I’m Jamie. I was diagnosed with Multiple Sclerosis in 1998. I have been lucky that I’ve been able to be on my feet for many years but my time to be in the wheelchair is here. I have been a single mom since my daughter was 7. She was born with a progressive hearing loss. She received bilateral cochlear implants. I dedicated most of my years to getting her the help she needed in school both academically and socially. My…
I am not feeling good. I expected it following my steroid infusion. My skin almost hurts. I’m happy to say I slept in which was needed. It’s a beautiful day here in New York and I am happy to be in my pj’s looking out at the water. I’m accompanied by my fur babies and I’m good for the day. Wishing everyone a lovely Saturday. Please visit my Go Fund Me page. Any donations are greatly appreciated. https://www.gofundme.com/6c89ruo?pc=ot_co_dashboard_a&rcid=58dcd35905d2429dab618754ee799669
Well when I took out the stint my hand was swollen. That would explain the pain that was going on during the infusion. I got a call at 8:00 last night from the nursing staff about coming today to do my discharge. They said they were going to take out the stint and do my paperwork. I laughed, as soon as that infusion was done I ripped out that stint. I wasn’t leaving that in my hand a minute longer…
The infusion was slightly painful last night. Painful in the vein not the site of the stint. It made for an uncomfortable hour. That doesn’t make me happy going into tonight. However I have one more infusion to go. No matter how much it hurts I will get it done. Hopefully the vein doesn’t collapse because that would suck. I slept much better yesterday although I was up every two hours to use the bathroom. There is a tricks to…
Well unfortunately the nurse didn’t get here until after 6pm. I had a heating pad on my arm from 3 on because they said they’d be back by then. I get things happen but why can’t you have the common curtesy to call and let someone know. I ended up burning myself I didn’t feel anything. This morning the marks didn’t go away. It didn’t even help the stuck me twice and the veins didn’t hold. The third stick in…
I woke up early on Saturday morning. I decided to use one of my Zumba cds and exercise in my chair. I use to to stand for the entire work out. Then I’d sit for every other song. It became I’d push through standing for three songs in the beginning and sitting for the rest. Now I barely stand for one song. Yet I still do it and for that I’m proud. I knew it would take me at least…
I’ve shared many blogs explaining how things were getting harder for me. My physical therapist, whom I been seeing for over two years, made a recommendation that maybe it’s time to try steroids. He is also notice the difference. His thinking was maybe, just maybe, this is actually some flareup of a MS. Maybe a course of steroids would take down any inflammation and give me back a little bit of my strength. Since I saw my neurologist less than…
I’m Jamie. I was diagnosed with Multiple Sclerosis in 1998. I have been lucky that I’ve been able to be on my feet for many years but my time to be in the wheelchair is here. I have been a single mom since my daughter was 7. She was born with a progressive hearing loss. She received bilateral cochlear implants. I dedicated most of my years to getting her the help she needed in school both academically and socially. My…
Another great article found in multiple sclerosis news today by Patricia Inacio, PHD. Fast Forward, a nonprofit subsidiary of the National Multiple Sclerosis Society, will invest up to $330,000 to advance the clinical development of an antibody that was shown to lessen inflammation and nerve cell damage in a multiple sclerosis (MS) mouse model. The funding will help develop the antibody (a protein the immune system uses to neutralize pathogens such as bacteria and viruses) in order to have properties more similar to those…
I had a condo board meeting yesterday. I love where I live but the condo needs a lot of work. I know they are looking for solutions from the homeowners of how to get that work done. I think that they should combine our assessment loans take out additional funds and just do what needs to get done and stop piecing together each project. However, technically I’m a renter. My mom and step dad pay the maintenance fees so I…
