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Tag: living with MS

Live from the living room floor

Live from the living room floor

This blog is coming to you live from my living room floor. I did not make my transfer well after my exercises and slid off of my comfy chair. I was in perfect position to get myself up but knew I had one shot at it. My legs failed and back down I went. After flopping around on the floor trying to change positions, I finally gave up. My aide will be here soon I don’t think my puppies mind…

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Infusion aftermath

Infusion aftermath

Yesterday was a very rough day. I’ve been sleeping good so that’s a plus. I was able to exercise because that is never an option. I would say around 12 o’clock it hit me like a ton of bricks. Maybe not even bricks, more like a Mack truck. I just was fatigued in every single muscle and joint. Even moving to go to the bathroom was so difficult. Anyone with MS knows that feeling. However this one was like times…

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How do you feel after an infusion?

How do you feel after an infusion?

It’s funny because all my complaining last week about NOT getting my infusion leads to this: I feel awful. Please, please give me my medicine. Pump me up with all this shit so I can feel lousy.  kind of makes you wonder what the hell I was I fighting for. All anxiety for four days straight. All so I could feel horrible. Rituxan Infusion Finally Done but still wasn’t smooth. It never fails someone always asks me, does it…

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The infusion never happened

The infusion never happened

It was truly an unbelievable day yesterday. A day that did not end with her infusion. Not only did it not end with an infusion, it didn’t end with an answer as to when the infusion is going to be. I don’t even know how or where to begin. It turns out that CVS pharmacy is broken into two segments. One segment is the one that called on Monday rescheduling my delivery to Wednesday and the other segment is the…

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Once again a problem with my infusion

Once again a problem with my infusion

You honestly can’t make this shit up. I’m sorry for cursing in line one of my blog but I am so aggravated right now I don’t even know where to start. At 8:45 my phone rings and it’s CVS pharmacy asking me when my infusion is. ARE YOU KIDDING ME??????? I’m like you have got to be joking. I called three weeks ago to start this process. They were so helpful, so nice. I was on the phone for an…

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Rituxan Infusion Tomorrow

Rituxan Infusion Tomorrow

I called the pharmacy first thing this morning and they reassured me that my Rituxan will be delivered first thing tomorrow morning. I am not going to call my infusion nurse and I’m going to hope for the best. Normally my infusions don’t go smoothly. There always seems to be a problem somewhere through the process. When the pharmacy changed I thought, great another infusion to give me agitation. Then it was all arranged weeks in advance. I was shocked….

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Ocrevus Commercial

Ocrevus Commercial

I never watch TV through my TV carrier. I always watch through my Firecube. No matter what it is, unless it’s something that I record, I’m never on my TV. That being said, it’s also very rare I see commercials. However I was catching up on old Bravo shows that I neither recorded or watched while they aired. On the Bravo app, there’s commercials. When you’re watching an entire season of some thing you end up watching a lot of…

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You need a license to drive this wheelchair

You need a license to drive this wheelchair

I think I’m going to stop blogging on Saturdays. I’m not sure if it’s because of the summer or Covid but my stats on Saturday have been so ridiculously low for a while now. It actually has been dictating my Saturday posts making many just pointless ramblings. So multiple experiences will now come to you Monday through Friday. Plus in all honesty my weekends are fairly quiet especially with my daughter gone. Hopefully it will just improve the posts I…

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Rituxan infusion scheduled in a week

Rituxan infusion scheduled in a week

I can’t believe it’s been six months already. Well I guess it has because all my reminders went off. Actually about a week after my last infusion I started receiving phone calls to set up my appointment. It was crazy. Actually I thought CVS specialty pharmacy was crazy. I never used them for my Rituxan or my Ocrevus so I was so confused why they kept calling me. Sure enough another change with my insurance. Great, because those have always…

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Urologist visit

Urologist visit

I went to the urologist on Friday to discuss Botox in the bladder.The last of the week trip to urologist Botox for the bladder. What a genuinely honest and patient doctor this was. He came in and knew that I needed questions answered and was prepared to sit and talk. Not only was that nice of a doctor in general but it was nice of a doctor during these times with Covid. He was very honest when he answered and…

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