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A more structured life with Multiple Sclerosis

A more structured life with Multiple Sclerosis

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This was a very long week. Came off an incredible high of my amazing weekend at the spirit junkie master class. Followed right by my doctor for my shoulder, getting a Cortizone shot and finally feeling better.  Going right back to New York City for another neurologist check up with my specialist. Wednesday through Thursday saw 24 hours of drama with my daughter and her boyfriend. Luckily, that ended with a three hour dinner with friends, lousy food but great company….

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MS neurological doctor visit

MS neurological doctor visit

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Doctors, doctors and more doctors. I have a lot of appointments coming up.  Yesterday I was saw my neurologist. He’s been the doctor I’ve been with the longest, the one who diagnosed me 19+ years ago. At this stage of the game with my MS he treats me systematically. The specialist in the city treats me for my major MS drug. This is a section from a my own blog about doctor day check ups. It’s doctor day. What does that…

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The only thing you control in a chronic illness

The only thing you control in a chronic illness

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I was diagnosed with MS in 1998. That was over 19 years ago. It’s 42.2% of my life. That’s a long time. There’s only one sure thing with a chronic disease, it holds true with any situation, the only part fully in your control is Your attitude Yes, you could eat right, take the medicine as directed, exercise, not smoke, and not do drugs, these are all wonderful things that may slow down a disease, but it won’t cure one….

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Rocking Motherhood in 10 different ways despite MS

Rocking Motherhood in 10 different ways despite MS

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I follow all the blogs I come across with people that have a MS. I like to see how they deal with it what’s going on with them, what medicine they take, etc. I like to read how they deal with the obstacles of having MS and balancing life. One of my personal favorites is Jen from http://Www.trippingthroughtreacle.wordpress.com. Jen’s blog is uplifting and inspiring despite her illness.  Jen has had MS for over 20 years. For me especially at 19 years…

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Social Security Disability review

Social Security Disability review

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Every morning I sit down with my cup of coffee, and I decide what I want to write about.  Today being no different than any other day. Marshmallow, of course the snuggling up next to me, and Zoey’s running rampage through the house. All of a sudden Zoey comes out running out of my daughter’s room  with a sneaker in her mouth. Wish I caught the actual action shot but had to settle for this instead. I’m up your Social…

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The annoying but harmless guy in physical therapy

The annoying but harmless guy in physical therapy

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I’ve been going to physical therapy since November 2016. The way my insurance works is I get 20 calendar visits per year.  I started in 2016 so it just worked out that I was able to do many months in a row. My physical therapy actually runs an amazing program that after this  physical therapy set up, I could pay a monthly fee and use everything in the gym, only giving up with the physical therapist actually have to do, which…

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Dating with Multiple Sclerosis, when I’m ready

Dating with Multiple Sclerosis, when I’m ready

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For the first time at probably two months I answered someone on match.com. I’m still under the same feeling that I don’t want to date, so I don’t really know why I reply, but her did.  The conversation went back-and-forth for a bit and then I asked the question; did you actually read my profile, are you aware that I have a mess and I use a walker? Silence!!! I can’t say that I didn’t purposely say that for a…

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