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Tag: daily life with ms

Today was a very disheartening MS day

Today was a very disheartening MS day

This one is not for my family. This is a bad one, so I give you the advance warning.  Everyone’s been telling me I’m doing too much.I am a little stubborn about slowing down. I  been having a lot of trouble at physical therapy lately. I had been fatiguing not just a little but severely and I don’t know why. It’s the same routine I had been doing since November. Luckily, I had my daughter around when I got home to…

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I am never getting a handicap van

I am never getting a handicap van

So I had to take my mom and my stepdad to the airport yesterday. We were driving my black Honda Civic two door. His name is Bob. I name all my cars.  Everybody was trying to tell me you should not get a two door car, you have too many devices that need to go in the car for your MS. They were all right. I really should not of gotten a two door car. However he’s so beautiful and sexy,…

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Starting the process of getting an aid

Starting the process of getting an aid

Good morning and happy Friday to everyone.  Most of the time I dictate my blog through the voice on my iPad. Then I go back and correct any mistakes, which are usually a lot and sometimes hilarious. What obviously never comes across is my voice inflections when I’m speaking, probably why my humor doesn’t come across. I guess you can’t hear sarcasm in words that you read. Oh well, back to my topic, which this morning is, that I started…

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Me and multiple sclerosis continued

Me and multiple sclerosis continued

I’m sitting here with six exercises left of my P90X routine. Fuming actually that I haven’t been able to continue to finish the last six exercises.  This is certainly a first!!!!! I really just want to say go to hell MS.  This is such a sucky disease of times. It’s not bad enough that it takes a lot to muster the energy to exercise for any given person but an MS person its more of a push. I’m sitting here…

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Me and multiple sclerosis

Me and multiple sclerosis

We’ve had a turbulent relationship over the last 19 years to say it mildly. There have been many one-sided fights. I’ve told my story before bug sometimes it’s worth repeating. My first MS attack (exacerbation) was sever. The entire left side of my body went numb and atrophied. I couldn’t walk, hold anything or feel on the left side. It came on fast starting in my foot on a Saturday and by the time I saw the doctor that Friday…

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7 benefits things I’ve discovered since becoming vegan

7 benefits things I’ve discovered since becoming vegan

I became vegan on December 2, 2016. I made the choice because I have multiple sclerosis. I am secondary progressive multiple sclerosis which means I continue to get worse slowly over time.  My symptoms vary and are more or less severe depending on the day, however it’s never great. I decided to go vegan to eat healthier, lower the inflammation in my body and to see if I’d feel any better. This is what I’ve found so far. You have…

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neurological check-up, mentally preparing, Ocrelizumab, MRI

neurological check-up, mentally preparing, Ocrelizumab, MRI

Let me first address the fact that it took an hour and 45 minutes to get into the city for my check up. That means I’m doing nothing for all that time. I was her first appointment that morning. When we do my neurological checks and timed walking, I’m at the best I’m going to be. Therefore the check up is based on this point. However how realistic is it? This is the first time I was her first appointment,…

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Grrrrrrrrrrrrr

Grrrrrrrrrrrrr

 I can’t even write a post today. I know what I wanted to write I just don’t have any more energy to do it. So far this morning I’ve had to go and recopy Social security documents that I sent out yesterday. The reason why is because they were too big to fit behind the mailbox  for the mailman to actually take so my daughter left them in the mailbox and I have no idea if it was actually taken…

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An MRI rant

An MRI rant

It’s a rainy, foggy, and dreary day in New York. I’m a passenger in my own car. I have an early morning appointment at my neurologist in the city. Besides the basic neurological tests, we will discuss the possible switch to Ocrelizumab (Ocrevus) and my MRI results. ive already written about my bulging disk result from the spine.https://multipleexperiences.org/2017/04/01/multiple-sclerosis-symptoms-in-my-head/ My neurologist wrote me yesterday “good news, the brain MRI is stable”. It is good news, I know that. However it’s been the…

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Multiple sclerosis symptoms in my head?

Multiple sclerosis symptoms in my head?

My doctor called yesterday because she received part of the results of my MRI. Turns out I have a bulging disc in my neck area on the right side. I at first thought, oh, that maybe could explain the tendonitis I’m having in my shoulder but that’s my left side. Unless they consider the right side when they are viewing in front of you in which case their right is my left. Then my doctor said maybe that could explain some…

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