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Tag: Multiple sclerosis

Not a happy New Year

Not a happy New Year

Hello everyone, Happy New Year. I know it seems like I disappeared but unfortunately I had legitimate reasons. I ended up in the hospital last Thursday with Covid and a UTI. It wasn’t really the Covid that put me in the hospital it was the combination of the two infections. I was so weak I was having difficulty sending a text message. I spent New Year’s Eve sleeping in a hospital bed. So much for 2022 being my year. I…

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Remaining hopeful it will help the spasticity

Remaining hopeful it will help the spasticity

Inconclusive. My bladder test was inconclusive. They said that the sample contained bacteria in their that couldn’t have come from the urine alone. I was thrilled I got urine in the cup. That was a challenge in itself for someone with multiple sclerosis and bladder issues. I even was able to use the little handy wipe they give you before you give the sample. I was so proud of myself that day. So much for that gold star. Thank goodness…

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A possible reason for this spasticity

A possible reason for this spasticity

I might have put it all together. A few months ago I treated myself for a possible bladder infection/UTI. Maybe not the smartest thing, but I did. I suspected I had a bladder infection and I had some antibiotics. They weren’t the normal antibiotics usually prescribed for any type of infection in that area, but according to google, it would work. I took them for a total of 5 days. The normal prescription, for the antibiotic I had , is…

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Who am I without multiple sclerosis?

Who am I without multiple sclerosis?

I was thinking the other day, what if there was a magic pill to cure multiple sclerosis? What if I can take something that not only stops future disability but cures current disability? What if tomorrow I could actually walk again? I have spent half my life with MS. It is part of my identity, even though I pretend it isn’t. Who am I without my disease? I have this recurring dream that I’m working but still collecting disability. In…

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Taking a new aide

Taking a new aide

I have to admit I am wrong this while I am doing my bionic gym. It is very difficult to do this while you are shaking. Forgive me In advance for grammar and spelling errors more than my usual. I know last week I told you about the wonderful aide I had that covered for my full time aide on vacation. https://multipleexperiences.org/2021/12/10/the-replacement-aid/. It turns out on Monday, my full time aide said that she will be going to 3 days…

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Monday morning again…

Monday morning again…

We arrived at Monday once again. I feel like I am on a fast track through these days, weeks, months and years. That is saying something considering most of my days are spent in front of the TV. I am far from highly stimulated most days. Yet the days are going fast. I know I’ve said this many times before. I’m sorry I’m repeating myself. I just find it amazing sometimes. I got to spend a few hours with my…

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The replacement aid

The replacement aid

I’m doing better with the spasticity. I was never a person who thought Baclofen really did anything. I’ve taken 10mg a day, as preventative, for as long as I can remember. Well increasing it to 20mg twice a day has definitely did something. The constant dull ache I’ve had in my lower back has almost completely subsided. I am able to bend my legs to get up more often than not now. I’m not cured but doing much better. I…

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I’m down 20lbs

I’m down 20lbs

I haven’t talked too much about my weight over the last few months. I did write this post https://multipleexperiences.org/2021/10/04/moving-the-scale-downwards/ as I was making progress in weight loss. I started in July to finally make changes that has finally seen results. So, what did I do? Well, some time ago I wrote about a book my cousin recommended. https://multipleexperiences.org/2019/04/20/the-obesity-code/. It was about a book about how controlling glucose affects weight loss. I always knew that there was something to this but…

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Another fall to face the truth

Another fall to face the truth

Well another episode started off an otherwise lovely evening. My mom and stepdad were coming over for dinner and to watch Yellowstone. We missed last week’s episode so we were in for a double feature. It was just about 4:00 when I hung up with my mother. I was getting up to feed my puppies. I didn’t transfer to my wheelchair well. I ended up sliding down to the floor. When I got up I would have taken the increase…

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My neurologist visit

My neurologist visit

Well yesterday was a visit to my neurologist. I want to thank my pseudo uncle for driving my van. I am not so comfortable driving on the parkways anymore. My first words to my neurologist were “did you miss me?” I have been coming to see him for almost 24 years. I just turned 50, that is almost 1/2 my life. He has been on my multiple sclerosis journey from day 1. He was the neurologist that told me I…

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