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Tag: ms over 10 years

Bike MS 2021

Bike MS 2021

It has been another fast week. I keep saying that every week. I think time is speeding up and I am really not looking for any speeding tickets. I am, however, ready for my sweatshirts and warm pjs so the 70 degree weather can go. I am ready to be bundled up with hot chocolate again. While I’m thinking about bundling up my brother has been out biking getting himself ready for Bike MS. I always think to myself during…

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Out of my routine

Out of my routine

I’m anxious today. I’ve had too many days already out of my normal routine and today is no different. I have to get the covid booster at 12 and game day in the building is at 1. I just finished exercising and getting dressed but I feel rushed. It didn’t help that I smacked my head on these ridiculous metal bars that are right behind my head on my wheelchair. All I need to do is not lean back straight…

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The week ahead

The week ahead

It was a non existent hurricane in my area yesterday. Not just non existent but after the rain in the morning we didn’t even have rain. My mom, who lives 13 minutes from me, had rain on and off all day. My friend in the town next to me also had rain all day on and off but not me. It was so strange. The sun even started coming out while my mom was experiencing pouring rain. She didn’t believe…

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MS won this time

MS won this time

I had a very disappointing physical therapy session yesterday. I walked about a hallway and a half. The second full hallway still being my goal but once again escaping my grasp. I got tired and tried to sit for a second or two before I started my trek home. That was probably the beginning of the bad decisions. The upright walker isn’t easy to turn around with but even harder when you are trying to turn around to sit. There…

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Positive quotes for multiple sclerosis

Positive quotes for multiple sclerosis

I had a lousy physical therapy session yesterday. Actually pathetic was more like it. Lousy multiple sclerosis day and I have no idea why. My physical therapist says he wished he had a manic pill to cure MS. I would settle for a pill that gave me the day off or even an hour off. I miss being able to dance. I’m watching this tv show about dancing and I could never move the way they do. However what I…

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Kesimpta was approved

Kesimpta was approved

I broke my glass coffee pot this weekend. This seems to happen every two years if not yearly. I do have to say the last time I wasn’t the one who broke it but I shouldn’t brag because I’m pretty sure every other time it was me. I don’t buy expensive coffee pots for this precise reason but I really hated my last purchase. I always put cinnamon in my coffee grinds and this basket constantly caused the caused the…

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Kesimpta was denied

Kesimpta was denied

My neurologist and I decided we were going to switch to Kesimpta by my next infusion date. https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/. My doctor wanted to start the process in July although my next infusion date isn’t until September. We entered the prescription into the pharmacy to start the process. It was less than 24 hours later that I received the denial from my insurance. The denial reason was that this medication wasn’t necessary and there may be other medication that can met my…

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New addition to my workout

New addition to my workout

Is the summer over yet? I’ve already had enough of the heat and more importantly the humidity. I am thankful for my hair straightening giving me one less thing to worry about. I was never a fan of the summer even before my diagnosis. I was never one to cherish the sun. I have very fair skin so I burn easily and then I turn right back to my white complexion. I’m the perfect comparison for anyone who wants to…

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The energy graph

The energy graph

I was taking it easy this morning with exercise because physical therapy starts today. Yet I’m huffing and puffing as I sit down to write this. I wanted to be in somewhat a stronger state because unfortunately he is coming late today, at least late to my MS body. He won’t be here until 3-3:30. This is the point in the day where my energy level starts to decrease at a rapid pace. I always say from the time I…

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My view on exercise

My view on exercise

I was watching a show about the Amish in Pennsylvania. I think what shocked me the most was some of the county’s names. I knew of Intercourse, PA but was amazed there is a place called Blue Ball, PA. It starts to make something innocent like Mount Joy, PA to maybe be not so innocent. I mean who came up with these names??? Sure you go from Blue Ball, PA and suddenly you enter Mount Joy. Happily moving to Intercourse,PA…

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