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Tag: Physical therapy

Shocking to everyone including me

Shocking to everyone including me

I was sitting up at the end of the bed when he got there. I popped right up to stand. My PT therapist said try to take a step. I was standing up with one of those silver walkers. Well, I took a step. It was my first step since the end of December. I then took another and another. I was going forward and back in the small space of my room. I was getting tripped up having to…

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My own discouragement rant

My own discouragement rant

I was determined to get into my comfy chair. Ok getting in isn’t the problem, it’s getting out. The chair is not only low but mushy. I don’t have anything very solid to push myself up to a standing position. I tried to angle the wheelchair in front of me, using the chair’s arms. Unfortunately, that didn’t help either. The end result was being lifted up by both my physical therapist and the aide. I was discouraged. Getting into, excuse…

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Too much emphasis on PT

Too much emphasis on PT

I didn’t write it but looking back at my episode with physical therapy last week https://multipleexperiences.org/2022/04/22/breathing-issues/, may have been a panic attack. It seems that this week things aren’t going much better. I was able to stand right up on Sunday. I got into my wheelchair. I ate dinner at the table for the first time in ages. The next day I couldn’t stand up during physical therapy. This was the third visit that I felt was wasted. Medicare only…

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Things need to change

Things need to change

I actually got out of bed and ate dinner at the table last night. I am tired of being in this bed. I might not have endurance. I might not be able to take a step. I can usually transfer to my wheelchair with some assistance. Key word is assistance. The aides that I currently have, that “assistance” is questionable. My weekend aide is lovely but her English isn’t good. I would have to translate instructions to her for everything….

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Breathing issues

Breathing issues

On Monday something strange happened with my hands. I actually shouldn’t say strange because this symptom happened every time my fever spiked over 102 degrees. My hands became claws. I call them claws because they fold in and makes it very difficult to grab and pick things up. The better definition lies in this post. https://multiplesclerosis.net/living-with-ms/shaking-curled-claw-hand. I couldn’t hold my fork eating a fruit salad. I tried to eat a muffin and I dropped the thing 4 times before I…

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Avoiding brain mush

Avoiding brain mush

I have been expanding my mind. I am still watching mindless television but playing games too. I play dordle and wordle online daily. I even downloaded an app to play wordle throughout the day. I also love Sudoku. I’m good at them too. I play the hard or expert levels. It can take me an hour to play an expert game. I love the challenge. I just want everyone to know I am not completely wasting my brain away. I…

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Exercise, standing and Bionic Gym

Exercise, standing and Bionic Gym

I am very weak. My legs can’t hold me up for long. PT has been working on just getting me up and standing. I never thought something so simple would be so hard. Let me tell you, it is so hard. I try to sway back and forth shifting my weight as I hold onto a walker. I had to sit down again because I have no endurance. One day I was able to get back up once. The other…

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Bionic Gym helping with Spasticity, my experiment

Bionic Gym helping with Spasticity, my experiment

I am doing a test this week. I think the Bionic Gym is helping with the spasticity. I have been using it later in the day on Monday and Wednesday because of occupational therapy. I am going to adjust the timing of that. I started with Sunday. I normally don’t do any exercise. It is my one day off. It is also the most difficult day for me with spasticity. I figured I would just do one hour at a…

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Multiple sclerosis is physical and mental

Multiple sclerosis is physical and mental

I had physical therapy again yesterday which once again ended up disappointing. I walked less than I ever walked in these sessions of PT. I woke up feeling good. I did my normal morning routine. I felt good and then I started getting tired. Therapy was at 12 and by that time I was already feeling fatigued. I was determined to walk but my body wasn’t matching my will. It was pathetic and frustrating from the first step. Why??? This…

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I don’t recommend Physical therapy during the summer

I don’t recommend Physical therapy during the summer

Before I start my blog I want to wish my dear friend Hindi a Happy 50th Birthday. I love you. Have the greatest day. I’m melting. I am fully inside with the AC cranking but I feel the heat inside my bones. I was trying to transfer to my comfy chair this morning and it took me 10 minutes. I didn’t fall but my legs were like jelly. I kept having to repositioning myself to get the right stance to…

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