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Loving the MS Gym

Loving the MS Gym

Good morning. It is a Grey Saturday morning here. Actually it’s a white Saturday morning.  If you look closely you can see the water. It’s 8:00 am and I’ve already worked out. I can’t say enough good things about the MS gym. http://www.themsgym.com/. I just completed week 2 and I already have seen a slight improvement. no one else would notice this improvement, it is extremely minute. This is just one of the things that I noticed from doing…

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Working out a new way

Working out a new way

So Minx, my adorable puppy, has definitely affected my sleep. Yet my body has been more run down from the changes I made to my workouts. I have been doing various workouts for a minimum of 5 days a week for a long time. As my disability worsened, my workouts were modified but never stopped. I’ve modified to a chair quite successfully. I can get my heart rate up over 130 on some chair workouts. All good but muscle burns…

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Gradual disease progression

Gradual disease progression

How are you feeling? Seems that this is always the question asked by everyone that knows me. Today, I asked myself. I have written many blogs about lack of sleep Sleep deprived, many about accidents A horrible and humbling outing, and even some on actual feeling How are you feeling? The truth about Parethesia, but it’s been a while since I actually said how I was feeling. I’ve had multiple sclerosis for 22 years now. My disease modifying therapy is…

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Post Covid MS life

Post Covid MS life

So little Minx is doing great. He has, however, received a new nickname of demon because of his teething on anything flesh. Those little teeth hurt especially when he gets you under the arm. I’ve been doing a yelp, line he does,hoping he gets the idea of ouch. With a million teething toys on the floor, he still prefers the skin of my daughter and myself above them all. Other than that, I’m a little sleep deprived. I can’t even…

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Maybe a little leg improvement

Maybe a little leg improvement

I did an update on my phone this morning and my WordPress app has been running very slow. Plus I’ve been experiencing some glitches. I’ve now turned off my phone twice and rebooted the app for the second time. All to write a blog that I had nothing to say. I was off to a late start this morning. It’s 11:00 and I just completed exercising. I did two different chair programs. One for core and one with weights. I…

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Increasing aid hours or not….

Increasing aid hours or not….

I’ve said many times that I start to write my blog with one idea and it goes a completely different way. Sometimes the blog writes itself. This is what happened yesterday Summer heat hibernation and my own multiple sclerosis realization. I certainly wasn’t planning on addressing the idea of more aid hours. I’ve pushed back on this, against my family’s concerns, because I need some alone time. It’s probably why I never have a problem being home. I’m with someone…

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Summer heat hibernation and my own multiple sclerosis realization

Summer heat hibernation and my own multiple sclerosis realization

The quarantine is starting to lift yet this is the weather I start my hibernation. It’s starting to warm up and that means trouble for me and multiple sclerosis. Not just me, many of us. Between 60% and 80% of people with MS find that heat can cause their symptoms to worsen. This might involve a build up of fatigue, blurred vision, loss of balance or a worsening of cognitive symptoms such as concentration or memory. https://www.mstrust.org.uk/a-z/temperaturesensitivity I missed all my good months to…

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It is not easy having multiple sclerosis

It is not easy having multiple sclerosis

I had another rough night. This time I was alone. My daughter has been home for two months and the one night she’s out I really needed her. Unfortunately in my exhausted state, I fell. Not only did I fall but I was in a very bad spot. I was now exhausted and helpless. Not a good place to be. I spent a lot of time and energy maneuvering myself into a position of hope. Hope that I could possibly…

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A horrible and humbling outing

A horrible and humbling outing

My first social outing since March I was having dinner at my mom and stepdad’s house. It was the first time I was seeing my mom since a quick drive by in the beginning of April. It was the first time I was seeing my sister and brother-in-law since February. We were all getting together to celebrate my daughter’s 21st birthday which is on Wednesday. We were having dinner outside. She has a beautiful backyard but definitely has challenges for…

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The strange MS symptoms back again

The strange MS symptoms back again

I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn’t quite on point. So transferring into my wheelchair didn’t go so well. I didn’t panic, or cry. It took me a little bit but I eventually got myself up and I…

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