22 years ago started my second multiple sclerosis relapse that lead to my diagnosis five days later. My first was optic neuritis but by itself had no name. It was 6 months later on Valentine’s Day weekend when I moved into my new house and my left side started to go numb. What started in my foot quickly traveled through my entire left side up to my face. I had difficulty walking, muscle atrophy and numbness that would never fully…
This was the second most popular blog of the year on http://Www.multipleexperiences.org. I was on Rituxan for over a year and would have preferred to continued however for insurance reasons, I’m changing to Ocrevus. My first infusion is scheduled for August 7th. This blog is just a good inside look at the pharmaceutical world of chronic disease. I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug…
Well, if your following the saga (or catch up with the link above), I discussed my insurance concerns with my doctor with regards to the Rituxan. The Rituxan will come from the patient assistance program at Genentech. However, the infusion of the Rituxan, steroids, benedryl and saline are not covered. My insurance will deny them because they denied Rituxan. I’m scared, at the last minute, they will tell me we couldn’t get authorization for the infusion therefore you can’t do…
I wanted to write another post about Ocrelizumab (Ocrevus) the new drug approved recently by the FDA for relapsing remitting multiple sclerosis and primary progressive multiple sclerosis. I am hoping I can simplify the drug information for people here. I’m not going to go explain what relapse remitting multiple sclerosis is or primary multiple sclerosis is because I’m assuming if you’re looking for information about this drug, you either have it or someone you know has it. If you’re looking…
Yesterday the approval was made for Ocrelizumab for multiple sclerosis. If you don’t have access to the Internet, a newspaper , listen to the news, watch the news, have a friend, or a loved one, or possibly live under a rock, you might not of heard. This drug has been showing promise and talked about for a long time now. I’ve actually been angry at all the buzz this drug has been getting., The reason why is because I’ve been…
