Better but exhausted

Better but exhausted

Better today but still so tired. I went into bed at 8 last night and got out of bed after 8 this morning. Today is the first day I’m drinking coffee. Hopefully that helps. However I can feel already my body is exhausted. I did a very simple 30 minute workout because I have a few things going on today and didn’t want to overdo myself. Yet I’m sitting here exhausted. This is not good. So much has gone on…

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Rough day

Rough day

Rough day yesterday. I didn’t feel well when I woke up in the morning. I didn’t pay attention. I did my normal routine and was working out when Minx started eating something he shouldn’t. I reached down to pick up my grabber, which I myself knocked over, and literally fell out of the wheelchair. I got myself right back up but was unable to turn around and get myself back into the wheelchair and slid down again. My body was…

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I have multiple sclerosis

I have multiple sclerosis

I have multiple sclerosis. Sometimes this disease makes it so difficult. I pray for a day that everything wasn’t so hard. Yet one day I’ll look back at days the way I am now wishing I could have these back. That’s the thing, I know in time, it will be worse. That’s a truly sobering thought, knowing for sure my MS will be worse. People ask how I have such a positive attitude, with the real knowledge I live with,…

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Choking on liquids

Choking on liquids

I had 2 choking episodes yesterday. Maybe choking isn’t the exact word because I really just swallowed wrong. The first one was mangos. Cut up in small pieces but slightly hard and very tart, just the way I like them. I swallowed wrong but it wasn’t the actual mango that was causing the problem. The tartness of the piece in my saliva is what I swallowed incorrectly. It caused me to cough, as it should, however I couldn’t move that…

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Weight and weight of the scale

Weight and weight of the scale

I spent 6 hours at the hair salon the other day. I had my hair straightened. A long process but worth the time it takes. I will not have to worry about doing my hair all summer. Shower, let dry naturally and it comes out perfect. That takes a tremendous amount of pressure off me not having to worry about my hair. Anytime I can clear something off my plate, I take it happily. The only thing is the straightening…

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My daughter graduating college

My daughter graduating college

My daughter is graduating from college on Tuesday. I am so proud of her. She has not had an easy road especially when it came to school. She was born with a progressive hearing loss called EVAS, enlarged vestibular aqueduct syndrome. In basic terms, her ear was formed with deformities. This enlarged tube allowed fluid to leak, eventually destroying the hairs on the ears nerve where sound travels. I’ve written a few blogs about her but the following is the…

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Dedicated to Marshmallow

Dedicated to Marshmallow

My dogs like to leave this world on holidays. My Boomer died on Christmas Day and Marshmallow was put down on Mother’s Day. Technically the date last year was different than this year snd it was officially a year ago today I said goodbye. However, it was the evening of Mother’s Day and that’s what I’ll remember more. My sweet boy, my guardian and protector. He was always by my side. He loved all people but I was his person….

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Still have a view

Still have a view

I finally found the plans for the hotel that will be taking up the empty lots in my direct view. The plans weren’t actually finalized until January of 2021. Originally the plans were for a three story hotel, a two story conference/wedding center and a two story covered garage was being built at the end of the block. I would loose my entire view from my living room. I’d still have water on the canal to the left but the…

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Unexpected Friendship

Unexpected Friendship

I went out on a date with this guy 12 years ago and we’ve remained friends all this time. He took me to a Paul McCartney concert at CitiField, not a shabby first date. He was a pharmaceutical rep for another neurological disease. It was easy to make him fully aware I had multiple sclerosis. He understood these diseases and had relationships with many of the neurologist in the area. However, it doesn’t stop him from bringing up that I…

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