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Tag: ms symptoms

Phantom Feelings

Phantom Feelings

I always have a feeling that my legs are in a different position. I’m always in bed with my legs straight. I can’t move them on my own. The only way they would be in a different position is if someone put them there. Even then, chances are they wouldn’t stay that way. I mean the position with my knees up. Yet I always have the feeling that my legs are in this position, especially if I am under my…

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Technology and Medical Advancement

Technology and Medical Advancement

Did you ever watch the cartoon The Jetson’s? You know meet George Jetson 🎶,his boy Elroy, his daughter Judy, Jane his wife 🎶. They were the futuristic family that drove the cars that flew in the sky. It was their phone that I was thinking about lately. They would get a call and it was always on this monitor. You would see the person that they were talking to. I remember thinking this was such a cool thing. Granted I…

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Physical Therapy Begins Again

Physical Therapy Begins Again

Hello my fellow bloggers and readers. Happy Friday. I am chilling with Zoey watching a F1 2008 race. I’ve been watching old season since the F1 season ended in 2022. I watched every race in the two seasons that Fernando Alonso won his championship titles. Fernando Alfonso is my favorite driver. I’ve seen many of his earlier races at various times. However, to watch a season,one race at a time, you really see how the title was won. I have…

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Multiple Sclerosis Sucks

Multiple Sclerosis Sucks

Hello to all. How are you feeling? Don’t we always hate that question? Multiple Sclerosis is a shitty disease. Have I said that recently? I remember I used to ask my neurologist every time I had an appointment, are you sure I have MS?” He always replied, “it wouldn’t be an appointment with you without you asking that question.” Unfortunately, the answer was always the same. Eventually I did stop asking him that question. I don’t know if it was…

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Multiple Sclerosis is not an Easy Disease

Multiple Sclerosis is not an Easy Disease

Happy Friday. I feel like this week went super fast. I didn’t do much. I fell again this week. This marks the fourth fall in 3 weeks. I am having trouble with transferring from my bed to my wheelchair or wheelchair to my bed. Most other the falls have happened with aides that were new to me. They either didn’t have good enough English to understand what I was saying or they really couldn’t do what I needed. However, the…

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A Monday morning Rant

A Monday morning Rant

I’m sad, my daughter went back home to Maine today. I had a really nice visit with her this past week. She might have needed to come home for mom time but I definitely needed daughter time. I am just such a proud mom watching her start her life. She is in a new state, has made some really good friends and has become so much stronger standing on her own. I can’t even begin to say how amazed I…

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2022 Going Out with Vertigo

2022 Going Out with Vertigo

Happy New Year everyone. It is officially over. We made it through another holiday season. I started 2022 in the hospital with Covid and ended at home with a new symptom, Vertigo. I never had this before. It came out of nowhere. I was watching TV on December 30th and leaned my head to the side. Wow, I was spinning 😵‍💫. What the heck is going on now?? I can have low blood pressure, that was my first thought. Of…

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New Year Intentions

New Year Intentions

Christmas is in two days. Another year has come and gone. I spent last New Years Eve in the hospital. I never could have imagined that 2022 would be such a difficult year for me. It was 22 my number. I thought great things were going to happen. https://multipleexperiences.org/2021/12/27/my-angel-number-22-and-the-new-year/ I wrote that post 3 days before I got sick. I was so excited that it was 2022. My head was stuck on the fact that 22 was my angel number…

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Neurologist visits

Neurologist visits

I have to say this cold has kicked the shit out of me. I know taking Rituxan lowers my immune system but I honestly very rarely get sick. Even my issues in 2022 I was on Kesimpta, not Rituxan. The last cold I had was back in 2019 when I went on my last vacation. I went to Mexico with my family. I had the worst cold. I was miserable for the first 4 days of the week’s vacation. I…

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My age 51 my body is much older

My age 51 my body is much older

It’s my birthday tomorrow. 51!!! I’m middle age. I think my body has been middle age since I was 43. That was when multiple sclerosis hit me with the last relapse that started my path of true disability. It’s been 8 years since that last relapse. It was when I was switching from Tysabri to Rituxan. I made the mistake of stopping Tysabri because I actually had the thought of switching to an experimental drug. I needed to be off…

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