Look at my last few weeks…I was gearing up for the holidays, got this puppy, go away for Christmas, my beloved dog Boomer died, I spiral into a complete depression, cried everyday for a week plus but my multiple sclerosis symptoms are relatively the same. Are they better? No, but they aren’t worse. Multiple Sclerosis isn’t directly linked to stress, but it never failed for me when I’d have high periods of stress, about one month later, BANG MS ISSUES….
let’s be real here, if things were going well, I’d still be working. I’d go to work everyday, be around different people, be challenged, strive to be the best and probably be like 76% of the world, stressed out. However, I’m not well, I’m not stressed out like the 76% but my life isn’t easy. I love the look I still get from some people when I tell them I don’t work anymore. You can see their mind questioning you…
http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 3rd month. I had a neurologist check up in December and in my timed walking, I was 7 seconds faster than I ever walked in her…
I was starting to “leak through” my current multiple sclerosis therapy back in 2014. I had been on basically Betaseron most of the time until I switched to Gilyenya in 2010. I was switched for the “leaking through” thought. It was holding me on the relapsing remitting sides mostly. I’d have maybe one or two per year on all the drugs. However I would worsen without a so-called attack. My current symptoms would worsen. Back in 2014 the decision was…
I FINALLY had my shoulder checked out by an orthopedist yesterday. He did some maneuvering, X-rays and a visual exam. He told me “there are actually 2 problems going on.” Of course there are, because nothing is simple. “You have tendinitis in the shoulder for sure but your back also is showing arthritis”. More of the fabulous news. I had junior arthritis as a kid, arthritis is my knees with cysts and now in the back. Ok great now what?…
i wanted to go to the specialty grocery store, pick up some plant-based items I couldn’t find at the local store. It’s not a very large store, easy parking, I thought I’d be ok. I had 2 small bags with light stuff. I made it to the car, just had to get in my house. Car to house what 20 steps. 6 steps to first landing until I can regret the chair lift. Yet another task that completely exhausted me…
At my neurologist appointment she wanted me to start taking Alpha Lipoic acid 1200mg a day. She explained that like the biotin study I talked about https://multipleexperiences.org/2016/10/24/high-dose-biotin-with-progressive-ms-a-patients-review/ It was shown to help patients with secondary progressive multiple sclerosis. The vitamin is inexpensive. I got a bottle of 600mg on Amazon for $14.99. I take 2 a day. I just started yesterday. Like anything I will keep you updated to anything I’ve noticed both good and bad with my own MS symptoms. I…
It wasn’t difficult to not eat meat AT ALL. I didn’t miss it or crave it in the least. My most difficult obstacle was my coffee. Even being on weight watchers 99.9% of my life, I used half n half. I drank coffee very light. I had to give that up. Vegan is no dairy, no meat. I looked online and got a recipe for a can of coconut milk combined with almond milk, both unsweetened, mix them together and…
I have 2 neurologists. One is a straight neurologist who diagnosed me 18+ years ago and has been with me since. The other is a multiple sclerosis specialist in New York City who I’ve been seeing for about 2-3 years now. Both of them work on different aspects of my MS. My neurologist is usually the symptoms manager. He prescribes the daily drugs I take. The specialist deals with which MS drug I’m on. The blood work, MRI scans and…
Multiple Sclerosis has a lot of false information out there. Today I felt like talking about the Myths vs the facts of MS. I got this from Youdontknowjackaboutms.com. My thoughts are written in red. MYTH: MOST PEOPLE WITH MS ARE DIAGNOSED AT AN ADVANCED AGE. FACT: Most people are diagnosed with MS between the ages of 20 and 50. Though less common, MS can also appear in young children and teens, as well as much older adults. I was diagnosed…
