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Tag: ms symptoms

You don’t look sick….

You don’t look sick….

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Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot.  I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…

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Vegan creamy potato curry soup

Vegan creamy potato curry soup

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I had the best physical therapy session ever!!! Just one of those days where my legs were super strong and didn’t fatigue to the point I couldn’t walk, like they normally do.  I even had enough energy to get to the food store. I needed a few ingredients make my favorite soup.  Thought I’d do something different today and share a plant-based vegan soup recipe. I was just so happy how well today went I also had to share my…

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I’m not Josey Grossey

I’m not Josey Grossey

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I woke up so angry and sad. My hometown bar is closing, last night was their final night. I spent most Friday and Saturday nights from the age of 35-39 there. I wasn’t going to go, actually the one person I thought would ask me didn’t even ask me (hurt feeling #1). Then I was asked by someone unexpected. At first I said yes but then common sense kicked in. First the group of girls I used to go with,…

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Smoking and multiple sclerosis

Smoking and multiple sclerosis

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I was driving and my iPod was shuffled playing random songs from my entire music collection. My favorite things when driving were music and smoking. I could drive for hours smoking with the music cranking, loud. I quit smoking years ago for the final time. I didn’t wait for the last cigarette of the pack, I didn’t even throw out what was left of the pack. I woke up one day and said enough. I can’t smoke anymore. It messed…

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Balancing with your eyes

Balancing with your eyes

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Every neurological patients has gone through the tests. Touching your finger to your nose and back, walking heel to toe, toe to heal, tuning fork and pin prick. Then there is the one you stand up put your arms out in front of you and close your eye…do you topple over? I do. I do when I’m home getting dressed and I momentarily loose eye sight because the shirt got stuck and down I go. Why? It’s the loss of…

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The good days verses the bad days

The good days verses the bad days

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I was asked today by my physical therapist how are you? I am sure anyone with a chronic disease thinks this is a loaded question. Actually a good friend of mine called me the other day and said, “I’ve learned so much about you and what you deal with on a daily basis from reading your blog. I never knew. Some of it makes me laugh, some makes me feel so bad that I can’t help you, but I never…

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Multiple sclerosis serious symptoms-respitory issues

Multiple sclerosis serious symptoms-respitory issues

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On my way to visit my sister back in December, we stopped to eat lunch. I started coughing, had a little tickle in my throat. That coughing started to get worse and worse because it was making no progress. I literally started to choke. I was finally given some water and was able to produce the cough that moved the phlegm or whatever was in my throat causing me to cough to begin with.  I was shaking by the end…

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A year since I was put on disability

A year since I was put on disability

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Should I say Happy Anniversary to myself? It was an after work doctors appointment January 21, 2016 when he said “ENOUGH”. He knew since the summer before I was getting worse, I was the one in denial. On January 22, 2016 I called my job and said my doctor is putting me out on disability and I never was back.  I kept pushing and pushing to continue to work. I was working part in the building and part at home,…

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The helping hand when you have a chronic condition

The helping hand when you have a chronic condition

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A few months ago  there was this sound this clanking sound coming from the refrigerator. I must say I can follow directions put things together, tighten things when they seem loose, make minor repairs but major breakdowns, I’m not your girl. When I heard the clanking I knew it was the compressor or something, but that’s about it. I lowered the temperature of the refrigerator from 5 to 0 for a few minutes turned it back up and sound was…

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The multiple sclerosis exhaustion point

The multiple sclerosis exhaustion point

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It’s amazing how a day can turn. There comes a point in the evening with multiple sclerosis my body just has enough. My daughter has learned this point well over the years. It’s when she asks me a question or tells me she needs something at 8-9 at night but my mind and body is fond and shut down. Instead of responding like a normal human being I loose my marbles on her. That happened a little early last night…

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