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Author: Youtwohearts

A day in the life with multiple sclerosis.
Something good about insurance

Something good about insurance

I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she’d call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then one day she was just gone. I didn’t know if Covid was the reason for the change, if she quit or left, I just had…

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My big comfy chair

My big comfy chair

The aftermath of the tropical storm that hit the other day continues. My mom and stepdad have slept over at my house the last two nights. I’ve given them my bedroom and I slept on my comfy chair. I slept quite well both nights I should add. Zoey and Minx slept with me and they seemed as comfortable as I was. I was almost too comfortable, like enough where if I was tired I could easily sleep on my chair…

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Really good multiple sclerosis research news

Really good multiple sclerosis research news

This is the best news article I’ve come along in a long time. It was titled: ‘Holy Grail’ MS discovery could prevent disability using diabetes drug For the first time in ages this talks about stopping the disability not reducing relapses. https://www.sciencefocus.com/news/holy-grail-ms-discovery-could-prevent-disability-using-diabetes-drug/ In MS, the protective coating surrounding nerves known as myelin is damaged causing them to become less energy efficient which makes them vulnerable to further damage and causes disability over time, the MS Society said. < p style=”box-sizing: inherit; margin:…

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I’ll huff and puff and I’ll blow your trees down

I’ll huff and puff and I’ll blow your trees down

Don’t ever listen to me if I’m giving any opinions on weather again. https://multipleexperiences.org/. My mother and stepdad’s house is surrounded by trees. For 40 years and many, many hurricanes and storms we’ve been worried about one of those trees falling anywhere. These trees survived them all, including superstorm Sandy. Then we get this tropical storm yesterday. We weren’t even directly hit. We had about an hour plus of rain followed by winds. I know they were strong winds because…

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Just a bunch of my opinions

Just a bunch of my opinions

I’m doing much better with my wheelchair now. I have definitely taken the advice of my therapist and utilized my wheelchair to move me into position. My wheelchair tips from the evaluatorsIt looks something like this: It forces your butt to slide back into position. It took a little for me to get use to because I felt like I was going to tip backwards but that obviously hasn’t happened. It is an unnatural feeling, that’s for sure. I have…

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Another beautiful view

Another beautiful view

I just finished working out. I’m back on my chair gazing out my windows looking at the sparkling water. I sometimes envy those people on the boats. Especially the ones I see coming fast in the open water before they have to slow down for the channel. I remember vividly how that breeze feels as you fly across the water even though it’s been ages since I’ve been on that type of boat. I also remember vividly how it feels…

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Nobody likes change

Nobody likes change

After three years, my aid is moving on. She’s changing her hours to work 12 hour shifts each day during the weekend. This way she can make relatively the same hours in less days and be home with her son. With all the uncertainty of the schools new operating hours, who could blame her.  I witnessed firsthand what it was like when she had a homeschool her son. It was hard for every parent but exceptionally hard for someone…

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Doterra oils to the rescue

Doterra oils to the rescue

I’ve written so many blogs on these oils. I was a consultant trying to make a few extra dollars, that wasn’t for me but it didn’t stop me believing in the products. I have oils all over my house. There are certain ones that I use everyday, like serenity. https://multipleexperiences.org/2018/02/07/serenity-oil-and-my-dogs/ This is still the only oil I use in my bedroom when I’m going to sleep. It works great for me and Zoey. Once we get Minx settled down, it…

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I’m a good tired

I’m a good tired

I’m tired. I start a lot of blogs like that, don’t I? I have put myself through an entire month of working out every single day. Was it worth it? Hell yeah!!! I love challenging myself through workouts. I always did.  Of course everything is completely modified because of my MS, but it’s still incredibly hard for me. On top of that though, I was busy this week. I had my friend from the building up visiting. I had…

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My wheelchair tips from the evaluators

My wheelchair tips from the evaluators

Well my appointment with my OT wheelchair evaluators was good and bad. I was having some issues transferring into my new chair. Having issues with my new wheelchair. The bad was the chair doesn’t get an lower. My therapist explained that I need to work on the ways to make transfers work and keep them safe. They definitely recommend training with a sliding board and with a one on one trainer for transfers. Since I won’t be cleared by my…

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