An MRI rant

An MRI rant

It’s a rainy, foggy, and dreary day in New York. I’m a passenger in my own car. I have an early morning appointment at my neurologist in the city. Besides the basic neurological tests, we will discuss the possible switch to Ocrelizumab (Ocrevus) and my MRI results.

ive already written about my bulging disk result from the spine. My neurologist wrote me yesterday “good news, the brain MRI is stable”. It is good news, I know that. However it’s been the same for years and years. We stopped even scanning the brain for a big chunk of years because it never changed. The issue is, I don’t feel stable. I haven’t felt stable in a long time. I once again feel like it’s in my head the scans don’t reflect how I feel. They never did that’s why we stopped doing them as often. I’d get frustrated. I’m hoping she could explain how the scan could show one thing and my body can feel another. I wish this was the first time it happened but it isn’t, it has happened every time I’ve had an MRI. I’d feel off, MRI showed nothing. Don’t get me wrong, I’m happy it’s not bad. I’m happy my brain isn’t filled with grey matter showing total deterioration. Just makes me feel like I’m going crazy and part of this is in my head. That thought makes me feel like a mental patient.

Sorry for typos and thanks for listening I’ve been bumped around writing this in a moving car and I have to pee. I’ll let you know how it all went down.


3 thoughts on “An MRI rant

  1. Reading your post (and I don’t think it was a rant…just someone seeking justification) I feel as is I had written it myself. It’s beyond frustrating when you’re hearing one thing but yet physically feeling the complete opposite. Grrr……
    Stay strong.

    1. Thank you. That’s how I felt. I will add tomorrow the answer. I find when I revise a post no one gets it. It’s that no lesions are expected since I’m on rituxan. However when they say stable they just mean my disease is stable no new symptoms which is no new lesions. It has no bearing on the old symptoms worsening.

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