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Tag: daily life with ms

My MRI epiphanies and me

My MRI epiphanies and me

I’m scheduled for an MRI today I am looking forward to it. I think I touched upon this topic one other time but since I haven’t had an MRI since I started blogging, I’m talking about it again. Why do I like going to an MRI?  I can tell you it’s not for the results. I’ve had multiple sclerosis for 19 years, the MRI’s show what they are going to show. However, I used to get them on average two…

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My multiple sclerosis affects everyone

My multiple sclerosis affects everyone

I’ve written blogs about this in the past, my daughter at 17 takes on the bulk of the responsibility. It’s not something a 17-year-old signs up for, and she’s been doing it for years.  My mother takes on the brunt of the emotional side of my multiple sclerosis. Another topic of my blogs that you could find throughout. My step dad takes on the emotional backlash of what my mom takes on, breaking his heart. Plus he’s the one taking me to…

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What is a multiple sclerosis good day?

What is a multiple sclerosis good day?

What is a multiple sclerosis good day? It’s obviously different for everybody.  Everybody has different symptoms, different challenges, different feelings and different things that they deal with in their daily life. So unfortunately, I can’t speak for everybody, I can only give my opinion. I want to say that I feel that anybody that has been diagnosed with multiple sclerosis is a warrior.  If you’re newly diagnosed, and you’ve come through your relapse, you might have come off the battlefield, for now….

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A multiple sclerosis life coach

A multiple sclerosis life coach

When you go to group meetings on the specific subjects, normally you talk about that subject. When I joined my MS support group,  I guess I thought it would be more of a round circle kind of discussion group. I’ve definitely have walked away with information that is very useful.  I’ve made friends that have been a wonderful additions.  I just thought it would be more of a support group of people talking of issues, frustrations and feelings. I didn’t…

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The nor’easter means I’m home bound

The nor’easter means I’m home bound

New York and the surrounding area is expecting a nor’easter tomorrow. Basically it means that everyone in the tri-state area makes French toast. You can’t find at the local supermarket eggs, milk or bread. I’ve lived in New York my whole life. I’ve  been through my share of the nor’easter’s, hurricanes, rainstorms, and even windstorms. I have yet  to see a time where we were unable to get a food delivery made to the local store to stock their shelves….

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This is secondary progressive MS

This is secondary progressive MS

I said in previous posts something was brewing with my MS lately, and unfortunately it still is. A quick note to my mom, if your about to read this, while in your hut, on a beautiful beach,on your vacation, I’m fine. I’m doing what I always do, accept, adjust, adapt. Well things aren’t so great MS wise, I wish I can say they were. Sometimes I wonder, did things get worse because I stopped working? Was that constant push on…

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Butternut Squash Mac n Cheese Sauce and black cherry sauce

Butternut Squash Mac n Cheese Sauce and black cherry sauce

I know another recipe, but you have to understand… I don’t cook!!!! This is a really big deal for me.  I’ve become a cooking queen. Ok maybe not a queen but a really eager learner. I’m enjoying trying these new things being vegan.  I’m sure vegans out there have made recipes like this thousands of times. I haven’t really cooked in about 10 years. My not cooking had really nothing to do with my multiple sclerosis. Back then it wasn’t…

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Multiple sclerosis past, present and future

Multiple sclerosis past, present and future

I’m a very big fan of Flipboard . I use it a lot,  I post my blog, I read articles and I find recipes. I save all my recipes in a magazine, you could click on my recipe magazine right down the side of this blog. Yesterday I came across a great article about The Story of Multiple Sclerosis and It’s Major Milestones http://flip.it/udMksk. I just want to highlight the milestones. 1824 1st clinical description of multiple sclerosis 1868 Multiple sclerosis…

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Just another manic Monday

Just another manic Monday

You think I ran a marathon this morning. It’s 8 o’clock, I’m exhausted. This day is not going well at all so far. It started off with in a ms issue, that I just rather not discuss. However from past blogs, I’m sure you can do your own guessing.  What’s worse is im pretty sure I brought this problem on myself. I ate leftover curry soup I made. I thought the taste might be off, could veggies go bad in…

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Getting an aid getting help…accept, adjust, adapt

Getting an aid getting help…accept, adjust, adapt

For all the bad moments, there are always good moments. I would love to say that I’m feeling a lot better, that whatever is brewing with my MS is gone, but I unfortunately can’t.  However as always, I’m back to my normal, my usual somewhat positive self. I think that might have to do with the fact that my little sister is in from California and I’m seeing her today.  The sun is out, although that wind is howling, but…

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