I wrote this blog post on November 7, 2016. Almost 4 years ago to the day. I was originally going to just link it in this post when I realized I would probably be repeating the same general things. Obviously Covid has made my MS daily activities null and void but I’m not complaining. Truthfully my MS is much different 4 years later. I’m mostly in a wheelchair now. I’m in a new place, not my apartment anymore. Things are much more difficult now than they were when i originally wrote this post. I have a full-time aid, I am not dating nor have I been for quite some time, I don’t have my beloved Boomer and life got even smaller. However, I’m still happy. I love my dogs, I love where I live, and I just deal with each MS thing as it comes up. It isn’t a perfect life but it works.
My four walls of multiple sclerosis:
￼￼￼I always wondered what is going on in boomers mind when he looks outside. Boomer doesn’t get up and go outside easily you have to convince him so what is he thinking when he gazes? I’ve noticed lately I too have been glancing out my big window but I know what’s going on inside my mind. My life has become my apartment. The four walls of my home. As my MS has become worse I tend to stay home more and more. I was always the couch potato I think that was just me by nature but now I find myself more secure in my own surroundings. Thus making my couch potato mentality more apparent. The thing with being home is I know everything at my house. I know what walls I need to hold onto. I know with chairs are going to rock that won’t have me if I fall. I know exactly how many steps I have to make it without having anything to hold onto. I know how many steps to the bathroom, to the sink, to the refrigerator. I know I’m safe. My world became smaller as my MS got worse. Going out is more of a challenge these days even to do the smallest thing. I participate in daily MS activities but that takes a lot out of me and it’s usually enough to drain the energy out, leaving nothing left. So I end up coming home and spending the remainder of the day and night on my couch until I go to sleep and do it again tomorrow. Understand I have more energy in the morning. I still wake up every morning to work out, meditate and write my blog before my MS activity begins. Sometimes they are in the morning but sometimes it could be more towards the afternoon. Either way it’s one activity and that usually the end to my day. I even broke it off with the guy I was dating. He was really a nice guy he treated me so well but it takes energy to date and I just don’t have it right now. I have to be honest I don’t know if dating and a meeting a man is going to be in my future. I decided to leave that one to the universe. If the universe puts it in front of me and feels that’s what is meant to be, I’ll know it. Maybe my energy level will come back where I can put more into it which would be great, but at this point it’s not fair to him or anybody else. What I think I decided is I’m better off with the dogs. They’re my companions and right now the rest of it isn’t as important as I once thought it’s was. I must thank this guy for not only being wonderful when we dated but for being wonderful when I told him the truth. There really are good people out there that deserve all the best and he is definitely one of those. I’m so happy that he has entered my life and regardless where the relationship goes I know I made a friend.