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Tag: Multiple sclerosis

Smoking and multiple sclerosis

Smoking and multiple sclerosis

I was driving and my iPod was shuffled playing random songs from my entire music collection. My favorite things when driving were music and smoking. I could drive for hours smoking with the music cranking, loud. I quit smoking years ago for the final time. I didn’t wait for the last cigarette of the pack, I didn’t even throw out what was left of the pack. I woke up one day and said enough. I can’t smoke anymore. It messed…

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Balancing with your eyes

Balancing with your eyes

Every neurological patients has gone through the tests. Touching your finger to your nose and back, walking heel to toe, toe to heal, tuning fork and pin prick. Then there is the one you stand up put your arms out in front of you and close your eye…do you topple over? I do. I do when I’m home getting dressed and I momentarily loose eye sight because the shirt got stuck and down I go. Why? It’s the loss of…

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The good days verses the bad days

The good days verses the bad days

I was asked today by my physical therapist how are you? I am sure anyone with a chronic disease thinks this is a loaded question. Actually a good friend of mine called me the other day and said, “I’ve learned so much about you and what you deal with on a daily basis from reading your blog. I never knew. Some of it makes me laugh, some makes me feel so bad that I can’t help you, but I never…

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Multiple sclerosis serious symptoms-respitory issues

Multiple sclerosis serious symptoms-respitory issues

On my way to visit my sister back in December, we stopped to eat lunch. I started coughing, had a little tickle in my throat. That coughing started to get worse and worse because it was making no progress. I literally started to choke. I was finally given some water and was able to produce the cough that moved the phlegm or whatever was in my throat causing me to cough to begin with.  I was shaking by the end…

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A year since I was put on disability

A year since I was put on disability

Should I say Happy Anniversary to myself? It was an after work doctors appointment January 21, 2016 when he said “ENOUGH”. He knew since the summer before I was getting worse, I was the one in denial. On January 22, 2016 I called my job and said my doctor is putting me out on disability and I never was back.  I kept pushing and pushing to continue to work. I was working part in the building and part at home,…

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The helping hand when you have a chronic condition

The helping hand when you have a chronic condition

A few months ago  there was this sound this clanking sound coming from the refrigerator. I must say I can follow directions put things together, tighten things when they seem loose, make minor repairs but major breakdowns, I’m not your girl. When I heard the clanking I knew it was the compressor or something, but that’s about it. I lowered the temperature of the refrigerator from 5 to 0 for a few minutes turned it back up and sound was…

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I’ve surrendered my worry, doubt and fears

I’ve surrendered my worry, doubt and fears

If you have ever read my blog or not, my biggest personal growth this year was reading A Course in Miracles. It’s a book compromised of a reading section, a workbook section and a teachers manuel. I am on the workbook section now which is a lesson a day for 365 days.  I start everyday reading the workbook. I’m currently on lesson 181. Like any spiritual path, A Course of Miracles is not a religion, it is a way of…

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Puppisms by Zoey

Puppisms by Zoey

Unfortunately, I have not escaped side effect free from my Rituxan infusion on Monday.  However it’s not the Rituxan that is the problem it’s the steroid, as I figured it might be. Definitely not as bad as last time but I definitely don’t feel well. So instead of a long blog I got humor this morning with my puppy Zoey that I thought I’d share. Zoey loves socks doesn’t matter if they are on your feet or not. This morning…

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Zoey my poopy eating fur ball

Zoey my poopy eating fur ball

So once again little Zoey back at the vet. She has another respitory infection. However it is only one of the reasons she was there.  My veterinarian has received at least one email a day from me for the last two weeks straight. I’ve had 2 dogs at this office for the last 10 years but it wasn’t until Zoey came along, a little over a month ago, that the ENTIRE office now knows me. On a wonderful note about…

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Rituxan infusion possible side effects-a patients perspective

Rituxan infusion possible side effects-a patients perspective

As expected I was extremely tired after. It’s because of the large amount of Benadryl that is given. I was in bed asleep by 9:00. I’d love to say that was unusual for me, but during the week that’s my normal bed time.  I woke up with a little stomach ache. That can be a number of reasons but it is listed as a side effect of the rituxan. I don’t remember it from any of the other times I…

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