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Author: Youtwohearts

A day in the life with multiple sclerosis.
Ugh frustrated

Ugh frustrated

I’m in a crabby mood today. I’m frustrated. They finally called me about my wheelchair at 5:30 last night. I didn’t recognize the number so I didn’t pick it up and they told me to call back. Of course they close at five so calling back did nothing. I’ve been dealing with this chair that looks like this It has been incredibly difficult let alone not safe. I’m frustrated trying to maneuver and not hit things because I’m steering almost…

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Goal accomplished

Goal accomplished

I accomplished the really hard workout that took me down last week. Persistent isn’t always a good thing. Not only did I accomplish it, I doubled up exercises that weren’t squats. I kicked butt. This doesn’t even include the warmup that I forgot to start my Apple Watch. I would have had an additional 15 minutes but my heart rate average would have been lower. Not a bad workout with resistance bands. For my age and disability that is a…

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A day at the hair salon

A day at the hair salon

I’m in the hair salon. I’ll be here for hours. When I say hours I mean like a total of 6 hours. I’m getting my hair straightened. It’s a long process. My hairdresser takes even longer because she’s meticulous. I had to put on one of the disposable paper masks so it’s a matter of time before I overheat. Not the most ideal situation for me. I have a phone conference with my neurologist at 11. Unfortunately the call was…

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A day at the hair salon

A day at the hair salon

I’m in the hair salon. I’ll be here for hours. When I say hours I mean like a total of 6 hours. I’m getting my hair straightened. It’s a long process. My hairdresser takes even longer because she’s meticulous. I had to put on one of the disposable paper masks so it’s a matter of time before I overheat. Not the most ideal situation for me. I have a phone conference with my neurologist at 11. Unfortunately the call was…

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My happy place

My happy place

The sun is shining off the water in the way I love. It’s the kind of day I could get lost in my view outside. I love it here. I love my condo. I love the space and how it works so well for me with my disability but mostly I love my view. I always show my view from the same two windows because that is what I see from my comfy chair but I really have water views…

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A bad day can be just that, a day

A bad day can be just that, a day

For the many bad days of multiple sclerosis, there are better ones as well. Yesterday was one of those days. I started off with a workout as usual. My energy level was definitely high and I was able to double up on all the arm exercises. I had one of those workouts where I was sweating and my heart was pumping. I was tired but in a good way when I was finished. The way you should feel after a…

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Sometimes I wish it wasn’t so damn hard

Sometimes I wish it wasn’t so damn hard

Friday was a tough day. I wrote how it started Persistent isn’t always a good thing but it never got better. I was exhausted most of the afternoon. My older sister came for a quick visit with her family but she too was having a tough week. I opened a bottle of wine for her. She poured some for the both of us. One of my favorite wines a JLohr Cabernet Sauvignon, thanks to dinners with my dad, I always…

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Persistent isn’t always a good thing

Persistent isn’t always a good thing

Rough morning and it was completely my fault. I decided to wear jeans today for the first time in 8 months. I figured now that I’m wearing this nightgown to bed, let’s not dress like a slob. I got my pants on with a little effort. I don’t unbutton or unzip my jeans since it is difficult for my hands to latch buttons. My pants fit but they usually come up with slightly less effort. I’m not sure if it…

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Kidney sonogram completed

Kidney sonogram completed

So I finally got did the kidney sonogram yesterday. I decided not to start drinking the water until I left the house for the appointment. The appointment was at 2:30 I left my house about 2 o’clock. I have an extremely large water jug I drink every day so I started sucking down my water. The place was nearby so I was there quickly. I did the best I could. It’s a good thing I didn’t start an hour before…

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Simple things to make life a little easier

Simple things to make life a little easier

First let me say happy Veterans Day. A very grateful thank you for all that have served in our military forces. That is truly a brave and courageous act that should never be unrecognized by any citizen of the United States. I was supposed to have my yearly physical yesterday. It took me two months to get this appointment because of Covid. I was called early in the morning that the doctor had to cancel because she was unwell. I…

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