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What is multiple sclerosis?

What is multiple sclerosis?

I don’t know how many times I’ve talked to people that had the cure for multiple sclerosis. If it was just about diet and taking vitamins, I promise you, I would be doing that. People mean well. Unfortunately, they read one story and think it works the same way for everyone. If there was a universal cure we’d know. I think that diet and vitamin can make a difference in the early stages of multiple sclerosis. The healthier your body…

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Inside my room of quiet

Inside my room of quiet

I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am today as opposed to where I was. Mahjong is my favorite and I really don’t want to be discouraged by something else. I put off…

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Goodbye to my Uncle

Goodbye to my Uncle

I am writing this blog with a very heavy heart. My uncle passed away early Wednesday morning. He was hospitalized a few weeks ago with a pneumonia, UTI and kidney infection. Sound familiar? https://multipleexperiences.org/2022/03/04/multiple-sclerosis-vs-pneumonia/ My uncle also had Parkinson’s disease. MS and Parkinson’s seem to always be grouped together. Why??? MS and Parkinson’s both affect your central nervous system, which includes your brain and spinal cord. That’s why they both can affect how you move, sleep, feel, and talk. These diseases both affect your nerves….

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A real workout from bed

A real workout from bed

I’m happy to report I haven’t felt any side effects from the infusion the other day. https://multipleexperiences.org/2022/05/06/rituxan-infusion-successful-2/. I might feel slightly more tired but it hasn’t stopped me. On both Saturday and Sunday, I did an actual workout from my bed. I put on one of my favorite cardio exercises programs from YouTube. It is a workout from Adapt to Perform. https://youtu.be/qbFvZEPTXDk. I had my Bionic Gym on at a high intensity, picked up a pole and turned on my…

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A lump in the bed

A lump in the bed

My life has changed a lot in the past few months. I went from independent to completely dependent. I can’t do the simplest of things anymore. I can’t just get in my wheelchair and open the refrigerator for my ice coffee. I can’t just grab a sweatshirt from my closet. Hell I can’t even fix my sock when it gets turned around on my foot. A very big pet peeve of mine. I was limited in my dependence prior to…

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New addition to my workout

New addition to my workout

Is the summer over yet? I’ve already had enough of the heat and more importantly the humidity. I am thankful for my hair straightening giving me one less thing to worry about. I was never a fan of the summer even before my diagnosis. I was never one to cherish the sun. I have very fair skin so I burn easily and then I turn right back to my white complexion. I’m the perfect comparison for anyone who wants to…

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Weight loss frustration

Weight loss frustration

I’m frustrated today. I’ve joined an online program for weight loss. I’ve at my 3 month mark and I’ve gained 5lbs. Yes GAINED. I am the most health-conscious fat person I know. I’ve stopped eating vegan some time ago when I switch my home meal delivery service. I use cook unity now https://www.cookunity.com/landing-referral?referral_code=jams440863. I get to pick from over 100 different meals each week and I love the food. Forever conscious of the food I eat they also offer a…

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My view on exercise

My view on exercise

I was watching a show about the Amish in Pennsylvania. I think what shocked me the most was some of the county’s names. I knew of Intercourse, PA but was amazed there is a place called Blue Ball, PA. It starts to make something innocent like Mount Joy, PA to maybe be not so innocent. I mean who came up with these names??? Sure you go from Blue Ball, PA and suddenly you enter Mount Joy. Happily moving to Intercourse,PA…

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AM vs PM

AM vs PM

My phone rings at a little after 6am this morning. I pick it up thinking that it was possibly my contractor. It was my front gate. I had a delivery from Amazon. I set up a food delivery for today and took the only available window of time 5-7. I didn’t even realize that it was for the AM. Duh!!!!Now I had to get up to bring in the packages. Of course my puppies were up now too. I was…

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Multiple sclerosis isn’t just my diagnosis

Multiple sclerosis isn’t just my diagnosis

I’m thankfully doing better today because I slept. Never under estimate the power of a good nights sleep. I was able to exercise a little this morning. I purposely decided to keep it simple and just do my MS gym exercises. There was an entire revamping of the MS gym and I actually started the from the very beginning again. That means the exercises aren’t as intense. I was pairing them with chair cardio everyday but knew that wouldn’t be…

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