pouring at times. My poor daughter is wearing a sweatshirt and sweatpants trying to stay warm. She's had a headache all day partly from her cold and partly because of the weather. I'm sneezing now too which isn't good. I too felt sick - [Happy 40th Anniversary mom and Jack](https://multipleexperiences.org/2019/01/14/happy-40th-anniversary-mom-and-jack/) - I arrived in Mexico yesterday and I must say it is pretty amazing here. Just sending a few quick pictures today to show you where I’m staying. I am living in paradise for a week. - [Spiritual session Saturday-In my safety my defenselessness lies](https://multipleexperiences.org/2019/01/12/spiritual-session-saturday-in-my-safety-my-defenselessness-lies/) - This is one of my favorite lessons from a course in miracles. Lesson number 153. https://acim.org/workbook/lesson-153/ The reason it's my favorite, because it was the hardest for me to deal with and overcome. I've written a couple of blogs on this topic my last one being this one https://multipleexperiences.org/2017/12/21/in-my-defenselessness-my-safety-lies/. Even now three years into a - [I’m so excited](https://multipleexperiences.org/2019/01/11/im-so-excited/) - It's finally here a trip that's been planned for years. It's a family trip that was supposed to be for everyone's big birthday celebration. My mom's 70th, step dad's 65th and my 45th. Since I just turned 47 you could see that didn't work out. However now we are celebrating their 40th anniversary and we - [Shoes and sneakers](https://multipleexperiences.org/2019/01/10/shoes-and-sneakers/) - I have such issues with shoes now. I miss the days I could wear my boots with chunky heels. I never could wear stilettos but I could get away with those. Now I can only wear sneakers or wide shoes that are completely flat. I use to wear Keds sneakers all the time. Quick slip - [Spinal Cord Lesions with MS](https://multipleexperiences.org/2019/01/09/spinal-cord-lesions-with-ms/) - My neurologist from early on has done MRI's of my spinal cord. It is where most of my MS activity has been over the last 21 years. My first major attack back in 1998 left a large lesion in my brain but since than it has really all be spinal cord. So what does that - [A reminder how long I’ve had multiple sclerosis](https://multipleexperiences.org/2019/01/08/a-reminder-how-long-ive-had-multiple-sclerosis/) - It's was my routine checkup with my neurologist today. One month shy of my 21st anniversary of my multiple sclerosis diagnosis. This appointment was with the neurologist that made that diagnosis 21 years ago. He knows me well. My folder is very thick and over the years it has been thinned out and moved into - [This week at physical therapy-strengthening the core](https://multipleexperiences.org/2019/01/07/this-week-at-physical-therapy-strengthening-the-core/) - I asked in therapy about the issue I had in mahjong last week https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/ with holding up myself up. We discussed the issue with my weakened core muscle. I've had multiple sclerosis for almost 21 years and it was my core region that was on of the first things effected by MS that never got - [Spiritual session Saturday-A Course in Miracles](https://multipleexperiences.org/2019/01/05/spiritual-session-saturday-a-course-in-miracles/) - This book has changed my life. I've talked about it many times in my blog. You can purchase the book on Amazon very easily or there is an app for the workbook lessons. There are 365 lessons and you do one a day. However today I wanted to share with you an Instagram feed of - [Couldn’t hold myself up](https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/) - This wasn't good. I went to play mahjong for the second time yesterday. It is a game like rummy cube with Asian tiles. Your hands must match to an approved hand on a card. You play with four people around a square table taking turns picking and throwing tiles. Not very strenuous unless you have - [Gaining weight Keto to Plant Based](https://multipleexperiences.org/2019/01/03/gaining-weight-keto-to-plant-based/) - I guess it was inevitable that once you put the carbs back the weight comes back as well. It didn't take long and was actually a little alarming. At first I gained ever pound I lost within a week. That was disheartening but then it leveled off and I took off a couple of pounds. - [January 2](https://multipleexperiences.org/2019/01/02/january-2/) - Well it's back to the normal everyday routine. The holidays are over. They went fast this year. Actually the year went fast. 2019 is officially the new calendar year. Do you feel any different? I didn't think so. I was back in the pool first thing this morning. It isn't too cold in New York - [New Year’s Day-U2](https://multipleexperiences.org/2019/01/01/new-years-day-u2/) - I have to always pay homage to this song on this day to my favorite band. I fell in love with U2 from the War album back well, let's just say a very long time ago.This is the album that is framed in my room signed by Bono and Adam the night I got my - [Making room for 2019](https://multipleexperiences.org/2018/12/31/making-room-for-2019/) - This was shared by my life coach to me and I knew I needed to share this with my readers. She writes: Since it is officially New Year’s Eve, I thought I would share with you a few things that you can do to welcome in 2019 and all it has to offer. Step 1: - [Goodbye 2018](https://multipleexperiences.org/2018/12/27/goodbye-2018/) - 2018 wasn't a bad year for me. Yesterday marked the day I moved into my condo a year ago. Although it was technically 2017, it was really days of complete chaos until 2018. I wake up to this view to look at. Trust me it looks a lot better than my picture shows. I learned - [Spiritual session Saturday- Forgiveness](https://multipleexperiences.org/2018/12/29/spiritual-session-saturday-forgiveness/) - Has anyone seen Dirty John on Bravo? It's about a whirlwind romance between a successful woman and a man she meets on an internet dating site. She falls head over heals. Her family find out he's a conman and try to prove this to her mom but their mom can't see. This show is based - [My 2019 vision board](https://multipleexperiences.org/2018/12/28/my-2019-vision-board/) - There are a few things I'd like to happen in 2019 besides happiness and health. I'd love a cure for multiple sclerosis but I'm a realist so my vision board needs to be too. My handicap van. This is still not a certainty because of funding but it is number one on my vision board - [Back Spasms](https://multipleexperiences.org/2018/12/26/back-spasms/) - One of the most common of MS symptoms are spasms. They can range from mild to severely painful. I know many people with both extremes. I am considered mild. I have them in my legs mostly but also in my back. It's my back spasms that can have the highest degree of range. On a - [Thank you to my readers and Happy Holidays](https://multipleexperiences.org/2018/12/24/thank-you-to-my-readers-and-happy-holidays/) - Wanted to take a moment to thank each and every one of my readers. I started this blog without a clue of what I wanted to say and certainly who would ever want to read it. Yet people showed up, read it and commented and helped make it what it became. I can't thank you - [Spiritual Session Saturday-Love](https://multipleexperiences.org/2018/12/22/spiritual-session-saturday-love/) - Lesson 67 in a course in miracles is love created me like it self. It may sound complex but it is very simple we are love created to love others. When we are born we have no fear or anger. We have basic needs: food, warmth and love. We learn fear and all that is - [Forks over Knives Lentil Minestrone Soup](https://multipleexperiences.org/2018/12/21/forks-over-knives-lentil-minestrone-soup/) - I said I'd post a recipe this week. It's winter good time for soup. This was an easy super tasty soup. I even used my Doterra Oils in place of the dried spices which gave even extra flavor. I missed my soups. I hope you like it. Packed with vegetables. Lentil Minestrone Ingredients • 1 - [Back to Forks over Knives, plant based eating](https://multipleexperiences.org/2018/12/20/back-to-forks-over-knives-plant-based-eating/) - I tried Keto for a few months and it did work for me at first. I did take off weight but eating like that wasn't something I could do on a long term basis. As I got sick of the food, I started eating bad. I just don't like cheese and butter all that much - [My chunky French bulldog](https://multipleexperiences.org/2018/12/19/my-chunky-french-bulldog/) - We went for her annual yesterday and my girl gained 11 pounds this year. However last year she was very thin but still. My vet said it wasn't terrible but we have to cut down her food and replace some with green beans so she doesn't starve. My vet loves her. We have been at - [Multiple Sclerosis and migraines](https://multipleexperiences.org/2018/12/18/multiple-sclerosis-and-migraines/) - I've suffered from migraines for over 15 of my 21 years of having MS. I remember when I got the first one. I was driving home from a meeting that was close to one of the NY airports and I was in major traffic. Probably a little stressed because I had to pick up my - [Every Breaking Wave-U2 Acoustic Version](https://multipleexperiences.org/2018/12/17/every-breaking-wave-u2-acoustic-version/) - I've shared this song before to be honest. This whole album from U2 disappeared off of my iPod sometime back. It is off their Songs of Innocence album. When you've been a fan of U2 since you were 10 and it's 37 years later for a song to be your favorite U2 song, that's saying - [Spiritual session Saturday-Prosperity Mantra](https://multipleexperiences.org/2018/12/15/spiritual-session-saturday-prosperity-mantra/) - I have to be honest, I'm on a fixed income and my finances aren't completely in order. It's hard to pull yourself out of debt, even though you've made strides, when your income just has a limit. My everyday bills aren't changing and my disposable income just isn't enough. I'd have these plans to pay - [Brrrr it’s cold in here](https://multipleexperiences.org/2018/12/14/brrrr-its-cold-in-here/) - Well actually it's cold out of here and by that I mean the pool. I go down and it's all warm. I get into the pool and it's nice and warm and I get out and I'm frozen. I think it is once again a big thanks to my MS that once that chill sets - [7 Perfect Gift Ideas for a Loved One Living with MS](https://multipleexperiences.org/2018/12/13/7-perfect-gift-ideas-for-a-loved-one-living-with-ms/) - I saw this article on healthline https://www.healthline.com/health/multiple-sclerosis-ms-gift-guide This list was put together by a MS blogger and her blogger community of items they felt were great for holiday gift giving. The article goes into full details of each item and where you can find them. It even explains why each item is a good gift. - [MantraBand](https://multipleexperiences.org/2018/12/12/mantraband/) - I don't know about you but I love seeing my mantra on my wrist or wearing my message around my neck. I love the constant reminder like the old tool of snapping a rubber band on your wrist as a reminder. Sometimes you need to look down and remind yourself of "why". Sometimes you need - [Still intermittent fasting 7 months later](https://multipleexperiences.org/2018/12/11/still-intermittent-fasting-7-months-later/) - I am still doing this all these months later. I now eat between the hours of 11-7. I also don't usually drink my coffee until 11 as well. The truth is I haven't lost weight from this but I haven't gained weight either. I have to agree with the doctors that losing weight when you - [A bad dream](https://multipleexperiences.org/2018/12/10/a-bad-dream/) - I had a vivid dream last night. I was in a board room fighting because a new law was now in existence. This new law gave the right of the insurance companies to stop treatment of a patient if they felt it wasn't producing significant improvements. Pretty damn vivid memory of a dream if you - [Spiritual session Saturday #1](https://multipleexperiences.org/2018/12/08/spiritual-session-saturday-1/) - I thought I'd start sharing with you each week some of my spiritual lessons that I've learned during the week as a review on Saturday. Maybe somebody out there would find this helpful or could understand it. Maybe somebody out there had a question or comment or wanted to know more. This week my big - [From Keto back to Vegan](https://multipleexperiences.org/2018/12/07/from-keto-back-to-vegan/) - I am finishing up the meat in my house and going back to a more plant based vegan diet. I switched to Keto to change things up and it did. I lost the most of the 10lbs I gained over the last year but I don't like really eating this way. I miss my fruits - [Boomer is back](https://multipleexperiences.org/2018/12/06/boomer-is-back/) - This was the best present. I am so happy I did this. I hugged the picture for a little before I would even put it down. I missed my dog. He was the first dog I ever owned and he was a great dog. I was going to make a wall of dogs in my - [Have you watched anything good?](https://multipleexperiences.org/2018/12/05/have-you-watched-anything-good/) - I watch a lot of TV. I'm home a lot. I've seen most things but sometimes something surprises me, like Curse of Oak Island on History. It is in season 6 now but you can catch up on Hulu. It's treasure hunting with millions of dollars in resources. I got sucked in praying they'd find - [Disability Van Shopping](https://multipleexperiences.org/2018/12/04/disability-van-shopping/) - You think this would be easy, but it really isn't. I have seen now a place the converts Honda Pilots which I love but they aren't located in New York. I even found handicap accessible trucks That's crazy. Look at that!!! Then I found smaller cars with hatchbacks that would have been perfect for me - [MS Focus on Research for November](https://multipleexperiences.org/2018/12/03/ms-focus-on-research-for-november/) - This month they had a few interesting articles on new MS research I thought I'd enclose. https://msfocus.org/About-Us/MSF-News-Articles/167 A new study shows an overlooked source may be able to replace lost nerve insulation and provide a new way to treat multiple sclerosis. The discovery of mature myelin-producing cells' capacity for repair opens new opportunities to slow - [My boo boo feet](https://multipleexperiences.org/2018/12/01/my-boo-boo-feet/) - It happened again. I got blisters on my pinky toes and wearing shoes became quite an issue. It started about a month ago where my shoes started rubbing and I knew it was going to be a problem. Guess what, it was. I've been wearing the same sneakers for a long time never had a - [The exhaustion equation](https://multipleexperiences.org/2018/11/30/the-exhaustion-equation/) - Doesn't take much to exhaust someone with multiple sclerosis. For me it was being out late two nights in a row. I'm paying the price now. Just exhausted. It's unfortunate that the body can't handle the simplest of activities. I went out for dinner the first night. Sitting with my friend chit chatting for hours. - [Changing my body image perception](https://multipleexperiences.org/2018/11/29/changing-my-body-image-perception/) - If you follow my blog you know that I've discussed weight and body image many times. If you're new to my blog all you have to do is put in the search and you'll find all the blogs pertaining to it. I've had a terrible image perception of my weight and body since I was - [I want coffee and a hamburger](https://multipleexperiences.org/2018/11/28/i-want-coffee-and-a-hamburger/) - I was up early today to do a double therapy. I don't like to put them both together but I had to this morning. I had occupational first and then physical therapy. I'm now exhausted and I haven't had any coffee yet. I just got home. Immediately put my feet up. Have my Marshy already - [My birthday present](https://multipleexperiences.org/2018/11/27/my-birthday-present/) - This year the gift from my family was a painting. My English Bulldog Boomer died almost 2 years ago and I wanted for the longest time to get something as a memorial to him. I was going to do a tattoo of his paw but the picture I actually had didn't work. I finally decided - [Accepting this stage of my multiple sclerosis](https://multipleexperiences.org/2018/11/26/accepting-this-stage-of-my-multiple-sclerosis/) - I had a good weekend. I got my 6 hour online drivers insurance reduction course completed on Saturday. Had a really nice birthday brunch with my friend yesterday. Even consumed too many Bloody Mary and was slightly drunk. I managed to not only have zero falls this weekend, I also had zero bladder accidents. I - [My French bulldogs](https://multipleexperiences.org/2018/11/24/my-french-bulldogs/) - I love these two dogs. They are such great companions with each other and for me. I'm home a lot with a chronic illness. It can seem like a lonely life to some. However, it really isn't and that's partly because of them. They make me smile all day so today I wanted to be - [The day after](https://multipleexperiences.org/2018/11/23/the-day-after/) - Too much food. Too much pie. A whole bunch of smiles. I would never complain it was worth every calorie consumed. I had a really great birthday and felt love from my family all over and from Facebook friends and fundraiser supporters. My beautiful daughter spent the entire day with me and after the food - [Happy birthday to me and Happy Thanksgiving to you](https://multipleexperiences.org/2018/11/22/happy-birthday-to-me-and-happy-thanksgiving-to-you/) - It's my birthday and it falls on the day to be thankful this year. I have so much to be thankful for despite having multiple sclerosis because there is so much good in my life. I'm thankful for my ex-husband because in meeting him and falling in love, we produced my daughter. I'm thankful for - [Overwhelmed with gratitude](https://multipleexperiences.org/2018/11/21/overwhelmed-with-gratitude/) - I've shared numerous times how I started a Go Fund Me for help getting a handicap van. I had some donations but it wasn't moving most days. Since my birthday is coming up tomorrow I got something from Facebook about starting a fundraiser, so I did. I am so overwhelmed by the people that have - [Getting back into routine](https://multipleexperiences.org/2018/11/20/getting-back-into-routine/) - It's been a while, seems like months, but it's only been a few weeks. I am finally getting back into my weekly routine. I've said this many times in my blogs, I need the stability of the routine. It helps me function and cope in each given week. When I'm out of routine I feel - [Increased antidepressant prescription](https://multipleexperiences.org/2018/11/19/increased-antidepressant-prescription/) - Snap out of it!!! I was telling myself that for a week. I spent a week in pjs because I didn't have the energy to get up and get dressed. I've been lethargic and tired and just morose. I was off of the steroids and knew it could be a side effect but it was - [Trying to get funding for a disability van](https://multipleexperiences.org/2018/11/17/trying-to-get-funding-for-a-disability-van/) - I have to admit, I never expected the handicap vehicle to be quite so much money. I'm glad at least when I started this journey I did start at the dealership first. I have a foundation from multiple sclerosis that is helping me but they certainly didn't have enough funds for the entire van, or - [Weather report](https://multipleexperiences.org/2018/11/16/weather-report/) - I went to get my nails done yesterday and was so happy seeing a few snowflakes. I wasn't so happy an hour later when my car was covered and the streets were covered in this wet heavy snow. It came down super fast. In that hour a few inches had fallen and was continuing to - [My neurological tests don’t show my ms progression, why?](https://multipleexperiences.org/2018/11/14/my-neurological-tests-dont-show-my-ms-progression-why/) - It is tough. I go to the doctor and my neurological tests aren't so bad from my last visit. My timed walking was increased by only 2 seconds. No big deal. My range of motion was pretty much the same range as it was last visit. My MRI shows no activity. Yet I'm worse. Everyone - [Traumatized](https://multipleexperiences.org/2018/11/13/traumatized/) - Why? I had to be in the city today for an early morning doctor appointment. Of course today it's pouring. That means extra traffic and slower conditions leave earlier. That was my intention as well as my step dads wish but of course that isn't what happened. This was all thanks to me and my - [Is Ocrevus still right for me?](https://multipleexperiences.org/2018/11/12/is-ocrevus-still-right-for-me/) - I have an appointment tomorrow morning in NYC with my MS specialist. I'm coming off a 3 day round of steroids to see if it was at all possible I could be having some type of relapse. I personally didn't believe that's what was happening, however I believe steroids can you give me a little - [Donations greatly appreciated](https://multipleexperiences.org/2018/11/11/donations-greatly-appreciated/) - I’m Jamie. I was diagnosed with Multiple Sclerosis in 1998. I have been lucky that I’ve been able to be on my feet for many years but my time to be in the wheelchair is here. I have been a single mom since my daughter was 7. She was born with a progressive hearing loss. - [Short and sweet](https://multipleexperiences.org/2018/11/10/short-and-sweet/) - I am not feeling good. I expected it following my steroid infusion. My skin almost hurts. I'm happy to say I slept in which was needed. It's a beautiful day here in New York and I am happy to be in my pj's looking out at the water. I'm accompanied by my fur babies and - [Steroids complete](https://multipleexperiences.org/2018/11/09/steroids-complete/) - Well when I took out the stint my hand was swollen. That would explain the pain that was going on during the infusion. I got a call at 8:00 last night from the nursing staff about coming today to do my discharge. They said they were going to take out the stint and do my - [Steroids day 2 tips to not gain weight](https://multipleexperiences.org/2018/11/08/steroids-day-2-tips-to-not-gain-weight/) - The infusion was slightly painful last night. Painful in the vein not the site of the stint. It made for an uncomfortable hour. That doesn't make me happy going into tonight. However I have one more infusion to go. No matter how much it hurts I will get it done. Hopefully the vein doesn't collapse - [Go fund me](https://multipleexperiences.org/2018/11/02/go-fund-me/) - I’m Jamie. I was diagnosed with Multiple Sclerosis in 1998. I have been lucky that I’ve been able to be on my feet for many years but my time to be in the wheelchair is here. I have been a single mom since my daughter was 7. She was born with a progressive hearing loss. - [Steroids day 1](https://multipleexperiences.org/2018/11/07/steroids-day-1/) - Well unfortunately the nurse didn't get here until after 6pm. I had a heating pad on my arm from 3 on because they said they'd be back by then. I get things happen but why can't you have the common curtesy to call and let someone know. I ended up burning myself I didn't feel - [I’m responsible for what I perceive](https://multipleexperiences.org/2018/11/06/im-responsible-for-what-i-perceive/) - I had an epiphany while reading May Cause Miracles yesterday I decided what I perceive when I look in the mirror. Pretty profound huh? It really shouldn’t of been. I’ve been doing this for a while. A 3 year student of A Course In Miracles this idea is taught everyday. I guess - [A break in the clouds](https://multipleexperiences.org/2018/11/05/a-break-in-the-clouds/) - I woke up early on Saturday morning. I decided to use one of my Zumba cds and exercise in my chair. I use to to stand for the entire work out. Then I'd sit for every other song. It became I'd push through standing for three songs in the beginning and sitting for the rest. - [Steroid infusion set for next week](https://multipleexperiences.org/2018/11/03/steroid-infusion-set-for-next-week/) - I've shared many blogs explaining how things were getting harder for me. My physical therapist, whom I been seeing for over two years, made a recommendation that maybe it's time to try steroids. He is also notice the difference. His thinking was maybe, just maybe, this is actually some flareup of a MS. Maybe a - [National MS Society Invests in Clinical Development of Human Antibody for Progressive forms of MS](https://multipleexperiences.org/2018/11/01/national-ms-society-invests-in-clinical-development-of-human-antibody-for-progressive-forms-of-ms/) - Another great article found in multiple sclerosis news today by Patricia Inacio, PHD. Fast Forward, a nonprofit subsidiary of the National Multiple Sclerosis Society, will invest up to $330,000 to advance the clinical development of an antibody that was shown to lessen inflammation and nerve cell damage in a multiple sclerosis (MS) mouse model. The funding will help - [Permanent handicap spot](https://multipleexperiences.org/2018/10/31/4554/) - I had a condo board meeting yesterday. I love where I live but the condo needs a lot of work. I know they are looking for solutions from the homeowners of how to get that work done. I think that they should combine our assessment loans take out additional funds and just do what needs ## Pages - [Search Results](https://multipleexperiences.org/search_gcse/) - Search Results - [About Me](https://multipleexperiences.org/sample-page/) - Hi I'm Jamie. I am 45 years old. Divorced, proud mom of a 17 year old daughter named Mikayla and two dogs (Boomer, was my 10 year old English bulldog who recently passed away), I currently have Marshmallow, my 8 year old French bulldog and Zoey my French Bulldog puppy. I was diagnosed over 19 ## Categories - [Uncategorized](https://multipleexperiences.org/category/uncategorized/) - [Blog Posts](https://multipleexperiences.org/category/blog-posts/) - [Articles of interest](https://multipleexperiences.org/category/articles-of-interest/) - [Hell NO](https://multipleexperiences.org/category/hell-no/) ## Tags - [Forgiveness](https://multipleexperiences.org/tag/forgiveness/) - [course in miracles](https://multipleexperiences.org/tag/course-in-miracles/) - [spiritual](https://multipleexperiences.org/tag/spiritual/) - [be present](https://multipleexperiences.org/tag/be-present/) - [forget the past](https://multipleexperiences.org/tag/forget-the-past/) - [Love](https://multipleexperiences.org/tag/love/) - [Choosing to forgive](https://multipleexperiences.org/tag/choosing-to-forgive/) - [Forgive](https://multipleexperiences.org/tag/forgive/) - [EFT](https://multipleexperiences.org/tag/eft/) - [tapping](https://multipleexperiences.org/tag/tapping/) - [weight loss](https://multipleexperiences.org/tag/weight-loss/) - 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[ms over 10 years](https://multipleexperiences.org/tag/ms-over-10-years/) - [parenting](https://multipleexperiences.org/tag/parenting/) - [teens driving](https://multipleexperiences.org/tag/teens-driving/) - [first license](https://multipleexperiences.org/tag/first-license/) - [teenage driving](https://multipleexperiences.org/tag/teenage-driving/) - [single mom](https://multipleexperiences.org/tag/single-mom/) - [my teen is now legal to drive](https://multipleexperiences.org/tag/my-teen-is-now-legal-to-drive/) - [acupressure healing](https://multipleexperiences.org/tag/acupressure-healing/) - [alternative medicines](https://multipleexperiences.org/tag/alternative-medicines/) - [alternative healing](https://multipleexperiences.org/tag/alternative-healing/) - [spooning](https://multipleexperiences.org/tag/spooning/) - [healing pressure points](https://multipleexperiences.org/tag/healing-pressure-points/) - [Hair dye](https://multipleexperiences.org/tag/hair-dye/) - [New look](https://multipleexperiences.org/tag/new-look/) - [appearance](https://multipleexperiences.org/tag/appearance/) - [feeling good](https://multipleexperiences.org/tag/feeling-good/) - [looking good](https://multipleexperiences.org/tag/looking-good/) - [hair color](https://multipleexperiences.org/tag/hair-color/) - [diagnosed with MS](https://multipleexperiences.org/tag/diagnosed-with-ms/) - [nice France](https://multipleexperiences.org/tag/nice-france/) - [newly diagnosed](https://multipleexperiences.org/tag/newly-diagnosed/) - [living with multiple sclerosis](https://multipleexperiences.org/tag/living-with-multiple-sclerosis/) - [Microchip](https://multipleexperiences.org/tag/microchip/) - [microchip for kids](https://multipleexperiences.org/tag/microchip-for-kids/) - [microchip for pets](https://multipleexperiences.org/tag/microchip-for-pets/) - [opinion poll](https://multipleexperiences.org/tag/opinion-poll/) - [microchip for kid](https://multipleexperiences.org/tag/microchip-for-kid/) - [weight](https://multipleexperiences.org/tag/weight/) - [weight scale](https://multipleexperiences.org/tag/weight-scale/) - [Synchronicity](https://multipleexperiences.org/tag/synchronicity/) - [law of attraction](https://multipleexperiences.org/tag/law-of-attraction/) - [positive affirmations](https://multipleexperiences.org/tag/positive-affirmations/) - [positive thinking](https://multipleexperiences.org/tag/positive-thinking/) - [joy](https://multipleexperiences.org/tag/joy/) - [Wayne dyer](https://multipleexperiences.org/tag/wayne-dyer/) - [the Secret](https://multipleexperiences.org/tag/the-secret/) - [laws of attraction](https://multipleexperiences.org/tag/laws-of-attraction/) - [chronic disease](https://multipleexperiences.org/tag/chronic-disease/) - [living with a chronic disease](https://multipleexperiences.org/tag/living-with-a-chronic-disease/) - [neurological disease](https://multipleexperiences.org/tag/neurological-disease/) - [bad mood](https://multipleexperiences.org/tag/bad-mood/) - [say no](https://multipleexperiences.org/tag/say-no/) - [ms treatments](https://multipleexperiences.org/tag/ms-treatments/) - [treatments for ms](https://multipleexperiences.org/tag/treatments-for-ms/) - [diet](https://multipleexperiences.org/tag/diet/) - [exercise](https://multipleexperiences.org/tag/exercise/) - [yoga](https://multipleexperiences.org/tag/yoga/) - [yoga for ms](https://multipleexperiences.org/tag/yoga-for-ms/) - [Medicaid](https://multipleexperiences.org/tag/medicaid/) - [NYS Medicaid](https://multipleexperiences.org/tag/nys-medicaid/) - [insurance](https://multipleexperiences.org/tag/insurance/) - [Medicaid question](https://multipleexperiences.org/tag/medicaid-question/) - [pooled trust](https://multipleexperiences.org/tag/pooled-trust/) - [Medicaid eligibility](https://multipleexperiences.org/tag/medicaid-eligibility/) - [Medicare](https://multipleexperiences.org/tag/medicare/) - [ACIM](https://multipleexperiences.org/tag/acim/) - [Marianne Williamson](https://multipleexperiences.org/tag/marianne-williamson/) - [neurologist test for ms](https://multipleexperiences.org/tag/neurologist-test-for-ms/) - [fatigue](https://multipleexperiences.org/tag/fatigue/) - [ms fatigue](https://multipleexperiences.org/tag/ms-fatigue/) - [Meditation](https://multipleexperiences.org/tag/meditation/) - [benefits of meditation](https://multipleexperiences.org/tag/benefits-of-meditation/) - [mini meditation](https://multipleexperiences.org/tag/mini-meditation/) - [breathing techniques](https://multipleexperiences.org/tag/breathing-techniques/) - [relaxation](https://multipleexperiences.org/tag/relaxation/) - [relaxing tips](https://multipleexperiences.org/tag/relaxing-tips/) - [relaxing techniques](https://multipleexperiences.org/tag/relaxing-techniques/) - [Crying](https://multipleexperiences.org/tag/crying/) - [fair hearings](https://multipleexperiences.org/tag/fair-hearings/) - [Wordpress](https://multipleexperiences.org/tag/wordpress/) - [Ipage](https://multipleexperiences.org/tag/ipage/) - [computer coding](https://multipleexperiences.org/tag/computer-coding/) - [blogging](https://multipleexperiences.org/tag/blogging/) - [life coach](https://multipleexperiences.org/tag/life-coach/) - [master cleanse](https://multipleexperiences.org/tag/master-cleanse/) - [juicing](https://multipleexperiences.org/tag/juicing/) - [detox](https://multipleexperiences.org/tag/detox/) - [juicing detox](https://multipleexperiences.org/tag/juicing-detox/) - [mom](https://multipleexperiences.org/tag/mom/) - [teenager](https://multipleexperiences.org/tag/teenager/) - [Happy feelings](https://multipleexperiences.org/tag/happy-feelings/) - [good vibrations](https://multipleexperiences.org/tag/good-vibrations/) - [Sunday lazy day](https://multipleexperiences.org/tag/sunday-lazy-day/) - [beachbody](https://multipleexperiences.org/tag/beachbody/) - [Chalene extreme](https://multipleexperiences.org/tag/chalene-extreme/) - [Self image](https://multipleexperiences.org/tag/self-image/) - [self confidence](https://multipleexperiences.org/tag/self-confidence/) - [self esteem](https://multipleexperiences.org/tag/self-esteem/) - [posi](https://multipleexperiences.org/tag/posi/) - [Positive thoughts](https://multipleexperiences.org/tag/positive-thoughts/) - [Pet safety](https://multipleexperiences.org/tag/pet-safety/) - [tropical storm Hermine](https://multipleexperiences.org/tag/tropical-storm-hermine/) - [volunteer](https://multipleexperiences.org/tag/volunteer/) - [animals](https://multipleexperiences.org/tag/animals/) - [animal shelter](https://multipleexperiences.org/tag/animal-shelter/) - [natural disaster](https://multipleexperiences.org/tag/natural-disaster/) - [spca](https://multipleexperiences.org/tag/spca/) - [relationships](https://multipleexperiences.org/tag/relationships/) - [past relationships](https://multipleexperiences.org/tag/past-relationships/) - [High school](https://multipleexperiences.org/tag/high-school/) - [teenagers](https://multipleexperiences.org/tag/teenagers/) - [high school senior](https://multipleexperiences.org/tag/high-school-senior/) - [Law of the universe](https://multipleexperiences.org/tag/law-of-the-universe/) - [EVAS](https://multipleexperiences.org/tag/evas/) - [enlarged vestibular aqueduct syndrome](https://multipleexperiences.org/tag/enlarged-vestibular-aqueduct-syndrome/) - [cochlear implants](https://multipleexperiences.org/tag/cochlear-implants/) - [numerology](https://multipleexperiences.org/tag/numerology/) - [spiritual numbers](https://multipleexperiences.org/tag/spiritual-numbers/) - [Angel numbers](https://multipleexperiences.org/tag/angel-numbers/) - [Letting go of friends](https://multipleexperiences.org/tag/letting-go-of-friends/) - [letting go](https://multipleexperiences.org/tag/letting-go/) - [sadness](https://multipleexperiences.org/tag/sadness/) - [hurt](https://multipleexperiences.org/tag/hurt/) - [breakups](https://multipleexperiences.org/tag/breakups/) - [depression](https://multipleexperiences.org/tag/depression/) - [Acceptance](https://multipleexperiences.org/tag/acceptance/) - [Humor](https://multipleexperiences.org/tag/humor/) - [life quotes](https://multipleexperiences.org/tag/life-quotes/) - [happy Friday](https://multipleexperiences.org/tag/happy-friday/) - [getting older](https://multipleexperiences.org/tag/getting-older/) - [9/11](https://multipleexperiences.org/tag/911/) - [never forget](https://multipleexperiences.org/tag/never-forget/) - [September 11](https://multipleexperiences.org/tag/september-11/) - [over](https://multipleexperiences.org/tag/over/) - [handicapped](https://multipleexperiences.org/tag/handicapped/) - [Life is a gift](https://multipleexperiences.org/tag/life-is-a-gift/) - [thankful](https://multipleexperiences.org/tag/thankful/) - [appreciated](https://multipleexperiences.org/tag/appreciated/) - [life](https://multipleexperiences.org/tag/life/) - [heroes](https://multipleexperiences.org/tag/heroes/) - [deaf](https://multipleexperiences.org/tag/deaf/) - [children with cochlear implants](https://multipleexperiences.org/tag/children-with-cochlear-implants/) - [steroids](https://multipleexperiences.org/tag/steroids/) - [Rituxan](https://multipleexperiences.org/tag/rituxan/) - [Passion](https://multipleexperiences.org/tag/passion/) - [foster dogs](https://multipleexperiences.org/tag/foster-dogs/) - [dog rescue](https://multipleexperiences.org/tag/dog-rescue/) - [dog hospice](https://multipleexperiences.org/tag/dog-hospice/) - [disability](https://multipleexperiences.org/tag/disability/) - [disabled](https://multipleexperiences.org/tag/disabled/) - [follow your dream](https://multipleexperiences.org/tag/follow-your-dream/) - [Mul](https://multipleexperiences.org/tag/mul/) - [ms humor](https://multipleexperiences.org/tag/ms-humor/) - [fall](https://multipleexperiences.org/tag/fall/) - [love of fall](https://multipleexperiences.org/tag/love-of-fall/) - [smell of fall](https://multipleexperiences.org/tag/smell-of-fall/) - [pumpkin](https://multipleexperiences.org/tag/pumpkin/) - [scarecrow](https://multipleexperiences.org/tag/scarecrow/) - [fireplace](https://multipleexperiences.org/tag/fireplace/) - [crisp weather](https://multipleexperiences.org/tag/crisp-weather/) - [Autumn](https://multipleexperiences.org/tag/autumn/) - [U2](https://multipleexperiences.org/tag/u2/) - [Bono](https://multipleexperiences.org/tag/bono/) - [Larry](https://multipleexperiences.org/tag/larry/) - [the edge](https://multipleexperiences.org/tag/the-edge/) - [Adam](https://multipleexperiences.org/tag/adam/) - [fan](https://multipleexperiences.org/tag/fan/) - [candy store](https://multipleexperiences.org/tag/candy-store/) - [toast & co](https://multipleexperiences.org/tag/toast-co/) - [candy](https://multipleexperiences.org/tag/candy/) - [Long Island bulldog rescue](https://multipleexperiences.org/tag/long-island-bulldog-rescue/) - [fostering a dog](https://multipleexperiences.org/tag/fostering-a-dog/) - [bulldog](https://multipleexperiences.org/tag/bulldog/) - [French bulldog](https://multipleexperiences.org/tag/french-bulldog/) - [a return to love](https://multipleexperiences.org/tag/a-return-to-love/) - [heartache](https://multipleexperiences.org/tag/heartache/) - [loss of loved one](https://multipleexperiences.org/tag/loss-of-loved-one/) - [letting go of a loved one](https://multipleexperiences.org/tag/letting-go-of-a-loved-one/) - [children](https://multipleexperiences.org/tag/children/) - [daughter](https://multipleexperiences.org/tag/daughter/) - [manifesting](https://multipleexperiences.org/tag/manifesting/) - [manifesting money](https://multipleexperiences.org/tag/manifesting-money/) - [abundance](https://multipleexperiences.org/tag/abundance/) - [believe](https://multipleexperiences.org/tag/believe/) - [God](https://multipleexperiences.org/tag/god/) - [Budda](https://multipleexperiences.org/tag/budda/) - [Jesus](https://multipleexperiences.org/tag/jesus/) - [inner guide](https://multipleexperiences.org/tag/inner-guide/) - [spirit](https://multipleexperiences.org/tag/spirit/) - [religion](https://multipleexperiences.org/tag/religion/) - [religious beliefs](https://multipleexperiences.org/tag/religious-beliefs/) - [Dating with multiple sclerosis](https://multipleexperiences.org/tag/dating-with-multiple-sclerosis/) - [mercury poisoning](https://multipleexperiences.org/tag/mercury-poisoning/) - [causes of multiple sclerosis](https://multipleexperiences.org/tag/causes-of-multiple-sclerosis/) - [causes of MS](https://multipleexperiences.org/tag/causes-of-ms/) - [MS news](https://multipleexperiences.org/tag/ms-news/) - [dieting](https://multipleexperiences.org/tag/dieting/) - [Ms drug therapies](https://multipleexperiences.org/tag/ms-drug-therapies/) - [ms accommodation](https://multipleexperiences.org/tag/ms-accommodation/) - [social security disability](https://multipleexperiences.org/tag/social-security-disability/) - [benefits](https://multipleexperiences.org/tag/benefits/) - [Gratitude](https://multipleexperiences.org/tag/gratitude/) - [the whale](https://multipleexperiences.org/tag/the-whale/) - [appreciation](https://multipleexperiences.org/tag/appreciation/) - [Compassion](https://multipleexperiences.org/tag/compassion/) - [happy tears](https://multipleexperiences.org/tag/happy-tears/) - [happiness for others](https://multipleexperiences.org/tag/happiness-for-others/) - [side effects of multiple sclerosis](https://multipleexperiences.org/tag/side-effects-of-multiple-sclerosis/) - [Incontinence](https://multipleexperiences.org/tag/incontinence/) - [bladder problems and MS](https://multipleexperiences.org/tag/bladder-problems-and-ms/) - [overactive bladder](https://multipleexperiences.org/tag/overactive-bladder/) - [ms doctors](https://multipleexperiences.org/tag/ms-doctors/) - [ms neurologist](https://multipleexperiences.org/tag/ms-neurologist/) - [newly diagnosed with multiple sclerosis](https://multipleexperiences.org/tag/newly-diagnosed-with-multiple-sclerosis/) - [newly diagnosed with MS](https://multipleexperiences.org/tag/newly-diagnosed-with-ms/) - [assistive devices for MS](https://multipleexperiences.org/tag/assistive-devices-for-ms/) - [Neurologists](https://multipleexperiences.org/tag/neurologists/) - [AFO](https://multipleexperiences.org/tag/afo/) - [handicap parking](https://multipleexperiences.org/tag/handicap-parking/) - [handicapped parking permit](https://multipleexperiences.org/tag/handicapped-parking-permit/) - [handicap parking spot](https://multipleexperiences.org/tag/handicap-parking-spot/) - [family](https://multipleexperiences.org/tag/family/) - [perfect Sunday](https://multipleexperiences.org/tag/perfect-sunday/) - [quaint town](https://multipleexperiences.org/tag/quaint-town/) - [happy day](https://multipleexperiences.org/tag/happy-day/) - [Pancakes](https://multipleexperiences.org/tag/pancakes/) - [Sunday afternoon](https://multipleexperiences.org/tag/sunday-afternoon/) - [High dose biotin](https://multipleexperiences.org/tag/high-dose-biotin/) - [biotin and ms](https://multipleexperiences.org/tag/biotin-and-ms/) - [ms lack of sleep](https://multipleexperiences.org/tag/ms-lack-of-sleep/) - [insomnia and ms](https://multipleexperiences.org/tag/insomnia-and-ms/) - [a choice](https://multipleexperiences.org/tag/a-choice/) - [Apple Store](https://multipleexperiences.org/tag/apple-store/) - [iPhone](https://multipleexperiences.org/tag/iphone/) - [Verizon](https://multipleexperiences.org/tag/verizon/) - [verizon authorized dealer](https://multipleexperiences.org/tag/verizon-authorized-dealer/) - [positive choice](https://multipleexperiences.org/tag/positive-choice/) - [dancing](https://multipleexperiences.org/tag/dancing/) - [Life without dancing](https://multipleexperiences.org/tag/life-without-dancing/) - [fibromyalgia](https://multipleexperiences.org/tag/fibromyalgia/) - [being alone](https://multipleexperiences.org/tag/being-alone/) - [loving yourself](https://multipleexperiences.org/tag/loving-yourself/) - [low self esteem](https://multipleexperiences.org/tag/low-self-esteem/) - [friendship](https://multipleexperiences.org/tag/friendship/) - [Understanding a chronic disease](https://multipleexperiences.org/tag/understanding-a-chronic-disease/) - [Halloween](https://multipleexperiences.org/tag/halloween/) - [leg twitches](https://multipleexperiences.org/tag/leg-twitches/) - [ms diet](https://multipleexperiences.org/tag/ms-diet/) - [plant based diet](https://multipleexperiences.org/tag/plant-based-diet/) - [overcoming multiple sclerosis](https://multipleexperiences.org/tag/overcoming-multiple-sclerosis/) - [drama free](https://multipleexperiences.org/tag/drama-free/) - [past loves](https://multipleexperiences.org/tag/past-loves/) - [one relationship](https://multipleexperiences.org/tag/one-relationship/) - [animal lover](https://multipleexperiences.org/tag/animal-lover/) - [dog owner](https://multipleexperiences.org/tag/dog-owner/) - [English bulldog](https://multipleexperiences.org/tag/english-bulldog/) - [fate vs free will](https://multipleexperiences.org/tag/fate-vs-free-will/) - [fate](https://multipleexperiences.org/tag/fate/) - [free will](https://multipleexperiences.org/tag/free-will/) - [Destiny](https://multipleexperiences.org/tag/destiny/) - [ms blog](https://multipleexperiences.org/tag/ms-blog/) - [uses of a cucumber](https://multipleexperiences.org/tag/uses-of-a-cucumber/) - [Cellulite](https://multipleexperiences.org/tag/cellulite/) - [pests in the garden](https://multipleexperiences.org/tag/pests-in-the-garden/) - [Hangover](https://multipleexperiences.org/tag/hangover/) - [wd40](https://multipleexperiences.org/tag/wd40/) - [college essay](https://multipleexperiences.org/tag/college-essay/) - [grateful](https://multipleexperiences.org/tag/grateful/) - [powerless feelings](https://multipleexperiences.org/tag/powerless-feelings/) - [election results](https://multipleexperiences.org/tag/election-results/) - [disappointment in election](https://multipleexperiences.org/tag/disappointment-in-election/) - [lack of sleep](https://multipleexperiences.org/tag/lack-of-sleep/) - [obamacare](https://multipleexperiences.org/tag/obamacare/) - [trump healthcare policies](https://multipleexperiences.org/tag/trump-healthcare-policies/) - [copay](https://multipleexperiences.org/tag/copay/) - [Insurance copays](https://multipleexperiences.org/tag/insurance-copays/) - [ms driving](https://multipleexperiences.org/tag/ms-driving/) - [brake hold feature](https://multipleexperiences.org/tag/brake-hold-feature/) - [friday](https://multipleexperiences.org/tag/friday/) - [college acceptance](https://multipleexperiences.org/tag/college-acceptance/) - [Sunday](https://multipleexperiences.org/tag/sunday/) - [magic bank account](https://multipleexperiences.org/tag/magic-bank-account/) - [86400 minutes in a day](https://multipleexperiences.org/tag/86400-minutes-in-a-day/) - [Ms physical therapy](https://multipleexperiences.org/tag/ms-physical-therapy/) - [happiness](https://multipleexperiences.org/tag/happiness/) - [ms grands](https://multipleexperiences.org/tag/ms-grands/) - [NMSS](https://multipleexperiences.org/tag/nmss/) - [ms foundation](https://multipleexperiences.org/tag/ms-foundation/) - [ms bike grant](https://multipleexperiences.org/tag/ms-bike-grant/) - [stairlifts](https://multipleexperiences.org/tag/stairlifts/) - [Ms association of America](https://multipleexperiences.org/tag/ms-association-of-america/) - [her future](https://multipleexperiences.org/tag/her-future/) - [fear or love](https://multipleexperiences.org/tag/fear-or-love/) - [datinh](https://multipleexperiences.org/tag/datinh/) - [tattoo](https://multipleexperiences.org/tag/tattoo/) - [u2 war](https://multipleexperiences.org/tag/u2-war/) - [Alter ego](https://multipleexperiences.org/tag/alter-ego/) - [dog run](https://multipleexperiences.org/tag/dog-run/) - [training dogs](https://multipleexperiences.org/tag/training-dogs/) - [apartment dogs](https://multipleexperiences.org/tag/apartment-dogs/) - [Ms struggle](https://multipleexperiences.org/tag/ms-struggle/) - [My birthday](https://multipleexperiences.org/tag/my-birthday/) - [1122 angel number](https://multipleexperiences.org/tag/1122-angel-number/) - [astrological meaning of birthday](https://multipleexperiences.org/tag/astrological-meaning-of-birthday/) - [zodiac sign](https://multipleexperiences.org/tag/zodiac-sign/) - [Scorpio](https://multipleexperiences.org/tag/scorpio/) - [Sagittarius](https://multipleexperiences.org/tag/sagittarius/) - [cusp](https://multipleexperiences.org/tag/cusp/) - [zodiac cusp](https://multipleexperiences.org/tag/zodiac-cusp/) - [Star Wars](https://multipleexperiences.org/tag/star-wars/) - [The Empire Strikes Bake](https://multipleexperiences.org/tag/the-empire-strikes-bake/) - [Luke Skywalker](https://multipleexperiences.org/tag/luke-skywalker/) - [Princess Leia](https://multipleexperiences.org/tag/princess-leia/) - [Han Soli](https://multipleexperiences.org/tag/han-soli/) - [Millennium Falcon](https://multipleexperiences.org/tag/millennium-falcon/) - [Yoda](https://multipleexperiences.org/tag/yoda/) - [Happy thanksgiving](https://multipleexperiences.org/tag/happy-thanksgiving/) - [ego](https://multipleexperiences.org/tag/ego/) - [ego mind](https://multipleexperiences.org/tag/ego-mind/) - [ego thinking](https://multipleexperiences.org/tag/ego-thinking/) - [Red](https://multipleexperiences.org/tag/red/) - [watch you crawl](https://multipleexperiences.org/tag/watch-you-crawl/) - [ms and sex](https://multipleexperiences.org/tag/ms-and-sex/) - [sexual function and ms](https://multipleexperiences.org/tag/sexual-function-and-ms/) - [Sexual problems with ms](https://multipleexperiences.org/tag/sexual-problems-with-ms/) - [insurance issues](https://multipleexperiences.org/tag/insurance-issues/) - [emblem health](https://multipleexperiences.org/tag/emblem-health/) - [referrals](https://multipleexperiences.org/tag/referrals/) - [authorizations](https://multipleexperiences.org/tag/authorizations/) - [dropped insurance](https://multipleexperiences.org/tag/dropped-insurance/) - [NYS Medicaid choice](https://multipleexperiences.org/tag/nys-medicaid-choice/) - [Medicaid recertification](https://multipleexperiences.org/tag/medicaid-recertification/) - [vegan](https://multipleexperiences.org/tag/vegan/) - [57 reasons why vegan is healthy](https://multipleexperiences.org/tag/57-reasons-why-vegan-is-healthy/) - [blog](https://multipleexperiences.org/tag/blog/) - [bloggers](https://multipleexperiences.org/tag/bloggers/) - [blogging tips](https://multipleexperiences.org/tag/blogging-tips/) - [Flipboard](https://multipleexperiences.org/tag/flipboard/) - [57 reasons to become vegan](https://multipleexperiences.org/tag/57-reasons-to-become-vegan/) - [true dog lover](https://multipleexperiences.org/tag/true-dog-lover/) - [Flipboard how to](https://multipleexperiences.org/tag/flipboard-how-to/) - [what is Flipboard](https://multipleexperiences.org/tag/what-is-flipboard/) - [medical alert](https://multipleexperiences.org/tag/medical-alert/) - [Amazon echo](https://multipleexperiences.org/tag/amazon-echo/) - [IFTTT](https://multipleexperiences.org/tag/ifttt/) - [help](https://multipleexperiences.org/tag/help/) - [SOS](https://multipleexperiences.org/tag/sos/) - [false alarm](https://multipleexperiences.org/tag/false-alarm/) - [low blood pressure](https://multipleexperiences.org/tag/low-blood-pressure/) - [cochlear implant](https://multipleexperiences.org/tag/cochlear-implant/) - [Emergency call](https://multipleexperiences.org/tag/emergency-call/) - [companions](https://multipleexperiences.org/tag/companions/) - [ms depression](https://multipleexperiences.org/tag/ms-depression/) - [dream big](https://multipleexperiences.org/tag/dream-big/) - [be specific](https://multipleexperiences.org/tag/be-specific/) - [ask the universe](https://multipleexperiences.org/tag/ask-the-universe/) - [manifest miracles](https://multipleexperiences.org/tag/manifest-miracles/) - [miracles](https://multipleexperiences.org/tag/miracles/) - [college](https://multipleexperiences.org/tag/college/) - [daughter going to college](https://multipleexperiences.org/tag/daughter-going-to-college/) - [ms relapse](https://multipleexperiences.org/tag/ms-relapse/) - [first love](https://multipleexperiences.org/tag/first-love/) - [mother and daughter](https://multipleexperiences.org/tag/mother-and-daughter/) - [working with ms](https://multipleexperiences.org/tag/working-with-ms/) - [Ms facts and myths](https://multipleexperiences.org/tag/ms-facts-and-myths/) - [ms gait difficulties](https://multipleexperiences.org/tag/ms-gait-difficulties/) - [ms weakness](https://multipleexperiences.org/tag/ms-weakness/) - [ms numbness](https://multipleexperiences.org/tag/ms-numbness/) - [ms checkup](https://multipleexperiences.org/tag/ms-checkup/) - [Good luck](https://multipleexperiences.org/tag/good-luck/) - [wish me luck](https://multipleexperiences.org/tag/wish-me-luck/) - [changing themes](https://multipleexperiences.org/tag/changing-themes/) - [veestro](https://multipleexperiences.org/tag/veestro/) - [Hungryroot](https://multipleexperiences.org/tag/hungryroot/) - [aerogarden](https://multipleexperiences.org/tag/aerogarden/) - [almond milk](https://multipleexperiences.org/tag/almond-milk/) - [coconut milk](https://multipleexperiences.org/tag/coconut-milk/) - [coffee](https://multipleexperiences.org/tag/coffee/) - [half n half](https://multipleexperiences.org/tag/half-n-half/) - [Terra kitchen](https://multipleexperiences.org/tag/terra-kitchen/) - [food delivery services](https://multipleexperiences.org/tag/food-delivery-services/) - [tagging](https://multipleexperiences.org/tag/tagging/) - [daily](https://multipleexperiences.org/tag/daily/) - [Stats](https://multipleexperiences.org/tag/stats/) - [Seo](https://multipleexperiences.org/tag/seo/) - [blogger](https://multipleexperiences.org/tag/blogger/) - [following](https://multipleexperiences.org/tag/following/) - [blog post](https://multipleexperiences.org/tag/blog-post/) - [blog exposure](https://multipleexperiences.org/tag/blog-exposure/) - [Increase traffic](https://multipleexperiences.org/tag/increase-traffic/) - [meet and greet](https://multipleexperiences.org/tag/meet-and-greet/) - [dreaming](https://multipleexperiences.org/tag/dreaming/) - [i will follow](https://multipleexperiences.org/tag/i-will-follow/) - [New Year's Day](https://multipleexperiences.org/tag/new-years-day/) - [mans best friend](https://multipleexperiences.org/tag/mans-best-friend/) - [Mellow dog](https://multipleexperiences.org/tag/mellow-dog/) - [bad dog](https://multipleexperiences.org/tag/bad-dog/) - [Alpha Lipoic acid](https://multipleexperiences.org/tag/alpha-lipoic-acid/) - [research on ms](https://multipleexperiences.org/tag/research-on-ms/) - [ms alternative treatments](https://multipleexperiences.org/tag/ms-alternative-treatments/) - [Green thumb](https://multipleexperiences.org/tag/green-thumb/) - [black thumb](https://multipleexperiences.org/tag/black-thumb/) - [hydroponic](https://multipleexperiences.org/tag/hydroponic/) - [growing lettuce](https://multipleexperiences.org/tag/growing-lettuce/) - [growing tomatoes](https://multipleexperiences.org/tag/growing-tomatoes/) - [killing cacti](https://multipleexperiences.org/tag/killing-cacti/) - [killing plants](https://multipleexperiences.org/tag/killing-plants/) - [how to care for plants](https://multipleexperiences.org/tag/how-to-care-for-plants/) - [when to feed plants](https://multipleexperiences.org/tag/when-to-feed-plants/) - [when to water plants](https://multipleexperiences.org/tag/when-to-water-plants/) - [ms future](https://multipleexperiences.org/tag/ms-future/) - [ms aids](https://multipleexperiences.org/tag/ms-aids/) - [exhausted](https://multipleexperiences.org/tag/exhausted/) - [Insurance coverage](https://multipleexperiences.org/tag/insurance-coverage/) - [qualify for aid](https://multipleexperiences.org/tag/qualify-for-aid/) - [sad](https://multipleexperiences.org/tag/sad/) - [universe](https://multipleexperiences.org/tag/universe/) - [ms fall](https://multipleexperiences.org/tag/ms-fall/) - [lavender](https://multipleexperiences.org/tag/lavender/) - [broken vase](https://multipleexperiences.org/tag/broken-vase/) - [future tripping](https://multipleexperiences.org/tag/future-tripping/) - [Sad moments](https://multipleexperiences.org/tag/sad-moments/) - [New year resolutions](https://multipleexperiences.org/tag/new-year-resolutions/) - [revelations](https://multipleexperiences.org/tag/revelations/) - [emotional energy](https://multipleexperiences.org/tag/emotional-energy/) - [calm](https://multipleexperiences.org/tag/calm/) - [New Years reflection](https://multipleexperiences.org/tag/new-years-reflection/) - [Faith](https://multipleexperiences.org/tag/faith/) - [hope](https://multipleexperiences.org/tag/hope/) - [ms reactions](https://multipleexperiences.org/tag/ms-reactions/) - [ms symptoms reactions](https://multipleexperiences.org/tag/ms-symptoms-reactions/) - [dog alopecia](https://multipleexperiences.org/tag/dog-alopecia/) - [bulldog ear infection](https://multipleexperiences.org/tag/bulldog-ear-infection/) - [dog eye infection](https://multipleexperiences.org/tag/dog-eye-infection/) - [dog skin infection](https://multipleexperiences.org/tag/dog-skin-infection/) - [Cortisone shots](https://multipleexperiences.org/tag/cortisone-shots/) - [shoulder tendinitis](https://multipleexperiences.org/tag/shoulder-tendinitis/) - [back arthritis](https://multipleexperiences.org/tag/back-arthritis/) - [knee arthritis](https://multipleexperiences.org/tag/knee-arthritis/) - [junior arthritis](https://multipleexperiences.org/tag/junior-arthritis/) - [vegetarian](https://multipleexperiences.org/tag/vegetarian/) - [forks over knives](https://multipleexperiences.org/tag/forks-over-knives/) - [losing weight](https://multipleexperiences.org/tag/losing-weight/) - [healthy eating](https://multipleexperiences.org/tag/healthy-eating/) - [Flipboard recipes](https://multipleexperiences.org/tag/flipboard-recipes/) - [vegan recipes](https://multipleexperiences.org/tag/vegan-recipes/) - [vitamin d and ms](https://multipleexperiences.org/tag/vitamin-d-and-ms/) - [Vitamin D](https://multipleexperiences.org/tag/vitamin-d/) - [multiple sclerosis relapse](https://multipleexperiences.org/tag/multiple-sclerosis-relapse/) - [Tired](https://multipleexperiences.org/tag/tired/) - [I told you so](https://multipleexperiences.org/tag/i-told-you-so/) - [commitment](https://multipleexperiences.org/tag/commitment/) - [cold outside](https://multipleexperiences.org/tag/cold-outside/) - [rest](https://multipleexperiences.org/tag/rest/) - [relax](https://multipleexperiences.org/tag/relax/) - [gilenya](https://multipleexperiences.org/tag/gilenya/) - [Tysabri](https://multipleexperiences.org/tag/tysabri/) - [betaseron](https://multipleexperiences.org/tag/betaseron/) - [relapsing-remitting](https://multipleexperiences.org/tag/relapsing-remitting/) - [christmas](https://multipleexperiences.org/tag/christmas/) - [Chanukah](https://multipleexperiences.org/tag/chanukah/) - [holidays](https://multipleexperiences.org/tag/holidays/) - [holiday weekend](https://multipleexperiences.org/tag/holiday-weekend/) - [party](https://multipleexperiences.org/tag/party/) - [rogue one](https://multipleexperiences.org/tag/rogue-one/) - [brunch](https://multipleexperiences.org/tag/brunch/) - [Holiday](https://multipleexperiences.org/tag/holiday/) - [driving](https://multipleexperiences.org/tag/driving/) - [holiday traffic](https://multipleexperiences.org/tag/holiday-traffic/) - [holiday party](https://multipleexperiences.org/tag/holiday-party/) - [Woodstock](https://multipleexperiences.org/tag/woodstock/) - [bethel](https://multipleexperiences.org/tag/bethel/) - [latte](https://multipleexperiences.org/tag/latte/) - [view](https://multipleexperiences.org/tag/view/) - [happy](https://multipleexperiences.org/tag/happy/) - [beautiful](https://multipleexperiences.org/tag/beautiful/) - [Christmas humor](https://multipleexperiences.org/tag/christmas-humor/) - [Christmas Day](https://multipleexperiences.org/tag/christmas-day/) - [passing of a pet](https://multipleexperiences.org/tag/passing-of-a-pet/) - [the rainbow bridge](https://multipleexperiences.org/tag/the-rainbow-bridge/) - [heart broken](https://multipleexperiences.org/tag/heart-broken/) - [love of an animal](https://multipleexperiences.org/tag/love-of-an-animal/) - [loss](https://multipleexperiences.org/tag/loss/) - [losing a pet](https://multipleexperiences.org/tag/losing-a-pet/) - [pain](https://multipleexperiences.org/tag/pain/) - [foster dog](https://multipleexperiences.org/tag/foster-dog/) - [divorce](https://multipleexperiences.org/tag/divorce/) - [separation](https://multipleexperiences.org/tag/separation/) - [death of a pet](https://multipleexperiences.org/tag/death-of-a-pet/) - [pet lover](https://multipleexperiences.org/tag/pet-lover/) - [dog lover](https://multipleexperiences.org/tag/dog-lover/) - [Loss of a pet](https://multipleexperiences.org/tag/loss-of-a-pet/) - [broken heart](https://multipleexperiences.org/tag/broken-heart/) - [rainbow bridge](https://multipleexperiences.org/tag/rainbow-bridge/) - [French bulldog puppy](https://multipleexperiences.org/tag/french-bulldog-puppy/) - [rice cooker](https://multipleexperiences.org/tag/rice-cooker/) - [vegan bean soup](https://multipleexperiences.org/tag/vegan-bean-soup/) - [New Year's Eve](https://multipleexperiences.org/tag/new-years-eve/) - [letter to universe](https://multipleexperiences.org/tag/letter-to-universe/) - [regrets](https://multipleexperiences.org/tag/regrets/) - [atonement](https://multipleexperiences.org/tag/atonement/) - [apologies](https://multipleexperiences.org/tag/apologies/) - [resolution](https://multipleexperiences.org/tag/resolution/) - [Revolution](https://multipleexperiences.org/tag/revolution/) - [2016](https://multipleexperiences.org/tag/2016/) - [2017](https://multipleexperiences.org/tag/2017/) - [3rd party trust](https://multipleexperiences.org/tag/3rd-party-trust/) - [U2 New Year's Day](https://multipleexperiences.org/tag/u2-new-years-day/) - [USA remix](https://multipleexperiences.org/tag/usa-remix/) - [u2 lyrics](https://multipleexperiences.org/tag/u2-lyrics/) - [normal life](https://multipleexperiences.org/tag/normal-life/) - [going back to normal](https://multipleexperiences.org/tag/going-back-to-normal/) - [routine](https://multipleexperiences.org/tag/routine/) - [daily routine](https://multipleexperiences.org/tag/daily-routine/) - [Alzheimer's](https://multipleexperiences.org/tag/alzheimers/) - [dementia](https://multipleexperiences.org/tag/dementia/) - [ace pharmacy](https://multipleexperiences.org/tag/ace-pharmacy/) - [Ocrelizumab](https://multipleexperiences.org/tag/ocrelizumab/) - [Zumba](https://multipleexperiences.org/tag/zumba/) - [new puppy](https://multipleexperiences.org/tag/new-puppy/) - [loss of a dog](https://multipleexperiences.org/tag/loss-of-a-dog/) - [life goes on](https://multipleexperiences.org/tag/life-goes-on/) - [Ms and exercise](https://multipleexperiences.org/tag/ms-and-exercise/) - [Dogs ashes](https://multipleexperiences.org/tag/dogs-ashes/) - [daily life with ms](https://multipleexperiences.org/tag/daily-life-with-ms/) - [difficulties with ms](https://multipleexperiences.org/tag/difficulties-with-ms/) - [Cold with MS](https://multipleexperiences.org/tag/cold-with-ms/) - [limbs fatigue](https://multipleexperiences.org/tag/limbs-fatigue/) - [laryngitis](https://multipleexperiences.org/tag/laryngitis/) - [Hsn](https://multipleexperiences.org/tag/hsn/) - [soft and cozy bedding](https://multipleexperiences.org/tag/soft-and-cozy-bedding/) - [coincidence](https://multipleexperiences.org/tag/coincidence/) - [fate vs coincidence](https://multipleexperiences.org/tag/fate-vs-coincidence/) - [lost](https://multipleexperiences.org/tag/lost/) - [tv show lost](https://multipleexperiences.org/tag/tv-show-lost/) - [Losing a dog](https://multipleexperiences.org/tag/losing-a-dog/) - [Belief in fate](https://multipleexperiences.org/tag/belief-in-fate/) - [grace](https://multipleexperiences.org/tag/grace/) - [unconditional love](https://multipleexperiences.org/tag/unconditional-love/) - [loyalty](https://multipleexperiences.org/tag/loyalty/) - [unconditional love of a dog](https://multipleexperiences.org/tag/unconditional-love-of-a-dog/) - [Tony Horton](https://multipleexperiences.org/tag/tony-horton/) - [Chalene Johnson](https://multipleexperiences.org/tag/chalene-johnson/) - [Turbo fire](https://multipleexperiences.org/tag/turbo-fire/) - [P90X](https://multipleexperiences.org/tag/p90x/) - [P90](https://multipleexperiences.org/tag/p90/) - [P90X2](https://multipleexperiences.org/tag/p90x2/) - [P90X3](https://multipleexperiences.org/tag/p90x3/) - [22minute hardcore](https://multipleexperiences.org/tag/22minute-hardcore/) - [adapt](https://multipleexperiences.org/tag/adapt/) - [modifiy](https://multipleexperiences.org/tag/modifiy/) - [ghosts](https://multipleexperiences.org/tag/ghosts/) - [strange noises](https://multipleexperiences.org/tag/strange-noises/) - [haunted](https://multipleexperiences.org/tag/haunted/) - [spirits](https://multipleexperiences.org/tag/spirits/) - [scared](https://multipleexperiences.org/tag/scared/) - [howling](https://multipleexperiences.org/tag/howling/) - [Things that go bump in the night](https://multipleexperiences.org/tag/things-that-go-bump-in-the-night/) - [biotin](https://multipleexperiences.org/tag/biotin/) - [stress triggers ms](https://multipleexperiences.org/tag/stress-triggers-ms/) - [stress and ms](https://multipleexperiences.org/tag/stress-and-ms/) - [Rituximab](https://multipleexperiences.org/tag/rituximab/) - [multiple sclerosis news](https://multipleexperiences.org/tag/multiple-sclerosis-news/) - [genetech](https://multipleexperiences.org/tag/genetech/) - [Fad drug approval](https://multipleexperiences.org/tag/fad-drug-approval/) - [Clinical trials](https://multipleexperiences.org/tag/clinical-trials/) - [Dr Roy Swank](https://multipleexperiences.org/tag/dr-roy-swank/) - [Swank diet](https://multipleexperiences.org/tag/swank-diet/) - [multiple sclerosis diet](https://multipleexperiences.org/tag/multiple-sclerosis-diet/) - [diet and ms](https://multipleexperiences.org/tag/diet-and-ms/) - [Vegatarian](https://multipleexperiences.org/tag/vegatarian/) - [animal fat and multiple sclerosis](https://multipleexperiences.org/tag/animal-fat-and-multiple-sclerosis/) - [puppy training](https://multipleexperiences.org/tag/puppy-training/) - [housebreaking puppy](https://multipleexperiences.org/tag/housebreaking-puppy/) - [grieving a pet](https://multipleexperiences.org/tag/grieving-a-pet/) - [universe has your back](https://multipleexperiences.org/tag/universe-has-your-back/) - [Giardia in dogs](https://multipleexperiences.org/tag/giardia-in-dogs/) - [ms exhaustion](https://multipleexperiences.org/tag/ms-exhaustion/) - [Giardia](https://multipleexperiences.org/tag/giardia/) - [Giardia symptoms](https://multipleexperiences.org/tag/giardia-symptoms/) - [ms treatment](https://multipleexperiences.org/tag/ms-treatment/) - [ms diagnoses](https://multipleexperiences.org/tag/ms-diagnoses/) - [benadryl](https://multipleexperiences.org/tag/benadryl/) - [rituxan side effects](https://multipleexperiences.org/tag/rituxan-side-effects/) - [drug side effects](https://multipleexperiences.org/tag/drug-side-effects/) - [Novantrone](https://multipleexperiences.org/tag/novantrone/) - [Lemtrada](https://multipleexperiences.org/tag/lemtrada/) - [veterinarians](https://multipleexperiences.org/tag/veterinarians/) - [puppy eating poop](https://multipleexperiences.org/tag/puppy-eating-poop/) - [pineapple in dog food](https://multipleexperiences.org/tag/pineapple-in-dog-food/) - [deter](https://multipleexperiences.org/tag/deter/) - [forbid](https://multipleexperiences.org/tag/forbid/) - [Veterinary](https://multipleexperiences.org/tag/veterinary/) - [Giardia contamination](https://multipleexperiences.org/tag/giardia-contamination/) - [Giardia contagious](https://multipleexperiences.org/tag/giardia-contagious/) - [puppyism](https://multipleexperiences.org/tag/puppyism/) - [funny puppy](https://multipleexperiences.org/tag/funny-puppy/) - [surrender](https://multipleexperiences.org/tag/surrender/) - [helping hands](https://multipleexperiences.org/tag/helping-hands/) - [need help](https://multipleexperiences.org/tag/need-help/) - [ms help](https://multipleexperiences.org/tag/ms-help/) - [help with a chronic condition](https://multipleexperiences.org/tag/help-with-a-chronic-condition/) - [Solidarity blogger award](https://multipleexperiences.org/tag/solidarity-blogger-award/) - [ms cure](https://multipleexperiences.org/tag/ms-cure/) - [ms muscle weakness](https://multipleexperiences.org/tag/ms-muscle-weakness/) - [ms breathing difficulties](https://multipleexperiences.org/tag/ms-breathing-difficulties/) - [ms swallowing difficulties](https://multipleexperiences.org/tag/ms-swallowing-difficulties/) - [ms speech issues](https://multipleexperiences.org/tag/ms-speech-issues/) - [Ms spasm](https://multipleexperiences.org/tag/ms-spasm/) - [Tv](https://multipleexperiences.org/tag/tv/) - [bazooka joe](https://multipleexperiences.org/tag/bazooka-joe/) - [bubble gum](https://multipleexperiences.org/tag/bubble-gum/) - [MTV](https://multipleexperiences.org/tag/mtv/) - [goober grape](https://multipleexperiences.org/tag/goober-grape/) - [tv changes](https://multipleexperiences.org/tag/tv-changes/) - [cable](https://multipleexperiences.org/tag/cable/) - [Good old days](https://multipleexperiences.org/tag/good-old-days/) - [when I was young](https://multipleexperiences.org/tag/when-i-was-young/) - [as a child](https://multipleexperiences.org/tag/as-a-child/) - [ms falls](https://multipleexperiences.org/tag/ms-falls/) - [Ms exacerbation](https://multipleexperiences.org/tag/ms-exacerbation/) - [muscle fatigue](https://multipleexperiences.org/tag/muscle-fatigue/) - [good ms days](https://multipleexperiences.org/tag/good-ms-days/) - [bad ms days](https://multipleexperiences.org/tag/bad-ms-days/) - [my balance](https://multipleexperiences.org/tag/my-balance/) - [ms gait](https://multipleexperiences.org/tag/ms-gait/) - [balance and gait issues](https://multipleexperiences.org/tag/balance-and-gait-issues/) - [proprioception](https://multipleexperiences.org/tag/proprioception/) - [eyes for balance](https://multipleexperiences.org/tag/eyes-for-balance/) - [6th sense](https://multipleexperiences.org/tag/6th-sense/) - [Smoking and ms](https://multipleexperiences.org/tag/smoking-and-ms/) - [smoking](https://multipleexperiences.org/tag/smoking/) - [cigarettes](https://multipleexperiences.org/tag/cigarettes/) - [Symptoms worsen](https://multipleexperiences.org/tag/symptoms-worsen/) - [symptoms exacerbation](https://multipleexperiences.org/tag/symptoms-exacerbation/) - [puppy](https://multipleexperiences.org/tag/puppy/) - [loosing a pet](https://multipleexperiences.org/tag/loosing-a-pet/) - [missing a pet](https://multipleexperiences.org/tag/missing-a-pet/) - [insecurities](https://multipleexperiences.org/tag/insecurities/) - [high school teenager](https://multipleexperiences.org/tag/high-school-teenager/) - [Local bar](https://multipleexperiences.org/tag/local-bar/) - [old friends](https://multipleexperiences.org/tag/old-friends/) - [hurt feelings](https://multipleexperiences.org/tag/hurt-feelings/) - [Never been kissed](https://multipleexperiences.org/tag/never-been-kissed/) - [steroid side effects](https://multipleexperiences.org/tag/steroid-side-effects/) - [infusion preparation](https://multipleexperiences.org/tag/infusion-preparation/) - [Rituxan infusion](https://multipleexperiences.org/tag/rituxan-infusion/) - [What to expect at Rituxan infusion](https://multipleexperiences.org/tag/what-to-expect-at-rituxan-infusion/) - [chemotherapy](https://multipleexperiences.org/tag/chemotherapy/) - [survival rate with ms](https://multipleexperiences.org/tag/survival-rate-with-ms/) - [creamy potato curry soup](https://multipleexperiences.org/tag/creamy-potato-curry-soup/) - [Vegan soup](https://multipleexperiences.org/tag/vegan-soup/) - [forks over knives recipes](https://multipleexperiences.org/tag/forks-over-knives-recipes/) - [Ethics in blogging](https://multipleexperiences.org/tag/ethics-in-blogging/) - [Internet written in ink](https://multipleexperiences.org/tag/internet-written-in-ink/) - [Facebook](https://multipleexperiences.org/tag/facebook/) - [Facebook links](https://multipleexperiences.org/tag/facebook-links/) - [blog links](https://multipleexperiences.org/tag/blog-links/) - [sharing](https://multipleexperiences.org/tag/sharing/) - [hurting someone](https://multipleexperiences.org/tag/hurting-someone/) - [Blogging using names](https://multipleexperiences.org/tag/blogging-using-names/) - [You don't look sick](https://multipleexperiences.org/tag/you-dont-look-sick/) - [Lovely blog award](https://multipleexperiences.org/tag/lovely-blog-award/) - [dog](https://multipleexperiences.org/tag/dog/) - [puppy teething rings](https://multipleexperiences.org/tag/puppy-teething-rings/) - [Super bowl](https://multipleexperiences.org/tag/super-bowl/) - [super bowl recipes](https://multipleexperiences.org/tag/super-bowl-recipes/) - [Dining out vegan](https://multipleexperiences.org/tag/dining-out-vegan/) - [eating vegan](https://multipleexperiences.org/tag/eating-vegan/) - [Crispy buffalo cauliflower bites](https://multipleexperiences.org/tag/crispy-buffalo-cauliflower-bites/) - [creamy red pepper dip](https://multipleexperiences.org/tag/creamy-red-pepper-dip/) - [Alone](https://multipleexperiences.org/tag/alone/) - [being ok alone](https://multipleexperiences.org/tag/being-ok-alone/) - [comfortable alone](https://multipleexperiences.org/tag/comfortable-alone/) - [national multiple sclerosis society](https://multipleexperiences.org/tag/national-multiple-sclerosis-society/) - [multiple sclerosis foundation](https://multipleexperiences.org/tag/multiple-sclerosis-foundation/) - [msworld](https://multipleexperiences.org/tag/msworld/) - [ms on the Internet](https://multipleexperiences.org/tag/ms-on-the-internet/) - [ms information](https://multipleexperiences.org/tag/ms-information/) - [Ms fears](https://multipleexperiences.org/tag/ms-fears/) - [staphylococcus infection](https://multipleexperiences.org/tag/staphylococcus-infection/) - [stomach issues](https://multipleexperiences.org/tag/stomach-issues/) - [chef del's mushroom stroganoff](https://multipleexperiences.org/tag/chef-dels-mushroom-stroganoff/) - [chef del's tofu sour cream](https://multipleexperiences.org/tag/chef-dels-tofu-sour-cream/) - [tofu](https://multipleexperiences.org/tag/tofu/) - [ms disability](https://multipleexperiences.org/tag/ms-disability/) - [ms good days](https://multipleexperiences.org/tag/ms-good-days/) - [family events](https://multipleexperiences.org/tag/family-events/) - [bar mitzvah](https://multipleexperiences.org/tag/bar-mitzvah/) - [bat mitzvah cousins](https://multipleexperiences.org/tag/bat-mitzvah-cousins/) - [great aunt](https://multipleexperiences.org/tag/great-aunt/) - [constipation](https://multipleexperiences.org/tag/constipation/) - [regular bowel movements](https://multipleexperiences.org/tag/regular-bowel-movements/) - [Daiya](https://multipleexperiences.org/tag/daiya/) - [vegan cheese](https://multipleexperiences.org/tag/vegan-cheese/) - [vegan ice cream](https://multipleexperiences.org/tag/vegan-ice-cream/) - [Ben & jerry's vegan ice cream](https://multipleexperiences.org/tag/ben-jerrys-vegan-ice-cream/) - [mri](https://multipleexperiences.org/tag/mri/) - [MRI for ms](https://multipleexperiences.org/tag/mri-for-ms/) - [lesions](https://multipleexperiences.org/tag/lesions/) - [ms lesions](https://multipleexperiences.org/tag/ms-lesions/) - [optic neuritis](https://multipleexperiences.org/tag/optic-neuritis/) - [optic neuritis and ms](https://multipleexperiences.org/tag/optic-neuritis-and-ms/) - [vegan black bean brownies](https://multipleexperiences.org/tag/vegan-black-bean-brownies/) - [Sweet tooth](https://multipleexperiences.org/tag/sweet-tooth/) - [chocolate craving](https://multipleexperiences.org/tag/chocolate-craving/) - [frustrated](https://multipleexperiences.org/tag/frustrated/) - [Upset](https://multipleexperiences.org/tag/upset/) - [overwhelmed](https://multipleexperiences.org/tag/overwhelmed/) - [Before MS](https://multipleexperiences.org/tag/before-ms/) - [difficult tasks](https://multipleexperiences.org/tag/difficult-tasks/) - [ms burden](https://multipleexperiences.org/tag/ms-burden/) - [ms challenges](https://multipleexperiences.org/tag/ms-challenges/) - [ms stress](https://multipleexperiences.org/tag/ms-stress/) - [coprophagia](https://multipleexperiences.org/tag/coprophagia/) - [training new puppy](https://multipleexperiences.org/tag/training-new-puppy/) - [Frustration](https://multipleexperiences.org/tag/frustration/) - [Accepting ms](https://multipleexperiences.org/tag/accepting-ms/) - [romantic relationship](https://multipleexperiences.org/tag/romantic-relationship/) - [Vacation](https://multipleexperiences.org/tag/vacation/) - [traveling with ms](https://multipleexperiences.org/tag/traveling-with-ms/) - [peace](https://multipleexperiences.org/tag/peace/) - [stumbleupon](https://multipleexperiences.org/tag/stumbleupon/) - [multiple sclerosis symptoms](https://multipleexperiences.org/tag/multiple-sclerosis-symptoms/) - [Senior citizen](https://multipleexperiences.org/tag/senior-citizen/) - [senior citizen humor](https://multipleexperiences.org/tag/senior-citizen-humor/) - [funny signs](https://multipleexperiences.org/tag/funny-signs/) - [wrong signs](https://multipleexperiences.org/tag/wrong-signs/) - [confusing signs](https://multipleexperiences.org/tag/confusing-signs/) - [laugh](https://multipleexperiences.org/tag/laugh/) - [Saturday](https://multipleexperiences.org/tag/saturday/) - [carrot cake energy bites](https://multipleexperiences.org/tag/carrot-cake-energy-bites/) - [women's day](https://multipleexperiences.org/tag/womens-day/) - [ms hug](https://multipleexperiences.org/tag/ms-hug/) - [relapse remitting multiple sclerosis](https://multipleexperiences.org/tag/relapse-remitting-multiple-sclerosis/) - [secondary progressive multiple sclerosis](https://multipleexperiences.org/tag/secondary-progressive-multiple-sclerosis/) - [ms muscle control](https://multipleexperiences.org/tag/ms-muscle-control/) - [vegan thousand island dressing](https://multipleexperiences.org/tag/vegan-thousand-island-dressing/) - [vegan Sheppard's pot pie](https://multipleexperiences.org/tag/vegan-sheppards-pot-pie/) - [ms difficulties](https://multipleexperiences.org/tag/ms-difficulties/) - [PillDrill](https://multipleexperiences.org/tag/pilldrill/) - [PillDrill review](https://multipleexperiences.org/tag/pilldrill-review/) - [consumer review](https://multipleexperiences.org/tag/consumer-review/) - [product review](https://multipleexperiences.org/tag/product-review/) - [taking medicine](https://multipleexperiences.org/tag/taking-medicine/) - [taking medicine assistance](https://multipleexperiences.org/tag/taking-medicine-assistance/) - [Forgetting medicine](https://multipleexperiences.org/tag/forgetting-medicine/) - [PillDrill app](https://multipleexperiences.org/tag/pilldrill-app/) - [pill notifications on phone](https://multipleexperiences.org/tag/pill-notifications-on-phone/) - [PillDrill phone notifications](https://multipleexperiences.org/tag/pilldrill-phone-notifications/) - [Medicine reminder](https://multipleexperiences.org/tag/medicine-reminder/) - [ms bad days](https://multipleexperiences.org/tag/ms-bad-days/) - [ms issues](https://multipleexperiences.org/tag/ms-issues/) - [ms bladder issues](https://multipleexperiences.org/tag/ms-bladder-issues/) - [Mondays](https://multipleexperiences.org/tag/mondays/) - [manic mondays](https://multipleexperiences.org/tag/manic-mondays/) - [avonex](https://multipleexperiences.org/tag/avonex/) - [Stem cell therapy](https://multipleexperiences.org/tag/stem-cell-therapy/) - [myelin regeneration](https://multipleexperiences.org/tag/myelin-regeneration/) - [Coconut curry hummus](https://multipleexperiences.org/tag/coconut-curry-hummus/) - [Butternut squash mac n cheese sauce](https://multipleexperiences.org/tag/butternut-squash-mac-n-cheese-sauce/) - [vegan butternut squash cheese sauce](https://multipleexperiences.org/tag/vegan-butternut-squash-cheese-sauce/) - [butternut squash vegan cheese sauce recipe](https://multipleexperiences.org/tag/butternut-squash-vegan-cheese-sauce-recipe/) - [black cherry sauce recipe](https://multipleexperiences.org/tag/black-cherry-sauce-recipe/) - [vegan black cherry sauce recipe](https://multipleexperiences.org/tag/vegan-black-cherry-sauce-recipe/) - [cooking](https://multipleexperiences.org/tag/cooking/) - [difficulty cooking with multiple sclerosis](https://multipleexperiences.org/tag/difficulty-cooking-with-multiple-sclerosis/) - [the four agreements](https://multipleexperiences.org/tag/the-four-agreements/) - [linkin park](https://multipleexperiences.org/tag/linkin-park/) - [linkin park Meteora](https://multipleexperiences.org/tag/linkin-park-meteora/) - [sunny day](https://multipleexperiences.org/tag/sunny-day/) - [Migraines](https://multipleexperiences.org/tag/migraines/) - [migraines and ms](https://multipleexperiences.org/tag/migraines-and-ms/) - [topamax](https://multipleexperiences.org/tag/topamax/) - [Topiramate](https://multipleexperiences.org/tag/topiramate/) - [relpak](https://multipleexperiences.org/tag/relpak/) - [ms attack](https://multipleexperiences.org/tag/ms-attack/) - [Vegan Blondie brownies](https://multipleexperiences.org/tag/vegan-blondie-brownies/) - [stumblupon](https://multipleexperiences.org/tag/stumblupon/) - [vegan eating](https://multipleexperiences.org/tag/vegan-eating/) - [vegan desserts](https://multipleexperiences.org/tag/vegan-desserts/) - [vegan brownie](https://multipleexperiences.org/tag/vegan-brownie/) - [vegan cooking](https://multipleexperiences.org/tag/vegan-cooking/) - [plant based eating](https://multipleexperiences.org/tag/plant-based-eating/) - [plant based recipe](https://multipleexperiences.org/tag/plant-based-recipe/) - [Socrates cafe](https://multipleexperiences.org/tag/socrates-cafe/) - [Christopher Phillips](https://multipleexperiences.org/tag/christopher-phillips/) - [meet up groups](https://multipleexperiences.org/tag/meet-up-groups/) - [social groups](https://multipleexperiences.org/tag/social-groups/) - [group interactions](https://multipleexperiences.org/tag/group-interactions/) - [philosophy](https://multipleexperiences.org/tag/philosophy/) - [philosopher](https://multipleexperiences.org/tag/philosopher/) - [Nor'easter](https://multipleexperiences.org/tag/noreaster/) - [tri state area nor'easter](https://multipleexperiences.org/tag/tri-state-area-noreaster/) - [scale](https://multipleexperiences.org/tag/scale/) - [ideal weight](https://multipleexperiences.org/tag/ideal-weight/) - [plus size models](https://multipleexperiences.org/tag/plus-size-models/) - [ideal measurements](https://multipleexperiences.org/tag/ideal-measurements/) - [Woman's measurements weight watchers](https://multipleexperiences.org/tag/womans-measurements-weight-watchers/) - [MS life coach](https://multipleexperiences.org/tag/ms-life-coach/) - [no tuna salad sandwich](https://multipleexperiences.org/tag/no-tuna-salad-sandwich/) - [vegan no tuna tuna salad](https://multipleexperiences.org/tag/vegan-no-tuna-tuna-salad/) - [multiple sclerosis warrior](https://multipleexperiences.org/tag/multiple-sclerosis-warrior/) - [ms living](https://multipleexperiences.org/tag/ms-living/) - [afraid to date](https://multipleexperiences.org/tag/afraid-to-date/) - [dating profile](https://multipleexperiences.org/tag/dating-profile/) - [ms embarrassing symptoms](https://multipleexperiences.org/tag/ms-embarrassing-symptoms/) - [quality of life](https://multipleexperiences.org/tag/quality-of-life/) - [veggie burgers](https://multipleexperiences.org/tag/veggie-burgers/) - [eating out](https://multipleexperiences.org/tag/eating-out/) - [dirty martini](https://multipleexperiences.org/tag/dirty-martini/) - [vegan veggie burgers](https://multipleexperiences.org/tag/vegan-veggie-burgers/) - [veggie burger recipes](https://multipleexperiences.org/tag/veggie-burger-recipes/) - [Annoying guy](https://multipleexperiences.org/tag/annoying-guy/) - [harmless guy](https://multipleexperiences.org/tag/harmless-guy/) - [cute guy](https://multipleexperiences.org/tag/cute-guy/) - [Physical therapy](https://multipleexperiences.org/tag/physical-therapy/) - [physical therapist](https://multipleexperiences.org/tag/physical-therapist/) - [ms affects others](https://multipleexperiences.org/tag/ms-affects-others/) - [ms grey matter](https://multipleexperiences.org/tag/ms-grey-matter/) - [Epiphany](https://multipleexperiences.org/tag/epiphany/) - [spiritual path](https://multipleexperiences.org/tag/spiritual-path/) - [ms medications](https://multipleexperiences.org/tag/ms-medications/) - [baclofen](https://multipleexperiences.org/tag/baclofen/) - [neurontin](https://multipleexperiences.org/tag/neurontin/) - [toprimate](https://multipleexperiences.org/tag/toprimate/) - [vegan almond fudge](https://multipleexperiences.org/tag/vegan-almond-fudge/) - [gabby bernstein master class](https://multipleexperiences.org/tag/gabby-bernstein-master-class/) - [spirit junkie master class](https://multipleexperiences.org/tag/spirit-junkie-master-class/) - [life coach training](https://multipleexperiences.org/tag/life-coach-training/) - [mentor](https://multipleexperiences.org/tag/mentor/) - [tendonitis](https://multipleexperiences.org/tag/tendonitis/) - [recharge](https://multipleexperiences.org/tag/recharge/) - [puppy surgery](https://multipleexperiences.org/tag/puppy-surgery/) - [ocrevus](https://multipleexperiences.org/tag/ocrevus/) - [relapsing remitting multiple sclerosis](https://multipleexperiences.org/tag/relapsing-remitting-multiple-sclerosis/) - [primary progressive multiple sclerosis](https://multipleexperiences.org/tag/primary-progressive-multiple-sclerosis/) - [Multiple sclerosis over 10 years](https://multipleexperiences.org/tag/multiple-sclerosis-over-10-years/) - [present moment](https://multipleexperiences.org/tag/present-moment/) - [ms fears of the unknown](https://multipleexperiences.org/tag/ms-fears-of-the-unknown/) - [ms unknown](https://multipleexperiences.org/tag/ms-unknown/) - [Financial worries](https://multipleexperiences.org/tag/financial-worries/) - [ms MRI](https://multipleexperiences.org/tag/ms-mri/) - [mri results](https://multipleexperiences.org/tag/mri-results/) - [bulging disc](https://multipleexperiences.org/tag/bulging-disc/) - [Social security disability review](https://multipleexperiences.org/tag/social-security-disability-review/) - [Inflammation](https://multipleexperiences.org/tag/inflammation/) - [Ms constipation](https://multipleexperiences.org/tag/ms-constipation/) - [Ms inflammation](https://multipleexperiences.org/tag/ms-inflammation/) - [Vegan oatmeal chocolate chip cookies](https://multipleexperiences.org/tag/vegan-oatmeal-chocolate-chip-cookies/) - [Oatmeal chocolate chip cookies](https://multipleexperiences.org/tag/oatmeal-chocolate-chip-cookies/) - [ms clinical study for biotin and ms](https://multipleexperiences.org/tag/ms-clinical-study-for-biotin-and-ms/) - [clinical study](https://multipleexperiences.org/tag/clinical-study/) - [neuropathy pain](https://multipleexperiences.org/tag/neuropathy-pain/) - [Spoonies](https://multipleexperiences.org/tag/spoonies/) - [counting spoons](https://multipleexperiences.org/tag/counting-spoons/) - [atone](https://multipleexperiences.org/tag/atone/) - [Ms limitations](https://multipleexperiences.org/tag/ms-limitations/) - [image](https://multipleexperiences.org/tag/image/) - [self perception](https://multipleexperiences.org/tag/self-perception/) - [forks over knives tu-no casserole](https://multipleexperiences.org/tag/forks-over-knives-tu-no-casserole/) - [Guilty pleasure](https://multipleexperiences.org/tag/guilty-pleasure/) - [real housewives](https://multipleexperiences.org/tag/real-housewives/) - [rhooc](https://multipleexperiences.org/tag/rhooc/) - [rhobh](https://multipleexperiences.org/tag/rhobh/) - [rhony](https://multipleexperiences.org/tag/rhony/) - [rhonj](https://multipleexperiences.org/tag/rhonj/) - [rhoa](https://multipleexperiences.org/tag/rhoa/) - [rhop](https://multipleexperiences.org/tag/rhop/) - [Bravo](https://multipleexperiences.org/tag/bravo/) - [Erika girardi](https://multipleexperiences.org/tag/erika-girardi/) - [Erika](https://multipleexperiences.org/tag/erika/) - [Jayne](https://multipleexperiences.org/tag/jayne/) - [Lisa Vanderpump](https://multipleexperiences.org/tag/lisa-vanderpump/) - [daughter car accident](https://multipleexperiences.org/tag/daughter-car-accident/) - [The call your daughter was in a car accident](https://multipleexperiences.org/tag/the-call-your-daughter-was-in-a-car-accident/) - [Daughter in accident](https://multipleexperiences.org/tag/daughter-in-accident/) - [my worst fear](https://multipleexperiences.org/tag/my-worst-fear/) - [a parents worst fear](https://multipleexperiences.org/tag/a-parents-worst-fear/) - [friends](https://multipleexperiences.org/tag/friends/) - [gaining weight](https://multipleexperiences.org/tag/gaining-weight/) - [menopause](https://multipleexperiences.org/tag/menopause/) - [fat distribution](https://multipleexperiences.org/tag/fat-distribution/) - [lean muscle](https://multipleexperiences.org/tag/lean-muscle/) - [gaining weight as you age](https://multipleexperiences.org/tag/gaining-weight-as-you-age/) - [changes in an aging body](https://multipleexperiences.org/tag/changes-in-an-aging-body/) - [pear shape](https://multipleexperiences.org/tag/pear-shape/) - [Staypuff marshmallow MA](https://multipleexperiences.org/tag/staypuff-marshmallow-ma/) - [hourglass figure](https://multipleexperiences.org/tag/hourglass-figure/) - [mid section rolls](https://multipleexperiences.org/tag/mid-section-rolls/) - [mid section weight gain](https://multipleexperiences.org/tag/mid-section-weight-gain/) - [mid section fat](https://multipleexperiences.org/tag/mid-section-fat/) - [fat kid](https://multipleexperiences.org/tag/fat-kid/) - [teased](https://multipleexperiences.org/tag/teased/) - [bullied](https://multipleexperiences.org/tag/bullied/) - [Weigh issues](https://multipleexperiences.org/tag/weigh-issues/) - [weight perceptions](https://multipleexperiences.org/tag/weight-perceptions/) - [Adult to younger self](https://multipleexperiences.org/tag/adult-to-younger-self/) - [stop and smell the roses](https://multipleexperiences.org/tag/stop-and-smell-the-roses/) - [The](https://multipleexperiences.org/tag/the/) - [Forks over knives hippie loaf](https://multipleexperiences.org/tag/forks-over-knives-hippie-loaf/) - [Minutes to midnight](https://multipleexperiences.org/tag/minutes-to-midnight/) - [Leave the rest behind](https://multipleexperiences.org/tag/leave-the-rest-behind/) - [therapy](https://multipleexperiences.org/tag/therapy/) - [Online journal](https://multipleexperiences.org/tag/online-journal/) - [ms adapt](https://multipleexperiences.org/tag/ms-adapt/) - [ms adjust](https://multipleexperiences.org/tag/ms-adjust/) - [ms exercise](https://multipleexperiences.org/tag/ms-exercise/) - [stress](https://multipleexperiences.org/tag/stress/) - [anxiety](https://multipleexperiences.org/tag/anxiety/) - [Jeans](https://multipleexperiences.org/tag/jeans/) - [pear shape body](https://multipleexperiences.org/tag/pear-shape-body/) - [Apple shape body](https://multipleexperiences.org/tag/apple-shape-body/) - [shopping online](https://multipleexperiences.org/tag/shopping-online/) - [New York & co](https://multipleexperiences.org/tag/new-york-co/) - [the gap](https://multipleexperiences.org/tag/the-gap/) - [old navy](https://multipleexperiences.org/tag/old-navy/) - [Chicos](https://multipleexperiences.org/tag/chicos/) - [clothing sizes](https://multipleexperiences.org/tag/clothing-sizes/) - [change in clothing sizes](https://multipleexperiences.org/tag/change-in-clothing-sizes/) - [size of clothes](https://multipleexperiences.org/tag/size-of-clothes/) - [Boyfriend style](https://multipleexperiences.org/tag/boyfriend-style/) - [curvy style](https://multipleexperiences.org/tag/curvy-style/) - [goal jeans](https://multipleexperiences.org/tag/goal-jeans/) - [ms and diet](https://multipleexperiences.org/tag/ms-and-diet/) - [vegan creamed corn](https://multipleexperiences.org/tag/vegan-creamed-corn/) - [living with multiple](https://multipleexperiences.org/tag/living-with-multiple/) - [heat sensitivity](https://multipleexperiences.org/tag/heat-sensitivity/) - [ms and heat](https://multipleexperiences.org/tag/ms-and-heat/) - [heat intolerance](https://multipleexperiences.org/tag/heat-intolerance/) - [worsening of ms symptoms](https://multipleexperiences.org/tag/worsening-of-ms-symptoms/) - [Ms weather changes](https://multipleexperiences.org/tag/ms-weather-changes/) - [exhaustion](https://multipleexperiences.org/tag/exhaustion/) - [honda civic](https://multipleexperiences.org/tag/honda-civic/) - [ocrelizumab side effects](https://multipleexperiences.org/tag/ocrelizumab-side-effects/) - [Ocrelizumab infusion](https://multipleexperiences.org/tag/ocrelizumab-infusion/) - [Ocrelizumab infusions reactions](https://multipleexperiences.org/tag/ocrelizumab-infusions-reactions/) - [Ocrelizumab yearly cost](https://multipleexperiences.org/tag/ocrelizumab-yearly-cost/) - [Ocrelizumab and PML](https://multipleexperiences.org/tag/ocrelizumab-and-pml/) - [Ocrelizumab and risk factors](https://multipleexperiences.org/tag/ocrelizumab-and-risk-factors/) - [Ocrelizumab and breast cancer](https://multipleexperiences.org/tag/ocrelizumab-and-breast-cancer/) - [Ocrelizumab and herpes](https://multipleexperiences.org/tag/ocrelizumab-and-herpes/) - [teenagers driving and alcohol](https://multipleexperiences.org/tag/teenagers-driving-and-alcohol/) - [teenagers and alcohol related car accidents](https://multipleexperiences.org/tag/teenagers-and-alcohol-related-car-accidents/) - [Teenager car accidents](https://multipleexperiences.org/tag/teenager-car-accidents/) - [alcohol related car accidents](https://multipleexperiences.org/tag/alcohol-related-car-accidents/) - [drunk driving](https://multipleexperiences.org/tag/drunk-driving/) - [Chris Memoli](https://multipleexperiences.org/tag/chris-memoli/) - [Seatbelt](https://multipleexperiences.org/tag/seatbelt/) - [car accidents and seatbelt](https://multipleexperiences.org/tag/car-accidents-and-seatbelt/) - [Dizzy spells](https://multipleexperiences.org/tag/dizzy-spells/) - [dizzy upon standing](https://multipleexperiences.org/tag/dizzy-upon-standing/) - [abnormal blood regulation](https://multipleexperiences.org/tag/abnormal-blood-regulation/) - [med alert](https://multipleexperiences.org/tag/med-alert/) - [light headed](https://multipleexperiences.org/tag/light-headed/) - [passing out](https://multipleexperiences.org/tag/passing-out/)