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Tag: living with a chronic disease

I’m kicking ass

I’m kicking ass

I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…

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Hot flashes

Hot flashes

I am not sure but I might be having hot flashes. I honestly can’t tell because I get the same issue with my MS. How are you supposed to tell the difference? I can overheat,from doing nothing, and start sweating anytime. I’ve blogged numerous times about the issues with MS and regulating body temperature. https://multipleexperiences.org/2018/07/16/regulating-body-temperature-with-ms/ orhttps://multipleexperiences.org/2020/02/25/ms-and-body-temperature/. In the last few weeks I’ve been having these hot flash things. I mean the heat creeps up and I break out in a…

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I’d love a day off from my symptoms

I’d love a day off from my symptoms

Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I’ve had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up….  I must say, so far, it’s working really well. I’ve had a tough weekend, I’m still just not feeling great, not sickness wise, more MS issues. i’ve slept in every…

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I’m in a mood today

I’m in a mood today

I wasn’t feeling well all day yesterday. I actually napped most of the day. Well I had the TV on and my eyes closed. For me that’s pretty much napping. I just didn’t feel well. No fever, no aches but my muscles felt sore. That was the best way for me to describe it. I went to sleep early but unfortunately that didn’t go off quite as I intended. At about 2 o’clock I was woken up with bathroom issues….

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My aide is back and helpful tips from my Aunt

My aide is back and helpful tips from my Aunt

Hello again, it is once again Monday. I’m very happy to say my aide will be here today. Unfortunately, it will take me some time to recover from the last week doing it mostly alone. Even having food prepared and only doing what I absolutely had to do, it was a rough week. There is a reason I have an aide. I sometimes feel like it is really just to babysit me but truth is the amount of energy it…

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80’s item to solve current day MS issue

80’s item to solve current day MS issue

Another night of interrupted sleep. You know it was a bad night when you already have 6 boxes of stand credit on your Apple Watch that just reset at 12am. I was up every other hour to use the bathroom. The only time I actually slept longer than two hours was from 6:30-9. I wish someone could explain that one to me. I don’t drink a lot at bedtime. I didn’t even use the bathroom that frequently during the day….

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Multiple sclerosis issues at non opportune times

Multiple sclerosis issues at non opportune times

 today is going much better than yesterday. I even stayed in bed a little longer today which was nice. Then I got a whole Lotta Lovin from my puppies. I got up, fed everybody, brushed my teeth and worked out. I did my flexibility stuff and then finished yesterday’s workout. That always makes me happy . Not that I really doubted myself, but I’m glad I finished it. I don’t like things done halfway. Now I’m back on my…

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Happiness is two dogs and a comfy chair

Happiness is two dogs and a comfy chair

I’m exhausted. I just can’t start this blog any other way. I’ve been tired all week, shocking, I know. I think a major part of my fatigue has been the broken arms of my wheelchair. It was so difficult to get myself in position with that broken arm. I had my appointment yesterday. They were coming between the hours of 12-4. They showed up at 6:45. I was just so thankful they came I didn’t care what time it was….

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A massage gun for spasticity

A massage gun for spasticity

Yesterday I purchased one of those massage guns. I’ve been looking at them for a while because sometimes I’m in such pain from spasticity. Last night was one of those nights where out of nowhere my whole back a neck tightened. I always describe this like someone took a fork and twisted it like they were trying to get spaghetti twirled around. Except it’s not spaghetti it’s my tendons. The area just becomes so tight so fast. It starts at…

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Today is a new day

Today is a new day

Yesterday was not such a great day. I wasn’t even able to get through my workout. I was interrupted by a trip to the bathroom that unfortunately showed my fatigue. I must give myself credit here because we all know I usually push instead of stopping. Persistent isn’t always a good thing. I had physical therapy later in the day and I did some walking. However I hit fatigue fairly quickly with that too. Things went downhill from there. The…

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