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Tag: MS

Awake way to early

Awake way to early

It’s 9am and I’ve already showered, worked out for 54 minutes, took care of my dogs and spoke with my mom. I’ve been up since roughly 6 when my right foot started twitching. Even though this video was taken when I was awake and in my chair, it is exactly what happens anytime and anyplace my leg twitches. Now you tell me, could you sleep through that? After the first 5-10 times it actually starts to hurt almost. My foot…

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Physical therapy 1st appointment

Physical therapy 1st appointment

I can’t say enough good things about this guy. He is just a person size package of warmth and healing. It is nice to be the only one the therapist is focused on during an hour session as well. Even though my occupational therapist was from the same company, he was no where near the caliber of my physical therapist. My hour session were never an hour more like 30-40 minutes at best. I wasn’t complaining. He was more like…

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Turning 49 in November

Turning 49 in November

Happy Monday once again. These weeks come so fast. Can’t believe it’s November already. I turned 49 in a couple of weeks. Oh joy. I’m looking at pictures that are flashing on my fire stick and my mother was my age. My daughter, who is now 21, is only four years off from when I got married. Six years off from when I was diagnosed with multiple sclerosis. Seven years off from when I was pregnant with her. If that…

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New purchases to help and aid

New purchases to help and aid

I figured something out once again out of dumb luck. Yesterday morning when I was getting out of bed, I actually had a slide onto the floor. When I wake up sometimes I have major spasms and my legs just don’t bend the right way. Yesterday was one of those days. Sometimes I’m able to get myself up without needing to actually bend my legs, however yesterday I wasn’t so lucky. It was first thing in the morning too and…

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New physical therapist

New physical therapist

I had my physical therapy evaluation yesterday at 3 o’clock. I thought the time alone would be a complete disaster. I worked out yesterday from 9 to 10 AM. I had my beautiful sister here from about 11 to 1:30. I I thought I was exhausted but oddly enough I really had a second wind. First I must honestly say I loved this guy. He comes into my house and the first thing he does is greet my dogs. The…

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I needed that

I needed that

I didn’t wake up in such a cheery mood today. Very unlike me too. Even when the first thing I see when my eyes open would be the faces of my babies, I still wasn’t really happy. I had a long day yesterday and I canceled my kidney sonogram. I just couldn’t deal with drinking 64 ounces of water before a test that I know I could never hold in. I mean I went to the doctor for incontinence. How…

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Safety first doesn’t mean I’m safe

Safety first doesn’t mean I’m safe

I try to do the safe things, I really do. Even when I’m trying to be at my safest I still have issues. Let’s take last night as an example. My dad called as I was about to go to the ladies room, so I told him I’d call him back in a minute. On my way back, i safely maneuver my wheelchair directly in front of my comfy chair to make my transfer. Easy and safe. As I was…

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Hair through the years

Hair through the years

My screensaver for my fire cube is pictures. It mixes up pictures that are on both mine and my daughter’s phone. The pictures are random on some type of rotation but after a few months, you’ve seen them all. It doesn’t show every picture we have but once in a while a rare one will appear. It never fails, no matter how many times I’ve seen some of these pictures, I still watch the slideshow. I have had many looks…

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Bedtime companions

Bedtime companions

I dozed off in my comfy chair last night and was far too tired and comfortable to move into my bed. As long as my dogs and my humpty are with me, I’m good. Yes, i still sleep with a doll at 48 years old. My human have been with me since I was a baby. They have gone through sleep away camp, college, a marriage, a long term relationship, and the breakups of both. My humpties have been my…

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Cold outside and I’m sweating….

Cold outside and I’m sweating….

It’s 48 degrees out and I’m in a complete sweat. I haven’t even worked out yet because I have therapy this morning. I am sitting around waiting for my therapist. I have opened my windows but the breeze wasn’t enough, I just turned on my fan. I’m dressed in a thin pant and a t-shirt. WTF!!!! I just got a call my therapist is running late, thank goodness. Hopefully I can get myself cooled down before he gets here otherwise…

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