Browsed by
Author: Youtwohearts

A day in the life with multiple sclerosis.
Happy Birthday Mikayla

Happy Birthday Mikayla

This is my daughter’s 23rd birthday. It is also the first year she isn’t home for her birthday. My beautiful baby girl, as she will always be, is now living 6 hours away. She has begun her adult life. She is starting to find her way around this crazy world. This is the first year I don’t get the chance to kiss her face on the day she was born. I’ve been there for every other year to wish her…

Read More Read More

Stubbornness and Defiance

Stubbornness and Defiance

It has taken me almost 6 months but I finally did it. I GOT UP FROM MY COMFY CHAIR. I got up by myself. I actually started standing up when my therapist was a few feet away from me. I didn’t want anyone to touch me. I knew I could get up. I didn’t want to have that hand on me for guidance. I wanted my victory. I deserved my victory. I know the walking was the biggest thing to…

Read More Read More

Summer is Coming

Summer is Coming

How was your weekend? Despite the scattered showers, it was a nice weekend here. The nautical mile, two blocks from me, starts amping up full speed as of this weekend. With three of the most popular bars being right across from me, it gets very noisy. Unfortunately, the music blends between them so you can’t always make out one song from another. I am always happy at the start of the season. I love the hustle and bustle of the…

Read More Read More

My goals will be reached

My goals will be reached

I had a good week. I shared my video of me walking in Wednesday. I walked even more during my PT session on Wednesday afternoon. I guess it wasn’t a video fluke of a good MS day. I am actually strong enough to take those few steps. I still can’t get up from my comfy chair but I certainly have hope. I even hit another milestone this week. I had my hair straighten. I had to sit up in my…

Read More Read More

Shocking to everyone including me

Shocking to everyone including me

I was sitting up at the end of the bed when he got there. I popped right up to stand. My PT therapist said try to take a step. I was standing up with one of those silver walkers. Well, I took a step. It was my first step since the end of December. I then took another and another. I was going forward and back in the small space of my room. I was getting tripped up having to…

Read More Read More

A Swinging Saturday Night

A Swinging Saturday Night

I must say i had an eventful Saturday night. Not exactly like my old days at Jugs and Strokers Drinking, trying to play pool and hanging with my friends until 4am. However, based on my life lately, this was eventful. The building’s fire alarm went off around 8pm. I was in my pjs ready for bed. Usually the fire alarm is a false alarm. This time you could smell something funny. You could see a haze of smoke at the…

Read More Read More

Busy Day

Busy Day

I’m actually writing this on Thursday evening. I had a long day. Since the change in my aides shifts, I am up at 7am. This morning I was up at 5. I had one of those MS symptoms that plague me whenever it is a inconvenient time. My feet were in pain. More like my heels. I felt like pins were simultaneously sticking into both my heels at the same time. Neuropathy. I know it well, but this time it…

Read More Read More

My own discouragement rant

My own discouragement rant

I was determined to get into my comfy chair. Ok getting in isn’t the problem, it’s getting out. The chair is not only low but mushy. I don’t have anything very solid to push myself up to a standing position. I tried to angle the wheelchair in front of me, using the chair’s arms. Unfortunately, that didn’t help either. The end result was being lifted up by both my physical therapist and the aide. I was discouraged. Getting into, excuse…

Read More Read More

My weekend review

My weekend review

Welcome back to Monday. We end up here quickly it seems. I am back to physical therapy today. I enjoyed my week off. I really enjoyed being with my beautiful daughter. She has just become this sweet woman. Her presence just made us realize how much she is missed. I can never forget how grateful I am despite any chronic disease. I don’t feel like doing the whole grateful speech so don’t worry. I really have no specific direction for…

Read More Read More

Still exhausted

Still exhausted

I woke up yesterday and felt really good. I got up, into my wheelchair and I finally was able to stand on the scale. I held my my balance for a split second allowing the scale to actually show an accurate number. I was 138, fully dressed. I never weighed myself dressed. That is 3lbs from my ultimate weight goal. A goal I never even thought was going to ever really happen. Well I guess there is something to say…

Read More Read More

%d bloggers like this: