Featured
My Head on Straight

My Head on Straight

Good morning world. I am loving the cooler weather with the sunshine shining. I might have a small whiff of fall in the air. I’m ready. I took the entire week off from exercise. I am fine but those booster shots definitely knocked me for a loop. I’m glad I did both the Covid and flu together. I’m more happy to know they’re done for a while. I just looked at my calendar for October, my Rituxan infusion order starts…

Read More Read More

Neurologist visits

Neurologist visits

I have to say this cold has kicked the shit out of me. I know taking Rituxan lowers my immune system but I honestly very rarely get sick. Even my issues in 2022 I was on Kesimpta, not Rituxan. The last cold I had was back in 2019 when I went on my last vacation. I went to Mexico with my family. I had the worst cold. I was miserable for the first 4 days of the week’s vacation. I…

Read More Read More

Thanksgiving cold

Thanksgiving cold

I went out for Thanksgiving. I went home, my childhood home. I haven’t been there again in years. We certainly didn’t know if I could last in a wheelchair for the duration of dinner. To complicate matters I needed to use my hooveround, not my main wheelchair, because the ramps are fitted according to that wheelchair. It didn’t matter I did really well. I sat through all of dinner. I sat at the table with my family. I was very…

Read More Read More

My age 51 my body is much older

My age 51 my body is much older

It’s my birthday tomorrow. 51!!! I’m middle age. I think my body has been middle age since I was 43. That was when multiple sclerosis hit me with the last relapse that started my path of true disability. It’s been 8 years since that last relapse. It was when I was switching from Tysabri to Rituxan. I made the mistake of stopping Tysabri because I actually had the thought of switching to an experimental drug. I needed to be off…

Read More Read More

I have Acid Reflux Disease

I have Acid Reflux Disease

My gastroenterologist called me the other day with one of my biopsy results. I didn’t expect the diagnosis but I also wasn’t shocked. Most people think heartburn with acid reflux. I really don’t have that issue, or at least I don’t think I do. I do have the feeling of smoking a carton of cigarettes upon waking up some mornings. Is that heartburn for me? I thought that was the MS hug. Sometimes my symptoms don’t make sense to doctors….

Read More Read More

Colonoscopy and Endoscopy

Colonoscopy and Endoscopy

Hello my fellow blog readers. How are you doing? I was absent last week. I had so much going on getting ready for my colonoscopy/endoscopy on Thursday. The prep for the colonoscopy was horrible, HORRIBLE!!!! I even started 4 hours earlier than the instructions indicated. My aide changed me every hour from 12pm-6am. I was physically and mentally exhausted. Thankfully I had an early appointment. Unfortunately, I knew I wasn’t cleaned out. A very easy indicator was that the stool…

Read More Read More

Rituxan Infusion in the Books

Rituxan Infusion in the Books

I am half way through my Rituxan infusion. Chilling out watching Ink Master. I was smart this morning. I kept my arms covered despite being slightly warm. I know, all too well, that my cold arms do not help when trying to start an IV. I overheat so easily so there is usually a fan blowing right next to me. I might not feel cold but my arms and hands are always cold to touch. I kept a sweatshirt on…

Read More Read More

Shameful Doctor

Shameful Doctor

I’ve been absent again. I have just had a lousy few weeks. I have had a shitty year. If you have read my blog, I have that well documented. I’m tired of dealing with all the issues that keep occurring week in and week out. I just feel like I have not had one month where I wasn’t dealing with some issues. From sickness to bedbugs back to my chronic stomach issues, I honestly feel like I can’t catch a…

Read More Read More

MS Bike Fundraiser

MS Bike Fundraiser

Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…

Read More Read More

Pincushion Arms and Infusion on Horizon

Pincushion Arms and Infusion on Horizon

I’m sneezing. My first cold of the year. I have been taking my oregano oil for a few days. It has probably helped but it hasn’t stopped the cold like it has in the past. I think things are just not affecting me the same since my whole pneumonia debacle. Oregano oil use to knock out anything as soon as I felt the twinge. Now I feel like it doesn’t do the trick. I’m not use to actually feeling run…

Read More Read More

A Day Outside

A Day Outside

How was your weekend? Last week my older sister came out for a visit. It was the first sunny day in a string of many rainy days. My sister is not one for being inside especially on beautiful days. I knew I’d be visiting with her outside somewhere. We took a walk, or in my case a wheel, to the pier by my house. It was absolutely beautiful. This view is just down my block. I love where I live….

Read More Read More

%d bloggers like this: