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My week finding agencies

My week finding agencies

Well after my blog on Wednesday, I figured I better lighten things up a little. I just don’t know if I have anything light to talk about. It’s not that anything is necessarily bad but it isn’t that great either. I had terrible spasticity this week. My legs have been super stiff. It has made getting up out of my chair and bed difficult. It is very difficult to move when one or both of your legs don’t want to…

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The things we don’t say

The things we don’t say

Sometimes I stare at this blank page and I really know what I want to say. Other times I really don’t have a clue. There are times I know what I want to say but I am to scared to say it. I fear that I might not write it properly and it would be misunderstood. This might be one of those blogs. Let me say right away I am not depressed. I am not suicidal. I am not trying…

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Intake with Suffolk Independent Living Organization

Intake with Suffolk Independent Living Organization

Yesterday started with a bang, and not a good one. Unfortunately, I heard a crash of what only could be a car hitting something. I got up quickly to look, startled. Well you can imagine how that went. I realized quickly that in case of an emergency, don’t ever count on me. In my startled reaction to the sound, I got up and fell. It took me some time to get myself up. Thankfully, there were many people from my…

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Searching for ways to remain independent and safe

Searching for ways to remain independent and safe

It is Friday!!! I haven’t had a bad week even with my blue Tuesday. For the last few weeks in my game day my, with my friends in the building, we’ve been playing this game called Misery Index. It basically is cards that have certain bad things that can happen to you and you have to place them in order based on the cards you already have. Each card has a misery index number from.01 (a paper cut) to 100…

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A Blue Tuesday

A Blue Tuesday

I was feeling slightly blue yesterday for no reason in particular. I slept in, not really wanting to get out of bed, but nature called. I did a workout but is was below even my lowest of standards. I just had no energy and I was trying to lift weights. I just had a difficult time with each move even at low weights. I certainly didn’t get any feel good endorphins from my pitiful workout. I got a lot accomplished…

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Nursing aide hours

Nursing aide hours

I had my lovely sister over this weekend. We were discussing the possible change in my nursing aide hours. This is all coming from the incident when I fell and couldn’t get up. https://multipleexperiences.org/2021/08/27/i-pressed-the-med-alert-button/. After this unfortunate issue, my mom and step dad decided I needed more hours of care. I actually had an evaluation with my insurance a few days later by lucky coincidence. We made a request to change my nursing aide hours from 8 hours Monday-Friday to…

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Bike MS 2021

Bike MS 2021

It has been another fast week. I keep saying that every week. I think time is speeding up and I am really not looking for any speeding tickets. I am, however, ready for my sweatshirts and warm pjs so the 70 degree weather can go. I am ready to be bundled up with hot chocolate again. While I’m thinking about bundling up my brother has been out biking getting himself ready for Bike MS. I always think to myself during…

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Apple Watch trade in issues

Apple Watch trade in issues

Aggravating morning yesterday. Actually I’ve had an aggravating time with my entire trade in process with my Apple Watch. I decided to get the series 6 after Apple announced the Apple 7 watch. The biggest differences being a thinner screen and longer battery life, I didn’t need to wait. It was time for me to upgrade my watch so I did. The biggest thing I wanted was to keep my band from my series 5 purchase for my new watch….

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Moving the scale downwards

Moving the scale downwards

Well good morning to everyone. Another week is beginning. Oh joy!!! Truthfully, the days all blend for me sometimes. If it wasn’t for my aide showing up Monday mornings, I might never know what day it is. I didn’t do anything this weekend because I was exhausted from this week. It doesn’t take much to overwhelm me during a week. A few activities outside my normal week and that’s all it takes. I cherish my down times. Cuddling my pups…

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Wishing my daughter all the best in the world ❤️

Wishing my daughter all the best in the world ❤️

It is official, my daughter moved out yesterday. Unfortunately, she didn’t move locally so she won’t be popping over anytime. Her trips home will have to be planned with a plane, train or car. Everyone asked me all week if I was ok, and I really was. This morning saying goodbye tears flowed because of pride. I am just so proud of her. She has had to work very hard to get to this point. Life certainly hasn’t been easy…

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