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Author: Youtwohearts

A day in the life with multiple sclerosis.
Colonoscopy and Endoscopy

Colonoscopy and Endoscopy

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Hello my fellow blog readers. How are you doing? I was absent last week. I had so much going on getting ready for my colonoscopy/endoscopy on Thursday. The prep for the colonoscopy was horrible, HORRIBLE!!!! I even started 4 hours earlier than the instructions indicated. My aide changed me every hour from 12pm-6am. I was physically and mentally exhausted. Thankfully I had an early appointment. Unfortunately, I knew I wasn’t cleaned out. A very easy indicator was that the stool…

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Rituxan Infusion in the Books

Rituxan Infusion in the Books

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I am half way through my Rituxan infusion. Chilling out watching Ink Master. I was smart this morning. I kept my arms covered despite being slightly warm. I know, all too well, that my cold arms do not help when trying to start an IV. I overheat so easily so there is usually a fan blowing right next to me. I might not feel cold but my arms and hands are always cold to touch. I kept a sweatshirt on…

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Shameful Doctor

Shameful Doctor

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I’ve been absent again. I have just had a lousy few weeks. I have had a shitty year. If you have read my blog, I have that well documented. I’m tired of dealing with all the issues that keep occurring week in and week out. I just feel like I have not had one month where I wasn’t dealing with some issues. From sickness to bedbugs back to my chronic stomach issues, I honestly feel like I can’t catch a…

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MS Bike Fundraiser

MS Bike Fundraiser

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Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…

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Pincushion Arms and Infusion on Horizon

Pincushion Arms and Infusion on Horizon

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I’m sneezing. My first cold of the year. I have been taking my oregano oil for a few days. It has probably helped but it hasn’t stopped the cold like it has in the past. I think things are just not affecting me the same since my whole pneumonia debacle. Oregano oil use to knock out anything as soon as I felt the twinge. Now I feel like it doesn’t do the trick. I’m not use to actually feeling run…

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A Day Outside

A Day Outside

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How was your weekend? Last week my older sister came out for a visit. It was the first sunny day in a string of many rainy days. My sister is not one for being inside especially on beautiful days. I knew I’d be visiting with her outside somewhere. We took a walk, or in my case a wheel, to the pier by my house. It was absolutely beautiful. This view is just down my block. I love where I live….

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Gastrocolic Reflux

Gastrocolic Reflux

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I’m waiting out a F1 rain delay so I decided to write. Rain always makes a race so much more interesting. My favorite driver, Fernando Alonso, a veteran and oldest F1 racer loves the rain. He knows how to drive a F1 car in those weather conditions. He isn’t scared taking the corners at a high speed as some of the newer drivers still are tentative. Plus this is a night race in a street circuit. That means close walls….

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Happy Birthday Alyssa

Happy Birthday Alyssa

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Today is my younger sisters 45th birthday. My beautiful sister has always amazed me and I wanted to take a moment to dedicate a post all to her. She is my half sister. Growing up, I’d see her every Sunday. Thank god for her because our older sisters were either not around or ignoring us. I spent the entire day with her and don’t really remember seeing my dad without seeing her. I remember we’d go downstairs in the basement,…

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Barkbox Customer Service Excellence

Barkbox Customer Service Excellence

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Some people say that the way to their heart is through their stomach, mine is through my dogs. Shocking, I know. When I got home from the hospital, my cousins all chipped in and got me a subscription to Barkbox for 3 months. Great gift!!! I loved giving the toys to the puppies. They would be so excited each time the box came. I wasn’t thrilled with the treats because both my dogs have a sensitive stomach. The one treat…

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MultipleSclerosis.net Latest on MS Clinical Trial

MultipleSclerosis.net Latest on MS Clinical Trial

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This article was from multiplesclerosis.net. I haven’t posted much on research lately. Probably because I am at a point where most drugs in the horizon won’t help. However, today Facebook has been showing ads for multiple sclerosis drugs that ARE NOT drugs approved for MS or covered by insurance. They are just ads from companies trying to target a market for the chronic disease. I don’t mind the ads when it’s nail gels or low carb keto snacks. By all…

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