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Tag: ms over 20 years

Loving the MS Gym

Loving the MS Gym

Good morning. It is a Grey Saturday morning here. Actually it’s a white Saturday morning.  If you look closely you can see the water. It’s 8:00 am and I’ve already worked out. I can’t say enough good things about the MS gym. http://www.themsgym.com/. I just completed week 2 and I already have seen a slight improvement. no one else would notice this improvement, it is extremely minute. This is just one of the things that I noticed from doing…

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New area of complete numbness

New area of complete numbness

I was sitting with both of my dogs yesterday, all cuddling on my chair. My Zoey decided to do her typical puppy love and kiss my face. I don’t know if things changed or I just haven’t realized, but where she was kissing, licking, I felt nothing. I felt the pressure of her tongue but I couldn’t feel her tongue. I couldn’t feel the wetness of the kiss. All I felt was that pressure and nothing else. Zoey has a…

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Gradual disease progression

Gradual disease progression

How are you feeling? Seems that this is always the question asked by everyone that knows me. Today, I asked myself. I have written many blogs about lack of sleep Sleep deprived, many about accidents A horrible and humbling outing, and even some on actual feeling How are you feeling? The truth about Parethesia, but it’s been a while since I actually said how I was feeling. I’ve had multiple sclerosis for 22 years now. My disease modifying therapy is…

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Post Covid MS life

Post Covid MS life

So little Minx is doing great. He has, however, received a new nickname of demon because of his teething on anything flesh. Those little teeth hurt especially when he gets you under the arm. I’ve been doing a yelp, line he does,hoping he gets the idea of ouch. With a million teething toys on the floor, he still prefers the skin of my daughter and myself above them all. Other than that, I’m a little sleep deprived. I can’t even…

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Maybe a little leg improvement

Maybe a little leg improvement

I did an update on my phone this morning and my WordPress app has been running very slow. Plus I’ve been experiencing some glitches. I’ve now turned off my phone twice and rebooted the app for the second time. All to write a blog that I had nothing to say. I was off to a late start this morning. It’s 11:00 and I just completed exercising. I did two different chair programs. One for core and one with weights. I…

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Summer heat hibernation and my own multiple sclerosis realization

Summer heat hibernation and my own multiple sclerosis realization

The quarantine is starting to lift yet this is the weather I start my hibernation. It’s starting to warm up and that means trouble for me and multiple sclerosis. Not just me, many of us. Between 60% and 80% of people with MS find that heat can cause their symptoms to worsen. This might involve a build up of fatigue, blurred vision, loss of balance or a worsening of cognitive symptoms such as concentration or memory. https://www.mstrust.org.uk/a-z/temperaturesensitivity I missed all my good months to…

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It is not easy having multiple sclerosis

It is not easy having multiple sclerosis

I had another rough night. This time I was alone. My daughter has been home for two months and the one night she’s out I really needed her. Unfortunately in my exhausted state, I fell. Not only did I fall but I was in a very bad spot. I was now exhausted and helpless. Not a good place to be. I spent a lot of time and energy maneuvering myself into a position of hope. Hope that I could possibly…

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How are you feeling? The truth about Parethesia

How are you feeling? The truth about Parethesia

When you live with a chronic illness I think you start to hate that question. People ask it all the time but they really don’t want the actual answer. Trust me, we very rarely actually respond with the truth. My go to answer is I’m doing ok. I can’t say good anymore because that is just too much of a stretch. I just answer with a vague I’m doing ok and change the subject, how are you doing? What is…

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The strange MS symptoms back again

The strange MS symptoms back again

I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn’t quite on point. So transferring into my wheelchair didn’t go so well. I didn’t panic, or cry. It took me a little bit but I eventually got myself up and I…

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Hot, sweaty, cold and warm

Hot, sweaty, cold and warm

I’ve had so many blogs about this topic. Regulating my body temperature is not going well these days. It can be very frustrating. The sweating happens a lot after i eat. It is because my food is hot. The hot food causes my body temperature to rise and then I start sweating. Really makes no sense. Most normal people eat a hot meal and don’t have any issues. Not me, I eat, I get overheated. WTF!!! It happens all the…

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