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Author: Youtwohearts

A day in the life with multiple sclerosis.
Ugh Multiple Sclerosis

Ugh Multiple Sclerosis

I’ve dealt with multiple sclerosis for 24 years yet I can still be surprised by its symptoms. You’d think I wouldn’t be shocked anymore. I had to spend most of my afternoon in my comfy chair. The exterminator was coming back, to treat my room, for the third time. It seems that the guy who boasted about his 12 year experience with bedbug, still missed the bedbugs alive in my room. He reported seeing nothing after I told him specifically…

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Informing Employers of MS Diagnosis

Informing Employers of MS Diagnosis

I was thinking this weekend about when I worked. I’ve read a few MS blogs where people discussed when, if ever, do they disclose their disease to their employer? If you are new to my blog, I was diagnosed with multiple sclerosis when I was 26. I’m 50 years old now. I became disabled when I was 44. That left a lot of years when I worked. I held my last position for 13 years with the same company but…

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Autobiography in Five Short Chapters

Autobiography in Five Short Chapters

I’ve had this on my blog quite a few times. I was reminded of it yesterday in a discussion with my life coach. One of my favorite things I’ve come across during my spiritual journey actually during my life journey. I remember how hard it was going from chapter 1 to chapter 2. I never thought I’d ever get to a new road in life like chapter 5. Yet, I did. I have found more peace and happiness in my…

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New Bathroom Issues, yes they can be worse

New Bathroom Issues, yes they can be worse

I always said I was going to be honest when I wrote my blog. I have told many horrifying embarrassing stories over the 6 years I’ve been blogging. I guess now isn’t the time to stop. I’ve had bathroom issues my whole life. By bathroom, I mean bowel. It was very common for me to go to the bathroom as little as once a week, sometimes longer. I many times had to take laxatives to “move things along“. This in…

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Key to Happiness

Key to Happiness

I remember when I was a kid I used to dream of living in this huge house. I wanted my house to have a lot of land. I didn’t have a clue as a kid about cleaning a house or maintaining a large piece of property. I didn’t have any idea what a mortgage was or how much property taxes could be on large land lots. I wanted a family. I always wanted to have animals. I even fantasized of…

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Occupational therapy vs Physical Therapy

Occupational therapy vs Physical Therapy

Happy hump day. Another day, another week. This week was a little different for me because my daughter is home for a visit. I love having her home. I love her energy in the house. I love how she climbs into my bed when she wakes up and is always in my bed before I go to sleep. I miss her when she leaves until I get use to her being gone again. Right now I get to enjoy her…

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Vagus Nerve research in Multiple Sclerosis

Vagus Nerve research in Multiple Sclerosis

Ok a new MS research blog brought to my attention by my dad yesterday. It has to do with the Vagus Nerve (pronounced like Las Vegas). The vagus is a major nerve that runs throughout the body and controls crucial functions, like heart function and blood pressure, digestion, breathing and immune response. It also conveys sensory information to the brain about the current status of internal organs; a process termed interoception. The vagus nerve is a major therapeutic target for…

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Inside my room of quiet

Inside my room of quiet

I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am today as opposed to where I was. Mahjong is my favorite and I really don’t want to be discouraged by something else. I put off…

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Missing my companions

Missing my companions

I had a really good final physical therapy session on Monday. I walked further than I walked all this year. Where I am walking to, I don’t know. I have come a long way since coming home from the hospital. Still not where I was. I think some of the disability changes I can live with easily. Some are demoralizing and as an 50 year old woman, they came to fast. Multiple sclerosis is not an easy disease. I’m not…

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Processing Feelings

Processing Feelings

I have to say I feel sad. I didn’t want to do much this weekend. I didn’t really want to talk much this weekend. I kind of wanted to hide away. My uncle’s death, my friend’s son, my friend’s sister, it all happened within two weeks of each other. So much sadness. I was so sad for my friends but my uncle hit me really hard. I didn’t want to talk about it the other blog because I wanted to…

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