MS fatigue one of the most difficult symptoms to explain and deal with. 80% of all MS patients deal with this at some point or another. Fatigue is way past a feeling of tired is to the point of absolute exhaustion. It’s the feeling that each limb is 100lbs heavier than it is. Just walking the few steps to a bathroom is daunting and overwhelming. It never fails you’ll be talking to a friend and you’ll say I’m tired (meaning…
According to the National Multiple Sclerosis Society: Sexual problems are often experienced by people with MS, but they are very common in the general population as well. Sexual arousal begins in the central nervous system, as the brain sends messages to the sexual organs along nerves running through the spinal cord. If MS damages these nerve pathways, sexual response — including arousal and orgasm — can be directly affected. Sexual problems also stem from MS symptoms such as fatigue or…
I’ve blogged on this issue before but I wanted to revisit it again. I HAVE BLADDER ISSUES. I can have both hesitancy and incontinence. However my incontinence is more that I get the feeling I have to go to the bathroom and have a very short amount of time to get there. What happens, and this I’ll never understand, is as I get closer to the bathroom that’s when my bladder starts to release, thus the accident. I wanted to…
First let me start off by saying this is at my stage of the disease and my stage of the progression. It is not everybody’s MS path nor is it where you will surely be if your newly diagnosed. Everybody’s multiple sclerosis is different. On Valentine’s Day weekend in 2017 it will be 19 years I’ve had MS. It’s been a long time. I could be 1000 times worse and even though I struggle every single day, understand that I…
I always wondered what is going on in boomers mind when he looks outside. Boomer doesn’t get up and go outside easily you have to convince him so what is he thinking when he gazes? I’ve noticed lately I too have been glancing out my big window but I know what’s going on inside my mind. My life has become my apartment. The four walls of my home. As my MS has become worse I tend to stay home more…
Pity party blog today. I’m just angry today. I wrote my whole blog already was ready to post it but my hand that holds my iPad started to fatigue and my finger hit the settings button on the side panel…lost everything I just spent 30 minutes writing. What did I do wrong? I exercise six days a week. I try to eat somewhat healthy. I take my medicines. I still get worse. I don’t know what else to do….
ok maybe not a cyber crash but I’m taking a crash day. I’m going to go back to bed and recharge, regroup, refuel and recoup. I haven’t done a full day where I spend the day in bed in a long time but I think I need to today. I went to bed super early last night and I’ve been up since 2:30am. I let thoughts take over that shouldn’t be plaguing my thoughts anymore. No matter what I did…
How are you feeling? I never thought I’d hate a question more. Doesn’t it seem like EVERYONE asks you that question when you have a chronic illness. I have my standard answer to people which is, “I’m good”. I mean what else are you going to say. Truth is half the people that ask the question don’t even want to know the real answer anyway. I don’t even mean that in a mean way, it’s just people are self absorbed…
It was one of those nights. I was up all night. I had a little bellyache. I ate Chinese food, I never eat Chinese food. My belly didn’t agree with the Chinese food. Instead of going into the details of why I was going on all night let’s discuss the details of sleep. The average American sleep 6.8 hours a night. The average MS patient probably needs a good 12 hours a night. I’m willing to bet they don’t get…
I have finished my first bottle of high dose biotin. I’ve been taking a 100mg pill three times a day as the clinical studies patients were taking. My doctor felt that it was an excellent option for me to try since I am clearly progressing. She found a website www.highdosebiotin.net where you can purchase the pills without a prescription. It is slightly costly at $60 a bottle. Before I tell you my first month thoughts on it let me explain…
