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Tag: newly diagnosed with MS

The chiropractor who tried to diagnose me

The chiropractor who tried to diagnose me

I forget this story because I had a major attack and was diagnosed in a weeks time that the very first people I saw were like quick blips. I was reminded of this story when someone recommended me to see a chiropractor. Understand, this is MY experience and I am not knocking the whole world of chiropractors. I know many people who use them and benefit greatly. I had my major attack Valentine’s Day weekend in 1998. https://multipleexperiences.org/2016/07/15/the-day-i-found-out-i-had-multiple-sclerosis/ I was…

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What I would have done differently with my MS diagnosis

What I would have done differently with my MS diagnosis

Years ago I participated in a multiple sclerosis activity sponsored at the same physical therapy office I go to now. My main physical therapist started the program 17 years back and became the multiple sclerosis therapist of the office. I attended this program he started once and only once. Why? Every person in attendance was in a wheelchair. I was only 2-3 years into my disease and couldn’t face that, wouldn’t face that, so I never went back. Instead I…

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The Internet for multiple sclerosis

The Internet for multiple sclerosis

I was 27 years old when I was diagnosed with multiple sclerosis. At that time MS had 2 therapy drugs available Avonex and Betaseron. The information on MS wasn’t what it is today because the Internet wasn’t what it is today. I can’t remember how but I joined a support group for multiple sclerosis. I’d say 3/4 of the group were in wheelchairs. At the age of 27, who had recovered 95% from her first attack, this was NOT what…

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You don’t look sick….

You don’t look sick….

Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot.  I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…

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Newly diagnosed with MS

Newly diagnosed with MS

If you’re newly diagnosed with MS chances are you have in the middle of coming off of having some sort of attack or relapse or whatever you want to call it where you got sick and your diagnosis was made to be MS.  At this point is usually shock. And I’m sure you come home from seeing the doctor and go right onto the Internet looking up everything you can possibly look up for MS. But let’s start at the…

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