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Tag: ms over 10 years

How fatigue affects life

How fatigue affects life

I’ve been so tired lately. I never really took in to account how my body would react to work being done in my place. I knew I would be shifted around slightly but didn’t think it was a big deal. I was clearly wrong. By the time the afternoon comes around I’m struggling to get myself to the bathroom. I’m back to dreading every time the need comes. Sometimes I’m so tired that the hesitancy I talked about recently Bladder…

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The Routine

The Routine

I’m sure I’ve blogged about this at some point because I don’t do well with disruptions. The days of spontaneous activities have long been gone. I could never just meet someone for dinner at short notice. My life, or I should say my activities, are planned both mentally and physically. Everything I do requires a tremendous amount of effort. Everyday is different as to which activity will put me over the edge. The activity might be the same and the…

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Bladder Hesitancy

Bladder Hesitancy

I’ve written so many blogs about my numerous “accidents” but I never discuss the other way. I actually experience both of them which is why Botox wasn’t an option for me. I dealt with hesitancy long before I dealt with the urgency and the accidents. What is urinary hesitancy mean? If you have trouble starting to urinate or maintaining urine flow, you may have urinary hesitancy. If you ever experienced hesitancy you know how it feels. Your bladder is full,…

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I’m feeling ok, another infusion in the past

I’m feeling ok, another infusion in the past

It is beautiful out although slightly chilly. That doesn’t stop me from opening windows to let some fresh air through. I don’t mind the chill, it feels nice because the sun is hitting this side of the building. Once the sun starts to move I will start to freeze. The temperature is only 46 degrees out, not really windows open weather. It’s that sun hitting so directly that adds so much heat. It feels really nice. I’ve been feeling pretty…

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Multiple sclerosis isn’t just my diagnosis

Multiple sclerosis isn’t just my diagnosis

I’m thankfully doing better today because I slept. Never under estimate the power of a good nights sleep. I was able to exercise a little this morning. I purposely decided to keep it simple and just do my MS gym exercises. There was an entire revamping of the MS gym and I actually started the from the very beginning again. That means the exercises aren’t as intense. I was pairing them with chair cardio everyday but knew that wouldn’t be…

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Infusion or no sleep is kicking my ass

Infusion or no sleep is kicking my ass

I haven’t slept well for two nights now. I spent the first night with those belly issues and last night with bladder issues. I was using the bathroom every hour. I honestly think this was somehow related to the infusion. I have had nights where I’ve used the bathroom frequently but every hour is something that is a rarity. Yet that was my night. This is the second day in a row that I’ve hit my 12 hours of stand,…

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New programs at The MS Gym

New programs at The MS Gym

The MS gym rolled out a brand new site and program yesterday. Based on the new program and functional maps, I was supposed to go back to the beginning again. I just completed the standing strong program. Even though I completed the program, I would have repeated the phases because I was far from mastering the exercises. I have been with the gym for about a year now and I have done each program according to the old functional maps….

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Once again on the floor

Once again on the floor

Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…

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Why I believe in the MS Gym

Why I believe in the MS Gym

Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…

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I’m kicking ass

I’m kicking ass

I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…

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