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Tag: Ocrelizumab

Ocrevus infusion not looking good for Monday due to insurance

Ocrevus infusion not looking good for Monday due to insurance

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Can you sue an insurance company for stress? I know you can sue debt collectors if their actions cause undue stress. I was wondering about insurance. The stress that I’ve been under for this last week dealing with my insurance is ridiculous. Everyday I speak to them I get a different answer. Yesterday I was told they were waiting for clinical notes and a copy of my last MRI showings I have relapse remitting MS. I can understand if this…

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Ocrevus infusion still not approved, I kid you not…

Ocrevus infusion still not approved, I kid you not…

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You can’t make this sh@t up. I get a call from the girl working on my infusion authorization, my insurance company wants to know the name, address and telephone number of my pharmacy where I am currently getting my prescriptions. The girl who called me really tried to be professional as possible but had the same reaction I had which was… WTF???? Will you be sending Ocrevus to my local CVS for me to pick up and take to NYC…

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Here we go again, accept and adapt

Here we go again, accept and adapt

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After 8+ years, I have to give up my normal everyday workout routines. I need to find something else that works that doesn’t aggravate my shoulder tendonitis. My wonderful therapists over at physical therapy have started adding in arm exercises to help build up my arm muscles again. The plan is that instead of going 2 days a week to go to therapy 3 days a week. The focus is going to change to building up arm strength to better…

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Ocrevus infusion scheduled for August 7

Ocrevus infusion scheduled for August 7

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Sure, it is scheduled, but the approval isn’t there. I received a call the other day from the insurance company that the expedited review has been denied. So I called the insurance company. I was told that the infusion was still under review. Under review for what??? When I tried to get Rituxan approved, the denial was because Rituxan wasn’t a FDA approved drug for multiple sclerosis. The denial letter went on to tell me based on my history that…

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Ocrelizumab (Ocrevus) versus Rituximab (Rituxan)

Ocrelizumab (Ocrevus) versus Rituximab (Rituxan)

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This was the second most popular blog of the year on http://Www.multipleexperiences.org.  I was on Rituxan for over a year and would have preferred to continued however for insurance reasons, I’m changing to Ocrevus. My first infusion is scheduled for August 7th. This blog is just a good inside look at the pharmaceutical world of chronic disease. I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug…

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Ocrevus (Ocrelizumab) transition part 3

Ocrevus (Ocrelizumab) transition part 3

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Well, if your following the saga (or catch up with the link above), I discussed my insurance concerns with my doctor with regards to the Rituxan. The Rituxan will come from the patient assistance program at Genentech. However, the infusion of the Rituxan, steroids, benedryl and saline are not covered. My insurance will deny them because they denied Rituxan. I’m scared, at the last minute, they will tell me we couldn’t get authorization for the infusion therefore you can’t do…

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My not going well transition to Ocrevus continued

My not going well transition to Ocrevus continued

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Continuing my story from yesterday… Two main things happened yesterday. I was informed that I don’t need blood work done. Shocker!!! I’ve been on Rituxan for a year and have had repeated blood work done satisfying the hepatitis pre-check for Ocrevus. HOWEVER, my doctor felt, we were running into a time crunch and I should stay on Rituxan for the July infusion. I knew it!! I purposely came in to see her June 2 to get everything done for the…

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Not a smooth transition to Ocrevus

Not a smooth transition to Ocrevus

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OCREVUS (Ocrelizumab) is the new approved drug for the treatment of patients with relapsing or primary progressive forms of multiple sclerosis.  I’ve been on Rituxan, the sister drug to Ocrevus, for over a year. The comparison on the drugs is mostly illustrated in my blog post here… I made the error thinking same company, basically same drug, easy transition….NOT!!! Last Friday I found out that my infusion place that I was receiving the Rituxan from, WILL NOT be doing Ocrevus…

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A more structured life with Multiple Sclerosis

A more structured life with Multiple Sclerosis

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This was a very long week. Came off an incredible high of my amazing weekend at the spirit junkie master class. Followed right by my doctor for my shoulder, getting a Cortizone shot and finally feeling better.  Going right back to New York City for another neurologist check up with my specialist. Wednesday through Thursday saw 24 hours of drama with my daughter and her boyfriend. Luckily, that ended with a three hour dinner with friends, lousy food but great company….

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Doctors, doctors and more doctors

Doctors, doctors and more doctors

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I’ll start this with the doctor for my shoulder tendonitis. I went to see him yesterday. Still flying high from my amazing weekend at my spirit junkie master class, I think I even put the doctor in a good mood.  Being that my case is slightly different from other tendonitis cases, I can’t ever rest the arm because I use it with the walker, he was able to give me a Cortizone shot early. He was actually singing as he injected…

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