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Tag: ms over 20 years

When did it change???

When did it change???

I woke up this morning asking myself this very question. My disability has changed so subtly but so profoundly over the 3 years I’ve been just living in my condo. I specifically remember if I’d fall I’d have to crawl to a piece of furniture to help get myself up. This chair was a major assistance piece. It was the closest furniture from the kitchen or bathroom and I used it so often to aid me back to standing. Never…

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Skin infection, antibiotics and the one who couldn’t deal

Skin infection, antibiotics and the one who couldn’t deal

I was at my primary care physician yesterday because I have a cut on my shin that is infected. I had antibiotics in the house and I started to self medicate and it wasn’t really working so I got an appointment. She prescribed a stronger antibiotic and a cream but thankfully it wasn’t cellulitis or any further issue that needed more care. This was my fault. I knew it was infected for a while. My Zoey never left that spot…

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I did it!!!

I did it!!!

Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. I had to wait for my aide. Once again on the floor. Not yesterday, I learned from my prior week struggle I was in my…

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Once again on the floor

Once again on the floor

Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…

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Better out than in

Better out than in

I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has a medium ground it hovers around on. It got me thinking about when some of these issues first started showing up. I realized how long…

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Time for handicap plates on my van

Time for handicap plates on my van

I’ve been wanting to get handicap plates on my van since I purchased the vehicle. There was a whole thing with the plates because I purchased the van in New Jersey and I live in New York. At that time I would’ve had to surrender the plates and re-register after I just paid the NYS 2 year registration fee. New York State isn’t very good at giving you money back and prorating so I just stuck with my handicap tag….

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Why I believe in the MS Gym

Why I believe in the MS Gym

Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…

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I’m kicking ass

I’m kicking ass

I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…

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Hot flashes

Hot flashes

I am not sure but I might be having hot flashes. I honestly can’t tell because I get the same issue with my MS. How are you supposed to tell the difference? I can overheat,from doing nothing, and start sweating anytime. I’ve blogged numerous times about the issues with MS and regulating body temperature. https://multipleexperiences.org/2018/07/16/regulating-body-temperature-with-ms/ orhttps://multipleexperiences.org/2020/02/25/ms-and-body-temperature/. In the last few weeks I’ve been having these hot flash things. I mean the heat creeps up and I break out in a…

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I’d love a day off from my symptoms

I’d love a day off from my symptoms

Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I’ve had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up….  I must say, so far, it’s working really well. I’ve had a tough weekend, I’m still just not feeling great, not sickness wise, more MS issues. i’ve slept in every…

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