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Tag: ms over 10 years

Still exhausted

Still exhausted

I woke up yesterday and felt really good. I got up, into my wheelchair and I finally was able to stand on the scale. I held my my balance for a split second allowing the scale to actually show an accurate number. I was 138, fully dressed. I never weighed myself dressed. That is 3lbs from my ultimate weight goal. A goal I never even thought was going to ever really happen. Well I guess there is something to say…

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Exercise, standing and Bionic Gym

Exercise, standing and Bionic Gym

I am very weak. My legs can’t hold me up for long. PT has been working on just getting me up and standing. I never thought something so simple would be so hard. Let me tell you, it is so hard. I try to sway back and forth shifting my weight as I hold onto a walker. I had to sit down again because I have no endurance. One day I was able to get back up once. The other…

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Remaining hopeful it will help the spasticity

Remaining hopeful it will help the spasticity

Inconclusive. My bladder test was inconclusive. They said that the sample contained bacteria in their that couldn’t have come from the urine alone. I was thrilled I got urine in the cup. That was a challenge in itself for someone with multiple sclerosis and bladder issues. I even was able to use the little handy wipe they give you before you give the sample. I was so proud of myself that day. So much for that gold star. Thank goodness…

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Who am I without multiple sclerosis?

Who am I without multiple sclerosis?

I was thinking the other day, what if there was a magic pill to cure multiple sclerosis? What if I can take something that not only stops future disability but cures current disability? What if tomorrow I could actually walk again? I have spent half my life with MS. It is part of my identity, even though I pretend it isn’t. Who am I without my disease? I have this recurring dream that I’m working but still collecting disability. In…

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Monday morning again…

Monday morning again…

We arrived at Monday once again. I feel like I am on a fast track through these days, weeks, months and years. That is saying something considering most of my days are spent in front of the TV. I am far from highly stimulated most days. Yet the days are going fast. I know I’ve said this many times before. I’m sorry I’m repeating myself. I just find it amazing sometimes. I got to spend a few hours with my…

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Another fall to face the truth

Another fall to face the truth

Well another episode started off an otherwise lovely evening. My mom and stepdad were coming over for dinner and to watch Yellowstone. We missed last week’s episode so we were in for a double feature. It was just about 4:00 when I hung up with my mother. I was getting up to feed my puppies. I didn’t transfer to my wheelchair well. I ended up sliding down to the floor. When I got up I would have taken the increase…

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Put on a happy face

Put on a happy face

Daylights savings was Sunday morning at 2am. I am waiting for this to finally end. I know that there has been legislation within the courts. I also know that each state within each time zone has to approve it to finally do away with it. https://www.google.com/amp/s/amp.usatoday.com/amp/6233980001. This weekend we gained the hour. I was up at my normal time. The clock might have said 7:30 but my body knows it is really 8:30. So do my dogs. Now it will…

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Spasticity

Spasticity

Good morning. Hopefully it actually is good. It is finally fall weather outside. A lovely crisp 54 degrees. I still have a window open next to me. I am sure my aide thinks I’m insane. I love the chilly air especially when I workout. Eventually I shut them. I’m surprised with this cooler air my spasticity is still really bad in my legs. It can be very difficult to get my leg to bend. It affects my right leg more…

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Bike MS 2021

Bike MS 2021

It has been another fast week. I keep saying that every week. I think time is speeding up and I am really not looking for any speeding tickets. I am, however, ready for my sweatshirts and warm pjs so the 70 degree weather can go. I am ready to be bundled up with hot chocolate again. While I’m thinking about bundling up my brother has been out biking getting himself ready for Bike MS. I always think to myself during…

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Out of my routine

Out of my routine

I’m anxious today. I’ve had too many days already out of my normal routine and today is no different. I have to get the covid booster at 12 and game day in the building is at 1. I just finished exercising and getting dressed but I feel rushed. It didn’t help that I smacked my head on these ridiculous metal bars that are right behind my head on my wheelchair. All I need to do is not lean back straight…

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