Browsed by
Tag: ms over 20 years

Neurologist visits

Neurologist visits

I have to say this cold has kicked the shit out of me. I know taking Rituxan lowers my immune system but I honestly very rarely get sick. Even my issues in 2022 I was on Kesimpta, not Rituxan. The last cold I had was back in 2019 when I went on my last vacation. I went to Mexico with my family. I had the worst cold. I was miserable for the first 4 days of the week’s vacation. I…

Read More Read More

My age 51 my body is much older

My age 51 my body is much older

It’s my birthday tomorrow. 51!!! I’m middle age. I think my body has been middle age since I was 43. That was when multiple sclerosis hit me with the last relapse that started my path of true disability. It’s been 8 years since that last relapse. It was when I was switching from Tysabri to Rituxan. I made the mistake of stopping Tysabri because I actually had the thought of switching to an experimental drug. I needed to be off…

Read More Read More

MS Bike Fundraiser

MS Bike Fundraiser

Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…

Read More Read More

Pincushion Arms and Infusion on Horizon

Pincushion Arms and Infusion on Horizon

I’m sneezing. My first cold of the year. I have been taking my oregano oil for a few days. It has probably helped but it hasn’t stopped the cold like it has in the past. I think things are just not affecting me the same since my whole pneumonia debacle. Oregano oil use to knock out anything as soon as I felt the twinge. Now I feel like it doesn’t do the trick. I’m not use to actually feeling run…

Read More Read More

Gastrocolic Reflux

Gastrocolic Reflux

I’m waiting out a F1 rain delay so I decided to write. Rain always makes a race so much more interesting. My favorite driver, Fernando Alonso, a veteran and oldest F1 racer loves the rain. He knows how to drive a F1 car in those weather conditions. He isn’t scared taking the corners at a high speed as some of the newer drivers still are tentative. Plus this is a night race in a street circuit. That means close walls….

Read More Read More

MultipleSclerosis.net Latest on MS Clinical Trial

MultipleSclerosis.net Latest on MS Clinical Trial

This article was from multiplesclerosis.net. I haven’t posted much on research lately. Probably because I am at a point where most drugs in the horizon won’t help. However, today Facebook has been showing ads for multiple sclerosis drugs that ARE NOT drugs approved for MS or covered by insurance. They are just ads from companies trying to target a market for the chronic disease. I don’t mind the ads when it’s nail gels or low carb keto snacks. By all…

Read More Read More

My Head on Straight

My Head on Straight

Good morning world. I am loving the cooler weather with the sunshine shining. I might have a small whiff of fall in the air. I’m ready. I took the entire week off from exercise. I am fine but those booster shots definitely knocked me for a loop. I’m glad I did both the Covid and flu together. I’m more happy to know they’re done for a while. I just looked at my calendar for October, my Rituxan infusion order starts…

Read More Read More

What is multiple sclerosis?

What is multiple sclerosis?

I don’t know how many times I’ve talked to people that had the cure for multiple sclerosis. If it was just about diet and taking vitamins, I promise you, I would be doing that. People mean well. Unfortunately, they read one story and think it works the same way for everyone. If there was a universal cure we’d know. I think that diet and vitamin can make a difference in the early stages of multiple sclerosis. The healthier your body…

Read More Read More

Another Accomplishment

Another Accomplishment

Happy Friday. It’s been another rough week for me but I did have another major victory. I was able to get in the shower for the first time since the end of the December. I have a small shower with no bathtub. However, it isn’t flat to the floor. There is a small step that was difficult for me to navigate before I got sick. After the pneumonia, getting over that step was an obstacle I didn’t think I’d ever…

Read More Read More

My brother Howard’s 13th year for Bike MS

My brother Howard’s 13th year for Bike MS

Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…

Read More Read More

%d bloggers like this: