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Tag: daily life with ms

Weekend plans, or not

Weekend plans, or not

When your day starts off with an accident and a fall, you aren’t feeling so optimistic for a good MS day. Yesterday evening was my second Kesimpta shot. I decided to once again do my thigh region. I did my right leg this time. That might not have been the best place. As soon as the needle pierced the skin, my leg immediately went into a super spasm. I twitched and moved during the injection. It hurt. I know that…

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First Kesimpta dosing shot

First Kesimpta dosing shot

I started getting freaked out reading other people’s first shot reactions on the Facebook Kesimpta group. I thank Sherry for commenting on my Kesimpta delivery blog and telling me about the group but it didn’t help my nerves. Thankfully, I had a video conference with my neurologist yesterday. She explained Kesimpta is nothing like the interferon shots that I took for the first 12 years. The shots that still give me those horrible flashbacks that are causing all this fear….

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My daughter will be moving out soon

My daughter will be moving out soon

I have to say, this week seems to be flying by. I’ve been busy too without exhaustion. That’s the most important part. I’ve had some really good, sweaty workouts. I love those. I unfortunately had to once again shut the windows and turn the AC on. The way my building is situated and my windows line up, the wind direction makes a big difference. If the wind is moving away from the building than I get no air into my…

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Kesimpta delivery scheduled

Kesimpta delivery scheduled

I got a call yesterday from the pharmacy about the delivery of my new medication, Kesimpta. I am being mailed 3 doses for my first month. I take a shot weeks 1,2 and 4. From there it will be once a month. The shot is recommended to be in my thigh, stomach or upper arm. All the memories of the years of Betaseron come flooding back. Betaseron was my main MS drug until Gilenya, a pill, came out. 12 years…

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My very early birthday list

My very early birthday list

Good morning to all. It’s September 1st and I’m doing my happy dance. I made it through another summer. I want to be the kind of person that has a summer place where it is cooler like in Alaska or Iceland. Someplace I can retreat to during the hit and humid months in New York. I don’t think that’s an unreasonable accommodation. Im not a beach person although I love to gaze out over the water. I just love views….

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Out of my routine

Out of my routine

I’m anxious today. I’ve had too many days already out of my normal routine and today is no different. I have to get the covid booster at 12 and game day in the building is at 1. I just finished exercising and getting dressed but I feel rushed. It didn’t help that I smacked my head on these ridiculous metal bars that are right behind my head on my wheelchair. All I need to do is not lean back straight…

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The week ahead

The week ahead

It was a non existent hurricane in my area yesterday. Not just non existent but after the rain in the morning we didn’t even have rain. My mom, who lives 13 minutes from me, had rain on and off all day. My friend in the town next to me also had rain all day on and off but not me. It was so strange. The sun even started coming out while my mom was experiencing pouring rain. She didn’t believe…

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Sometimes life is unfair

Sometimes life is unfair

Happy Friday. I’m sitting here deciding what I want to write about because I know I have things I want to say, I just don’t know if I want to say it in my blog. My blog,that I’ve written the most embarrassing moments, I suddenly don’t want to put my feelings on display. Unfortunately, my blog has been my place I work my shit out for years now. I don’t think I can truly move forward until I figure it…

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Multiple sclerosis is physical and mental

Multiple sclerosis is physical and mental

I had physical therapy again yesterday which once again ended up disappointing. I walked less than I ever walked in these sessions of PT. I woke up feeling good. I did my normal morning routine. I felt good and then I started getting tired. Therapy was at 12 and by that time I was already feeling fatigued. I was determined to walk but my body wasn’t matching my will. It was pathetic and frustrating from the first step. Why??? This…

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Rediscovering Dark Side of the Moon

Rediscovering Dark Side of the Moon

I forgot to take my nighttime pills before bed the other night. I should have realized when I was still awake after 11 o’clock. I was tired but unable to sleep. My leg was twitching, my neck was having little spasms and I don’t want to discuss what my stomach was doing. I can say it was the attention on my stomach that made me fall to realize why I was twitching. I’ve had a bunch of nights I forgot…

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