Id love to tell you I came out of yesterday’s round table discussion group enlightened with tons of new information, but I can’t. I unfortunately didn’t learn all that much. This is what I took away that I feel was note worthy. Dr. Krieger’s Leaky Pool analysis of MS. He created an app for an iPad and it’s only for an iPad. If you search for MS topography, you can download the app for free. …
I’m attending a discussion group today for people with multiple sclerosis or care givers of people with multiple sclerosis. It’s a round table discussion group that is lead by two different MS doctors. Many years ago, I was a patient representative for the drug Gilenya. I use to tell my MS story to a group of people either before or after the guest doctor would discuss MS and how the drug worked. I must admit it was a lucrative deal for…
On December 13, 2016, I wrote a blog about Alpha Lipoic Acid and multiple sclerosis. On July 3, 2017 this article was published in medical news today. http://www.medicalnewstoday.com/articles/318225.php Ive been talking alpha lipoic acid now for 7 months. I still take 2 600mg pills a day. One in the morning and one at night. Alpha lipoic acid started about 3 months after starting high dose biotin. Another Vitamin shown that in high doses has stopped disease progression. Since both biotin…
Yesterday the approval was made for Ocrelizumab for multiple sclerosis. If you don’t have access to the Internet, a newspaper , listen to the news, watch the news, have a friend, or a loved one, or possibly live under a rock, you might not of heard. This drug has been showing promise and talked about for a long time now. I’ve actually been angry at all the buzz this drug has been getting., The reason why is because I’ve been…
I’ve written blogs about this in the past, my daughter at 17 takes on the bulk of the responsibility. It’s not something a 17-year-old signs up for, and she’s been doing it for years. My mother takes on the brunt of the emotional side of my multiple sclerosis. Another topic of my blogs that you could find throughout. My step dad takes on the emotional backlash of what my mom takes on, breaking his heart. Plus he’s the one taking me to…
I was 27 years old when I was diagnosed with multiple sclerosis. At that time MS had 2 therapy drugs available Avonex and Betaseron. The information on MS wasn’t what it is today because the Internet wasn’t what it is today. I can’t remember how but I joined a support group for multiple sclerosis. I’d say 3/4 of the group were in wheelchairs. At the age of 27, who had recovered 95% from her first attack, this was NOT what…
I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug coming out for multiple sclerosis. Put Ocrelizumab in your web search and you’ll get article after article about the promise of this new drug. NEWS FLASH!!!! Rituximab is Ocrelizumab The patent on Rituximab expired in the US in 2015. Basically when they were doing the clinical trials with multiple sclerosis by the time they were…
Look at my last few weeks…I was gearing up for the holidays, got this puppy, go away for Christmas, my beloved dog Boomer died, I spiral into a complete depression, cried everyday for a week plus but my multiple sclerosis symptoms are relatively the same. Are they better? No, but they aren’t worse. Multiple Sclerosis isn’t directly linked to stress, but it never failed for me when I’d have high periods of stress, about one month later, BANG MS ISSUES….
http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 3rd month. I had a neurologist check up in December and in my timed walking, I was 7 seconds faster than I ever walked in her…
At my neurologist appointment she wanted me to start taking Alpha Lipoic acid 1200mg a day. She explained that like the biotin study I talked about https://multipleexperiences.org/2016/10/24/high-dose-biotin-with-progressive-ms-a-patients-review/ It was shown to help patients with secondary progressive multiple sclerosis. The vitamin is inexpensive. I got a bottle of 600mg on Amazon for $14.99. I take 2 a day. I just started yesterday. Like anything I will keep you updated to anything I’ve noticed both good and bad with my own MS symptoms. I…
