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Tag: living with MS

Multiple sclerosis in Yoda’s words

Multiple sclerosis in Yoda’s words

Star Wars, The a Empire Strikes Back. My favorite of the original trilogy movies. Why? It’s the struggle the dark side the bleak unknown of the outcome. It has hope though as Luke and Leia watch Lando Calrissiam fly away in the Millennium Falcon in search of Han Solo. When it came out in what 1980 never thought that certain lines would play in my head when relative to having multiple sclerosis. This line Yoda says does. It’s because I…

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A 10 year reflection life, MS and a world of changes

A 10 year reflection life, MS and a world of changes

It’s my birthday tomorrow. For some reason I woke up a little sad today. I think I actually became sad yesterday. I’m always sad at the middle year marks 25, 35 and now 45.  I took turning 30 and 40 fine. It seems I’m alone in the 5’s.  My divorce started right when I was turning 35.  It was such a monumental change in my life. I was still in my house.  I still have five cats running around. Boomer…

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Understanding the daily struggle with multiple sclerosis

Understanding the daily struggle with multiple sclerosis

First let me start off by saying this is at my stage of the disease and my stage of the progression. It is not everybody’s MS path nor is it where you will surely be if your newly diagnosed. Everybody’s multiple sclerosis is different. On Valentine’s Day weekend in 2017 it will be 19 years I’ve had MS. It’s been a long time. I could be 1000 times worse and even though I struggle every single day, understand that I…

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I built a dog run

I built a dog run

Well  now I’ve been trying to train Boomer to go to the bathroom. Boomer is the big one first picture. He’ll pee out here but he hasn’t pooped out here yet. Unfortunately he is over 10 years old and he’s used to being walked so it’s going to take some time.  But I’m patient. I got cookies in my pocket and eventually will get there. But today I’m just hanging out hoping for the miracle.  I did this for the future…

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U2hearts, Raven, tattoos of who I was and who I am

U2hearts, Raven, tattoos of who I was and who I am

U2HEARTS This was my license plate for more then 15 years. It was from U2-Two Hearts on the War album, my favorite U2 album. It is my email address as well. I recently turned in my plates and became incognito driving around town. I gave my old car to my daughter and leased a new car. A black car. I haven’t owned a black car since I was 17 years old and totaled my black car the day after I…

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Follow up to learning your truth, love over fear

Follow up to learning your truth, love over fear

I never commented on this picture yesterday. I found this on a U2’s website written in Bono’s handwriting but signed by Bono, Edge, Adam and Larry. I don’t know if it’s going to be a new song or if it was just something they were doodling but it was so fitting and they’re my favorite. Yesterday I wrote to my coach before I spoke to her and asked her to read my blog. I received an email that simply said…

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While your learning your truth love over fear

While your learning your truth love over fear

The following are conversations I had with my life coach about ending things and the actions with the guy I was dating, the one with the 9 hour first date. The beginning part was in our session when I realized I didn’t want me to continue dating him, I wasn’t feeling the connection. She coached me to follow my inner guide, listen to my gut feeling and stay on my course of coming from a place of love.  My struggle…

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Multiple Sclerosis Grants-patients source for help

Multiple Sclerosis Grants-patients source for help

When I got divorced I was very lucky and found an apartment around the corner from where my house was. My daughter who was only 7 at the time had very little disruption to her school life she just got on the bus one stop earlier. Now with college looming the thought of me moving to a place more disability friendly and with a yard for my dogs became the hot topic. My daughter was distraught though, to her this…

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That’s ok I’m happy

That’s ok I’m happy

I dropped my $100 Aria scale yesterday which shattered on the floor into a million pieces because of my hands with ataxia but that’s ok I’m happy. I stepped on my old Aria scale I have to find out I’m currently up 8lbs so I need to reign that in really fast but that’s ok I’m happy. I went to physical therapy this morning and I’m a little wiped out and it’s only 11:00am but that’s ok I’m happy. I’m…

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