I’ve never been so excited to set my alarm for 6 o’clock in the morning. These last couple of weeks have been a series of emotions that have worn me down. There of been good,there of been awful, but it just wore me out. I know most of you don’t know me, other than what you read, but I haven’t worked out in two weeks. I can’t tell you a time in over six years where I have it worked…
I was starting to “leak through” my current multiple sclerosis therapy back in 2014. I had been on basically Betaseron most of the time until I switched to Gilyenya in 2010. I was switched for the “leaking through” thought. It was holding me on the relapsing remitting sides mostly. I’d have maybe one or two per year on all the drugs. However I would worsen without a so-called attack. My current symptoms would worsen. Back in 2014 the decision was…
I haven’t slept well in 2 nights and we all know how great that goes with multiple sclerosis. I know why but don’t know if I’m ready to say it yet. I bit off more than I can chew at the present moment. Something I always wanted to do but it required a lot more than I realized. However it’s too late now I made a commitment. I don’t want to hear the I told you so from the people…
I’m in my doctors office right now. My regular doctor this time. I had to repeat blood work from 3 months ago. In that blood test my cholesterol was higher than normal and my Vitamin D was too low. Vitamin D in a patient with multiple sclerosis. This is probably the one link they are certain of with multiple sclerosis is Vitamin D and how that is important. If you don’t know to name a few cases… A study conducted…
i wanted to go to the specialty grocery store, pick up some plant-based items I couldn’t find at the local store. It’s not a very large store, easy parking, I thought I’d be ok. I had 2 small bags with light stuff. I made it to the car, just had to get in my house. Car to house what 20 steps. 6 steps to first landing until I can regret the chair lift. Yet another task that completely exhausted me…
I have 2 neurologists. One is a straight neurologist who diagnosed me 18+ years ago and has been with me since. The other is a multiple sclerosis specialist in New York City who I’ve been seeing for about 2-3 years now. Both of them work on different aspects of my MS. My neurologist is usually the symptoms manager. He prescribes the daily drugs I take. The specialist deals with which MS drug I’m on. The blood work, MRI scans and…
Multiple Sclerosis has a lot of false information out there. Today I felt like talking about the Myths vs the facts of MS. I got this from Youdontknowjackaboutms.com. My thoughts are written in red. MYTH: MOST PEOPLE WITH MS ARE DIAGNOSED AT AN ADVANCED AGE. FACT: Most people are diagnosed with MS between the ages of 20 and 50. Though less common, MS can also appear in young children and teens, as well as much older adults. I was diagnosed…
I was a good teenager, in realations to other teenagers. I didn’t do hardcore drugs. I didn’t break curfew. I didn’t steal. I wasn’t arrested. I helped around the house as needed. I liked my parents. I liked spending time with my parents. I became rebellious the summer I was leaving for college. I could smell the freedom. I can smell the beginning of something new. I could feel the start of my life. I hated high school. I didn’t…
MS fatigue one of the most difficult symptoms to explain and deal with. 80% of all MS patients deal with this at some point or another. Fatigue is way past a feeling of tired is to the point of absolute exhaustion. It’s the feeling that each limb is 100lbs heavier than it is. Just walking the few steps to a bathroom is daunting and overwhelming. It never fails you’ll be talking to a friend and you’ll say I’m tired (meaning…
As with most of my blog, this too has a back story. About 4 years ago, in the middle of the night I heard my daughter doing something in the bathroom. I remember talking to her and then I remember being on the floor holding my head as blood was dripping down. I remember saying “call grandma”. Since the day I got diagnosed with multiple sclerosis, if a call came in the middle of the night it was never a…
