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Tag: living with MS

Awake way to early

Awake way to early

It’s 9am and I’ve already showered, worked out for 54 minutes, took care of my dogs and spoke with my mom. I’ve been up since roughly 6 when my right foot started twitching. Even though this video was taken when I was awake and in my chair, it is exactly what happens anytime and anyplace my leg twitches. Now you tell me, could you sleep through that? After the first 5-10 times it actually starts to hurt almost. My foot…

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Physical therapy 1st appointment

Physical therapy 1st appointment

I can’t say enough good things about this guy. He is just a person size package of warmth and healing. It is nice to be the only one the therapist is focused on during an hour session as well. Even though my occupational therapist was from the same company, he was no where near the caliber of my physical therapist. My hour session were never an hour more like 30-40 minutes at best. I wasn’t complaining. He was more like…

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Turning 49 in November

Turning 49 in November

Happy Monday once again. These weeks come so fast. Can’t believe it’s November already. I turned 49 in a couple of weeks. Oh joy. I’m looking at pictures that are flashing on my fire stick and my mother was my age. My daughter, who is now 21, is only four years off from when I got married. Six years off from when I was diagnosed with multiple sclerosis. Seven years off from when I was pregnant with her. If that…

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New physical therapist

New physical therapist

I had my physical therapy evaluation yesterday at 3 o’clock. I thought the time alone would be a complete disaster. I worked out yesterday from 9 to 10 AM. I had my beautiful sister here from about 11 to 1:30. I I thought I was exhausted but oddly enough I really had a second wind. First I must honestly say I loved this guy. He comes into my house and the first thing he does is greet my dogs. The…

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I needed that

I needed that

I didn’t wake up in such a cheery mood today. Very unlike me too. Even when the first thing I see when my eyes open would be the faces of my babies, I still wasn’t really happy. I had a long day yesterday and I canceled my kidney sonogram. I just couldn’t deal with drinking 64 ounces of water before a test that I know I could never hold in. I mean I went to the doctor for incontinence. How…

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Safety first doesn’t mean I’m safe

Safety first doesn’t mean I’m safe

I try to do the safe things, I really do. Even when I’m trying to be at my safest I still have issues. Let’s take last night as an example. My dad called as I was about to go to the ladies room, so I told him I’d call him back in a minute. On my way back, i safely maneuver my wheelchair directly in front of my comfy chair to make my transfer. Easy and safe. As I was…

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Bedtime companions

Bedtime companions

I dozed off in my comfy chair last night and was far too tired and comfortable to move into my bed. As long as my dogs and my humpty are with me, I’m good. Yes, i still sleep with a doll at 48 years old. My human have been with me since I was a baby. They have gone through sleep away camp, college, a marriage, a long term relationship, and the breakups of both. My humpties have been my…

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Cold outside and I’m sweating….

Cold outside and I’m sweating….

It’s 48 degrees out and I’m in a complete sweat. I haven’t even worked out yet because I have therapy this morning. I am sitting around waiting for my therapist. I have opened my windows but the breeze wasn’t enough, I just turned on my fan. I’m dressed in a thin pant and a t-shirt. WTF!!!! I just got a call my therapist is running late, thank goodness. Hopefully I can get myself cooled down before he gets here otherwise…

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Tests. Doctors, tests, doctors and more appointments

Tests. Doctors, tests, doctors and more appointments

I already received a call from my doctor this morning, MRI showed no new activity and my normal MS abnormalities. Exactly as expected. Like I said yesterday in my blog I haven’t shown anything on my MRI in years. I continue to get worse because I’m secondary progressive MS. Read the post on Dr. Krieger’s pool theory for further explanation. https://multipleexperiences.org/wp-admin/post.php?post=5174&action=edit. Well at least that’s done for the year. I also made an appointment to have a sonogram done on…

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Little miss busy

Little miss busy

Busy busy busy. I feel like I’m on full steam ahead since I woke up this morning. It is partially my own fault, I slept late. I was so tired and it was still a rainy gloomy morning. Even my puppies we cuddled under the blanket fast asleep. If it wasn’t for the fact my friend was coming over at 11 and nails at 12, I probably would have stayed in bed longer. Yet I had to get in a…

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