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Author: Youtwohearts

A day in the life with multiple sclerosis.
Hair through the years

Hair through the years

My screensaver for my fire cube is pictures. It mixes up pictures that are on both mine and my daughter’s phone. The pictures are random on some type of rotation but after a few months, you’ve seen them all. It doesn’t show every picture we have but once in a while a rare one will appear. It never fails, no matter how many times I’ve seen some of these pictures, I still watch the slideshow. I have had many looks…

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Bedtime companions

Bedtime companions

I dozed off in my comfy chair last night and was far too tired and comfortable to move into my bed. As long as my dogs and my humpty are with me, I’m good. Yes, i still sleep with a doll at 48 years old. My human have been with me since I was a baby. They have gone through sleep away camp, college, a marriage, a long term relationship, and the breakups of both. My humpties have been my…

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Cold outside and I’m sweating….

Cold outside and I’m sweating….

It’s 48 degrees out and I’m in a complete sweat. I haven’t even worked out yet because I have therapy this morning. I am sitting around waiting for my therapist. I have opened my windows but the breeze wasn’t enough, I just turned on my fan. I’m dressed in a thin pant and a t-shirt. WTF!!!! I just got a call my therapist is running late, thank goodness. Hopefully I can get myself cooled down before he gets here otherwise…

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Happy Friday

Happy Friday

Good morning and happy Friday to everyone. I have to be honest I kicked my own ass this morning working out and I’m still huffing and puffing. Felt good to push myself this morning. I was feeling rested and knew there wasn’t much on my plate for today. It is another gloomy day in NY. I’m thankful that there is nothing I need to do today. This was a long week and I’ve had enough. I miss my tv time….

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Tests. Doctors, tests, doctors and more appointments

Tests. Doctors, tests, doctors and more appointments

I already received a call from my doctor this morning, MRI showed no new activity and my normal MS abnormalities. Exactly as expected. Like I said yesterday in my blog I haven’t shown anything on my MRI in years. I continue to get worse because I’m secondary progressive MS. Read the post on Dr. Krieger’s pool theory for further explanation. https://multipleexperiences.org/wp-admin/post.php?post=5174&action=edit. Well at least that’s done for the year. I also made an appointment to have a sonogram done on…

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MRI Today

MRI Today

Today I have a very long MRI. It is of the brain, cervical and thoracic spine with and without contrast. I would say this is probably at least my 22nd MRI since being diagnosed with multiple sclerosis over 22 years ago. I am no stranger to these tests. I have actually had numerous life epiphanies during my MRIs over the years. One was when I decided I wanted to be a bookkeeper/accountant. I started to look in the papers for…

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Little miss busy

Little miss busy

Busy busy busy. I feel like I’m on full steam ahead since I woke up this morning. It is partially my own fault, I slept late. I was so tired and it was still a rainy gloomy morning. Even my puppies we cuddled under the blanket fast asleep. If it wasn’t for the fact my friend was coming over at 11 and nails at 12, I probably would have stayed in bed longer. Yet I had to get in a…

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Reason to love the cold rainy day

Reason to love the cold rainy day

It is a rainy, cold and miserable day here in New York. The kind of day you want to sit on the couch wrapped up in a blanket and watch Netflix from morning to night.  The kind of day you pray you have nothing to do, nowhere to be, and no other obligations. The kind of day I am remotely grateful that I have multiple sclerosis and have nothing to do, nowhere to be and no other obligations. I…

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Support my Brother in Bike MS

Support my Brother in Bike MS

My brother does this every year and every year with me in mind. Please consider donating to a cause that is near and dear to me and my family plus too many other suffers. https://mssociety.donordrive.com/index.cfm?fuseaction=donorDrive.participant&participantID=16843&cmr=5282CE675756&language=en Dear friends,  Each year for the last 12, I’ve raised funds for BikeMS, to directly help those affected by this terrible disease funding research by the MS Society. This year, I’m falling short in my fundraising goal. This is not surprising – people are out…

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My next big project/accommodation

My next big project/accommodation

My handicap van, one of the most life changing things I was able purchase. This took months of research to find grants. Then after finding grants I had to first apply to each and every one of them. Coordinate the grants with each other. I had a fundraiser going in the middle of all of this trying to raise additional funds. I still had to find a van and negotiate a price. Finally I needed to get a car loan…

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