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Rituxan Infusion Finally Done but still wasn’t smooth

Rituxan Infusion Finally Done but still wasn’t smooth

I finally got my infusion done on Saturday but it was still with a few headaches. I got a delivery on Friday of a box from the pharmacy that seemed to be another box of supplies. I still didn’t have the steroids, Benadryl, Saline Bag or the pump. It took me 50 minutes on hold until I got someone to pick up. From there I was bounced around to three different people. The last person I was speaking to was…

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Scared for my Rituxan Infusion

Scared for my Rituxan Infusion

My big box from the pharmacy was delivered yesterday. In it was 250mg Solumedrol, 600mg of Rituxan, and a whole bunch of syringes and needles. I’ve done these infusion for years now. I’ve done Solumedrol infusion for even longer. This time opening the box made my stomach drop. I’m dreading this infusion. I’ve done it so many times yet this time I really don’t want to do it. I’m a little afraid. Years ago I was coming off of a…

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So many needles

So many needles

I have to do bloodwork this morning. You think I’d be a lot less needle phobic with the amount of shots I’ve received over the years but I’m really not. I’ve from the earliest medicine for MS. I’ve been on Avonex, Betaseron, Rebif and even Copaxone. These are all medicines that required weekly or even daily shots that I had to learn to administer myself. For the first 12 years of my journey I had to do these. When Gilenya…

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Rituxan infusion complete

Rituxan infusion complete

I had my full dose infusion of Rituxan yesterday in my home. Definitely the way to have an infusion. Got my dogs with me for some puppy love, relaxing in my chair and catching up on DVR. The infusion was started very late which was a downside. My nurse had an issue with a prior patient and an infusion that was already scheduled late was now started at 6:30pm. Rituxan, like Ocrevus, is a 5-6 hour infusion so you could…

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Getting back into routine

Getting back into routine

It’s been a while, seems like months, but it’s only been a few weeks. I am finally getting back into my weekly routine. I’ve said this many times in my blogs, I need the stability of the routine. It helps me function and cope in each given week. When I’m out of routine I feel a little lost. My MS may even act up and become cumbersome. Might be part of the reason for my lethargic ways these last few…

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Increased antidepressant prescription

Increased antidepressant prescription

Snap out of it!!! I was telling myself that for a week. I spent a week in pjs because I didn’t have the energy to get up and get dressed. I’ve been lethargic and tired and just morose. I was off of the steroids and knew it could be a side effect but it was bad. I saw the specialist that Tuesday and when we got to the list of my medication and Prozac she asked for the very first…

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Short and sweet

Short and sweet

I am not feeling good. I expected it following my steroid infusion. My skin almost hurts. I’m happy to say I slept in which was needed. It’s a beautiful day here in New York and I am happy to be in my pj’s looking out at the water. I’m accompanied by my fur babies and I’m good for the day. Wishing everyone a lovely Saturday. Please visit my Go Fund Me page. Any donations are greatly appreciated. https://www.gofundme.com/6c89ruo?pc=ot_co_dashboard_a&rcid=58dcd35905d2429dab618754ee799669

Steroids complete

Steroids complete

Well when I took out the stint my hand was swollen. That would explain the pain that was going on during the infusion. I got a call at 8:00 last night from the nursing staff about coming today to do my discharge. They said they were going to take out the stint and do my paperwork. I laughed, as soon as that infusion was done I ripped out that stint. I wasn’t leaving that in my hand a minute longer…

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Steroids day 2 tips to not gain weight

Steroids day 2 tips to not gain weight

The infusion was slightly painful last night. Painful in the vein not the site of the stint. It made for an uncomfortable hour. That doesn’t make me happy going into tonight. However I have one more infusion to go. No matter how much it hurts I will get it done. Hopefully the vein doesn’t collapse because that would suck. I slept much better yesterday although I was up every two hours to use the bathroom. There is a tricks to…

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Steroid infusion set for next week

Steroid infusion set for next week

I’ve shared many blogs explaining how things were getting harder for me. My physical therapist, whom I been seeing for over two years, made a recommendation that maybe it’s time to try steroids. He is also notice the difference. His thinking was maybe, just maybe, this is actually some flareup of a MS. Maybe a course of steroids would take down any inflammation and give me back a little bit of my strength. Since I saw my neurologist less than…

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