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Tag: Accepting ms

Why continue to exercise with multiple sclerosis

Why continue to exercise with multiple sclerosis

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“Exercise is essential not just for overall well-being, but also to help manage symptoms of multiple sclerosis (MS). In fact, exercise might even slow progression of the disease, according to a 2012 review published in Therapeutic Advances in Neurological Disorders.” This was according to everyday health. The National Multiple Sclerosis Society says basically the same thing and adds, “An exercise program needs to fit the capabilities and limitations of the individual. It may need to be adjusted as changes occur in…

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Today was a very disheartening MS day

Today was a very disheartening MS day

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This one is not for my family. This is a bad one, so I give you the advance warning.  Everyone’s been telling me I’m doing too much.I am a little stubborn about slowing down. I  been having a lot of trouble at physical therapy lately. I had been fatiguing not just a little but severely and I don’t know why. It’s the same routine I had been doing since November. Luckily, I had my daughter around when I got home to…

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Starting the process of getting an aid

Starting the process of getting an aid

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Good morning and happy Friday to everyone.  Most of the time I dictate my blog through the voice on my iPad. Then I go back and correct any mistakes, which are usually a lot and sometimes hilarious. What obviously never comes across is my voice inflections when I’m speaking, probably why my humor doesn’t come across. I guess you can’t hear sarcasm in words that you read. Oh well, back to my topic, which this morning is, that I started…

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Me and multiple sclerosis continued

Me and multiple sclerosis continued

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I’m sitting here with six exercises left of my P90X routine. Fuming actually that I haven’t been able to continue to finish the last six exercises.  This is certainly a first!!!!! I really just want to say go to hell MS.  This is such a sucky disease of times. It’s not bad enough that it takes a lot to muster the energy to exercise for any given person but an MS person its more of a push. I’m sitting here…

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Me and multiple sclerosis

Me and multiple sclerosis

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We’ve had a turbulent relationship over the last 19 years to say it mildly. There have been many one-sided fights. I’ve told my story before bug sometimes it’s worth repeating. My first MS attack (exacerbation) was sever. The entire left side of my body went numb and atrophied. I couldn’t walk, hold anything or feel on the left side. It came on fast starting in my foot on a Saturday and by the time I saw the doctor that Friday…

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A multiple sclerosis life coach

A multiple sclerosis life coach

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When you go to group meetings on the specific subjects, normally you talk about that subject. When I joined my MS support group,  I guess I thought it would be more of a round circle kind of discussion group. I’ve definitely have walked away with information that is very useful.  I’ve made friends that have been a wonderful additions.  I just thought it would be more of a support group of people talking of issues, frustrations and feelings. I didn’t…

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This is secondary progressive MS

This is secondary progressive MS

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I said in previous posts something was brewing with my MS lately, and unfortunately it still is. A quick note to my mom, if your about to read this, while in your hut, on a beautiful beach,on your vacation, I’m fine. I’m doing what I always do, accept, adjust, adapt. Well things aren’t so great MS wise, I wish I can say they were. Sometimes I wonder, did things get worse because I stopped working? Was that constant push on…

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Getting an aid getting help…accept, adjust, adapt

Getting an aid getting help…accept, adjust, adapt

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For all the bad moments, there are always good moments. I would love to say that I’m feeling a lot better, that whatever is brewing with my MS is gone, but I unfortunately can’t.  However as always, I’m back to my normal, my usual somewhat positive self. I think that might have to do with the fact that my little sister is in from California and I’m seeing her today.  The sun is out, although that wind is howling, but…

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The daily life and experiences with multiple sclerosis

The daily life and experiences with multiple sclerosis

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Yesterday was a bad day. First my doctor visit went as expected,  which was nowhere. What I mean, is that not much could be done at this point, my symptoms are treated symptomatically. He doesn’t really think  that I’m experiencing an MS hug, I don’t even think he really understood what an MS hug was. He’s been my doctor for 19 years and for the first time ever, I was a little shocked. Especially since the first thing we were…

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Multiple sclerosis travel challenges, even if it’s close travels

Multiple sclerosis travel challenges, even if it’s close travels

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Before I even start today’s blog, I need to give hug of condolences to my little sister, who put her dog Blueberry down yesterday. Blueberry now joins my Boomer over the rainbow bridge to wait for us with a few other past dogs she had. Lets once again discuss life with multiple sclerosis and its challenges. My daughter had to be in the city today to take a math placement exam for John Jay College. Since we had to be…

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