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Tag: ms symptoms

Too much stress, not enough sleep

Too much stress, not enough sleep

I woke up with a killer headache. I use the word woke up very loosely because I haven’t been sleeping well and last night was no different. On a good note, I should reach my 12th hour of standing goal by 2pm. I’ve been going to sleep to a meditation track every night since last Friday. I started off sleeping great but then my daughter tested positive for Covid and I’ve bees stressed. My daughter is positive for Covid. My…

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When did it change???

When did it change???

I woke up this morning asking myself this very question. My disability has changed so subtly but so profoundly over the 3 years I’ve been just living in my condo. I specifically remember if I’d fall I’d have to crawl to a piece of furniture to help get myself up. This chair was a major assistance piece. It was the closest furniture from the kitchen or bathroom and I used it so often to aid me back to standing. Never…

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Ocrevus vs Rituxan

Ocrevus vs Rituxan

My infusion scheduled for March 17. I’ve been on many of the disease modifying MS drugs over my 23 year span with the disease. Betaseron still holds the record of 12 years but that also has to do with the drugs that were available when I first got diagnosed. I have been on either Rituxan or Ocrevus since 2016. I group these two drugs together for very specific reasons, they are fundamentally the same. The biggest difference is Rituxan is…

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Skin infection, antibiotics and the one who couldn’t deal

Skin infection, antibiotics and the one who couldn’t deal

I was at my primary care physician yesterday because I have a cut on my shin that is infected. I had antibiotics in the house and I started to self medicate and it wasn’t really working so I got an appointment. She prescribed a stronger antibiotic and a cream but thankfully it wasn’t cellulitis or any further issue that needed more care. This was my fault. I knew it was infected for a while. My Zoey never left that spot…

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The day after the worst of the Covid vaccination

The day after the worst of the Covid vaccination

I’m doing better today. I slept all day yesterday. I even ordered a pizza because I was too sick to microwave or mix up one of my salads. I was so sick that when I was getting a slice one fell on the floor and I couldn’t even bend to pick it up. I let my dogs eat the pizza. I thought Zoey ate it mostly, however this morning Minx has been sick since he woke up. My poor little…

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Covid vaccination dose 2

Covid vaccination dose 2

Here I am in the back of my own van. My stepdad and mom are in the front seat. We are on the way to the Bronx for my 2nd Covid vaccination. My appointment was supposed to be on Thursday but snow is expected for that day. So we are on our way. This time I locked the wheelchair down and put on my wheelchair seatbelt. The backseat of my van is not the easiest place to sit. Between the…

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I did it!!!

I did it!!!

Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. I had to wait for my aide. Once again on the floor. Not yesterday, I learned from my prior week struggle I was in my…

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Once again on the floor

Once again on the floor

Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…

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Better out than in

Better out than in

I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has a medium ground it hovers around on. It got me thinking about when some of these issues first started showing up. I realized how long…

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Why I believe in the MS Gym

Why I believe in the MS Gym

Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…

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