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Tag: Rituximab

Ocrevus infusion scheduled for August 7

Ocrevus infusion scheduled for August 7

Sure, it is scheduled, but the approval isn’t there. I received a call the other day from the insurance company that the expedited review has been denied. So I called the insurance company. I was told that the infusion was still under review. Under review for what??? When I tried to get Rituxan approved, the denial was because Rituxan wasn’t a FDA approved drug for multiple sclerosis. The denial letter went on to tell me based on my history that…

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Ocrelizumab (Ocrevus) versus Rituximab (Rituxan)

Ocrelizumab (Ocrevus) versus Rituximab (Rituxan)

This was the second most popular blog of the year on http://Www.multipleexperiences.org.  I was on Rituxan for over a year and would have preferred to continued however for insurance reasons, I’m changing to Ocrevus. My first infusion is scheduled for August 7th. This blog is just a good inside look at the pharmaceutical world of chronic disease. I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug…

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Ocrevus (Ocrelizumab) transition part 3

Ocrevus (Ocrelizumab) transition part 3

Well, if your following the saga (or catch up with the link above), I discussed my insurance concerns with my doctor with regards to the Rituxan. The Rituxan will come from the patient assistance program at Genentech. However, the infusion of the Rituxan, steroids, benedryl and saline are not covered. My insurance will deny them because they denied Rituxan. I’m scared, at the last minute, they will tell me we couldn’t get authorization for the infusion therefore you can’t do…

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My not going well transition to Ocrevus continued

My not going well transition to Ocrevus continued

Continuing my story from yesterday… Two main things happened yesterday. I was informed that I don’t need blood work done. Shocker!!! I’ve been on Rituxan for a year and have had repeated blood work done satisfying the hepatitis pre-check for Ocrevus. HOWEVER, my doctor felt, we were running into a time crunch and I should stay on Rituxan for the July infusion. I knew it!! I purposely came in to see her June 2 to get everything done for the…

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Not a smooth transition to Ocrevus

Not a smooth transition to Ocrevus

OCREVUS (Ocrelizumab) is the new approved drug for the treatment of patients with relapsing or primary progressive forms of multiple sclerosis.  I’ve been on Rituxan, the sister drug to Ocrevus, for over a year. The comparison on the drugs is mostly illustrated in my blog post here… I made the error thinking same company, basically same drug, easy transition….NOT!!! Last Friday I found out that my infusion place that I was receiving the Rituxan from, WILL NOT be doing Ocrevus…

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Doctors, doctors and more doctors

Doctors, doctors and more doctors

I’ll start this with the doctor for my shoulder tendonitis. I went to see him yesterday. Still flying high from my amazing weekend at my spirit junkie master class, I think I even put the doctor in a good mood.  Being that my case is slightly different from other tendonitis cases, I can’t ever rest the arm because I use it with the walker, he was able to give me a Cortizone shot early. He was actually singing as he injected…

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MS neurological doctor visit

MS neurological doctor visit

Doctors, doctors and more doctors. I have a lot of appointments coming up.  Yesterday I was saw my neurologist. He’s been the doctor I’ve been with the longest, the one who diagnosed me 19+ years ago. At this stage of the game with my MS he treats me systematically. The specialist in the city treats me for my major MS drug. This is a section from a my own blog about doctor day check ups. It’s doctor day. What does that…

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7 reasons why I decided to put Ocrelizumab (Ocrevus) back on the table

7 reasons why I decided to put Ocrelizumab (Ocrevus) back on the table

Yesterday the approval was made for Ocrelizumab for multiple sclerosis. If you don’t have access to the Internet, a newspaper , listen to the news, watch the news, have a friend, or a loved one, or possibly live under a rock, you might not of heard.  This drug has been showing promise and talked about for a long time now. I’ve actually been angry at all the buzz this drug has been getting., The reason why is because I’ve been…

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High dose biotin going on 5 months patient thoughts

High dose biotin going on 5 months patient thoughts

http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. this excerpt is from a past blog post of mind explaining what my doctor has noticed  I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 4th month somewhere in the middle of my…

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I hate insurance companies

I hate insurance companies

Here we go again. Another battle with the insurance. After I went to through the the battle with them and filed every appeal possible for my Rituxan, I was denied. Insurance denied saying it was not approved for multiple sclerosis. Although we filed all the necessary paperwork and they did approve it for others they would not approve it on my case. What is more than frustrating and this is that the new drug that is coming out for MS,…

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