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Tag: newly diagnosed

What I would have done differently with my MS diagnosis

What I would have done differently with my MS diagnosis

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Years ago I participated in a multiple sclerosis activity sponsored at the same physical therapy office I go to now. My main physical therapist started the program 17 years back and became the multiple sclerosis therapist of the office. I attended this program he started once and only once. Why? Every person in attendance was in a wheelchair. I was only 2-3 years into my disease and couldn’t face that, wouldn’t face that, so I never went back. Instead I…

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Happy Anniversary Multiple Sclerosis

Happy Anniversary Multiple Sclerosis

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Valentine’s Day weekend, 19 years ago, I was moving into the house my ex-husband and I just bought. Actually we bought the house back in December but we did work on the house so we didn’t officially move in until Valentine’s Day weekend.  It was supposed to be a romantic thing first weekend in the house. I started having difficulty walking that weekend. Boxes and more boxes throughout the house. Furniture deliveries coming throughout the day that Saturday. I’m sure…

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The Internet for multiple sclerosis

The Internet for multiple sclerosis

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I was 27 years old when I was diagnosed with multiple sclerosis. At that time MS had 2 therapy drugs available Avonex and Betaseron. The information on MS wasn’t what it is today because the Internet wasn’t what it is today. I can’t remember how but I joined a support group for multiple sclerosis. I’d say 3/4 of the group were in wheelchairs. At the age of 27, who had recovered 95% from her first attack, this was NOT what…

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Newly diagnosed with MS

Newly diagnosed with MS

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If you’re newly diagnosed with MS chances are you have in the middle of coming off of having some sort of attack or relapse or whatever you want to call it where you got sick and your diagnosis was made to be MS.  At this point is usually shock. And I’m sure you come home from seeing the doctor and go right onto the Internet looking up everything you can possibly look up for MS. But let’s start at the…

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The day I found out I had multiple sclerosis

The day I found out I had multiple sclerosis

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I don’t tell this story often but in light of what is happening in the world I thought I’d share. The day the diagnosis was made I had Multiple sclerosis , my now ex-husband picked me up at my parents house. We drove up Wilson Road and right to the left of us was an accident on Merrick Avenue. One car was pretty banged up but the second car looked like it was crushed like an old can of soda….

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