I have so much to catch you up on, I’m not really sure where to start. I seem to have the UTI’s under control. I’ve made it two months without needing antibiotics. I am talking a prophylactic antibiotic nightly as a precaution. Hopefully I am through the cycle I was living inside. I was also given a round of IVIG therapy to boost my immune system. That is an IV of immunoglobulin. By boosting my immune system we are once again hoping these infections will stop. The day before I had the IV I got one of my migraines. I can’t explain why, but ever since the IV was given, my migraines have been bad. They have been under control for so long. I know for sure I had one right before I did the IVIG infusion. It isn’t because of the IV but it’s like the IV carried the symptom through. I have taken more migraine medication in the last month than I have in the last 2 years. My doctor is adding a new medication to my daily meds for migraines now. I have really been good with migraines until this point. Topiramate helped me tremendously. Now I’m back to having migraines every other day or worse having migraines for a number of days in a row. I get rid of one thing and something else goes wrong. However, that isn’t the worst of things.
My lovely multiple sclerosis symptoms have also become worse recently. I’m used to my left hand being weak, numb and clumsy but now my right hand is showing the same symptoms. Don’t get me wrong, this isn’t a new symptom, but it wouldn’t be troublesome unless I fully exhausted myself or I had a fever. Plus, I’d recover. Now my right hand is fatiguing as I’m exercising in the morning. Where my left hand always fatigued and my right hand has to compensate, now my right hand can’t grip the weighted bar either. My right hand isn’t always recovering and simple things like holding my phone or using a fork have become difficult. I drop everything. I think I’m holding something and I’m not. I find it frustrating. Just when I think MS can’t be worse, it shows me that it can. My exercise routine sometimes suck and I hate that. It plays with my mental state. I am a righty, I do everything with my right hand. When it fatigues and I can’t do things it really sucks. So now we are going to try a round of IV steroids for 3 days.
I have NOT taken Rituxan as of now. I should have had my dose in November. My blood cell lymphocytes in the B cells are still at ZERO. I am scheduling a MRI to check for anything new although we doubt that highly. There is more but I think that is enough for now. I’m trying to blog again….lets see how that goes.