Still unfortunately feeling shitty. Once again canceling activities. The good news is I’m sleeping better, that really helps. Of course I’m a few weeks away from my infusion of Rituxan which had issues last time.Whether the issues were actually caused by the infusion or not, we still don’t know, but my concern is there to say the least. https://multipleexperiences.org/2019/09/17/blisters-on-breast/. Not to mention you always feel somewhat fatigued after you do the infusion so the whole thing has bad timing. I still have three weeks before I have to deal with that so I’m hoping this fatigue cycle well end before then.
I’ve still been exercising in the morning because I can’t do nothing. Plus it’s my obsessive gene that I must do it that I’ve had for years and years and years. It is what caused me to exercise with stents in my hand during a steroid infusion or lifting weights on a vacation. Once I started exercising I refused to skip a day. It’s actually took me a long time to allow physical therapy to be considered exercise. Since I’d be wiped out I couldn’t do anything else I had no choice, I had to consider this an exercise day. However, exercise is the first thing I do in the morning and it lasts anywhere between 30 to 40 minutes.
I’m actually recovering when I write my blog or dictate my blog I should say. Thank God for the microphone on my phone and Ipad. It’s been taking me a long time to recover in the morning. I didn’t even have a great workout today and I still can’t move. It’s just been so frustrating. However the worst part hits me later. At around two or three I start to feel almost sick. My head hurts, my body hurts and that heaviness sets in. Sometimes I feel like I’m running a fever. It is that extreme fatigue that sets in and it just gets worse from there. A horrible feeling and there’s nothing I can do.
I’ve been going to sleep before 9 o’clock and getting up at 9 o’clock in the morning. Thankfully I’m sleeping because there was a couple of nights I wasn’t. All I can do is take it one day at a time. Had a lot of support from a lot of friends which has been really nice but not much anyone can do to help. Day by day is the only way I can go. ￼