Multiple Sclerosis has a lot of false information out there. Today I felt like talking about the Myths vs the facts of MS. I got this from Youdontknowjackaboutms.com. My thoughts are written in red. MYTH: MOST PEOPLE WITH MS ARE DIAGNOSED AT AN ADVANCED AGE. FACT: Most people are diagnosed with MS between the ages of 20 and 50. Though less common, MS can also appear in young children and teens, as well as much older adults. I was diagnosed…
It’s not listed in the MS symptom book but I have issues regulating my body temperature. It happens more often then I care to admit to and usually in the morning when I go out for either brunch or breakfast. I get coffee nothing unusual and eat and it causes my body to sweat. Sometimes is only a mild thing other times I’m in a full blown sweat where my hair line is wet my clothes are wet and you’d…
I got my first infusion of Rituxan on May 29 and received the second September 16. Rituxan is technically not slated for MS as of yet however it’s counterpart Ocrelizumab is its sister that will be coming out in 2017. What this drug does is it knocks out all the B-cells one of your immune fighting cells. I’ve been on just about all of the MS therapy drugs at some point or other except for the newer ones that have…
Dear Multiple Sclerosis, It’s been 18+ years you’ve been in my life. Your like that negative friend I can’t break away from. I’ve written this letter to you before but my life coach has asked me to revisit it because she feels that maybe I wasn’t fully honest in that letter. You see I try to put up a brave face. When the diagnosis came people were devastated around me and I felt I needed to be strong. It wasn’t…
JI had a nice unexpected guess yesterday in the form of my sister she came over cause she had some time to kill which was really nice to see her. However she told me she couldn’t read my blog lately because it’s been depressing her. I do have to admit it’s been a tough couple of weeks so this one’s for her will be more upbeat because I’m really doing a lot better than I was. There really is something…
Wow I was going fast into depression the medicine the braces the $130 for shoes I hated the bad phone call with mom. I just was so upset cried for hours straight. It just compounds on you sometimes but now add steroids into the mix and presto recipe for a bad situation. I can’t believe how bad I felt yesterday I really just wanted to give up something that has never been in my nature. I slept all day today…
A week in my MS world. I already had my rant of distress this week. So far the week has been better but it’s Thursday and I still have a lot going on. If you have MS maybe you’ve heard of the studies of biotin in high dosages that seem to help people with more progressive stages of the disease. This study which was done in the US is still small but larger ones have been done in other countries….
Exercise? Most people are rolling their eyes right now at the thought. Let me tell you my story with exercising. 9+ years ago when I got a divorce I bought myself an elliptical and made myself a promise, no matter what becomes of this equipment I will never use it as a hanger for my clothing. That was the only deal I made. I started slow with working out. I’d plug my iPod in and do the elliptical for a…
Results of the Diet & Multiple Sclerosis Study Doing something different today.The link above has valuable and interesting information about diet and MS. Specifically Dr. Roy Swank’s diet. Years ago my first step mother gave me Dr. Swank’s book, The multiple sclerosis diet. You can find it on amazon. It is a low fat diet concentrated on the omega fats, fruits and vegetables. Not ground breaking stuff but there was a small case study on it and the data shows…
