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Tag: living with a chronic disease

The strange MS symptoms back again

The strange MS symptoms back again

I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn’t quite on point. So transferring into my wheelchair didn’t go so well. I didn’t panic, or cry. It took me a little bit but I eventually got myself up and I…

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Does having MS cause an overactive immune system

Does having MS cause an overactive immune system

I saw this somewhere in the midst of the virus outbreak and have wondered about it ever since. If I have an overactive immune system why am I in such a quarantine from this virus? According to my neurologist, it is because of Rituxan. I take a medication that wipes out a strain of my white blood cells. I can understand that. It makes sense. It was another blogger who made the comment that they very rarely get sick. It…

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Bladder issues

Bladder issues

I’m not sure what exactly is going on with my bladder these days. I know I have issues, had them for years, but they’ve seemed somewhat worse over the last few weeks. I am not sure if I don’t have some kind of bladder infection. The problem is that is varies day to day, something bladder infection tend not to do. However between my water pills and Toviaz, who knows. Urinary tract infections don’t always cause signs and symptoms, but…

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Hot, sweaty, cold and warm

Hot, sweaty, cold and warm

I’ve had so many blogs about this topic. Regulating my body temperature is not going well these days. It can be very frustrating. The sweating happens a lot after i eat. It is because my food is hot. The hot food causes my body temperature to rise and then I start sweating. Really makes no sense. Most normal people eat a hot meal and don’t have any issues. Not me, I eat, I get overheated. WTF!!! It happens all the…

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I’m not disabled, I’m mom

I’m not disabled, I’m mom

I did well yesterday My words are my actions. I managed to use the walker until after 2pm. I completed 3 sets of 10 squats but I can admit I pulled myself up on the last few. I was done!!! I’m happy to say that I recovered and had strength to get myself up into my bed without assistance and without lowering the bed to the flat position. I was proud of myself. My daughter comes into my room every…

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My words are my actions

My words are my actions

One thing I can say about myself is I’m not a slacker. If I say I’m going to do something, I’m going to do it. I wrote about my weakness in my legs the other day My muscles are getting weaker. In the blog I realized I had to do something. So I first thought on safety. I can’t fatigue myself to the point I can’t transfer. My daughter has been so helpful when my aid isn’t around but she’s…

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My muscles are getting weaker

My muscles are getting weaker

I have to be honest, my legs are super tired by the end of the night. I’ve been having some real issues getting myself into bed. Luckily my daughter has been around to assist and readjust my legs. My original thoughts were why? I’m resting most of the day after I exercise. Then it occurred to me, I’m moving even less now than the little I was moving before. This is bad. The more I’m in hibernation, the weaker I’m…

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Hot Water helped with Choking

Hot Water helped with Choking

So I took an extra triple magnesium capsule on my way to the bathroom yesterday. I can normally swallow pills without water. Comes from years of taking pills. I wasn’t able to actually swallow the capsule for some reason but I needed to use the bathroom. I left it in my mouth for the second until I could get water from the sink. I just didn’t plan on one of my rock skipping ass off the toilet bowl moves. I…

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My multiple sclerosis spasms

My multiple sclerosis spasms

My spasms have been extremely annoying lately. I have a few different types and it depends what it hitting when. My back has probably been the most frequent. It starts with this warm feeling that spreads across my back and reaches from left to right. It continues to my right hand where it paralyzed it for a second. Then I have the one in right hamstring. This one you can feel building up. It’s like you welcome the spasm when…

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FDA approves Zeposia (Ozanimod) for Multiple Sclerosis

FDA approves Zeposia (Ozanimod) for Multiple Sclerosis

Amidst all that is happening in the world, things are still happening in the world of MS. Another oral medication for the treatment of MS. Read the article here: https://multiplesclerosisnewstoday.com/news-posts/2020/03/26/fda-approves-zeposia-ozanimod-oral-rrms-active-spms-cis-therapy/

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