Yesterday was a bad day. First my doctor visit went as expected, which was nowhere. What I mean, is that not much could be done at this point, my symptoms are treated symptomatically. He doesn’t really think that I’m experiencing an MS hug, I don’t even think he really understood what an MS hug was. He’s been my doctor for 19 years and for the first time ever, I was a little shocked. Especially since the first thing we were…
Before I even start today’s blog, I need to give hug of condolences to my little sister, who put her dog Blueberry down yesterday. Blueberry now joins my Boomer over the rainbow bridge to wait for us with a few other past dogs she had. Lets once again discuss life with multiple sclerosis and its challenges. My daughter had to be in the city today to take a math placement exam for John Jay College. Since we had to be…
I’ve figured out the key to my feeling good everyday, or I should say as good as possible, DO NOTHING. Let everyone do everything for you so you are very rarely getting up and you could have really good days everyday. I would need to hire myself a full time assistant to do everything for me their duties would include working out every morning but transferring the benefit to me making and bringing me my cup coffee making and bringing…
I’m all packed up and ready to go. My daughter Mikayla and I are going to Florida to visit my dad and stepmom. I’m already exhausted and I haven’t even gone to the airport yet. My final morning items had to be packed all while watching the puppy. Zoey wasn’t being very cooperative to say the least. I just picked up the dog sitter now. I’m very lucky I have her. She loves my dogs almost as much as I…
I AM SO TIRED I AM TIRED OF BEING BRAVE I AM TIRED OF PRETENDING IM NOT SCARED I AM TIRED OF TAKING A SHOWER AND LOSING EVERY OUNCE OF ENERGY I HAVE IN MY BODY I AM TIRED OF DOING THE RIGHT THING AND IT STILL BITING ME IN THE ASS I AM TIRED OF ALWAYS TRYING TO BE POSITIVE ALL THE TIME I AM TIRED PRETENDING I DONT HATE YOU I AM TIRED OF BEING ALONE IN MY…
I had a Bar Mitzvah yesterday. That’s when a boy (Bat Mitzvah for a girl) turns 13 and becomes an adult in the Jewish religion. It was my 1st cousins son’s event. I was at her Bat Mitzvah 28 years before. Ok that’s one way to put the whole age thing into perspective. Dressing in simple clothes is overwhelming adding the fancy outfit and full make up…Well I gave myself plenty of time to work in stages to hopefully prevent…
As multiple sclerosis progresses, so does your assistive needs. The first thing I got was the handicap parking permit. I’ve had this for many, many years. I got this early in my disease when I use to work in NYC and had to take a train. The parking at the station was insane and even back then walking that long distance in a rush to catch a train was very difficult. I was never able to run or skip again…
I spent a lot of time hitting the floor yesterday and not by choice. Since becoming vegan I’ve had episodes of an unsettled belly. Ok I can understand that. However when you try to make a B-line to the ladies room with multiple sclerosis, doesn’t usually workout too well. The term run isn’t in my vocabulary of things I can do anymore and walking fast can cause other issues. HELP I’VE FALLEN AND I CAN’T GET UP!!!! I should be…
Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot. I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…
I had the best physical therapy session ever!!! Just one of those days where my legs were super strong and didn’t fatigue to the point I couldn’t walk, like they normally do. I even had enough energy to get to the food store. I needed a few ingredients make my favorite soup. Thought I’d do something different today and share a plant-based vegan soup recipe. I was just so happy how well today went I also had to share my…
