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Tag: daily life with ms

tips for dealing with the heat with MS

tips for dealing with the heat with MS

I’m hibernating for the summer. For most people with MS heat is very difficult. It causes fatigue and muscle weakness, spasms and it basically exacerbates all your current symptoms. They make a cooling vest but let me explain what this thing is. First it’s a vest that comes up to your waist so if closed will nicely accentuate your hips not very flattering. Second it’s this light brown/tan color that is just plain ugly. Third the vest has something like…

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Alpha Lipoic Acid and MS a patient’s view

Alpha Lipoic Acid and MS a patient’s view

On December 13, 2016, I wrote a blog about Alpha Lipoic Acid and multiple sclerosis. On July 3, 2017 this article was published in medical news today. http://www.medicalnewstoday.com/articles/318225.php Ive been talking alpha lipoic acid now for 7 months. I still take 2 600mg pills a day. One in the morning and one at night. Alpha lipoic acid started about 3 months after starting high dose biotin. Another Vitamin shown that in high doses has stopped disease progression. Since both biotin…

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First week with the nursing aide

First week with the nursing aide

Last year at this time, my first blog post said under construction. I hope you enjoyed my weeks worth of revelations of the past year of blog posts. This week, I thought it was gonna be more of a downtime week, didn’t turn out that way. My aide started on Wednesday.  Originally I asked for three days three hours a day. The recommendation of the nurse evaluator was for seven days. My case manager and I decided on three days…

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Marshy and Zoey My daily pet therapy

Marshy and Zoey My daily pet therapy

I was about to write something else this morning, and then I got a phone call. The call was actually from my insurance company regarding my nursing aide. While on the phone with her she was listening to my dogs bark and started asking me questions.  What kind of dogs are they? How old are they? And then she went on to say how she would love to have a dog. Anybody that knows me, knows that my dogs are…

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Prozac making a difference

Prozac making a difference

Not too long ago I wrote a post about MS and depression  how there is a link. I asked my doctor to go back on Prozac, a drug I was on for over 18 years. I stopped taking Prozac along with a bunch of my other drugs when I stopped working back in January 2016. I was just taking so many pills to get through a day, I thought by not working anymore, I didn’t need them all.  Well it’s…

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I’m 45 years old and I’m getting a nursing aide

I’m 45 years old and I’m getting a nursing aide

Certainly didn’t envision this scenario when I was young. I wanted to be a baker. I wanted to go to Johnson and Wales culinary school and become a great baker, not a cook. I don’t know what when I changed that dream to going to school for Hotel and restaurant Management, but I did, since that was my degree I graduated with. I know if asked later in my 20’s I’d tell you I should have been an accountant. However…

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A more structured life with Multiple Sclerosis

A more structured life with Multiple Sclerosis

This was a very long week. Came off an incredible high of my amazing weekend at the spirit junkie master class. Followed right by my doctor for my shoulder, getting a Cortizone shot and finally feeling better.  Going right back to New York City for another neurologist check up with my specialist. Wednesday through Thursday saw 24 hours of drama with my daughter and her boyfriend. Luckily, that ended with a three hour dinner with friends, lousy food but great company….

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MS and depression it’s not all in your head

MS and depression it’s not all in your head

I wrote a blog couple weeks ago titled am I depressed? https://multipleexperiences.org/2017/05/16/am-i-depressed/. I agree with  everything I wrote, but when I saw my neurologist the other day, we decided to put Prozac back in my medicine mix.  Where I don’t think I’m depressed, what isn’t fully in control, is my emotions. I cry over everything. I’ve written blogs about this too. I cry over happy things and sad things, it makes no difference. According to webmd: http://www.webmd.com/multiple-sclerosis/guide/ms-depression#1 The Link Between MS and…

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Perseverance, persistent or just plain stubborn

Perseverance, persistent or just plain stubborn

I don’t know which one I am take your pick. If you haven’t read my post for the last couple of days, I had an incident. I slid to the floor and I wasn’t able to get up.  One of the culprits could’ve been the fact that I increased one of my medicines, Gabapentin which is the generic form of Neurontin, due to the pain in my shoulder from tendonitis. I increased it on Sunday, and the incident happened on…

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Yesterday was a very disheartening MS day explanation

Yesterday was a very disheartening MS day explanation

First I want to thank everybody. I had a lot of support from a lot of people and I can’t say how much it meant to me.   There were a few contributing factors that went into yesterday that I wanted to explain. First was my mood. I was very stressed over an email I got the night before about my daughters housing for college. Her housing agreement had to be signed and returned to the school within five days…

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