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Tag: Rituxan

Neurologist visits

Neurologist visits

I have to say this cold has kicked the shit out of me. I know taking Rituxan lowers my immune system but I honestly very rarely get sick. Even my issues in 2022 I was on Kesimpta, not Rituxan. The last cold I had was back in 2019 when I went on my last vacation. I went to Mexico with my family. I had the worst cold. I was miserable for the first 4 days of the week’s vacation. I…

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My age 51 my body is much older

My age 51 my body is much older

It’s my birthday tomorrow. 51!!! I’m middle age. I think my body has been middle age since I was 43. That was when multiple sclerosis hit me with the last relapse that started my path of true disability. It’s been 8 years since that last relapse. It was when I was switching from Tysabri to Rituxan. I made the mistake of stopping Tysabri because I actually had the thought of switching to an experimental drug. I needed to be off…

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Rituxan Infusion in the Books

Rituxan Infusion in the Books

I am half way through my Rituxan infusion. Chilling out watching Ink Master. I was smart this morning. I kept my arms covered despite being slightly warm. I know, all too well, that my cold arms do not help when trying to start an IV. I overheat so easily so there is usually a fan blowing right next to me. I might not feel cold but my arms and hands are always cold to touch. I kept a sweatshirt on…

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Shameful Doctor

Shameful Doctor

I’ve been absent again. I have just had a lousy few weeks. I have had a shitty year. If you have read my blog, I have that well documented. I’m tired of dealing with all the issues that keep occurring week in and week out. I just feel like I have not had one month where I wasn’t dealing with some issues. From sickness to bedbugs back to my chronic stomach issues, I honestly feel like I can’t catch a…

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Pincushion Arms and Infusion on Horizon

Pincushion Arms and Infusion on Horizon

I’m sneezing. My first cold of the year. I have been taking my oregano oil for a few days. It has probably helped but it hasn’t stopped the cold like it has in the past. I think things are just not affecting me the same since my whole pneumonia debacle. Oregano oil use to knock out anything as soon as I felt the twinge. Now I feel like it doesn’t do the trick. I’m not use to actually feeling run…

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Hives Everywhere and No Bees

Hives Everywhere and No Bees

Have I discussed my hives with you yet. OMG, thank you multiple sclerosis for not allowing my skin to feel itching like normal people. I’ve had them for months. The spots come and go all over my arms. They seem to prefer the right arm more than the left. They weren’t this bad until recently. I’ve called my new doctor quite a few times. A doctor I was very excited to get. https://multipleexperiences.org/2022/05/04/home-visit-doctor/. She finally called me back and was…

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Never Give Up

Never Give Up

I am still making shocking improvements. I walked my hallway in PT. I haven’t done that since last year. https://multipleexperiences.org/2021/06/18/walking-again/. I at one point had a goal to not use the wheelchair in the condo anymore. As much as I would like to believe this is still an attainable goal, it is far down on my goal list. I was amazed I have been able to walk again at all. It took almost 30 minutes to walk roughly 50 feet,…

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Stubbornness and Defiance

Stubbornness and Defiance

It has taken me almost 6 months but I finally did it. I GOT UP FROM MY COMFY CHAIR. I got up by myself. I actually started standing up when my therapist was a few feet away from me. I didn’t want anyone to touch me. I knew I could get up. I didn’t want to have that hand on me for guidance. I wanted my victory. I deserved my victory. I know the walking was the biggest thing to…

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Still exhausted

Still exhausted

I woke up yesterday and felt really good. I got up, into my wheelchair and I finally was able to stand on the scale. I held my my balance for a split second allowing the scale to actually show an accurate number. I was 138, fully dressed. I never weighed myself dressed. That is 3lbs from my ultimate weight goal. A goal I never even thought was going to ever really happen. Well I guess there is something to say…

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A week off

A week off

I’m not grey anymore. My daughter dyed my hair yesterday. A grueling experience. Not because of her, but I had to sit in my wheelchair for an hour. I have been really tired this week. On Monday I wrote I blogged I wasn’t having any reactions to my Rituxan infusion. Today I have to admit I might be having a reaction to my Rituxan infusion. I am definitely feeling run down. What is really worse is my hands. I’m not…

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