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2018 MSAA’s New MS Research Update links

2018 MSAA’s New MS Research Update links

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This is a super valuable link. I had this on my post yesterday and I think it got a little lost. The title wasn’t correct to attach this with. This shows you everything out on the market currently for MS. It shows the things that are currently in clinical trials as well as new research being developed in regards to MS. It is everything you need to know that is available, coming and being developed at this moment. https://mymsaa.org/publications/msresearch-update-2018/ For…

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MS World Day

MS World Day

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Marked by May 30th. This day is to bring the MS community together. #bringinguscloser This day is for us to share our stories, raise awareness, and come closer to finding a cure. Today I’m going to attach a 2018 MSAA’s research update. It has so much information. It has all the current drugs, experimental drugs and drugs in clinical studies. A great research tool for anyone with MS. https://mymsaa.org/publications/msresearch-update-2018/ Full downloadable version https://mymsaa.org/publications/msresearch-update-2018/download/

Rewriting a thankful list

Rewriting a thankful list

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I’ve been a little sad lately. I’d love to answer I know why but I don’t even know. I just know I feel a little off, a little down, and just not my normal self. I can’t wrap myself up in my spiritual studies well. I haven’t been meditating. My morning affirmations have been difficult. I knew I needed a blog today about things I’m grateful for instead of things that are absent. My daughter’s birthday is on Sunday, she’s…

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It was almost a catastrophe

It was almost a catastrophe

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I had my electrician here yesterday doing a new outlet on my balcony. He move my door, my front door, into an open position so he can come and go as needed. When it was done I said to my aid could you lock the door. She said she was running out to take the garbage out and to get the mail. When she came back in she never lock the door. It was hot yesterday so I have all…

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“Fear” of walking with canes from the rollator

“Fear” of walking with canes from the rollator

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My MS therapist was here yesterday. She was doing some balance stuff with me in the pool observing my core. She said you should be walking now without the rollator. Not without help mind you, but with canes. My back is so straight I should be able to be upright, not leaning over with the rollator. So that is the new game plan, to start teaching my legs to walk again with two canes for balance. We did a practice…

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Unconditional love of my daily pet therapy

Unconditional love of my daily pet therapy

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I don’t understand how people don’t want the unconditional love of a pet. I think everybody should be pet people either dog or cat. I’ve had them both. Some of my cats were prissy, but most were very affectionate. Although my cat’s affection was nothing like my dogs. When I had by cats, and I had six at one point, my dad always said you’re a dog person. He was right. Not to mention that I’m actually allergic to cats…

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Handicap parking spot abuse

Handicap parking spot abuse

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Can we talk about handicap parking? I know I’ve had blogs about this before, but it’s still a very sore topic for me. I understand that there’s a requirement that a certain amount of spots, based on the size the property and the total number of spots allocated, have to be given to handicap parking. It just never seems to be enough. Why is it never enough? Because everybody seems to get one. It’s not for the truly disabled anymore….

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My own handicap reserved spot

My own handicap reserved spot

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My condo gave me an assigned spot. There are six handicap spots in front of my building. Normally I leave in the morning and I’m back in the mornings, I get a spot back. However if I go out towards the afternoon, sometimes I don’t get a spot. The other close spots could also get taken pretty easily especially at night. If I’m having dinner with a friend, when I come home, parking is a problem. I can’t walk that…

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Ocrevus infusion a few months later

Ocrevus infusion a few months later

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I’ve been asked this question quite a number of times so I thought I’d address this in my blog. I’m asked, do you feel any better since you’ve been on Ocrevus? Where I’d love to give a wonderful answer here, the answer is NO. however it’s also very important to answer, I also don’t feel worse. When I was on Tysabri, I was still feeling worse month to month. That’s why we made the switch originally to Rituxan, which is…

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Swimming-water therapy for multiple sclerosis

Swimming-water therapy for multiple sclerosis

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I’ve have a MS fitness trainer that I’ve been working with for about a year and a half now. She would come to the house and get my body to move in ways I personally wouldn’t willing force my body to do. It was hard. She saw where my body was weak and would attack my body in exercises, from different vantage points, to try to manipulate the muscles to do certain movements. When I moved to my new condo,…

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