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MultipleSclerosis.net Latest on MS Clinical Trial

MultipleSclerosis.net Latest on MS Clinical Trial

This article was from multiplesclerosis.net. I haven’t posted much on research lately. Probably because I am at a point where most drugs in the horizon won’t help. However, today Facebook has been showing ads for multiple sclerosis drugs that ARE NOT drugs approved for MS or covered by insurance. They are just ads from companies trying to target a market for the chronic disease. I don’t mind the ads when it’s nail gels or low carb keto snacks. By all…

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My Head on Straight

My Head on Straight

Good morning world. I am loving the cooler weather with the sunshine shining. I might have a small whiff of fall in the air. I’m ready. I took the entire week off from exercise. I am fine but those booster shots definitely knocked me for a loop. I’m glad I did both the Covid and flu together. I’m more happy to know they’re done for a while. I just looked at my calendar for October, my Rituxan infusion order starts…

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Only Wednesday..,

Only Wednesday..,

I got a Covid booster and flu shot on Saturday. I was down for the count for almost 2 days. I’m doing better now. I thankfully made the decision to cancel occupational therapy for the morning. I was feeling better but I think I still needed the day to recoup. I didn’t even exercise, you know that’s saying a lot for me. As I laid in bed somewhat sleeping Monday morning, my new aide once again showed up an hour…

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Waiting on Gastric Diagnosis

Waiting on Gastric Diagnosis

I have a new day time aide. It’s been a little rough with some of the aides I’ve been sent. I hate being that person that complains but some of these people were just useless. I can put up with a lot. If I feel unsafe with someone I usually can’t get through that. Some of these aids had no training. I knew if I stumbled during a transfer I was going down. It became very stressful each day. Each…

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What is multiple sclerosis?

What is multiple sclerosis?

I don’t know how many times I’ve talked to people that had the cure for multiple sclerosis. If it was just about diet and taking vitamins, I promise you, I would be doing that. People mean well. Unfortunately, they read one story and think it works the same way for everyone. If there was a universal cure we’d know. I think that diet and vitamin can make a difference in the early stages of multiple sclerosis. The healthier your body…

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Another Accomplishment

Another Accomplishment

Happy Friday. It’s been another rough week for me but I did have another major victory. I was able to get in the shower for the first time since the end of the December. I have a small shower with no bathtub. However, it isn’t flat to the floor. There is a small step that was difficult for me to navigate before I got sick. After the pneumonia, getting over that step was an obstacle I didn’t think I’d ever…

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My Full Time Job

My Full Time Job

Another week begins…truthfully they all blend these days so I shouldn’t say a word. It isn’t like I’m starting a work week. The one thing Monday brings is the list of phone calls I need to make. I find it amazing that I always have to take care of something. It is either insurance stuff, doctor appointments or calling people that didn’t return my call from the following week. It might not pay but somedays it’s a full time job….

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Voluntary Best Friends

Voluntary Best Friends

I am still dealing with all the little things, but I’m not as down as I was writing Monday’s blog. I can report that there is still areas I’m making improvements. Tuesday I was actually able to get up from sitting on the toilet seat. It was a “dry run” exercise with my occupational therapist. I was actually able to get up twice. I didn’t even use that seat that goes over the bowl to raise you up. I was…

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Treading water

Treading water

I’ve been overwhelmed lately. I actually missed a day blogging last week. My other blogs were far from anything difficult or heartfelt. I took a hiatus from blogging, dieting and even working out. I just feel very stressed lately because it never seems to end. Every day is another issue. Considering how this year started, the pneumonia, being bed bound, you’d think I could deal with anything. It just seems like every time I get through one obstacle or issue,…

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My brother Howard’s 13th year for Bike MS

My brother Howard’s 13th year for Bike MS

Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…

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