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Multiple Sclerosis Adapt and Accept

Multiple Sclerosis Adapt and Accept

Friday again. It was a week ago I wrote about weather changes once again affecting MS symptoms. https://multipleexperiences.org/2022/06/17/mentally-strong/. I had changed PT from Monday to Wednesday because I was having a rough day Monday. Well I guess I was having a rough day Wednesday too. I couldn’t walk five steps. So much for my goal of walking the hallway and back to my condo door. It wasn’t even close. I honestly couldn’t walk a few feet out my door. I…

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Mentally Strong

Mentally Strong

I am still running on empty this week. It is very strange, I walked the furthest I walked on Monday. Wednesday and Thursday I’ve had difficulty standing up and transferring. When I say difficulty, I mean it’s been harder than it’s had been over the previous weeks. It is requiring more energy to get myself up into the standing position. It is more laborious moving my feet. Good MS days and bad days. I have had some pretty intense workouts…

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Hives Everywhere and No Bees

Hives Everywhere and No Bees

Have I discussed my hives with you yet. OMG, thank you multiple sclerosis for not allowing my skin to feel itching like normal people. I’ve had them for months. The spots come and go all over my arms. They seem to prefer the right arm more than the left. They weren’t this bad until recently. I’ve called my new doctor quite a few times. A doctor I was very excited to get. https://multipleexperiences.org/2022/05/04/home-visit-doctor/. She finally called me back and was…

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Always Fighting

Always Fighting

Some days are better than others. I walked the hallway again yesterday and it was so hard. Ok, it was hard the first time I did it but it was so much harder yesterday. My right leg, which is normally the leg that gives less issues, was very difficult to move. It was difficult from the hip flexor. I had problems moving the leg forward. My left leg, which normally drags, has difficulty clearing a step without my foot impeding…

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Never Give Up

Never Give Up

I am still making shocking improvements. I walked my hallway in PT. I haven’t done that since last year. https://multipleexperiences.org/2021/06/18/walking-again/. I at one point had a goal to not use the wheelchair in the condo anymore. As much as I would like to believe this is still an attainable goal, it is far down on my goal list. I was amazed I have been able to walk again at all. It took almost 30 minutes to walk roughly 50 feet,…

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Stubbornness and Defiance

Stubbornness and Defiance

It has taken me almost 6 months but I finally did it. I GOT UP FROM MY COMFY CHAIR. I got up by myself. I actually started standing up when my therapist was a few feet away from me. I didn’t want anyone to touch me. I knew I could get up. I didn’t want to have that hand on me for guidance. I wanted my victory. I deserved my victory. I know the walking was the biggest thing to…

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Summer is Coming

Summer is Coming

How was your weekend? Despite the scattered showers, it was a nice weekend here. The nautical mile, two blocks from me, starts amping up full speed as of this weekend. With three of the most popular bars being right across from me, it gets very noisy. Unfortunately, the music blends between them so you can’t always make out one song from another. I am always happy at the start of the season. I love the hustle and bustle of the…

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My goals will be reached

My goals will be reached

I had a good week. I shared my video of me walking in Wednesday. I walked even more during my PT session on Wednesday afternoon. I guess it wasn’t a video fluke of a good MS day. I am actually strong enough to take those few steps. I still can’t get up from my comfy chair but I certainly have hope. I even hit another milestone this week. I had my hair straighten. I had to sit up in my…

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Shocking to everyone including me

Shocking to everyone including me

I was sitting up at the end of the bed when he got there. I popped right up to stand. My PT therapist said try to take a step. I was standing up with one of those silver walkers. Well, I took a step. It was my first step since the end of December. I then took another and another. I was going forward and back in the small space of my room. I was getting tripped up having to…

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Busy Day

Busy Day

I’m actually writing this on Thursday evening. I had a long day. Since the change in my aides shifts, I am up at 7am. This morning I was up at 5. I had one of those MS symptoms that plague me whenever it is a inconvenient time. My feet were in pain. More like my heels. I felt like pins were simultaneously sticking into both my heels at the same time. Neuropathy. I know it well, but this time it…

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