Graduation present cashed in

Graduation present cashed in

Mikayla, my beautiful daughter, graduated back in May. Of course I shared that blog with you. https://multipleexperiences.org/2021/05/19/mikaylas-graduation/. It was a really exciting weekend. She got a lot of gifts for her graduation. My gift was to be https://multipleexperiences.org/2021/05/19/mikaylas-graduation/done when she was ready. I gave her the gift of paying for her next tattoo. She has been wanting another one for so long and I knew it was a really good gift to give. Currently she has this very large flowers…

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Sometimes the dots don’t connect

Sometimes the dots don’t connect

Well you can get Covid even after you’ve been fully vaccinated. My poor sister has been feeling awful this past week. She tested positive for covid. Like so many people, me included, we’ve gotten a little lax with the mask. I don’t think the vaccinations are lasting as long as they originally thought they would. I got my booster already and I would prefer not to be doing that every few months. I do think that the vaccine need more…

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Bike for MS

Bike for MS

Once again my brother is training for his 50 mile bike ride for multiple sclerosis. Each year he does this fundraiser in my name. Raising money riding a bike, something I’ve been unable to do for at least 8 years. Please help us find a cure for all of those who suffer daily but are still warriors. https://www.facebook.com/donate/157731676220745/?fundraiser_source=external_url Why We Want to Create a World Free of MS It’s now 13 years ago when I said I wanted to ride…

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Weekend plans, or not

Weekend plans, or not

When your day starts off with an accident and a fall, you aren’t feeling so optimistic for a good MS day. Yesterday evening was my second Kesimpta shot. I decided to once again do my thigh region. I did my right leg this time. That might not have been the best place. As soon as the needle pierced the skin, my leg immediately went into a super spasm. I twitched and moved during the injection. It hurt. I know that…

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Bionic Gym highly recommended

Bionic Gym highly recommended

After all my worries over changing to Kesimpta, I’m now pretty darn happy I did. I felt fine after the shot on Thursday and all through the weekend. To not have to do a six hour infusion followed by 3 plus weeks of feeling lousy, I have to say I’m pretty excited. No more steroids. No more IV vein issues. No more aggravation with the former pharmacy over the correct infusion supplies. I must say that is a win, win,…

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Dreams about the ex

Dreams about the ex

I was all set to write about something else today but I had a dream that just pissed me off. It was about my ex boyfriend. He has been my ex boyfriend for almost 6 years. He is actually married and a stepdad living in another state. Ok, big deal I had a dream about him. Once in a while wouldn’t be a big deal but I always dream about him. I always think about him. I hate him and…

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First Kesimpta dosing shot

First Kesimpta dosing shot

I started getting freaked out reading other people’s first shot reactions on the Facebook Kesimpta group. I thank Sherry for commenting on my Kesimpta delivery blog and telling me about the group but it didn’t help my nerves. Thankfully, I had a video conference with my neurologist yesterday. She explained Kesimpta is nothing like the interferon shots that I took for the first 12 years. The shots that still give me those horrible flashbacks that are causing all this fear….

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My daughter will be moving out soon

My daughter will be moving out soon

I have to say, this week seems to be flying by. I’ve been busy too without exhaustion. That’s the most important part. I’ve had some really good, sweaty workouts. I love those. I unfortunately had to once again shut the windows and turn the AC on. The way my building is situated and my windows line up, the wind direction makes a big difference. If the wind is moving away from the building than I get no air into my…

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My New Year strength list

My New Year strength list

It is Rosh Hashanah today, the Jewish New Year. I am actually participating with my family and going to my brother in-laws family. I have to admit, I haven’t been doing the big Jewish family dinners lately. My brother in-law’s family have been opening their home to us for the past 15 years. They are wonderful people. I think, for me, part of what makes it slightly difficult is one of his cousins has multiple sclerosis as well. She is…

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Kesimpta delivery scheduled

Kesimpta delivery scheduled

I got a call yesterday from the pharmacy about the delivery of my new medication, Kesimpta. I am being mailed 3 doses for my first month. I take a shot weeks 1,2 and 4. From there it will be once a month. The shot is recommended to be in my thigh, stomach or upper arm. All the memories of the years of Betaseron come flooding back. Betaseron was my main MS drug until Gilenya, a pill, came out. 12 years…

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