Browsed by
Tag: Ms progression

Loving the MS Gym

Loving the MS Gym

Good morning. It is a Grey Saturday morning here. Actually it’s a white Saturday morning.  If you look closely you can see the water. It’s 8:00 am and I’ve already worked out. I can’t say enough good things about the MS gym. http://www.themsgym.com/. I just completed week 2 and I already have seen a slight improvement. no one else would notice this improvement, it is extremely minute. This is just one of the things that I noticed from doing…

Read More Read More

New area of complete numbness

New area of complete numbness

I was sitting with both of my dogs yesterday, all cuddling on my chair. My Zoey decided to do her typical puppy love and kiss my face. I don’t know if things changed or I just haven’t realized, but where she was kissing, licking, I felt nothing. I felt the pressure of her tongue but I couldn’t feel her tongue. I couldn’t feel the wetness of the kiss. All I felt was that pressure and nothing else. Zoey has a…

Read More Read More

New and old

New and old

I had my sister and brother-in-law over yesterday. Love them ❤️. I was showing off my new wheelchair that I have not been using. Between learning how to maneuver the wheelchair unsuccessfully and Minx being so tiny, I thought it was best to stay with my more familiar hooveround for a while longer. So I put the new chair in the closet temporarily. Minx loved my hoveround although we had a few mishaps. There were a few yelps from him…

Read More Read More

Working out a new way

Working out a new way

So Minx, my adorable puppy, has definitely affected my sleep. Yet my body has been more run down from the changes I made to my workouts. I have been doing various workouts for a minimum of 5 days a week for a long time. As my disability worsened, my workouts were modified but never stopped. I’ve modified to a chair quite successfully. I can get my heart rate up over 130 on some chair workouts. All good but muscle burns…

Read More Read More

Gradual disease progression

Gradual disease progression

How are you feeling? Seems that this is always the question asked by everyone that knows me. Today, I asked myself. I have written many blogs about lack of sleep Sleep deprived, many about accidents A horrible and humbling outing, and even some on actual feeling How are you feeling? The truth about Parethesia, but it’s been a while since I actually said how I was feeling. I’ve had multiple sclerosis for 22 years now. My disease modifying therapy is…

Read More Read More

Post Covid MS life

Post Covid MS life

So little Minx is doing great. He has, however, received a new nickname of demon because of his teething on anything flesh. Those little teeth hurt especially when he gets you under the arm. I’ve been doing a yelp, line he does,hoping he gets the idea of ouch. With a million teething toys on the floor, he still prefers the skin of my daughter and myself above them all. Other than that, I’m a little sleep deprived. I can’t even…

Read More Read More

Maybe a little leg improvement

Maybe a little leg improvement

I did an update on my phone this morning and my WordPress app has been running very slow. Plus I’ve been experiencing some glitches. I’ve now turned off my phone twice and rebooted the app for the second time. All to write a blog that I had nothing to say. I was off to a late start this morning. It’s 11:00 and I just completed exercising. I did two different chair programs. One for core and one with weights. I…

Read More Read More

Increasing aid hours or not….

Increasing aid hours or not….

I’ve said many times that I start to write my blog with one idea and it goes a completely different way. Sometimes the blog writes itself. This is what happened yesterday Summer heat hibernation and my own multiple sclerosis realization. I certainly wasn’t planning on addressing the idea of more aid hours. I’ve pushed back on this, against my family’s concerns, because I need some alone time. It’s probably why I never have a problem being home. I’m with someone…

Read More Read More

Summer heat hibernation and my own multiple sclerosis realization

Summer heat hibernation and my own multiple sclerosis realization

The quarantine is starting to lift yet this is the weather I start my hibernation. It’s starting to warm up and that means trouble for me and multiple sclerosis. Not just me, many of us. Between 60% and 80% of people with MS find that heat can cause their symptoms to worsen. This might involve a build up of fatigue, blurred vision, loss of balance or a worsening of cognitive symptoms such as concentration or memory. https://www.mstrust.org.uk/a-z/temperaturesensitivity I missed all my good months to…

Read More Read More

How are you feeling? The truth about Parethesia

How are you feeling? The truth about Parethesia

When you live with a chronic illness I think you start to hate that question. People ask it all the time but they really don’t want the actual answer. Trust me, we very rarely actually respond with the truth. My go to answer is I’m doing ok. I can’t say good anymore because that is just too much of a stretch. I just answer with a vague I’m doing ok and change the subject, how are you doing? What is…

Read More Read More

%d bloggers like this: